speedmom4 Posted June 24, 2016 Share Posted June 24, 2016 (edited) Hello Hive, I am in the ER with my ds for the second time this week. He has had severe pain and nausea. He also had abnormal labs in the first ER. My son has had GI issues for years. He is 14 and has pain and vomiting for a very long time. He has had abnormal stomach motility and gastric ulcers. He has been on and off meds for most of his life. Currently he is only 95 pounds. He has lost at least 7 pounds in the past few weeks. He's only 5' 1" but he has no body fat at all to lose. Our GI doc called yesterday and said his labs looked abnormal and they are concerned about Addison's disease. We had a cortisol panel this morning. He ended up in so much pain that his whole body was shaking. He was so weak that he couldn't walk into the ER. He has had more labs in the ER and a CT scan. My biggest fear is that they tell us everything is ok and send us home. The morphine has helped a lot and he's not in pain if he isn't moving. Please pray we get to the bottom of this. He has been dealing with GI issues for so long. Thank you! UPDATE: Thank you all for the concern and prayers. I am so incredibly thankful that the ER did a CT scan and found the intussusception. He had surgery within a few hours. Our son is 14 so it's pretty rare to find in a child his age. It turned out to be quite large, approximately 18" in length. The surgeon had never seen one so large. Thankfully he was able to pull it out laporascopically. He found the lead point was a Meckel's diverticulum. Very unusual as well. What has me so upset is that my son has had vomiting and pain issues his entire life but not one doc has ever ordered a CT scan. What's worse is that early Wednesday morning we went to a different hospital and they sent him home even when he was clearly still so very sick. I even took him to the pediatrician on Thursday because he couldn't keep the the Zofran down. I'm so glad I trusted my gut that the docs were all wrong and that something was wrong. It could have been disastrous. Thank you all! Edited June 25, 2016 by speedmom4 30 Quote Link to comment Share on other sites More sharing options...
Minerva Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: :grouphug: :grouphug: Oh goodness, I hope you get some answers soon. 1 Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted June 24, 2016 Share Posted June 24, 2016 ((Hugs)) It seems like it would be apparent to them that not all is well? Are you at a children's hospital? Quote Link to comment Share on other sites More sharing options...
ashfern Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: Hope they figure it out. :grouphug: Quote Link to comment Share on other sites More sharing options...
Dynamite5 Posted June 24, 2016 Share Posted June 24, 2016 Hello Hive, I am in the ER with my ds for the second time this week. He has had severe pain and nausea. He also had abnormal labs in the first ER. My son has had GI issues for years. He is 14 and has pain and vomiting for a very long time. He has had abnormal stomach motility and gastric ulcers. He has been on and off meds for most of his life. Currently he is only 95 pounds. He has lost at least 7 pounds in the past few weeks. He's only 5' 1" but he has no body fat at all to lose. Our GI doc called yesterday and said his labs looked abnormal and they are concerned about Addison's disease. We had a cortisol panel this morning. He ended up in so much pain that his whole body was shaking. He was so weak that he couldn't walk into the ER. He has had more labs in the ER and a CT scan. My biggest fear is that they tell us everything is ok and send us home. The morphine has helped a lot and he's not in pain if he isn't moving. Please pray we get to the bottom of this. He has been dealing with GI issues for so long. Thank you! Does he happen to have an allergy to any antibiotics? Do you eat non-organic meat or dairy? People can react to that with GI issues, although in the long run it does damage to one's liver and kidneys. Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted June 24, 2016 Share Posted June 24, 2016 oh my goodness, that sounds awful. Poor guy. Praying. Quote Link to comment Share on other sites More sharing options...
Joules Posted June 24, 2016 Share Posted June 24, 2016 I can't imagine that they wouldn't have already tested, but I have to ask: Celiac? 3 Quote Link to comment Share on other sites More sharing options...
TranquilMind Posted June 24, 2016 Share Posted June 24, 2016 Hello Hive, I am in the ER with my ds for the second time this week. He has had severe pain and nausea. He also had abnormal labs in the first ER. My son has had GI issues for years. He is 14 and has pain and vomiting for a very long time. He has had abnormal stomach motility and gastric ulcers. He has been on and off meds for most of his life. Currently he is only 95 pounds. He has lost at least 7 pounds in the past few weeks. He's only 5' 1" but he has no body fat at all to lose. Our GI doc called yesterday and said his labs looked abnormal and they are concerned about Addison's disease. We had a cortisol panel this morning. He ended up in so much pain that his whole body was shaking. He was so weak that he couldn't walk into the ER. He has had more labs in the ER and a CT scan. My biggest fear is that they tell us everything is ok and send us home. The morphine has helped a lot and he's not in pain if he isn't moving. Please pray we get to the bottom of this. He has been dealing with GI issues for so long. Thank you! Praying! It is do awful when our kids battle illness. Praying they find answers right away. Quote Link to comment Share on other sites More sharing options...
zoobie Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: I hope you get some answers. Quote Link to comment Share on other sites More sharing options...
Tammyla Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: :grouphug: :grouphug: Poor guy. Quote Link to comment Share on other sites More sharing options...
gingersmom Posted June 24, 2016 Share Posted June 24, 2016 Have they checked for Crohns? My son went to urgent care then ER who sent him home. Next day he was admitted and we discovered he has Crohns. I'm still upset with myself for not being more aggressive at the hospital the first time. Sending healing thoughts!!! 2 Quote Link to comment Share on other sites More sharing options...
Pawz4me Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
zoobie Posted June 24, 2016 Share Posted June 24, 2016 Sorry to post again, but I had to look up the name of the condition. A friend's daughter struggles with vomiting cycles, severe pain, and so forth and was finally diagnosed with gastroparesis after they traveled to CHOP for treatment. Quote Link to comment Share on other sites More sharing options...
Arcadia Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
mamiof5 Posted June 24, 2016 Share Posted June 24, 2016 That's so frightening!! I hope you get some answers. Praying for your son!! Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted June 24, 2016 Author Share Posted June 24, 2016 Well that didn't take long...intussusception. Surgeon on the way. Thanks for the support! 14 Quote Link to comment Share on other sites More sharing options...
FriedClams Posted June 24, 2016 Share Posted June 24, 2016 Well that didn't take long...intussusception. Surgeon on the way. Thanks for the support! I looked that up. Yikes. No wonder he's miserable. Hope all goes very smoothly!! Quote Link to comment Share on other sites More sharing options...
Soror Posted June 24, 2016 Share Posted June 24, 2016 hugs and prayers Quote Link to comment Share on other sites More sharing options...
happi duck Posted June 24, 2016 Share Posted June 24, 2016 (Hugs) Quote Link to comment Share on other sites More sharing options...
Junie Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: Quote Link to comment Share on other sites More sharing options...
goldberry Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: Quote Link to comment Share on other sites More sharing options...
TianXiaXueXiao Posted June 24, 2016 Share Posted June 24, 2016 Prayers for your son. I hope you get some clarity about his health condition. It's so terrible to not know what you're dealing with. Please keep us posted. Quote Link to comment Share on other sites More sharing options...
lewber Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: Prayers for your son and you. Quote Link to comment Share on other sites More sharing options...
umsami Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: Prayers for your son. Glad they found out what was going on. Hope surgery is successful and he recovers quickly. Quote Link to comment Share on other sites More sharing options...
Jaz Posted June 24, 2016 Share Posted June 24, 2016 Praying for surgery! Quote Link to comment Share on other sites More sharing options...
Monica_in_Switzerland Posted June 24, 2016 Share Posted June 24, 2016 Well that didn't take long...intussusception. Surgeon on the way. Thanks for the support! So glad you have a diagnosis and treatment plan in place! I hope the surgery goes well and he is feeling MUCH better soon. Quote Link to comment Share on other sites More sharing options...
trulycrabby Posted June 24, 2016 Share Posted June 24, 2016 (edited) Praying for a successful surgery. Hang in there mom, I know you have had a very long and stressful week. :grouphug: :grouphug: :grouphug: Edited June 24, 2016 by trulycrabby Quote Link to comment Share on other sites More sharing options...
ScoutTN Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: :grouphug: :grouphug: :grouphug: Praying for a successful surgery and a good recovery! Quote Link to comment Share on other sites More sharing options...
Katy Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: :grouphug: :grouphug: Praying. Quote Link to comment Share on other sites More sharing options...
AmandaVT Posted June 24, 2016 Share Posted June 24, 2016 Oh poor baby! Hope everything goes smoothly and he's feeling much better soon! :grouphug: Quote Link to comment Share on other sites More sharing options...
ktgrok Posted June 24, 2016 Share Posted June 24, 2016 Oh my, so glad you caught it and took him in!!!! Very dangerous if left untreated. Praying for you. Quote Link to comment Share on other sites More sharing options...
MooCow Posted June 24, 2016 Share Posted June 24, 2016 praying he'll recover quickly :grouphug: Quote Link to comment Share on other sites More sharing options...
Kassia Posted June 24, 2016 Share Posted June 24, 2016 Glad they figured it out and hope he feels better soon. I'm sorry you are all going through this. Quote Link to comment Share on other sites More sharing options...
TechWife Posted June 24, 2016 Share Posted June 24, 2016 Well that didn't take long...intussusception. Surgeon on the way. Thanks for the support! I am so sorry your son is in so much pain, but grateful that they found out what is wrong. Praying for your son! Quote Link to comment Share on other sites More sharing options...
El... Posted June 24, 2016 Share Posted June 24, 2016 That sounds awful! Poor kid! I'm so glad they found what was wrong. Big hugs to you! :grouphug: Quote Link to comment Share on other sites More sharing options...
JFSinIL Posted June 24, 2016 Share Posted June 24, 2016 Glad they caught this and can fix it...but does not answer the question of what has been going on for so long. At least the next time he starts developing this kind of pain, they will know to check asap for intussusception w/o wasting time. Quote Link to comment Share on other sites More sharing options...
Guest Posted June 24, 2016 Share Posted June 24, 2016 (edited) Your poor son! I'm glad they caught it and hopefully there will be no permanent damage around the area - intussusception is serious and can go south quickly if there is necrosis or obstruction. I'm praying for his recovery and that this was a one-off occurrence - poor kid has enough GI drama without this on top of it :( Edited June 24, 2016 by Arctic Mama Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted June 24, 2016 Share Posted June 24, 2016 Praying for your son to have a successful surgery. Quote Link to comment Share on other sites More sharing options...
Eagle Posted June 24, 2016 Share Posted June 24, 2016 :grouphug: Sending good thoughts for successful surgery and quick recovery. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted June 24, 2016 Share Posted June 24, 2016 Just a note that that can be linked to Crohn's as well. 1 Quote Link to comment Share on other sites More sharing options...
Forget-Me-Not Posted June 25, 2016 Share Posted June 25, 2016 YIKES! Glad they caught that fast! Prayers for a smooth surgery! Quote Link to comment Share on other sites More sharing options...
Ewe Mama Posted June 25, 2016 Share Posted June 25, 2016 That sounds absolutely terrifying! Praying for you, your dear child, and the caregivers who are helping him now. :grouphug: Quote Link to comment Share on other sites More sharing options...
Nancy in NH Posted June 25, 2016 Share Posted June 25, 2016 (edited) Oh, my! Praying that all goes well in surgery and that your son is feeling better soon. So sorry you are going through this. It is so hard to watch our kids suffer. :grouphug: Edited June 25, 2016 by Nancy in NH Quote Link to comment Share on other sites More sharing options...
Janeway Posted June 25, 2016 Share Posted June 25, 2016 How are you all doing now? Quote Link to comment Share on other sites More sharing options...
HeWillSoar Posted June 25, 2016 Share Posted June 25, 2016 Praying too! Quote Link to comment Share on other sites More sharing options...
Guest Posted June 25, 2016 Share Posted June 25, 2016 You and him have been on my mind all night. Please let us know how he is when you have a spare moment. :grouphug: Quote Link to comment Share on other sites More sharing options...
nd293 Posted June 25, 2016 Share Posted June 25, 2016 Well that didn't take long...intussusception. Surgeon on the way. Thanks for the support! Poor kid! Ds had that when he was 6 months old, with a nice belly scar to prove it! He was literally trying to crawl away from the pain, up the bed, or out of my arms and over my shoulder. He never has a recurrence but I worried about it for years. (Incidentally, they chose to take his appendix out at the same time so if there was a recurrence we'd have one less potential 'stomach pain issue' to rule out.) Quote Link to comment Share on other sites More sharing options...
NoPlaceLikeHome Posted June 25, 2016 Share Posted June 25, 2016 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted June 25, 2016 Share Posted June 25, 2016 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted June 25, 2016 Share Posted June 25, 2016 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
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