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Today sucked. - Update #201


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#1 BlsdMama

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Posted 13 March 2017 - 08:58 PM

How do I count the ways?

Oh, yeah, the neurology appointment with new neuro doc. Turns out I am in absolutely perfect health except for my right side. Apparently I have a beautiful brain, a lovely spine, and I'm in great shape. All of which was horrible news unfortunately. Very brisk reflexes on the right side, Babinski positive, clonus present, muscle in right calf diminished. (Atrophied.)

All in all, a new EMG is scheduled for next Monday morning and ALS is now on the short list of possibilities and pretty much now the most likely. Sigh.

I am going to be brutally honest, this sucks. My fortieth birthday was in January. My baby is two. Two! My first grand baby will be here in April. And somehow we are going to have to sort through what comes next. Our homeschool program (very, very large) has lost two moms in two years. I would have preferred not to be next.
On the upside, because, it turns out I am shockingly skilled at dark sarcasm, I could get a really cool joystick to drive my van for a while.

Feeling pretty horrible for my poor husband right now. He really had refused to entertain the thought of ALS.


Edited by BlsdMama, 23 March 2017 - 09:42 AM.


#2 elroisees

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Posted 13 March 2017 - 09:00 PM

Holy cow.  I'm sorry!  I hope that is not the case! 



#3 Catwoman

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Posted 13 March 2017 - 09:00 PM

Praying that they are wrong and that it's not ALS.

Are you seeing the best possible specialists?
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#4 onelittlemonkey

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Posted 13 March 2017 - 09:01 PM

Oh my. Praying and sending huge hugs. :grouphug:
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#5 Spryte

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Posted 13 March 2017 - 09:02 PM

Sending hugs. Lots of them.

#6 AnnE-girl

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Posted 13 March 2017 - 09:02 PM

I'm so sorry. Praying for you and your family.
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#7 BlsdMama

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Posted 13 March 2017 - 09:02 PM

Praying that they are wrong and that it's not ALS.

Are you seeing the best possible specialists?


Yes, for Iowa. We switched from the local neuro to the University. Once we have a diagnosis, Mayo is close enough for the second opinion.
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#8 mumto2

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Posted 13 March 2017 - 09:03 PM

Praying :grouphug:
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#9 Angie in VA

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Posted 13 March 2017 - 09:04 PM

:grouphug:  :grouphug:  :grouphug:



#10 maize

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Posted 13 March 2017 - 09:05 PM

(((Kelly)))

#11 texasmom33

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Posted 13 March 2017 - 09:07 PM

I am so sorry. Praying for you and your family and that it's something else on the short list and not ALS. 

 

:grouphug:


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#12 eternalsummer

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Posted 13 March 2017 - 09:07 PM

I'm so sorry :(



#13 jjeepa

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Posted 13 March 2017 - 09:07 PM

I'm so sorry  :grouphug:   Praying it is not ALS!  Praying for you and your husband and family as well.  


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#14 Selkie

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Posted 13 March 2017 - 09:07 PM

Many, many hugs for you and your family. I hope it is not ALS.  :grouphug:  :grouphug:  :grouphug:



#15 Arctic Mama

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Posted 13 March 2017 - 09:08 PM

That sucks. I'm so sorry you got bad news. I second a second opinion. And I'm praying for you like crazy :(
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#16 Catwoman

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Posted 13 March 2017 - 09:09 PM

Yes, for Iowa. We switched from the local neuro to the University. Once we have a diagnosis, Mayo is close enough for the second opinion.


I'll pray for you, Kelly. :grouphug:
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#17 Storygirl

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Posted 13 March 2017 - 09:18 PM

Praying for you and hoping the short list turns out to be wrong. :grouphug:


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#18 creekland

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Posted 13 March 2017 - 09:30 PM

Sending prayers and  :grouphug: .  Are there other options?



#19 Twigs

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Posted 13 March 2017 - 09:32 PM

:grouphug:  :grouphug:  :grouphug:



#20 heatherwith3

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Posted 13 March 2017 - 09:37 PM

I'm praying that it's not ALS. :grouphug:
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#21 jewellsmommy

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Posted 13 March 2017 - 09:37 PM

Prayers said!   :grouphug:  



#22 Moxie

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Posted 13 March 2017 - 09:41 PM

Hugs and prayers.

#23 Junie

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Posted 13 March 2017 - 09:44 PM

:grouphug:



#24 OhElizabeth

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Posted 13 March 2017 - 09:44 PM

That does suck, wow. Can you get hooked up with a counselor? It's time. If the answer is no ALS, then you just dump them when you're done. 

 

And get somebody good, not somebody inexperienced or local. Maybe the hospital or the doctor can refer you. Just go ahead and do it. Go with your dh BEFORE you think you need it. Sounds like you'd already benefit from it.


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#25 Scarlett

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Posted 13 March 2017 - 09:47 PM

I am so sorry, This is very upsetting. I pray they are wrong but a friend of mine had it and there is so much help available.

I don't want to be a bummer but I really am sorry.
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#26 school17777

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Posted 13 March 2017 - 09:48 PM

(((Hugs)))

#27 Scarlett

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Posted 13 March 2017 - 09:50 PM

We are in a OK. My friend went to KC for a definitive test.

Where can you go for a definitive test?

#28 zoobie

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Posted 13 March 2017 - 09:51 PM

:grouphug:

#29 goldberry

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Posted 13 March 2017 - 09:52 PM

Hugs and prayers...

#30 zoobie

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Posted 13 March 2017 - 09:53 PM

Double post, so more :grouphug:

Edited by zoobie, 13 March 2017 - 09:53 PM.


#31 Patty Joanna

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Posted 13 March 2017 - 09:56 PM

Prayers ascending.  (((K)))

 



#32 lauraw4321

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Posted 13 March 2017 - 09:57 PM

I'm so sorry.

#33 Annie G

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Posted 13 March 2017 - 10:00 PM

I'm so sorry. I hope it's not ALS and that you have that answer soon.  :grouphug:



#34 Garga

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Posted 13 March 2017 - 10:00 PM

Oh, that's frightening.  Let it not be ALS.  



#35 Melissa in Australia

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Posted 13 March 2017 - 10:05 PM

:grouphug:  :grouphug:  :grouphug:  :grouphug:



#36 mommyoffive

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Posted 13 March 2017 - 10:11 PM

I am sending every good thought your way.  



#37 Anne

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Posted 13 March 2017 - 10:14 PM

(((Hugs)))

Anne

#38 edelweiss

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Posted 13 March 2017 - 10:22 PM

Many, many prayers for you.

#39 Barb_

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Posted 13 March 2017 - 10:29 PM

Oh Honey, that's not what I was expecting to hear.  I'm sick for you.  


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#40 Heartwood

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Posted 13 March 2017 - 10:38 PM

I'm so sorry. I am praying for you and your family.

#41 Mabelen

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Posted 13 March 2017 - 10:44 PM

I am praying for you and your beautiful family.

#42 MercyA

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Posted 13 March 2017 - 10:52 PM

Praying that it is not ALS. 

 

Huge  :grouphug:  :grouphug:  :grouphug: .

 

 



#43 Jean in Newcastle

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Posted 13 March 2017 - 11:00 PM

:grouphug: :grouphug: :grouphug:



#44 happi duck

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Posted 13 March 2017 - 11:12 PM

(hugs)

#45 Starr

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Posted 13 March 2017 - 11:35 PM

:grouphug:  :grouphug:  :grouphug:



#46 RioSamba

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Posted 13 March 2017 - 11:50 PM

(((Kelly)))

I just prayed for you, your DH, and your family.

#47 Sugarfoot

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Posted 14 March 2017 - 12:14 AM

I'm praying for you.  :grouphug:



#48 hopskipjump

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Posted 14 March 2017 - 12:21 AM

Oh dear. Prayers that it's something else - almost anything else - on that short list and prayers for your family as you muddle through this. :/


Edited by hopskipjump, 14 March 2017 - 12:22 AM.


#49 Mama Geek

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Posted 14 March 2017 - 05:18 AM

:grouphug:  and prayers for you and your family.



#50 lovinmyboys

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Posted 14 March 2017 - 05:20 AM

Praying for you.