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PeterPan last won the day on August 17 2019

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About PeterPan

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  1. Uh none? I'm old school, so I used Writing Tales around that age. I think as far as choosing, you could try a sample from each and see how it goes.
  2. Just try something and see what happens. Does he pass the Barton screening? Then I would just try whatever developmentally appropriate thing she has lying around. My ds didn't pass that, so we did LIPS, using pictures of faces and sandpaper letters and letter magnets and more. Before that we had done your typical things like phonics dominoes, a book with activities for each letter (act like a dolphin for D, wrap yourself like a pretzel for P, etc.). You just have to see what happens. Phonics is way less important than comprehension, because it's a possibility that a dc with significant echolalia (hence a language delay) will have reading comprehension issues and be hyperlexic when he starts reading. So if he starts reading and doesn't comprehend (happened with us), still doesn't do you much good. I mean, it's a great parlor trick, but it's not a good thing. This is half price right now and it's PHENOMENAL, highly recommend. We used it around this age. You're just going to have some trial and error. It's really easy to get a list if you're like ok what would an autism school use with kids with ASD2/3, but that population will include kids with ID, kids they don't expect to read, etc. It doesn't seem to be the answer you're wanting. They might end up focusing on comprehension more than phonics. My ds with his dyslexia was decoding at a 5th/6th gr level by the end of 1st. Just couldn't comprehend at that point, lol. working on narrative language is so important. It's going to hit many areas that are likely to be weak for him. But yeah, for phonics, I think just try anything you want and see what happens. He may do great or may not. SLDs and difficulties are unfortunately identified when the dc struggles. But the struggle is not likely to be so much the phonics (unless there's an SLD) as the comprehension. That's the effect the autism will have, glitching the language comprehension, the narrative language, the emotional awareness, etc. Ok, I'll just throw this out. I got AAS Pre to try with my ds. Now granted, he has apraxia, but it was not a good fit. So if she has anything like that lying around, something that is multi sensory and focused on the sound/written connection, that's a good place to start. She just has to see what happens. But I don't think there's an answer like oh autism means use this, because usually it's the autism causing comprehension issues, not phonological processing problems. Maturational delays and readiness delays, yes. Needing smaller steps, yes.
  3. Have you looked at the MFW preschool cards? Ronit Bird Exploring Numbers with Dot Patterns? The reason people aren't suggesting curriculum to you is because he probably isn't ready for curriculum. I mean, see what happens, but his behavioral and language needs take precedence. That's what the VMPAC would address. Basically it's all the skills they should have by age 5, and taking direction is on the list. Which is to say that those earlier skills are more important than academic content. They'll call it "ready to learn" and when he's "ready to learn" it will obvious. A dc who is not yet connected, not following directions, not having that give/take, or is not emotionally regulated is probably not in "ready to learn". RDI is another really foundational thing, because you're working on joint attention with that and accepting instructions and developing the *nonverbal* awareness that will allow him to receive instructions and interact. ABA, anyone doing the VMPAC, Play Project, anything meant for autism will work on that, because joint attention is step number one. Here's a book on it, but basically you change *how* you use your activities with him. So you're still going to do the same puzzle, the same making a sandwich together, whatever, but you're going to *drop the language* and go completely to nonverbals. And he completes steps as you give him the nonverbal instructions. THAT will help with your following directions and build joint attention. You should never *prompt* eye contact, but you can *wait* for it so that getting the next step happens as he looks up at you to receive it. When you get that joint attention you'll have the piece you need to get the following directions. It's more important than curriculum and you can basically work on it with ANYTHING you're already doing. It's one of the most important things. It will help him connect with you and get to ready to learn. You'll know when ready to learn happens because it will be this shift. Keep doing things with him intensively and up the ante. Try to work on the nonverbals and joint attention a couple times a day and other times work on language and increasing language. NAMING things is so important. Saying what they DO (function) is so important. Describing things (red/blue, etc.) is so important. Sorting by categories is so important. And you can work on all these really important things while working on following directions and developing that joint attention. Do that and ready to learn will probably come. Those seemingly inocuous things like describing, categorizing, etc. are the foundations of grammar (adjectives, verbs, etc.), writing (where we use the language and organize our thoughts), etc. Even math will require these early categorizing skills, because how do you sort things if you don't really think in terms of categories? I used Ronit Bird with my ds because he has SLD math and it finally made things click. I think any approach that relies on *inference* will be less likely to work with a person with autism. Now there is discovery, sure. But it's something to watch for. You also want to watch for issues with generalization, where maybe he can do the skill with one manipulative and has no clue when you change the manipulative. Super common issue with autism that the skill/knowledge doesn't "generalize". It literally gets tied to the one thing. So he might know a math fact with one manipulative and not the next. It just got memorized and connected to that one thing. So me personally, I'm always shaking things up. Change the manipulatives, apply it to a new scenario. Never just one curriculum, one way, not with autism.
  4. Then I would look for the developmental optometrist you want to use when you return and in the mean time work on retained reflexes and the Lane materials.
  5. Dysgraphia and dyslexia are not vision problems. What are your options to get vision therapy? Obviously glasses are not a replacement for therapy. Some OTs know how to work on vision, but very few. If they aren't advertising that they do it, at least around here it means they won't be helpful. Usually developmental vision problems are preceded by retained primitive/neonatal reflexes. Those retained reflexes glitch the development of the postural and vision reflexes. So something you can definitely do is get a list of the primitive reflexes and start working through the tests and exercises. We've had threads on this. There's a $35 option if you search around this site. PoP is what our PT used for integrating reflexes, worked great. My dd's reading of multisyllable words was connected to working memory (an ADHD thing) and as you say the tracking. So I would see how it improves after you get a proper diagnosis and vision therapy. The problem is that usually when people talk vision therapy they're saying for convergence. I think you're describing amblyopia, which would benefit from a more experienced vision therapist. If you absolutely can't get access to a developmental optometrist who is qualified, then Lane also has a series sold by RFWP. This book I'm linking is more specifically the vision therapy exercises. But I'm *not* saying it would be your solution or complete solution, because I know zilcho about more complicated vision issues. If you can come back to the States and get a good developmental optometrist and be here for 1-2 months, you could probably nail it. If you were here for 1-2 weeks, you could get started and continue by skype. Some places work everyone through a therapy notebook and some don't. So that would be the variability. I would be looking for a Fellow with COVD. We have, on occasion, had people internationally who found options. I don't think you're going to find the typical OT a replacement for someone specializing in developmental vision. But, you know, you could strike lucky. There's just a lot they're not being taught in schools. It's more just are they taking up that specialty later. The more interesting question would be whether therapists doing VT in the States are finding ways to do this via tele. If they are, that might open up some options. You might try some larger practices and just see. That would be a total long shot, but who knows.
  6. The anxiety could be a temp thing and treated without worrying about the bigger questions. I'm so glad!!!! I'm going to have to look this up. The buspar is a pain in the butt because it clears so quickly (6-8 hours). We're making it work for now and it was great to start with a low commitment med.
  7. Yeah, melatonin is always sold way too high. Complete physiologic replacement is so, so low. And as Pen is saying, if the issue is needing melatonin up, I'd be looking at that 5HTP as the precursor. I use a time release from Natrol and it's the bomb, so so good. I don't know that you need it, just saying. You could turn out to have a TPH2 defect if you did testing, sure. You could run genetics or look in the results of any of your people if you have genetics on them.
  8. We've had threads in the past on progesterone and sleep. If you've done everything else, that's probably what is causing the waking. I still think I would try to get a pulse oximeter or maybe even a peak flow meter if you think you're having restricted breathing. The pulse oximeters are available again and running around $30, which is higher but not so high I wouldn't buy one. It's just where the market is going to be for a while. Or try to get the cat thing under control and see if that helps. I think I would separate the not waking up well and the waking up mid cycle and consider the one multifactored (allergies, etc.) and the other hormones and see where that gets you.
  9. Oh my. Well I'll just tell you that I'm turning 44 and my thing with cats is getting worse. I grew up with them, never considered myself allergic to them. I think it's just generally the aging, falling apart thing. My mother allows a cat because her dh requires one, but in fact she's allergic. Yes, out of the bedroom completely and clean the floor and everything. Were you doing this when you did your labs to get everything balanced? If your meds were balanced with labs using this regimen, fine. If the glutathione was added afterward, I would try spacing them much farther, like 6-12 hours. That's kinda telling if the glutathione is giving you energy, hmm. With stuff like calcium and food they say 4 hours away. I think I read that somewhere, so that's the number I follow. Oh that's wild! We were just there for a week, loved it btw, and I had no issues with allergies. Came home and they started up because of the dog, go figure. Maybe you're in a different part of the state? We were in the Mark Twain National Forest, and we drive n/s/e/w doing all kinds of stuff. We did Pilot Knob and the battle there, Elephant Rocks, Johnson's Shut Ins, Echo Bluff State Park, the Meramec Caverns, and a lead mine in Bonne Terre. Good bbq too! We'd definitely like to come back and do more MO, but I have a feeling like many places when you're there a lot it's not the same, lol.
  10. Can your dh take family leave too? I don't fully understand to know if that's possible. I'm just saying your ds needs care and your dad and your dh going along could solve that.
  11. Are meds for your dad an option? It sounds like it's time. They might be a little tricky, but it definitely sounds like it should be on the table. Buspar, benzos, SSRI, something. My ds' intractability goes down IMMENSELY on Buspar. Now I also have to give him 5HTP to pull down the dopamine because he's not perfect for him. But just as far as the question could meds pull that down, absolutely. With my family, who is very similar, I've in the past had to be 1:1. I find it extremely hard to care for my ds and father at the same time. Now I haven't had them together since my ds started meds, but I'm just saying even with both on meds it would be hard. They both need significant support. Your dh coming down intermittently sounds like a good plan. Do you have a friend who needs a vacation who could come with you? That could be on the table. I'd be up in the air about leaving the ds, because my ds like yours would be better with me than without. I'd have such a mess to repair when we were back together that it wouldn't be worth it. But having another person with you so it's 1:1 for caregiving might be wise. Just saying my mess-ups are always when I violate that.
  12. That's what I was thinking. Part of what's working for him is the format, which is just his autism and the language disability and that he's easily overwhelmed. We've done well with some other readers in the past (Fountas and Pinnell) and it just hadn't occurred to me to try more readers. I kept thinking I needed to push him into traditional books. But really, these are just the right level for his comfort. Ooo, what a helpful list, thank you! And yes, I see what you're saying. I think the gr3 would A/J readers would be a challenge for him, not for decoding but for that comfort level (amount on the page, feeling overwhelmed), so I like your advice to start with the gr2. That's kind of what I'm seeing in looking at other publisher's reading programs. He can read a newspaper, whatever, but for comfortable pleasure reading, the wide spacing and low stress level of gr2 materials is really good. And that's fine, because anything I can start with we can do and move forward, no biggee. You'll laugh, but I had heard of the nature readers and never knew really why people needed them. But you're right, they might be just the thing for him. I own scads of regular books, but it's always a challenge to find just the right thing with him. With dd, she would just read anything. Well not ANYTHING, lol. She didn't want it to be too easy/boring. But with him, total opposite. Has to be very low stress, approachable, charming. My only idea for science reading for him had been Usborne/DK books, and they're kind of a flop for reasons that are hard to pin down. Erratic, with small print overwhelming, I don't know. But the nature readers with short sections could be perfect, you're right. In my dream world, I find enough of these that some I assign and some I have in a bin for independent reading where he just reads for an amount of time. Ok, I'll ask @countrymum have you looked at Mosdos? Any opinion/experience there?
  13. It sounds like she has multiple other support people. Can she skype with you? What if you go down after this month of treatment as sort of round 2? Things are probably going to loosen up. Disney is throwing out dates, so if you give them two months things will probably be easier.
  14. Yes, the hydroxyzine would be like taking benadryl. But you might like it better, because it clears from the system faster and leaves you less groggy. Now it's a methyl donor, which isn't cool if you tend to get irritable with methyl donors. But other than that, if you like benadryl but want less groggy, then hydroxyzine. It's prescription, but it's stupid cheap, old school, an easy ask.
  15. And remember, the reward for doing hard things is to DO MORE HARD THINGS. You've got this. Let us know how it goes. If it's not a good fit, it's not a good fit. She may need breaks or you may have some learning curve.
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