BusyMom5 Posted August 3, 2023 Share Posted August 3, 2023 Hoping the results are back quickly, and you can get a plan in place! 1 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 3, 2023 Author Share Posted August 3, 2023 2 hours ago, mom31257 said: I'm so glad it went well, and I pray they get the results back sooner than later. Are the steroids to see if they can get you well enough to go home? Steroids are because of the medical incident of previous night. "To slow down the progression of symptems" the specialist said. 10 Quote Link to comment Share on other sites More sharing options...
Ausmumof3 Posted August 3, 2023 Share Posted August 3, 2023 I hope you’re coping ok and getting the support you need for now. 2 1 Quote Link to comment Share on other sites More sharing options...
Halftime Hope Posted August 4, 2023 Share Posted August 4, 2023 Just popping in to send a gentle hug @Melissa in Australia, wish you some improvement in the symptoms with the steroids, and let you know you are being thought of. 1 Quote Link to comment Share on other sites More sharing options...
Longtime Lurker Posted August 4, 2023 Share Posted August 4, 2023 I am praying for you and also for your twins back home. 1 Quote Link to comment Share on other sites More sharing options...
fraidycat Posted August 4, 2023 Share Posted August 4, 2023 Still keeping you in my thoughts. 1 Quote Link to comment Share on other sites More sharing options...
Anne Posted August 4, 2023 Share Posted August 4, 2023 Praying for you, Melissa - waiting is hard! 1 Quote Link to comment Share on other sites More sharing options...
Just Kate Posted August 4, 2023 Share Posted August 4, 2023 Continuing to pray, Melissa!! 1 Quote Link to comment Share on other sites More sharing options...
Innisfree Posted August 4, 2023 Share Posted August 4, 2023 I’m thinking about you frequently, Melissa. Hope you’re comfortable and get some good news soon. 1 Quote Link to comment Share on other sites More sharing options...
TexasProud Posted August 4, 2023 Share Posted August 4, 2023 Thinking about you today! 1 Quote Link to comment Share on other sites More sharing options...
Irish Posted August 4, 2023 Share Posted August 4, 2023 Praying for you, Melissa. 1 Quote Link to comment Share on other sites More sharing options...
lauraw4321 Posted August 4, 2023 Share Posted August 4, 2023 Praying for you, Melissa! 1 Quote Link to comment Share on other sites More sharing options...
Ditto Posted August 4, 2023 Share Posted August 4, 2023 Melissa- I am continuing to think about you and pray for you. Lots of gentle hugs. 1 Quote Link to comment Share on other sites More sharing options...
EKS Posted August 4, 2023 Share Posted August 4, 2023 Thinking of you Melissa. 1 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 4, 2023 Author Share Posted August 4, 2023 Can't remember if I wrote, doctors decided to keep me in hospital because of how increadably weak I am. 34 Quote Link to comment Share on other sites More sharing options...
ktgrok Posted August 4, 2023 Share Posted August 4, 2023 11 minutes ago, Melissa in Australia said: Can't remember if I wrote, doctors decided to keep me in hospital because of how increadably weak I am. I'm not happy you are weak, but glad they are taking it seriously and keeping you in the hospital. I am hoping the steroids do their thing and you start breathing better soon, and then get results that are clear and not scary. 20 1 Quote Link to comment Share on other sites More sharing options...
mominco Posted August 4, 2023 Share Posted August 4, 2023 Still thinking of you Melissa. 1 Quote Link to comment Share on other sites More sharing options...
Frances Posted August 4, 2023 Share Posted August 4, 2023 I hope you feel much better soon! My thoughts are with you and your family during this difficult time. 1 Quote Link to comment Share on other sites More sharing options...
cintinative Posted August 4, 2023 Share Posted August 4, 2023 Praying for answers and for your endurance 1 Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted August 4, 2023 Share Posted August 4, 2023 I hope the answers come fast and they come with solutions. I am glad you are there and not home. Did your toilets get cleaned? 1 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 4, 2023 Author Share Posted August 4, 2023 Not yet Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 4, 2023 Author Share Posted August 4, 2023 Every day I feel I am getting slowly weaker. Even my skin feels weary. I am dozing off most of the time. 33 Quote Link to comment Share on other sites More sharing options...
Ditto Posted August 5, 2023 Share Posted August 5, 2023 3 minutes ago, Melissa in Australia said: Every day I feel I am getting slowly weaker. Even my skin feels weary. I am dozing off most of the time. Can you tell any difference with the steroids? Have you told the drs this is how you are feeling? Have they given you any info at all? I so wish there was something I could do for you (prayers are being lifted). 6 1 Quote Link to comment Share on other sites More sharing options...
Arcadia Posted August 5, 2023 Share Posted August 5, 2023 11 minutes ago, Melissa in Australia said: Every day I feel I am getting slowly weaker. Even my skin feels weary. I am dozing off most of the time. Are you able to drink protein drinks? I find even drinking coffee with high protein milk was better than nothing whenever I was badly ill and have no appetite. 6 minutes ago, Ditto said: Can you tell any difference with the steroids? I am worried about the steroids too. The steroids I had for asthma made me felt worse when I took it. There was a study that explains why that may be the case for me. What Melissa was given is probably different from what I was given but it is worth considering possible drug issues. https://www.upmc.com/media/news/asthma-ray “ “While corticosteroids are the mainstay asthma treatment, our findings suggest that these medications are of limited help to patients with high levels of interferon-gamma and CXCL10, and may even be harmful over time.” The team plans to further investigate this pathway in search of ways to block the inflammatory loop perpetuated by CXCL10 and interferon-gamma. “Over the next few years, we also hope to show that CXCL10 can be used as a biomarker in the clinic to help identify patients who will not respond to corticosteroids, sparing them from the significant side effects of these medications,” Ray said.” 3 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 5, 2023 Author Share Posted August 5, 2023 They didn't give me any more steroids. I don't know. Maybe it was a trial. Now they are giving me mineral enriched energy drinks. Aparently I have sweated out a lot of sodium The doctors are extremely vague on purpose. Even if I ask a direct question they are very vague. A bit teary today 37 Quote Link to comment Share on other sites More sharing options...
Ditto Posted August 5, 2023 Share Posted August 5, 2023 It is maddening that they aren't being forthright with you. Equally maddening that things just seem to be taking far longer than it seems they should. Medical things do take time and I know that, but this seems to be extremely slow to a degree that is out of the norm. I just want to scream at them to DO SOMETHING NOW to help you before you fade further! 7 2 Quote Link to comment Share on other sites More sharing options...
Starr Posted August 5, 2023 Share Posted August 5, 2023 Sending love and pleasant thoughts. Will the doctors be more direct with your dh or a friend you name? 2 1 Quote Link to comment Share on other sites More sharing options...
Arcadia Posted August 5, 2023 Share Posted August 5, 2023 (edited) 23 minutes ago, Melissa in Australia said: The doctors are extremely vague on purpose. Even if I ask a direct question they are very vague. The majority of my dorm mates in college were from medical school. They can’t say anything unless they are authorized to do so by their higher ups. A good friend told me my friend’s diagnosis when she was in ICU. That friend would have been in deep trouble if I had accidentally let on that he told me. In the old days, medical notes were on clipboards attached to the hospital bed and it was easy to sneak a peek when a patient wants to. Losing too much sodium would have make me dizzy, nauseous and spiking a fever. Glad you are in hospital and being monitored. Press the call bell for help going to rest room and all that. Don’t feel that you are imposing. I had hospital nurses who would tape the call bell button/squeezer to my bed rail so that I could easily reach it without trying to sit up. Edited August 5, 2023 by Arcadia typo 4 Quote Link to comment Share on other sites More sharing options...
ktgrok Posted August 5, 2023 Share Posted August 5, 2023 40 minutes ago, Melissa in Australia said: Every day I feel I am getting slowly weaker. Even my skin feels weary. I am dozing off most of the time. What is your oxygen saturation? I'm assuming they are monitoring that closely? 3 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 5, 2023 Author Share Posted August 5, 2023 I do call for nurse to take me to bathroom.. I haven't been able to walk for nearly 2 weeks. I am really very ill indeed. 24 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 5, 2023 Author Share Posted August 5, 2023 (edited) 6 minutes ago, ktgrok said: What is your oxygen saturation? I'm assuming they are monitoring that closely? Between 92 and 94. The surgeon said anything above 90 in my condition is ok Heart rate between 87 to 112 higher end when I have the fever or sweats Just had a different team of doctors in. As it is the weekend. The doctor apologised to me for the long delays in getting results. He said he is extremely worried about me, but can't start treatment until they identify exactly what I have. At least he was upfront enough to tell me what I have already heard other doctors say in the hallway. Basically they are just waiting for their diagnosis of lymphoma to be confirmed Edited August 5, 2023 by Melissa in Australia 38 Quote Link to comment Share on other sites More sharing options...
Kassia Posted August 5, 2023 Share Posted August 5, 2023 Sending big gentle hugs. I'm so sorry about all of this. 1 Quote Link to comment Share on other sites More sharing options...
melbotoast Posted August 5, 2023 Share Posted August 5, 2023 So sorry that you are feeling so poorly. I hope you can get a diagnosis and start treatment soon! 1 Quote Link to comment Share on other sites More sharing options...
Spryte Posted August 5, 2023 Share Posted August 5, 2023 Sending hugs and warm thoughts. I wish we could all do more than that! Is there any chance you can get care for the twins at home and your DH can come advocate for you? I know that’s a long shot, just wishing you had an advocate with you. 4 1 Quote Link to comment Share on other sites More sharing options...
Vintage81 Posted August 5, 2023 Share Posted August 5, 2023 Hugs Melissa 1 Quote Link to comment Share on other sites More sharing options...
kbutton Posted August 5, 2023 Share Posted August 5, 2023 I'm sorry it's likely going to be such heavy news. Prayers. 1 Quote Link to comment Share on other sites More sharing options...
livetoread Posted August 5, 2023 Share Posted August 5, 2023 Of course you are teary. It must feel awful to feel yourself getting weaker. I hope you can feel our care for you surrounding you in all this. 6 1 Quote Link to comment Share on other sites More sharing options...
KSera Posted August 5, 2023 Share Posted August 5, 2023 I'm so sorry you're going through this and still waiting without treatment. I hope you get definitive news very soon and they are able to start treatment that gets you feeling better. 1 1 Quote Link to comment Share on other sites More sharing options...
thatfirstsip Posted August 5, 2023 Share Posted August 5, 2023 I'm so sorry you're so ill, and I hope they are able to start treating you soon to improve your symptoms. Potential cancer is so scary. Lymphoma in particular is, even in pretty late stages or in a fast-growing form, comparatively treatable and survivable. Once they know what to do, even if the diagnosis is lymphoma, I have a lot of faith that they'll be able to treat it successfully. The odds are in your favor. You can make it through this. It must be so hard to be so completely exhausted right now. I hope that will get better quickly once they are able to begin targeted treatment. 15 1 Quote Link to comment Share on other sites More sharing options...
Faith-manor Posted August 5, 2023 Share Posted August 5, 2023 Big hugs, Melissa! Lots of love. 1 1 Quote Link to comment Share on other sites More sharing options...
mom31257 Posted August 5, 2023 Share Posted August 5, 2023 Hugs, @Melissa in Australia!! Holding you in my thoughts!! 1 Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted August 5, 2023 Share Posted August 5, 2023 Melissa, I am so sorry for your suffering and for the fearful, weary waiting. I am praying for answers and for healing. 1 1 Quote Link to comment Share on other sites More sharing options...
Ausmumof3 Posted August 5, 2023 Share Posted August 5, 2023 2 hours ago, kbutton said: I'm sorry it's likely going to be such heavy news. Prayers. 1 hour ago, thatfirstsip said: I'm so sorry you're so ill, and I hope they are able to start treating you soon to improve your symptoms. Potential cancer is so scary. Lymphoma in particular is, even in pretty late stages or in a fast-growing form, comparatively treatable and survivable. Once they know what to do, even if the diagnosis is lymphoma, I have a lot of faith that they'll be able to treat it successfully. The odds are in your favor. You can make it through this. It must be so hard to be so completely exhausted right now. I hope that will get better quickly once they are able to begin targeted treatment. Yes one of my uncles had it several years ago and he is over 70 and still going ok. 1 Quote Link to comment Share on other sites More sharing options...
Laura Corin Posted August 5, 2023 Share Posted August 5, 2023 Thinking of you. I'm sorry you are having to wait. 1 Quote Link to comment Share on other sites More sharing options...
Ausmumof3 Posted August 5, 2023 Share Posted August 5, 2023 A couple of pics from my walk today in case you need something cheerier than a hospital ward to look at while you’re waiting. Everything is flowering early here this year 12 1 Quote Link to comment Share on other sites More sharing options...
Malory Posted August 5, 2023 Share Posted August 5, 2023 Praying and rooting for you, Melissa. I am sorry you are suffering so much. 1 Quote Link to comment Share on other sites More sharing options...
TexasProud Posted August 5, 2023 Share Posted August 5, 2023 Praying for you, Melissa! Praying this new day brings answers and a step toward healing! 8 1 Quote Link to comment Share on other sites More sharing options...
SanDiegoMom Posted August 5, 2023 Share Posted August 5, 2023 Hugs {{{ @Melissa in Australia }}} 1 Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted August 5, 2023 Share Posted August 5, 2023 Praying you get some answers and an effective treatment soon. Even on a weekend. 1 Quote Link to comment Share on other sites More sharing options...
Ditto Posted August 5, 2023 Share Posted August 5, 2023 How are your husband and kids doing? How old are the twins? Thinking of you today. The pictures people are posting are lovely. 1 Quote Link to comment Share on other sites More sharing options...
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