BlsdMama Posted May 26, 2017 Share Posted May 26, 2017 This month sucks. I officially love/hate May. Got the Lyme test - positive. Four bands and an indeterminate. That's darn near CDC positive. Have orders for antibiotics and a PICC. Had my Neuro appt. Tuesday. They referred me to the ALS Clinic with a three year temporary diagnosis of PLS. It becomes permanent if I don't develop ALS in the next three years. The clock has started.I am wiped out - mostly just emotionally.We have the big graduation ceremony tonight for DS #1. I should be so excited. But I am really emotional today and my throat hurts so bad I could cry. I should feel so happy today and instead I feel really sad. I am going to bawl my way through this damn ceremony if I can't get a grip on this. I hate this. I hate super sensitive emotions. I hate crying in front of people. All of it. i hate all of it. Quote Link to comment Share on other sites More sharing options...
scholastica Posted May 26, 2017 Share Posted May 26, 2017 Hugs and prayers. That's a lot to deal with. Quote Link to comment Share on other sites More sharing options...
TammyS Posted May 26, 2017 Share Posted May 26, 2017 I'm so sorry. I hate feeling that way, too. If you can, try to take a nap. It won't solve your problems, but it will help you cope with tonight. 1 Quote Link to comment Share on other sites More sharing options...
Guest Posted May 26, 2017 Share Posted May 26, 2017 Agree with a nap! That should help very much with your coping, as much as it can anyway. There is only so much cope you can fling at crazy ;) Quote Link to comment Share on other sites More sharing options...
Storygirl Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Praying for you! Quote Link to comment Share on other sites More sharing options...
Mimm Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Take care of yourself. You've been through such a difficult time. Anyone would be emotional. Quote Link to comment Share on other sites More sharing options...
Liz CA Posted May 26, 2017 Share Posted May 26, 2017 Of course you are wiped out. Didn't you just have a daughter's wedding as well? So, it's Lyme and that is good since they can treat it. What does it mean to have a temporary diagnosis for ALS? They are still not sure if it's only Lyme? For the throat, perhaps gargle with salt water and get some cough drops with honey in them. It will likely be a beautiful ceremony, cry if you want to! :grouphug: 5 Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted May 26, 2017 Share Posted May 26, 2017 Of course you are wiped out. Didn't you just have a daughter's wedding as well? So, it's Lyme and that is good since they can treat it. What does it mean to have a temporary diagnosis for ALS? They are still not sure if it's only Lyme? For the throat, perhaps gargle with salt water and get some cough drops with honey in them. It will likely be a beautiful ceremony, cry if you want to! :grouphug: This was my question too. Sending some hugs your way. Quote Link to comment Share on other sites More sharing options...
zoobie Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Posted May 26, 2017 Share Posted May 26, 2017 I'm sorry. Hang in there. Quote Link to comment Share on other sites More sharing options...
SKL Posted May 26, 2017 Share Posted May 26, 2017 (edited) Personally, I'd cry now and get it over with. :) And the nap sounds like an excellent suggestion. I hope you feel better soon. Edited May 26, 2017 by SKL 4 Quote Link to comment Share on other sites More sharing options...
maize Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Vent all you want. Cry when you need to. 2 Quote Link to comment Share on other sites More sharing options...
displace Posted May 26, 2017 Share Posted May 26, 2017 Vent away! You've been through a lot recently. Even with a "better" diagnosis, you still have a condition that is affecting you. I'd also check if Lyme can cause mood changes and blame it on that too! Quote Link to comment Share on other sites More sharing options...
Anne in CA Posted May 26, 2017 Share Posted May 26, 2017 Your life has been a real roller coaster. Even without the health issues having your oldest children become adults while still actively parenting littles would be A LOT for anyone. You are entitled to hard time feeling happy. I am pretty sure you won't take advantage, lol. You are a winner. You'll be back to your self pretty soon, I bet. 2 Quote Link to comment Share on other sites More sharing options...
Stacia Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
ScoutTN Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
SparklyUnicorn Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
Selkie Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: I'm sorry. I think the uncertainty about your diagnosis would be very difficult to endure, and I admire you for handling it as well as you have. Quote Link to comment Share on other sites More sharing options...
Twigs Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted May 26, 2017 Share Posted May 26, 2017 I think I would feel exactly as you do. Maybe most of us would? So vent away, cry, nap, eat some ice cream, and we'll continue to pray, be a sounding board, and hold you up however we can. 1 Quote Link to comment Share on other sites More sharing options...
Katy Posted May 26, 2017 Share Posted May 26, 2017 Feel free to continue to come back and complain as the side effects from the antibiotics kick in. They made us all feel worse for the entire time we were one them. Lots of water and rest and venting. Personally thanking God you have Lyme. Hope that's all it is and the ABX will kick in soon and make you feel remarkably better immediately. 4 Quote Link to comment Share on other sites More sharing options...
Ethel Mertz Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
Seasider Posted May 26, 2017 Share Posted May 26, 2017 Goodness you have earned a cry! I am praying that the abx will successfully kick out the Lyme and any other tickborne junk so that the folks at the PLS clinic just scratch their heads and think what's she doing here? She's fine.... I agree with the others - eat a cookie, take a nap. 4 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted May 26, 2017 Share Posted May 26, 2017 Hugs Quote Link to comment Share on other sites More sharing options...
MercyA Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
SarahW Posted May 26, 2017 Share Posted May 26, 2017 BlsdMama, have you gotten any prescription relief? You have nerve symptoms? Nerve pain? I'm waiting for my appt with the Lyme clinic, but my doc did put me on a scrip for nerve pain. I think the brand name in America is Eleve? Amphiti....something. Helps nerve pain, and anxiety, and moods, and sleep, and other stuff. It's great. I can get out of bed and do stuff now. And not feel like yelling at everyone, and then weeping because I hurt, but it's hard to say how it hurts, which is even sadder. Anyways, don't know how far away treatment is for you. But it's worth asking your regular doc for something to ease your mind and your symptoms in the meantime. Before this all happened i had friends who would post FB memes about their struggles with chronic pain and/or chronic illness, and I was totally sympathetic and all, but I was still like "well, yeah, that's tough," No, chronic pain and chronic illness is absolutely horrid. Totally horrible. Beyond horrendous. If your doc can find you a good med that helps you, even temporarily, I think it's worth it. 2 Quote Link to comment Share on other sites More sharing options...
debinindy Posted May 26, 2017 Share Posted May 26, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Greta Posted May 26, 2017 Share Posted May 26, 2017 Oh, Kelly, that is so much to deal with. I'm so sorry. :grouphug: Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted May 26, 2017 Share Posted May 26, 2017 BlsdMama, have you gotten any prescription relief? You have nerve symptoms? Nerve pain? I'm waiting for my appt with the Lyme clinic, but my doc did put me on a scrip for nerve pain. I think the brand name in America is Eleve? Amphiti....something. Helps nerve pain, and anxiety, and moods, and sleep, and other stuff. It's great. I can get out of bed and do stuff now. And not feel like yelling at everyone, and then weeping because I hurt, but it's hard to say how it hurts, which is even sadder. Anyways, don't know how far away treatment is for you. But it's worth asking your regular doc for something to ease your mind and your symptoms in the meantime. Before this all happened i had friends who would post FB memes about their struggles with chronic pain and/or chronic illness, and I was totally sympathetic and all, but I was still like "well, yeah, that's tough," No, chronic pain and chronic illness is absolutely horrid. Totally horrible. Beyond horrendous. If your doc can find you a good med that helps you, even temporarily, I think it's worth it. Amitriptyline is an anti-depressant which is used in low doses for some chronic illness pain. Quote Link to comment Share on other sites More sharing options...
Lilaclady Posted May 26, 2017 Share Posted May 26, 2017 ((((Hugs)))) and congratulations to you and DS Quote Link to comment Share on other sites More sharing options...
StaceyinLA Posted May 26, 2017 Share Posted May 26, 2017 I'm so sorry. It sounds like a LOT going on for sure. Hugs and prayers! Quote Link to comment Share on other sites More sharing options...
gardenmom5 Posted May 26, 2017 Share Posted May 26, 2017 Hugs. That's a lot to deal with. Quote Link to comment Share on other sites More sharing options...
cintinative Posted May 26, 2017 Share Posted May 26, 2017 Prayers for you. Quote Link to comment Share on other sites More sharing options...
creekland Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: and to answer your title question, yes, yes you can. I hope things get better relatively soon and it's certainly no shame to cry at graduation. I did... more than once. :grouphug: Quote Link to comment Share on other sites More sharing options...
EMS83 Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
TechWife Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
ikslo Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: Nothing wrong with crying. Quote Link to comment Share on other sites More sharing options...
GailV Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: Venting and crying are so important. Quote Link to comment Share on other sites More sharing options...
ktgrok Posted May 27, 2017 Share Posted May 27, 2017 I'm actually glad to see you venting, I was starting to think you were super human, how well you've been dealing with everything!!!! Hugs, and prayers that everything goes well, with treatment and life in general. 2 Quote Link to comment Share on other sites More sharing options...
Tap Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
SarahW Posted May 27, 2017 Share Posted May 27, 2017 Amitriptyline is an anti-depressant which is used in low doses for some chronic illness pain. Yes! that's how you spell it! It was the drug that was an anti-depressant before SSRI's or something. At low doses it is used for lots of things because of how it works chemically. Few or mild side effects - unlike the Tramadol I tried, which left me shaking and nearly passed out. That was a very not-fun day. And not addictive - unlike the Valium my doc suggested. Can we exhaust other possibilities first? Maybe because my Lyme is open-and-shut (I seem to fit perfectly in the thing called PTLD, right down to the timeline and symptoms) and I got a referral quickly and everything is covered by insurance, but I'm pretty blaise about it. In a few months I'll probably be pumped full of abx, but until then I just want to be half-functional please. Chemically, if necessary. Unrelenting symptoms really grind a person down. Just want to make sure the OP knows that I don't see any shame in asking her doctor for a bit of help there. There's only so much a person can tough out until they're empty. Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Jaybee Posted May 27, 2017 Share Posted May 27, 2017 :grouphug: :grouphug: :grouphug: I hope you are feeling better today. I can't remember the order, but I couldn't help but think, "Sandwich, shower, nap." Not because you are acting like a teenager (far from it!), but because it sounded like what you needed--a little space, a little comforting, a little rest. 4 Quote Link to comment Share on other sites More sharing options...
Joyofsixreboot Posted May 28, 2017 Share Posted May 28, 2017 Hugs :grouphug: Sent from my SAMSUNG-SM-G900A using Tapatalk Quote Link to comment Share on other sites More sharing options...
heartlikealion Posted May 28, 2017 Share Posted May 28, 2017 So sorry. Hope you were able to enjoy the ceremony and that your throat is doing better. Quote Link to comment Share on other sites More sharing options...
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