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tex-bex

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  1. Thank you all for your input! I’m reading and considering it all carefully. It’s a lot to dig into! We are definitely going to figure out what to prioritize and tackle first. I want to present her with a few things and see what she responds best to. I was just looking over Promethease. I will for sure upload my data and look that over!
  2. You might have just described every member of my family, especially my daughter and me.
  3. There are no other oddities about how she eats. She didn't always have an issue with the noises of other people eating. That has popped up more recently. Her NP told her to take 5,000 IU of the vitamin D. When she does take it, I'm certain she takes more because she doesn't count the drops, just squirts it, and it looks like more than 5,000. I will spend some time looking at the interoception page today, thanks. Yes, I am 100% on board with working on myself - I actually have been for a long while. I mentioned the couples issues because I learned the key difference between my husband and myself within the last couple of weeks and had the "aha, now I know how to get the help we need for this" moment. I know the differences in our parenting styles have caused stress on the kids, but hadn't known how to address it. There is a lot of work for us all to do. I just hadn't detailed it above because I was already writing novel after novel! 😄 I have never considered that she might be on the spectrum. Something to ponder. I do know the neuropsych ran an IQ test and pronounced her average, but did not share a number. I don't know about a connective tissue disorder. Nobody has ever said anything further than that she's hypermobile. Her tone is fine, though - she has always been really physically adept and has done dance and gymnastics with skill and grace. She just gets injured more easily because of the joint mobility. We have done PT with some success, but she doesn't really do the exercises on her own at home, nor with my prodding. When she's "out the door" we are on our way to something or another, and she often doesn't appear until it is time to go. I do like the idea of pill dividers (I have my own for my own supplements) but again, she won't take pills. I would be more than willing to dump all her capsules into something she might drink in the mornings, so I will shelve that thought until we know what she might take. I will work on the morning Vitamin D in the meantime. I wouldn't say she's entirely sun-avoidant, she just doesn't want to be out in the hot. She's much more likely to tolerate it if she's doing something with a friend. It just doesn't happen often enough. She will go on a walk with a friend but not with me/family. Though she has recently discovered a love of roller coasters, so we are going to Six Flags as a family a couple of times a month. So, the recommendations on her genetic report are from the actual lab, not from the doctor who went over it with me. But she had a bunch of recommendations: support methylation: Methylation Pro: 1 pump per day to upper back support neurotransmitters: NeuroAmino Complete: 2 caps, 1-2x/day support brain connections: Liposomal NMN Synergy: 2 pumps, 2x/day support inflammation: PEA: 2 caps in AM support autophagy: D-Chiro Inositol: 2 caps in AM support probiotic availability: Sibiotica: 2 caps/day Plus a blanket lifestyle support list of avoiding gluten and GMO, restricting sugar, low inflammatory diet, regular exercise, and fasting. (Most of these things are likely a hard no for her.) AND then a general recommendation for functional neuro care, which is the other office that the doctor has and was not all that specific about what that might look like. We have experimented with various diets including Whole 30, Paleo, etc., but not forced the kids to participate 100%. I have not really considered celiac. One of her genes referred to her NOT being more likely to be sensitive to gluten, but as you mentioned, one single gene is not the whole picture. Do you know if the results from Ancestry will cover the additional genes and such that you mentioned? My husband and I have already done Ancestry, and we got kits for the kids at Christmas, but they haven't done them yet. I had heard in the past that you could upload that raw data to Promethease. I just hadn't done it. I did Ancestry to find out about my mom's biological family (and I did, yay!) but didn't follow up on the health portion.
  4. I would put her as Socially Anxious Social Communicator (SASC).
  5. The testing was from GX Sciences. Oh, and you asked about sensory things. She definitely has a strong misophonia, which she gets from me. We cannot tolerate chewing noises. I’ve been this way since I was a child. She much prefers soft clothing. She has always been pretty fidgety and does not like to sit still for long periods. And she has cracked every single joint of her body for as long as I can remember. Frequently.
  6. OK, I searched and found out how to update my signature! First, Peter Pan, thank you so much for all your feedback. I appreciate you taking the time. I have read through a lot of threads in this forum and had hoped you would have some thoughts for me. Now that you know she's 15, hopefully it makes more sense. I'll try to address your points now. First off, after the second class of the dual credit Learning Framework class, we have decided to drop it. It is too overwhelming for her to deal with the prospect of working in groups, and I don't want to make her life that miserable. I have made an appointment with the neurodevelopmental optometrist.... for the end of October. Everything takes sooooooo long. The neuropsych seemed to think it is a mild case if it is happening. But we have the appointment, at least. Yes, we have had her on daily Vitamin D with K2. Getting her to take it is the thing. We try to remind at dinner every day, and we all take it, too. She is resistant to it because she thinks we think it will just fix her. And we keep saying that isn't true, but it will help a lot of things. So we persevere. Oh, and yes, the level is 11!!!!!!! She takes drops by Neurobiologix or something like that. She will absolutely not take a pill of any kind, so that's another hurdle. She has had a strong fear of choking on things for as long as I can remember, so we work around it as best we can. As for genetics, I have a paper report, and I will just take some photos of the pertinent stuff if you are willing to look it over and share your thoughts. The report appointment was such a blur, and it really felt like the doc was trying to get us to sign up for therapies and supplements with her. This doc apparently works at our pediatrician's office on certain days, but has her own practice elsewhere. Her actual pediatric NP is very holistically minded and we are all in favor of whatever supplements and such will be truly helpful. But the report just has a bunch of verbiage like "may support blah blah blah." I am definitely trying to figure out who is flying this jet, haha! My husband is finally coming on board to give some support to me. We are in the midst of figuring out our own communication issues, having recently discovered some major narratives that drive our definitions of love, and they really don't mix well and have made parenting decisions difficult. I have been doing all the hard stuff on my own for a long while now. We have our own therapy scheduled to start in a week, and I am so hopeful that when we are more on the same page, we can parent together better. But my goal is to get our daughter to a place where she can feel comfortable making choices for herself. Definitely putting her mental health at the front of the plane. She has always been a quiet and self-contained person. Even as a baby she would like to hang out in her crib alone, or disappear from a playdate to hang out in her own room. But lately she is much more shut-up in her room and is less likely to do anything with the family. I agree that girl strength masks challenges. I have worried about her for a long time, but she is in stark contrast to her brother who will verbally vomit all his thoughts onto you. That is a blessing and a curse, but I'm grateful for his transparencies. He has had his own struggles with some friendship betrayals that rocked his world and he has been going to therapy for a while. She is more like me, reticent to admit any needs or struggles. She is currently only comfortable going places where she will certainly know someone else, and when she does, she has a good time. But she doesn't get enough opportunities to get out and socialize, and won't try anything new without a buddy. She expressed an interest in doing voice lessons, but won't do them in a group, but then refused when I asked if she would do individual lessons at her theatre. She has callbacks for her next theatre performance on Friday, and I am wondering how she will do. She says she is fine to perform in front of strangers, but has the hardest time doing it in front of people she knows. She has actually always been really afraid of being embarrassed in front of people. Since she was little. We have had to be very conscious of our joking style with her, so as not to make her feel humiliated accidentally. She also has a really big heart for marginalized people and communities. I just saw your thing about Vitamin D in the morning. Will have to see how to work that. I don't always see her in the morning, and when I do, she's ready to get out the door. And that's another thing - she really doesn't like being outside much. We are in the Dallas area and it's so hot here. In her younger years, we were outside A LOT at park days and hikes and such. But she really doesn't get any natural sunlight and I'm not sure if forcing her to do it is a good idea. Her dad had bloodwork in the last 6 months or so, and his D is on the lower end, though much higher than hers. Is there anything to do besides hoping enough drops will do the trick?? The NP didn't prescribe anything but the drops and suggested some Omega 3 liquid by Barleans. I will look over the social thinking site and get back. It looks like its a lot to go over! I am so ready to be flexible with her, I just don't know which way to bend. As the homeschooling mom and up until now, really the only parent making major decisions for her, I have huge fears about mis-guiding her and causing her to miss opportunities she will be upset about. We are totally fine if she doesn't want to go the college route, but I do fear letting her get "off track" and then she decides she does want to do it and is "behind." And I know there are many paths to college and all, so again, am willing to be flexible, just acknowledging my fears.
  7. Yes, my signature is old and I can’t figure out how to change it! She’s 15, in 10th grade. It’s in the thread title, but it is easy to overlook when you read my novel! I would never put my 10yo in a college class, so I can understand your concern there!
  8. She started reporting focus issues, difficulty reading/retaining, and general feelings of anxiety (especially social) and depression in late spring, as classes were wrapping up for her freshman year. We have been homeschooling since her 1st grade year. She has been taking more outsourced classes, and of course, they all went online for covid. She desires more friends, but absolutely will not go to an event full of strangers to meet any. We started with a well exam with her Nurse Practitioner, and bloodwork was mostly in normal range except for being extremely low on Vitamin D (11.) She also had an eye exam and got glasses with a slight prescription. NP suggested a genetic test, and we just got results back the other day. The followup appointment was a blur, but what we got from it was issues with B9 and B12, that she burns through serotonin quickly, (5 neurotransmitter genes are in the one good, one bad category), Neurotrophic Factors all have issues (3 genes), and Autophagy has 3 of 5 genes in the one good, one bad category. We also did a full Neuropsychological Evaluation a couple of weeks ago, and got those results, as well. We were certain she would get an ADHD diagnosis, but she did not! Looks like they did about 12 different tests on her. She is average to above average in most things. Her math calculation and math facts fluency skills were low average, but the neuropsych has diagnosed her with a math disorder, and advises that she uses a calculator and has extra time on tests. She tests a few grades behind. She always did struggle with memorizing basic addition and multiplication facts, though we used many different resources to try and nail them down, and I always advised her that not memorizing them would make future math harder and take longer. They just have never stuck with her. There may be a visual convergence deficit, and she recommended a neurodevelopmental optometrist. We have an appointment for that evaluation at the end of October. (Everything has such a wait! We waited 3 months for the neuropsych!) She scored very high on anxiety and depression, and is recommended for psychotherapy. We are going to present DD with some options to see who she would be comfortable seeing. Here’s where I could use some input. She has previously expressed a desire to do as little schooling as possible, and does not currently have any desire to go to college. I have planned for her to do the dual credit route (her older brother is in his senior year and has done a lot of DC in preparation for college, and it has gone well.) She started a Learning Framework class at the community college yesterday and is extremely anxious about it, as she is younger than everyone in the class AND there will be a fair amount of group work. After class, she said she would prefer to just do 2 years of CC after high school (her dad and I have said she needs to at least get an AA.) She is also taking a high school Chemistry class with a local teacher. She took biology from him last year and got an A, and her best friend is in the class. The teacher started off by saying this class will be harder than last year, so she’s already worried about it. She said day one is hard already. She also has a history class and an intro to writing class with a local teacher who is teaching online again this year - she did an English class with him last year and enjoyed it well enough. Additionally, she takes a dance class and is going to do a theatre production with a local youth theatre that she has been active with for several years. She does math with me. We have previously used Life of Fred, and I don’t think that’s the best option going forward. Considering Math U See Geometry. She is very shut down and does not communicate with me much. She prefers to be in her room most of the time. I don’t really know how to guide/advise her. Her brother has been college-bound all along, so it has been easy enough to guide and motivate him. I don’t want to grind her into the ground with a college-prep load, but I don’t know how to guide her towards a totally uncertain future. She doesn’t have goals or plans or anything. She doesn’t want to talk about it. I am certainly hoping therapy will be helpful, and if her provider thinks medication would be recommended, we are certainly open to it, though the genetic test does say she will not likely respond well to most SSRI’s. Basically, I’m just at a loss and looking for any input from fellow parents! Thank you so much if you read this far.
  9. Getting moving with a nice walk after lying still in poses sounds wonderful to me!
  10. I was born in Santa Rosa. My dad and stepmom still live in Healdsburg, where I was raised, mostly. I went to school in Cloverdale, where they taught. Parents are ok for now. Other friends are not so lucky. One in Windsor is debating whether to leave. It's so scary!! I remember growing up with the fear of fire, but only remember a time or two when evacuation was even a remote possibility. My parents have friends who have already lost their homes, and a classmate also has. Another classmate is a nurse at one of the evacuated hospitals.
  11. You could always donate to a local charity in their name if you wanted to gift something.
  12. There will be dust on every imaginable surface, including your own head. My drywall guys are painting as I type this. We live in Dallas, and it is August, so leaving the AC off was not an option. We did buy a bunch of new filters so we can change them out frequently as we have messy renovations done. One air intake was whistling loudly because of all the dust it had accumulated!!
  13. In Texas, we call that one a Plain-Bellied Watersnake. Nonvenomous.
  14. A friend of mine pronounces it "schmores," and I tease her mercilessly over it.
  15. A Snicker of Magic is FANTASTIC!!!! https://www.google.com/aclk?sa=l&ai=DChcSEwitgdGC8_rTAhUOnX4KHVMYAgAYABAAGgJwYw&sig=AOD64_3g7qA-HXYddgkhGGa4kiBig9_w-g&q=&ved=0ahUKEwiUw82C8_rTAhVV9WMKHVuoD_0Q0QwIGg&adurl=
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