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Emergency fairy dust, prayers, whatever you've got


Just Another Jen
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Ok. We've got a cooling blanket that circulates water on him. We've got another specialist coming in who thinks that it may be rocky mountain spotted fever from a tick. That test isn't in yet. Of course. They are going to start alternating ibuprofen and tylonol because the specialist says his blood is thick enough now to handle it. He has electrolytes magnesium potassium and the antibiotic for tick and spider bites all going into the central line. His fever is down from 104.5 to 103.2 right now. He is still confused but better a little than a hour ago. Malaria test was negative. Still waiting on typhoid and the tick tests.

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Chris- I'm just copying and pasting the update I send family. Except now. :)

We met with the infectious disease specialist in person yesterday and I liked her alot. She is doing everything she can to figure this out and she is consulting with the cdc and other specialists. This is a very unusual case. Its harder for them to pin down what is going on because of his travels. He was in India from April to May. Then Chicago, Minnesota, Arkansas,Colorado, and then Utah. All the time except Chicago in the woods in tents. So now they have ruled out most of the tropical things and are looking at tick spread diseases. If the tick things don't come back positive then they need to think about TB or even some kind of cancer. They would do a bone marrow biopsy. His fever will come down a couple times a day. What we are trying to achieve now is to keep it down while we wait for some test to come back positive for something.

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just came back from camping and saw this.

 

it sounds like he is getting good care.  i am so glad you are there.

 

fwiw, one of my friends twenty years ago picked up some unknown thing in south africa.  they finally figured it out by calling the largest hospital in the area she had been staying, and her doctor talked to one of theirs and they figured out what it was.  those doctors were way more familiar with their local illnesses.  it was a long shot, but she was down to 90 pounds and they were desperate.  my experience of indian doctors is that they are very helpful.  if nothing else, it would give you something to do while you wait...

 

fwiw,

ann

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Sending you warm, strong thoughts, still.  You're in lots of strangers' hearts!

 

My DH has been following your son's situation as well, and from the start asked about TBDs (tick borne diseases).  One of your posts (the second, I believe, once you'd seen him in the hospital) reminded DH of me, when I became very ill with TBDs.  Obviously, DH is more likely to see the connection, since I was a bit, ummm, out of it.  DH thought it might be because of the connection between some TBDs (babesia) and malaria - the symptoms are so similar.  Sharing the above only to let you know that they might be onto something with the tick borne diseases. 

 

Hoping for more positive news soon.

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I live in SLC. If there is anything you need, directions, info, whatever, let me know! I'm also an RN and have worked at University of Utah Hospital for the last 18 yrs. If he is at Intermountain Medical Center, that is just a few minutes down the road from me. I am happy to help. Best of luck figuring out what is going on!

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In the mix today. More fever, fewer white cells, liver damage. It could be rocky mountain spotted fever, typhoid, leukemia. Tomorrow we do a bone marrow biopsy and transfusion. I'm trying to stay together- but its definitely a challenge at this point.

 

:grouphug:  and prayers... Take care.

 

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In the mix today. More fever, fewer white cells, liver damage. It could be rocky mountain spotted fever, typhoid, leukemia. Tomorrow we do a bone marrow biopsy and transfusion. I'm trying to stay together- but its definitely a challenge at this point.

:grouphug: :grouphug: :grouphug:

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Rivendellmom,

It sounds like he is reeving excellent, thorough evaluations and care. We used to live in South Asia and knew someone who became very, very ill with a tick-borne typhus. I'm not sure if the Rocky Mountain Spotted Fever test would pick that up (same family of disease, it seems), but due to his travels, I wanted to mention it. With best wishes for his diagnosis and treatment, and to you and all your family for the strength to see the next days through.

 

Best,

Karen

 

 

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I just got a call that my oldest son has been taken to the hospital in Salt Lake City. He has a high fever, is dehydrated, incoherent speech etc. He has been up in the mountains for over a month at about 9000 ft. They are testing now for meningitis. I'm flying out first thing in the morning. So yeah- stress and worry are what I'm feeling right now. 

I'm so sorry!  Praying. 

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