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Jean in Newcastle

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Everything posted by Jean in Newcastle

  1. I didn't chime in because I haven't tried Cymbalta but I think that this is wise. I have always tried to get to the root of the problem if possible. (Part of my issue is that they still don't completely agree on what the root problem is for fibromyalgia - but that's another thread.) I will say though that many many years ago I was put on a trial of another antidepressant for my pain and it caused me to have heart issues. I obviously stopped taking it.
  2. I had a feeling when I went to take a shower that I would come out to mysterious bunny tourists. I was right. I have NOW opened the gate.
  3. Which does explain why the other parents aren't complaining. They really aren't interested in their kids advancing in their art skills. They just want something mildly interesting to pass the time and give them a social outlet. Which is ok if that is what you are up front about offering, but not ok if it's advertised as specific art instruction - especially in a specific medium.
  4. I wonder if the teacher of any of those would consider "tutoring" her in technique for one year? Just trying to think outside the box. . .
  5. OP - are there any adult extension classes taught in your area? Perhaps looking for adult technique classes might be a better fit.
  6. But you are advertising a very broad undefined class. So it is allowed to be a very broad undefined class. Even so, if you advertised "advanced topics for kids" and then only taught finger counting, then people would have a right to be mad. Or if the advanced topics were advertised as all math (as I would suppose) and you then taught Shakespearean sonnets, then they would also have a right to be mad.
  7. “The stompy elephant “ that I am married to had to grt up early this morning and rush out the door. This has been rare in the last couple of years so I shouldn’t complain- too much.
  8. Advertised for enrichment? Then I wouldn’t necessarily expect syllabi etc. But I would expect truth in advertising- so if they said that they would teach watercolor then I would be unhappy with a switch to sculpture.
  9. I forgot to put Quercetin on my supplement list.
  10. Mental Health and Chronic Fatigue/Illness: As I told one doctor, being depressed that I have a lifetime of pain and fatigue with no known cure is the healthy reaction. What do you want me to do? Laugh about it? That said, while I vent once in awhile, I try not to dwell on it. I try instead to focus on what I can do etc. And I don't always vent to the same people - this includes my husband. It's very hard for people to hear vents about something that they can do absolutely nothing about. My biggest "vents" are when I'm pouring my heart out to God. I try to keep track of those small victories/advancements that I have. I try not to look too far ahead at my goal of "being normal again". It's too far ahead and it's too depressing. And I have no control over whether I can make it that far even though I'm fighting for every inch I go in that direction. I believe that it was Prairie, on this board, who told me about looking for chronic illness pins on Pinterest. I have quite a large collection of Chronic Illness pins there - many of them dark chronic illness humor from people in my same boat. (The sloth and turtle are my spirit animals. 😉 ) It helps to know that I'm not alone. And it helps to try to see the humor in things. I also look at informational articles from time to time but by this time in my journey there isn't a lot new that's out there. I also have a collection of verse pins that I find comforting and inspiring. Covid lockdown actually improved my social life. For the first time people were home and glad to talk on the phone for a bit. . . You cannot see my pain in my face. I'm a good poker player. My son and dh are the only two people that I know of who can tell at a glance that I'm in pain.
  11. Physical supports: Stress = fatigue and pain. This can be mental stress. This can be stress from illness. This can be stress from not eating/drinking/exercising correctly. (And in my case, exercising anything outside of a very narrow band of not too much and not too little.) This can be stress from the changing seasons (my body doesn't do temperature change very easily and if I'm really fatigued, I can't keep my own body temperature at normal levels). So eat right. Fruits, veggies, gluten free if possible, anti-inflammatory if possible, good sources of protein, some say no dairy but I haven't been able to sustain that), no sugar. Drink lots. Water mostly. Avoid stimulants like coffee, tea etc. if possible. It might give you a burst of energy but then your body will crash. Don't become a semi-invalid like I did. Possible supplements / meds that might help: (Do your research, preferably consult a good naturopathic doctor who takes a scientific approach and not a "Woo" approach): vitamin C vitamin D B vitamins - methylated if possible amino acids magnesium other electrolytes melatonin sustained release for sleep DHEA - is the daytime hormone that works with melatonin (but take in the morning) Co-Q-10 Chromium low dose naltrexone curcumin Chronic illness is not cheap. . . .
  12. Emergency mode, Regular mode and everything in between: You might be still in emergency mode all the time (I was at first) but eventually I had good days and bad). Emergency mode for me means that I work like hell to get dressed at some point (I just finally made it today and it's 3 pm - but I also had to do laundry to make that happen), provide (not necessarily make) meals and wash the dishes. I have certainly had days when I couldn't get even that much done but it's always my baseline goal. Emergency mode means resorting to emergency mode meals: perhaps a rotisserie chicken and some deli salads. Perhaps something from the freezer. If you haven't heard of Spoon Theory yet, here it is: https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I can go from feeling like I "have spoons left" to have absolutely none left at all with no warning. This happened last night. It was very hard to even do the bare minimum needed to get into bed at that point because even moving my body down the hall to make that happen felt like too much. And then once I am in bed at that point I am often "too tired/painful to sleep". I woke up this morning after Six hours 37 minutes of sleep (which is actually pretty good for me) still feeling like I had no spoons and had been hit by a Mack truck to boot. I still have to figure out food. . . I try not to rely on dh very much for help if I can at all help it. There is a lot he has to do that I can't do even on a good day. I don't want to add to the load if at all possible. Being married to someone who's chronically ill/fatigued is not easy. I am very cognizant of that fact.
  13. Coming back for more chronic fatigue/illness tips: If the brain fog is bad, I find that saying what I am doing (and going to do) out loud helps to keep my brain on track. No one in my family looks at me funny any more when I do it. I break down "big" tasks into small chunks. These are things like folding a load of laundry or washing dishes. I can't always do the whole task at once like a normal person. So I will fold and put away five pieces of clothing (and have been known to reward myself with a chocolate chip for the effort. 😉 ) or will wash five dishes. Then rest. Then five more. Then rest. Etc. Yeah, it's frustrating if you've been used to doing five of those "big tasks" in a row and now are breaking just one of them down into tiny chunks. But it is what it is. I find that if the pain is bad enough to make doing the chore difficult but not bad enough to stop me altogether, it can help to have "company". This can be putting my phone on speaker while I talk / listen to a friend or family member talking, or talking to a family member in person while I do the chores. It gets my mind off the difficulty of doing the chore. Distraction is my friend. TV, podcasts, music etc. can also be distractions. Chronic fatigue requires a lot of planning. I can't do multiple days of activity in a row. I plan one. Then I "plan" to be out of commission for a couple of days after that. If I'm ok, then it's a bonus.
  14. According to the CDC, the age adjusted increase in deaths in 2020 was 15.9% https://www.cdc.gov/mmwr/volumes/70/wr/mm7014e1.htm
  15. In the US? Canada? Australia? Europe? It's a big world out there. . . .
  16. I wonder if I should have used the word "tips" since I don't feel like I've mastered this at all. In fact, last night I ran into a "concrete wall" of pain and fatigue and am now in a flare that "came out of nowhere". I will try to tell you a bit about my life over the past 30 plus years (actually closer to 40 than 30. . . eek!) I am going to start with a caveat though. For me, fatigue and pain are very closely linked. So closely that I would say that fatigue = pain for me. Cold = pain for me. Hot = pain for me. (in other words, my body interprets pretty much anything as pain. . . ) so much of my life centers around pushing through pain (since avoiding it doesn't seem to work). I will come back to this throughout the day to post my thoughts in categories. But my first tip is to establish routines. My life runs on routines. I am going to go do my morning routine in a minute. But having routines helps me through the brain fog that comes with fatigue. It's much easier not to forget my meds, for instance when I know that my routine has it right after eating breakfast. This is also why I've done the tackle threads here for years - it helped to write down those routines and it helped me mentally to see that I was getting something done - even on those days when it seemed like a struggle to wash one fork. (BTW - I still tackle each day - I just do it now with a WTM friend over text.) Routines also helped my children through the years. As a busy mom, I'm sure that you have some already.
  17. So. . . I have put the fence back with zip ties. The bunnies are already planning their next coup. But I am too tired tonight to come up with a different solution. At least they haven't figured out how to open the door to their room yet so I won't get little bunny feet hopping over my face during the night.
  18. ??? I never said anything about deaths being good? I just said that I might not know that they occurred. What a strange response.
  19. But unless those people were people in my inner circle, I wouldn't know if I was missing them. I mean, I wouldn't know if the cashier I chat with at the grocery store has died or if they just have a different shift or have retired.
  20. So I peek into the bunny room and they weren't content with me opening the gate. They totally undid the zip ties that were "locking " the fence in place. And they did this without opposable thumbs!
  21. Even outside of Covid, people don't understand chronic fatigue and illness. They think that because they've had a sleepless night or two that they know what the fatigue is like. They don't. Unless you have to gear up for a shower and then have to rest afterwards, you don't really understand what fatigue is. . . I have had chronic illness for over 30 years. I still have siblings who have no clue. (They should have a clue. . . but they don't. ) And frankly, despite talking about it online, I don't tend to talk about it in real life much. There isn't anything anyone can do to fix me (and I'm tried of being offered essential oils, supplements and coffee enemas. . .) I do have a good naturopathic doc as well as my allopathic one. The two together work well for me - though again, no cures, but there have been things which have made things better. Practically speaking, I have learned to be productive starting in five minute intervals (and at times even shorter intervals). It sucks. Part of me is resigned to "it is what it is" and part of me is researching, trying new things and praying while refusing to give up. I can give some tips for what has helped me, but my journey (which started with a completely different virus) might not be the same as yours. I will say that in my case, I have had to fight to keep from being a semi-invalid. Muscles atrophy, metabolism tanks, and it's a serious nightmare to combat. But there is a vicious circle because. . . crushing fatigue and in my case, chronic pain.
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