Jump to content


What's with the ads?

Photo
- - - - -

Today sucked. - Update #201


248 replies to this topic

What's with the ads?

#51 Just Kate

Just Kate

    Hive Mind Royal Larvae

  • Members
  • PipPip
  • 2337 posts

Posted 14 March 2017 - 06:01 AM

Praying for you now! (((hugs)))

#52 [email protected]

[email protected]

    Hive Mind Level 5 Worker: Forager Bee

  • Members
  • PipPip
  • 1119 posts

Posted 14 March 2017 - 06:04 AM

So sorry to hear this.  We'll pray.



#53 Another Lynn

Another Lynn

    Got Coffee?

  • Members
  • PipPipPipPipPip
  • 7991 posts

Posted 14 March 2017 - 06:13 AM

Praying!   :grouphug:



#54 LMD

LMD

    Hive Mind Queen Bee

  • Members
  • PipPipPip
  • 2685 posts

Posted 14 March 2017 - 06:17 AM

Oh wow, scary. Prayers for you and your family.

#55 SparklyUnicorn

SparklyUnicorn

    Beekeeping Professor

  • Members
  • PipPipPipPipPipPip
  • 32124 posts

Posted 14 March 2017 - 06:18 AM

sorry 



#56 debinindy

debinindy

    Hive Mind Larvae

  • Members
  • Pip
  • 180 posts

Posted 14 March 2017 - 06:35 AM

Add me to the list of those praying for you...peace above all else.

 

:grouphug:  :grouphug:



#57 Quill

Quill

    Team Introvert - Captain

  • Members
  • PipPipPipPipPipPip
  • 15228 posts

Posted 14 March 2017 - 06:49 AM

I am so sorry, Kelly. Many healing thoughts coming your way.

#58 JudoMom

JudoMom

    Disliker of Change

  • Members
  • PipPipPipPipPipPip
  • 13305 posts

Posted 14 March 2017 - 06:56 AM

Praying for peace. I'm sorry.

#59 8circles

8circles

    Hive Mind Queen Bee

  • Members
  • PipPipPipPip
  • 6002 posts

Posted 14 March 2017 - 07:12 AM

{{{Kelly}}}

 

Lots of hugs. And prayers.



#60 Minerva

Minerva

    Hive Mind Queen Bee

  • Members
  • PipPip
  • 1047 posts

Posted 14 March 2017 - 07:28 AM

:grouphug:  :grouphug:  :grouphug:



#61 Rach

Rach

    Empress Bee

  • Members
  • PipPipPip
  • 3140 posts

Posted 14 March 2017 - 07:30 AM

I'm sorry! I'm saying a prayer for you.

#62 beckyjo

beckyjo

    Hive Mind Level 4 Worker: Builder Bee

  • Members
  • PipPip
  • 1123 posts

Posted 14 March 2017 - 07:34 AM

Oh, I am so sorry, BlsdMama. Huge hugs to you! :grouphug: Prayers being sent up for you. 



#63 Innisfree

Innisfree

    Hive Mind Queen Bee

  • Members
  • PipPip
  • 872 posts

Posted 14 March 2017 - 07:38 AM

I'm so sorry. I hope you get some good news soon. Hugs.

#64 umsami

umsami

    Empress of Messiness, but not a hoarder

  • Members
  • PipPipPipPipPip
  • 8842 posts

Posted 14 March 2017 - 07:42 AM

Praying for you, your husband, and your family.  :grouphug:

 

Praying that God guides you to the right specialists who can offer you the best care and treatment no matter what is wrong with you (and hoping and praying that it is something easily treatable--not ALS). 


  • RootAnn likes this

#65 Lizzie in Ma

Lizzie in Ma

    Subversive Humorist

  • Members
  • PipPipPipPipPip
  • 7786 posts

Posted 14 March 2017 - 08:29 AM

:grouphug: :grouphug:



#66 regentrude

regentrude

    Qualified Bee Keeper

  • Members
  • PipPipPipPipPipPip
  • 22960 posts

Posted 14 March 2017 - 08:36 AM

I am so sorry you have to go through this. Sending lots of good thoughts.



#67 Zoo Keeper

Zoo Keeper

    Tamer of Man and Beasts

  • Members
  • PipPip
  • 2081 posts

Posted 14 March 2017 - 08:43 AM

:grouphug: :grouphug: Praying for you, your family, and the medical folks.  Peace and wisdom for all of you. :grouphug:



#68 AmandaVT

AmandaVT

    Hive Mind Queen Bee

  • Members
  • PipPip
  • 2199 posts

Posted 14 March 2017 - 08:52 AM

:grouphug:  :grouphug:  You are in my thoughts BlsdMama. 



#69 MooCow

MooCow

    Hive Mind Level 2 Worker: Nurse Bee

  • Members
  • PipPip
  • 1314 posts

Posted 14 March 2017 - 08:54 AM

Praying

#70 BlsdMama

BlsdMama

    Chief Zookeeper

  • Members
  • PipPipPipPip
  • 5747 posts

Posted 14 March 2017 - 08:56 AM

*
POPULAR

Sending prayers and  :grouphug: .  Are there other options?

Pretty much just MNDs - Motor Neuron Diseases

It's asymmetrical which rules out a lot. It's painless which rules out more.  The brain and spine look great, rules out more.  Finally the muscle is atrophying.  Toss in there cell death and atrophy.  Nope, a pretty short list.  And, really the four are pretty similar.  Primary LS doesn't kill you but is, in other ways, like ALS.  The other two MNDs are even more rare - many believe they eventually result in ALS and so are a slow moving progression towards it. 

While he didn't want to talk about my interstitial pain being related yesterday, he and I both know that if this is ALS then it is related.  It shows respiratory involvement and that is a more pressing concern.  Dying this way will suck.  No nice way about that.

I still think this is Lyme.  We will take the diagnosis but we are pursuing Lyme outside of the medical community in Iowa.  Lyme can be diagnosed as ALS.  It's plain stupid that they don't give ALS patients two weeks of IV antibiotics.  What are they scared of?  They might kill them?  LOL.  Um, yeah.
 

 

I am so sorry, This is very upsetting. I pray they are wrong but a friend of mine had it and there is so much help available.

I don't want to be a bummer but I really am sorry.

 

 

That does suck, wow. Can you get hooked up with a counselor? It's time. If the answer is no ALS, then you just dump them when you're done. 

 

And get somebody good, not somebody inexperienced or local. Maybe the hospital or the doctor can refer you. Just go ahead and do it. Go with your dh BEFORE you think you need it. Sounds like you'd already benefit from it.

 

I think so - I think once the official diagnosis comes in then a lot will be open to us.  It's not a long wait. The EMG is on Monday and it should give us a pretty definitive picture now that everything else is ruled out.  Iowa has an ALS Clinic and my guess is they are more experienced than our local neuros, kwim?  Thank you for the recommendation, truly.

 

We are in a OK. My friend went to KC for a definitive test.

Where can you go for a definitive test?

I wish there was a definitive test - ALS is more of a let's rule out absolutely everything else.  Then, let's wait for your muscle to begin to atrophy.  Then, let's give you another EMG.  If we see muscle death in more than one area, ta da, we will know this is ALS.  We're at that last step.  The only issue I have is that Lyme can perfectly mimic ALS.  And there is no way to differentiate the two.  There isn't a test for ALS per se.  Just clinical observation, ruling out everything else, then watching your muscle groups die one at a time.  Blech.


You know what kills me?  (Not meant as a pun, though I've found this week that I have a gift for dark humor.) Dying this way wouldn't be so horrible if I didn't know the kids were going to have to watch this.  Can you fathom that?  My kids will have to watch this.  Dear God.  

My 50-60 year old aunts and uncles were raked over the coals watching their 80 year old mother melt away to a skeleton due to dementia.

 

Abigail is 10.  She is TEN.  She is my right hand.  This will SLAUGHTER this child.  Elizabeth is fifteen.  She is bright and bubbly and carefree.  This is going to change her personality. :(  Ana is getting married, having a baby. This should be the happiest year of her life and I am going to ruin it.  The baby's first year is going to be this horrible blur of sadness. And Ella? No one gets Ella.  She is so hyper that no one looks past her busy body and mind to see that her heart is absolutely solid gold.  Who will love them like their mama loves them???  My husband is AMAZING.  If anyone can do this, then he is the man to do it. But, even as Super Dad, seriously, this is just mama territory.  

Cate and William will never remember so it's best on them.  Olivia is so profoundly dyslexic that I wonder what the hell the school system will do to hurt her.  Rebecca (13) is my aspie (not dx'd but still...)  Thank God for our homeschool program.  That will allow her to stay homeschooled and blossom but I can't help but think life would be so much easier on her with a mama to translate the world and navigate teen years, kwim? 

Mamas, never underestimate what you do.  Every day you spend homeschooling, loving, nurturing your children, it is the world to them.  You may feel taken for granted, but their lives would change if you weren't there doing what you do. <3


Edited by BlsdMama, 14 March 2017 - 09:00 AM.

  • chiguirre, Ali in OR, Barb_ and 49 others like this

#71 mommyoffive

mommyoffive

    Just Visiting

  • Members
  • PipPip
  • 1798 posts

Posted 14 March 2017 - 09:06 AM

I am in tears over here.  You are a such an amazing writer and your last few lines.  My heart.

 

I am sending every good prayer your way.  

 

 


  • Barb_, debinindy, NorthwestMom and 4 others like this

#72 Selkie

Selkie

    Hive Mind Royal Larvae

  • Members
  • PipPip
  • 723 posts

Posted 14 March 2017 - 09:06 AM

I hope it is Lyme. And you are one fantastic mom. The love for your kids that shines through in your words is beautiful.  :grouphug:


  • MercyA and Alittledeal like this

#73 Moxie

Moxie

    Hive Mind Queen Bee

  • Members
  • PipPipPipPipPip
  • 8169 posts

Posted 14 March 2017 - 09:10 AM

Just no words. I'm so sorry.

#74 Scarlett

Scarlett

    Beekeeping Professor

  • Members
  • PipPipPipPipPipPip
  • 17119 posts

Posted 14 March 2017 - 09:16 AM

I am so sorry.  Your kids are fortunate that you are their mom.  They won't forget your love for them and it will carry them through life even if you are gone. But you aren't gone and no one knows the future so I opt to stay positive on your behalf.


  • BlsdMama, jewellsmommy, YaelAldrich and 3 others like this

#75 creekland

creekland

    Retired homeschooler!

  • Members
  • PipPipPipPipPipPip
  • 21104 posts

Posted 14 March 2017 - 09:17 AM

I still think this is Lyme.  We will take the diagnosis but we are pursuing Lyme outside of the medical community in Iowa.  Lyme can be diagnosed as ALS. 

 

Then I'm praying you are correct.   :grouphug:

 

Even if not, your husband and kids are going to remember you as one awesome mama.  You've shown us a piece of it just in your writing and caring for them.

 

But still... praying for Lyme.


  • transientChris, Anne in CA and umsami like this

#76 Sue in TX

Sue in TX

    Hive Mind Level 5 Worker: Forager Bee

  • Members
  • PipPip
  • 902 posts

Posted 14 March 2017 - 09:19 AM

Pretty much just MNDs - Motor Neuron Diseases

It's asymmetrical which rules out a lot. It's painless which rules out more. The brain and spine look great, rules out more. Finally the muscle is atrophying. Toss in there cell death and atrophy. Nope, a pretty short list. And, really the four are pretty similar. Primary LS doesn't kill you but is, in other ways, like ALS. The other two MNDs are even more rare - many believe they eventually result in ALS and so are a slow moving progression towards it.

While he didn't want to talk about my interstitial pain being related yesterday, he and I both know that if this is ALS then it is related. It shows respiratory involvement and that is a more pressing concern. Dying this way will suck. No nice way about that.

I still think this is Lyme. We will take the diagnosis but we are pursuing Lyme outside of the medical community in Iowa. Lyme can be diagnosed as ALS. It's plain stupid that they don't give ALS patients two weeks of IV antibiotics. What are they scared of? They might kill them? LOL. Um, yeah.





I think so - I think once the official diagnosis comes in then a lot will be open to us. It's not a long wait. The EMG is on Monday and it should give us a pretty definitive picture now that everything else is ruled out. Iowa has an ALS Clinic and my guess is they are more experienced than our local neuros, kwim? Thank you for the recommendation, truly.

I wish there was a definitive test - ALS is more of a let's rule out absolutely everything else. Then, let's wait for your muscle to begin to atrophy. Then, let's give you another EMG. If we see muscle death in more than one area, ta da, we will know this is ALS. We're at that last step. The only issue I have is that Lyme can perfectly mimic ALS. And there is no way to differentiate the two. There isn't a test for ALS per se. Just clinical observation, ruling out everything else, then watching your muscle groups die one at a time. Blech.


You know what kills me? (Not meant as a pun, though I've found this week that I have a gift for dark humor.) Dying this way wouldn't be so horrible if I didn't know the kids were going to have to watch this. Can you fathom that? My kids will have to watch this. Dear God.

My 50-60 year old aunts and uncles were raked over the coals watching their 80 year old mother melt away to a skeleton due to dementia.

Abigail is 10. She is TEN. She is my right hand. This will SLAUGHTER this child. Elizabeth is fifteen. She is bright and bubbly and carefree. This is going to change her personality. :( Ana is getting married, having a baby. This should be the happiest year of her life and I am going to ruin it. The baby's first year is going to be this horrible blur of sadness. And Ella? No one gets Ella. She is so hyper that no one looks past her busy body and mind to see that her heart is absolutely solid gold. Who will love them like their mama loves them??? My husband is AMAZING. If anyone can do this, then he is the man to do it. But, even as Super Dad, seriously, this is just mama territory.

Cate and William will never remember so it's best on them. Olivia is so profoundly dyslexic that I wonder what the hell the school system will do to hurt her. Rebecca (13) is my aspie (not dx'd but still...) Thank God for our homeschool program. That will allow her to stay homeschooled and blossom but I can't help but think life would be so much easier on her with a mama to translate the world and navigate teen years, kwim?

Mamas, never underestimate what you do. Every day you spend homeschooling, loving, nurturing your children, it is the world to them. You may feel taken for granted, but their lives would change if you weren't there doing what you do. <3


Through tears, I have read your words of great wisdom and heartache. I will earnestly pray for you and your kids. I've learned so much from you. (((Hugs))) and prayers.


Sent from my iPhone using Tapatalk
  • debinindy, Katy and texasmom33 like this

#77 Barb_

Barb_

    Master of None

  • Members
  • PipPipPipPipPip
  • 8485 posts

Posted 14 March 2017 - 09:21 AM

I don't even know what to say, but your words are beautiful. Please continue to share your thoughts with us if it helps at all.
  • Penguin likes this

#78 azmom

azmom

    Hive Mind Royal Larvae

  • Members
  • PipPip
  • 984 posts

Posted 14 March 2017 - 09:21 AM

:grouphug:  :grouphug:

 

I'm so sorry to hear this news. I'll be praying that it isn't ALS.



#79 Mergath

Mergath

    Beekeeping Professor

  • Members
  • PipPipPipPipPipPip
  • 10505 posts

Posted 14 March 2017 - 09:37 AM

:grouphug: :grouphug: :grouphug:



#80 Critterfixer

Critterfixer

    Mr. Mom-Head

  • Members
  • PipPipPipPipPip
  • 9265 posts

Posted 14 March 2017 - 09:46 AM

:grouphug: Prayers for peace and comfort for you and your family.



#81 Spudater

Spudater

    Hive Mind Level 5 Worker: Forager Bee

  • Members
  • PipPip
  • 314 posts

Posted 14 March 2017 - 09:58 AM

Praying for you.

#82 MysteryJen

MysteryJen

    Empress Bee

  • Members
  • PipPipPip
  • 2890 posts

Posted 14 March 2017 - 10:01 AM

:grouphug: Praying with you.



#83 clementine

clementine

    Hive Mind Queen Bee

  • Members
  • PipPip
  • 2179 posts

Posted 14 March 2017 - 10:06 AM

I'm so glad you're still pursuing Lyme treatment & diagnosis!!!  I truly hope that's what this is!  Prayers for you & your family.   :grouphug:


  • umsami, MercyA and RioSamba like this

#84 Meriwether

Meriwether

    Hive Mind Queen Bee

  • Members
  • PipPipPip
  • 3238 posts

Posted 14 March 2017 - 10:09 AM

:grouphug:  :grouphug:  :grouphug:  Praying for Lyme.

 



#85 1234

1234

    Amateur Bee Keeper

  • Members
  • PipPipPip
  • 4460 posts

Posted 14 March 2017 - 10:10 AM

:grouphug:  :grouphug:  :grouphug:

 

Praying for you, especially, and your whole family.


Edited by 1234, 16 March 2017 - 03:18 PM.


#86 EKS

EKS

    Qualified Bee Keeper

  • Members
  • PipPipPipPipPipPip
  • 13450 posts

Posted 14 March 2017 - 10:15 AM

:grouphug:



#87 Pawz4me

Pawz4me

    Hive Mind Level 6 Worker: Scout Bee

  • Members
  • PipPipPipPipPip
  • 8085 posts

Posted 14 March 2017 - 10:16 AM

:grouphug:  :grouphug:  :grouphug:



#88 transientChris

transientChris

    Bee Keeper

  • Members
  • PipPipPipPipPip
  • 9753 posts

Posted 14 March 2017 - 10:26 AM

Prayers for you.



#89 Jackie in AR

Jackie in AR

    Hive Mind Queen Bee

  • Members
  • PipPip
  • 2040 posts

Posted 14 March 2017 - 10:30 AM

Your post made me cry.

 

I'm praying for Lyme's. Never thought I would say that to anyone.

 

(((Kelly)))


  • jewellsmommy likes this

#90 BlsdMama

BlsdMama

    Chief Zookeeper

  • Members
  • PipPipPipPip
  • 5747 posts

Posted 14 March 2017 - 10:36 AM

:grouphug:  :grouphug:  :grouphug:

 

But you ARE taking the strong antibiotics, aren't you??  I mean, it's entirely possible it COULD be Lyme's, right?  

 

Praying for you, especially, and your whole family.

 

 

If I can find someone to prescribe them I would be happy to inject it myself. :p :(  Sadly, that is a challenge. We are contacting a woman in Dubuque to get muscle (?) tested.  If it comes back positive then we will be in contact with a LLMD to get antibiotics.  Really, what's the worst?  It is ironical that they don't just give all ALS patients a two week course of IV antibiotics, eh?  My urge to call TLC, who has an affinity for big families, and throw a fit about ALS and Lyme is getting strong.  I'm such a big mouth, lol.


  • Scarlett, 1234, jewellsmommy and 6 others like this

#91 solascriptura

solascriptura

    Hive Mind Worker Bee

  • Members
  • PipPip
  • 774 posts

Posted 14 March 2017 - 10:41 AM

I am so sorry.  



#92 OhElizabeth

OhElizabeth

    Beekeeping Professor

  • Members
  • PipPipPipPipPipPip
  • 28406 posts

Posted 14 March 2017 - 10:52 AM

It's time to get your kids with disabilities evals and IEPs. They have to have plans in place for anything. Not being somber but just realistic. My ds has an IEP. It took us two years and it's still not the best. We're doing more evals to go at it again. Usually you can do them in a year. If you make the request now, you could get it done by fall using the 120 days of the law. 

 

You write a letter saying you suspect learning disabilities (autism, dyslexia, etc.), give it to the secretary at the school, dated, retaining a copy, and that starts the clock ticking. 

 

You could also do private evals (which are almost always better) obviously. I'm just saying, being somewhat in your position myself (variable health, dc with significant, challenging SN), an IEP is legal protection. It's a document so that anyone who needs to help you knows the plan.

 

You can also write what is called a "letter of intent" for each child. You could write it this week, type, sign, print, and put in a file somewhere. A letter of intent is not legally binding, however it is *guidance* to anyone who would be guardians of your dc as to what you envisioned for them, what you dreamed. It's your gift to them. It would be something you could do now with all this emotion you're feeling. Write one for every single dc. With your SN dc, you can be very specific even, delineating schools, curricula, tutors, anything that would help them in the short term or long-term. It can say ANYTHING, anything you want that other person to know. It might give you some peace, knowing that, no matter what, people know what you intended for your kids, that you've given them that gift.

 

I think your kids will be fine watching whatever happens. Kids are resilient. You'll get them counseling. It will be fine.


  • Barb_, Hannah, StephanieZ and 6 others like this

#93 gardenmom5

gardenmom5

    Amateur Bee Keeper

  • Members
  • PipPipPipPipPipPip
  • 17483 posts

Posted 14 March 2017 - 10:53 AM

hugs.  Hoping for the best.



#94 lauraw4321

lauraw4321

    Hive Mind Level 6 Worker: Scout Bee

  • Members
  • PipPip
  • 470 posts

Posted 14 March 2017 - 10:57 AM

From what I've read, the average is 2-5 years after diagnosis. Not to be so crass, but you seem to be ready for blunt conversations. Why do you think you only have one year? I agree with PP who are advising you on how you should plan, and assume the worst, in a sense, but is there a reason you think you will only have one more year?

 

:grouphug:  :grouphug:  :grouphug:



#95 katilac

katilac

    Chief Educational Executive & Cruise Director

  • Members
  • PipPipPipPipPip
  • 8303 posts

Posted 14 March 2017 - 11:33 AM

Positive thoughts headed your way for a Lyme diagnosis! 



#96 ikslo

ikslo

    Ninja Elephant Minion with Nunchucks

  • Members
  • PipPipPipPip
  • 5605 posts

Posted 14 March 2017 - 11:42 AM

:grouphug:  :grouphug: :grouphug:  



#97 Katy

Katy

    Hive Mind Level 6 Worker: Scout Bee

  • Members
  • PipPipPipPip
  • 5696 posts

Posted 14 March 2017 - 12:10 PM

:( :grouphug: :grouphug: :grouphug:



#98 Anne in CA

Anne in CA

    Hive Mind Queen Bee

  • Members
  • PipPipPip
  • 4908 posts

Posted 14 March 2017 - 12:43 PM

Praying! 



#99 BlsdMama

BlsdMama

    Chief Zookeeper

  • Members
  • PipPipPipPip
  • 5747 posts

Posted 14 March 2017 - 12:55 PM

It's time to get your kids with disabilities evals and IEPs. They have to have plans in place for anything. Not being somber but just realistic. My ds has an IEP. It took us two years and it's still not the best. We're doing more evals to go at it again. Usually you can do them in a year. If you make the request now, you could get it done by fall using the 120 days of the law. 

 

You write a letter saying you suspect learning disabilities (autism, dyslexia, etc.), give it to the secretary at the school, dated, retaining a copy, and that starts the clock ticking. 

 

You could also do private evals (which are almost always better) obviously. I'm just saying, being somewhat in your position myself (variable health, dc with significant, challenging SN), an IEP is legal protection. It's a document so that anyone who needs to help you knows the plan.

 

You can also write what is called a "letter of intent" for each child. You could write it this week, type, sign, print, and put in a file somewhere. A letter of intent is not legally binding, however it is *guidance* to anyone who would be guardians of your dc as to what you envisioned for them, what you dreamed. It's your gift to them. It would be something you could do now with all this emotion you're feeling. Write one for every single dc. With your SN dc, you can be very specific even, delineating schools, curricula, tutors, anything that would help them in the short term or long-term. It can say ANYTHING, anything you want that other person to know. It might give you some peace, knowing that, no matter what, people know what you intended for your kids, that you've given them that gift.

 

I think your kids will be fine watching whatever happens. Kids are resilient. You'll get them counseling. It will be fine.

 

I agree. Helpful post - thank you.  We have been talking about this.  Just had an eval with one dd that didn't go well. I put faith in the U of Iowa to recognized remediated dyslexia.  Stupid.  Should have gone to a dyslexia expert.  But, they did give her a diagnosis of a written expression disability - you know grammar, spelling.  SMH.  That was $$ wasted.  

 

 

From what I've read, the average is 2-5 years after diagnosis. Not to be so crass, but you seem to be ready for blunt conversations. Why do you think you only have one year? I agree with PP who are advising you on how you should plan, and assume the worst, in a sense, but is there a reason you think you will only have one more year?

 

:grouphug:  :grouphug:  :grouphug:


You know, I'd much rather not waste time on the emotional black hole and start planning.  I think I probably have less because of how fast this is moving.  I only got drop foot at the beginning of fall / end of summer.  We thought it was a knee problem.  I had a car accident years ago and thought it was coming back to haunt me in nerve damage.  

So, this winter.  Once the twitching started it started only in one leg.  But then the other, now the arm.  My abdomen twitches and now my lip has twitched twice.  Once the tongue begins that isn't good. But the biggest sign of problems is probably my rib pain.  Interstitial muscle failure signals respiratory involvement from everything I've read.  The neuro doesn't want to talk about my rib pain until we know what we are dealing with.  I understand what he's saying, but I also know that it signals poor things unfortunately.  Remember that the 3-5 plan is generally for people who are willing to be fully intubated and have feeding tubes until they are so emaciated that their body can no longer support them.  I am willing to use a bi-pap.  I am unwilling to be intubated. It will be a cold day in hell before I lengthen this torture out for my kids to watch.  My grandmother shrunk away to nothing and her kids wished mercy on her long before it came.  I would never, ever, ever put the 5-20 crowd through that.  Ever.


  • Barb_, 1234, StephanieZ and 7 others like this

#100 Mimm

Mimm

    Hive Mind Queen Bee

  • Members
  • PipPipPip
  • 3978 posts

Posted 14 March 2017 - 12:59 PM

:grouphug:  I'm so sorry.