bettyandbob Posted July 7, 2014 Share Posted July 7, 2014 praying for your son. :grouphug: Quote Link to comment Share on other sites More sharing options...
TammyinTN Posted July 7, 2014 Share Posted July 7, 2014 Keeping you guys in my thoughts and prayers!! :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Cindy in FL. Posted July 7, 2014 Share Posted July 7, 2014 Praying for a diagnosis and successful treatment for your ds. I hope that you are able to get the support and rest that you need during this! Quote Link to comment Share on other sites More sharing options...
Canadianmumof5 Posted July 7, 2014 Share Posted July 7, 2014 Adding my prayers. It sounds so scary. I pray that the Drs can figure this out soon. Quote Link to comment Share on other sites More sharing options...
dirty ethel rackham Posted July 7, 2014 Share Posted July 7, 2014 Continuing to pray! Quote Link to comment Share on other sites More sharing options...
Plink Posted July 7, 2014 Share Posted July 7, 2014 Still praying. Quote Link to comment Share on other sites More sharing options...
shukriyya Posted July 7, 2014 Share Posted July 7, 2014 More :grouphug: Quote Link to comment Share on other sites More sharing options...
jewellsmommy Posted July 7, 2014 Share Posted July 7, 2014 sending prayers. :grouphug: Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted July 7, 2014 Share Posted July 7, 2014 continuing to pray. I'm sure it's so hard to keep yourself composed with everything so up and down. Hoping for a positive diagnosis soon. Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted July 7, 2014 Share Posted July 7, 2014 :grouphug: Thinking of you. Quote Link to comment Share on other sites More sharing options...
Pink and Green Mom Posted July 7, 2014 Share Posted July 7, 2014 Thinking of you and your family. :grouphug: Quote Link to comment Share on other sites More sharing options...
emzhengjiu Posted July 7, 2014 Share Posted July 7, 2014 Continuing to pray. Quote Link to comment Share on other sites More sharing options...
MooCow Posted July 7, 2014 Share Posted July 7, 2014 :grouphug: :grouphug: :grouphug: From my family too Quote Link to comment Share on other sites More sharing options...
PuddleJumper1 Posted July 7, 2014 Share Posted July 7, 2014 :grouphug: :grouphug: Continuing to pray! Quote Link to comment Share on other sites More sharing options...
BlessedMom Posted July 7, 2014 Share Posted July 7, 2014 ((((Hugs)))) and prayers for you & your son!! Continuing to pray for wisdom for his doctors. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Just Another Jen Posted July 8, 2014 Author Share Posted July 8, 2014 No real update. He is finally sleeping and not hallucinating. So I have a few minutes of quiet before something beeps and and army rushes in. Just wanted to check in and maybe mull over curriculum or bookshelves.... Things I'm thinking include: Being so grateful that my other kids especially my daughter totally rock. She made a menu and a schedule and has both older and younger brothers completely in line. Maybe we'll drive Connor back to Chicago? The concern is germs. If we drove him he would be in way less contact than an airplane. What do you guys think? This would be after a diagnosis and treatment of course. Tomorrow is gonna be a big day. 3 procedures. Putting the central line back in (he ripped it out while hallucinating) Transfusion Bone marrow biopsy Then we wait again. Quote Link to comment Share on other sites More sharing options...
unsinkable Posted July 8, 2014 Share Posted July 8, 2014 No real update. He is finally sleeping and not hallucinating. So I have a few minutes of quiet before something beeps and and army rushes in. Just wanted to check in and maybe mull over curriculum or bookshelves.... Things I'm thinking include: Being so grateful that my other kids especially my daughter totally rock. She made a menu and a schedule and has both older and younger brothers completely in line. Maybe we'll drive Connor back to Chicago? The concern is germs. If we drove him he would be in way less contact than an airplane. What do you guys think? This would be after a diagnosis and treatment of course. Tomorrow is gonna be a big day. 3 procedures. Putting the central line back in (he ripped it out while hallucinating) Transfusion Bone marrow biopsy Then we wait again. :grouphug: :grouphug: :grouphug: I am Sending you love and strength. I am so so sorry your son is suffering. I know how hard it is to watch my child suffer and not be able to help and to wonder if things are going to get better. More ((((hugs)))) Quote Link to comment Share on other sites More sharing options...
kitten18 Posted July 8, 2014 Share Posted July 8, 2014 Continued thoughts and prayers. I think driving home sounds good depending on the diagnosis and once he's stable. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted July 8, 2014 Share Posted July 8, 2014 Still praying here. Thank you for posting the update. Praying that the next update is to tell us your ds has been diagnosed with something that's easily cured. :grouphug: Quote Link to comment Share on other sites More sharing options...
catz Posted July 8, 2014 Share Posted July 8, 2014 I hope you get some answers and relief tomorrow! :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Pippen Posted July 8, 2014 Share Posted July 8, 2014 No real update. He is finally sleeping and not hallucinating. So I have a few minutes of quiet before something beeps and and army rushes in. Just wanted to check in and maybe mull over curriculum or bookshelves.... Things I'm thinking include: Being so grateful that my other kids especially my daughter totally rock. She made a menu and a schedule and has both older and younger brothers completely in line. Maybe we'll drive Connor back to Chicago? The concern is germs. If we drove him he would be in way less contact than an airplane. What do you guys think? This would be after a diagnosis and treatment of course. Tomorrow is gonna be a big day. 3 procedures. Putting the central line back in (he ripped it out while hallucinating) Transfusion Bone marrow biopsy Then we wait again. Be open to the idea that the doctors may make that call if he will be heading to further treatment back home. One transport we were able to do ourselves but the other the doctor insisted on a critical care ambulance. For longer distances that would likely be a medical flight. Quote Link to comment Share on other sites More sharing options...
Ewe Mama Posted July 8, 2014 Share Posted July 8, 2014 I can't imagine how exhausted you must be, physically, mentally, and emotionally. Sheep Daddy and I are both praying for you all. :grouphug: Quote Link to comment Share on other sites More sharing options...
ktgrok Posted July 8, 2014 Share Posted July 8, 2014 His symptoms certainly match that of a tick borne disease, praying that is the issue and it resolves iwth the antibiotics. Quote Link to comment Share on other sites More sharing options...
MBM Posted July 8, 2014 Share Posted July 8, 2014 No real update. He is finally sleeping and not hallucinating. So I have a few minutes of quiet before something beeps and and army rushes in. Just wanted to check in and maybe mull over curriculum or bookshelves.... Things I'm thinking include: Being so grateful that my other kids especially my daughter totally rock. She made a menu and a schedule and has both older and younger brothers completely in line. Maybe we'll drive Connor back to Chicago? The concern is germs. If we drove him he would be in way less contact than an airplane. What do you guys think? This would be after a diagnosis and treatment of course. Tomorrow is gonna be a big day. 3 procedures. Putting the central line back in (he ripped it out while hallucinating) Transfusion Bone marrow biopsy Then we wait again. If you really want to bring him back soon, is it possible to get him on a private plane at reduced cost or maybe even free? I found some on Google using "free medical flight" (Air Charity, Angel Flight, …). Maybe? As for driving, SLC to Chicago is a long trip, 20 hours or so, and what if he takes a turn for the worse along the way? Where would you take him? Ugh. I am hoping that he sleeps well the whole night and then wakes up feeling better with no need of any of those procedures. :grouphug: Quote Link to comment Share on other sites More sharing options...
happi duck Posted July 8, 2014 Share Posted July 8, 2014 More (hugs)! Thanks for the update. As I opened the thread I was wondering about the rest of your family and how they're doing. It must be hard for everyone. Quote Link to comment Share on other sites More sharing options...
DawnM Posted July 8, 2014 Share Posted July 8, 2014 Continuing to pray. I would not move him now and not until he is better with no dangerous symptoms, at least not by car. Quote Link to comment Share on other sites More sharing options...
elegantlion Posted July 8, 2014 Share Posted July 8, 2014 I wouldn't do a commercial flight. I have a permanently compromised immune system and I usually end up catching some nagging thing after a flight. Too many variables you don't have control over. Sending more healing thoughts your way. Quote Link to comment Share on other sites More sharing options...
HRAAB Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: You're in my thoughts. :grouphug: Quote Link to comment Share on other sites More sharing options...
gerka528 Posted July 8, 2014 Share Posted July 8, 2014 Thoughts and prayers for you and your son :grouphug: Quote Link to comment Share on other sites More sharing options...
trulycrabby Posted July 8, 2014 Share Posted July 8, 2014 Thank you for the update! Sending prayers for his procedures tomorrow. :grouphug: Quote Link to comment Share on other sites More sharing options...
Crimson Wife Posted July 8, 2014 Share Posted July 8, 2014 Continuing to pray! Quote Link to comment Share on other sites More sharing options...
*LC Posted July 8, 2014 Share Posted July 8, 2014 Praying. Quote Link to comment Share on other sites More sharing options...
El... Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
MyLittleWonders Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: Praying. Quote Link to comment Share on other sites More sharing options...
Negin Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
MrsBasil Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Laura Corin Posted July 8, 2014 Share Posted July 8, 2014 Thinking of you and your family. L Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted July 8, 2014 Share Posted July 8, 2014 Praying that the doctors find out what is going on with your son and that it's easily treated. Praying for strength for you! Elise in NC Quote Link to comment Share on other sites More sharing options...
Cindy in FL. Posted July 8, 2014 Share Posted July 8, 2014 Praying for a good day for you all today! Quote Link to comment Share on other sites More sharing options...
Eagle Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: I hope your son improves today and that the doctors figure this out soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
oneddmanybooks Posted July 8, 2014 Share Posted July 8, 2014 Praying for all of you during this very difficult time. Quote Link to comment Share on other sites More sharing options...
Kfamily Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: :grouphug: :grouphug: Will be keeping you and your family in my thoughts! Quote Link to comment Share on other sites More sharing options...
texasmama Posted July 8, 2014 Share Posted July 8, 2014 Prayers! Quote Link to comment Share on other sites More sharing options...
Terabith Posted July 8, 2014 Share Posted July 8, 2014 Praying and hoping for good things. Quote Link to comment Share on other sites More sharing options...
Tap Posted July 8, 2014 Share Posted July 8, 2014 :grouphug: Quote Link to comment Share on other sites More sharing options...
Spryte Posted July 8, 2014 Share Posted July 8, 2014 Thinking of you, and hoping that the procedures go well today. :grouphug: Someone mentioned Angel Flight after doing a google search for free medical flights - they are excellent. My local support group used to work with them to help people with tick-borne diseases get to the best docs. That might be an option for transporting him, when he's ready. They are kind, and thoughtful. Thought it might help to know that a real person has had contact with them (well, as real as an internet contact can be). Quote Link to comment Share on other sites More sharing options...
Susann Posted July 8, 2014 Share Posted July 8, 2014 Hugs and prayers!! Quote Link to comment Share on other sites More sharing options...
Just Another Jen Posted July 8, 2014 Author Share Posted July 8, 2014 His fever is back up to 102. His white count is 1.6. Which is a little better. The bone marrow biopsy is on today's schedule. The insurance is acting pretty clueless. When I get a few minutes I have to work my way up the chain. Connor would like us to check him out and drive him home. Quote Link to comment Share on other sites More sharing options...
bluemongoose Posted July 8, 2014 Share Posted July 8, 2014 prayers :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
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