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Everything posted by PuddleJumper1

  1. If anyone wants to watch Dorian in real time my son"s future BIL has a camera set up on the beach in Ponte Vedra, FL.
  2. Mine was born of several things. I am a huge Stargate fan. I also love the quote " Life isn't about waiting for the storm to pass but learning to dance in the puddles". Between the two, my user name and avatar came to be 😊The number is just there because there is another PJ in the membership.
  3. You can archive an order even if it hasn't shipped. It won't show on your order page that way. I struggle to remember where to find them again so for me they are pretty well hidden 😁
  4. As I suspected - hiding in plain sight ?. How I missed that is anyone's guess! Thank you!! You have made my day. On my phone it's under the post but still as big as life ?
  5. Is there a way in this new system to follow posts? I see the share button but don't see a way to follow without posting. Am I just missing it?
  6. Will be praying and thinking of you! I've been where you are many times - hugs from a mom who understands.
  7. I am working on organizing and setting up the library at our church. There are already quite a few books (somewhere around 1000 I guess) but they've just been stacked in a haphazard way til now. I've got them sorted by subject so far. Next step is cataloging them. Is there a computer program you'd recommend for that? I'd love something that takes the ISBN and gives the spine numbers and cataloging info. Does such a thing exist? Any other hints and ideas are very welcome! Thanks!!
  8. THANK YOU!! My Mom carried a vial with everywhere when I was a kid.
  9. There was a thread recently that talked about Epi pens. Several people mentioned an alternative that wasn't as expensive. I can't, for the life of me, find the thread. What are the other epi pen type of medications out there? Thanks!
  10. This is my understanding as well. My 23 yr old is still covered fully through our insurance and he's currently taking a break in his schooling. As far as I know, he's covered until 25. Perhaps that is specific to each policy?
  11. I have everything (and I mean everything) from birth to about age 11. Requested copies of any and all forms, clinic notes etc. From about 11 on I've been making notes for myself and keeping only major things (testing reports, surgery notes, new diagnosis, updated plan of care etc). One thing I wish I had done from the beginning is keep a journal with notations of things he did. Things that seemed minor back then, I would love to look back and see the progress. I am currently working on organizing boxes of medical files and it is quite overwhelming. I'm in process of making a notebook of all important test results, growth charts, surgeries etc so I can carry that with me when needed. I used to carry a 4" notebook with sections for each specialty. Now I carry what's important for each doctor. Of note for us - most of Joseph's doctors have been with him for between 10 and 16 years so there is a knowledge base there. As we are nearing transition to adult care in the next several years, I'm hoping the one concise notebook will have the information needed. There is just so much paperwork with these special kiddos. Our pediatrician is up to the 8th volume of charts for Joseph - each one is about 3 - 4 inches thick! As a complete side note. My mom kept major medical info on my brother and I forever. I actually had to pull out a doctor's record from my files dated in the 70s to use when filling out a form for myself.
  12. I would have your friend contact police directly. I recently went through a talk shared by a detective who said sharing photos like that, even innocently with a friend for help, can be viewed by law enforcement as distribution of child porn since there is at least one minor. I would not contact anyone else involved in those pictures. Turn it all over to law enforcement.
  13. Hugs and prayers. I am so sorry for your loss.
  14. Keeping you in prayer. So glad you are able to spend time with her.. :grouphug: :grouphug:
  15. :grouphug: :grouphug: :grouphug: I am so sorry. Lots of prayers and hugs.
  16. Yes! My son had very little in the way of digestive issues when he was diagnosed. He was dealing with other issues (wrist pain, brain fogginess to name a couple). Celiac was actually a random 'check it off the list' test. His GI was surprised when blood work came back positive and shocked at the level of damage to his gut with so few digestive issues.
  17. My oldest and dh both have Celiac. Since ds' diagnosis (his was first) dd is tested every 3 years (bloodwork) by our GI. My youngest has been gf since years before ds'/dh's diagnosis due to his special needs but GI doctor even had us do a gluten trial with him so we could test and know for sure what we were dealing with. The repercussions of undiagnosed/untreated Celiac are significant. I'd definitely have your children tested.
  18. PuddleJumper1


    I am so very, very sorry.
  19. I am so very, very sorry for the loss of your beautiful daughter.
  20. Congratulations!! :001_wub: Beautiful name for a beautiful little girl!
  21. So glad to hear everyone is home and on the mend! We LOVE Wolfson. It's like a second home to us :) You were in great hands. Congratulations on finding your car - that parking garage can be a nightmare.
  22. I am an other :) I do not have one now but have joyfully had one in the past. I rather like junk drawers - they're like a mini mystery with all the unknowns lurking about.
  23. What a great update! So glad it wasn't what they expected.
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