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kbutton last won the day on September 1 2022

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  1. It’s nice to hear from you!
  2. I want to say more about IQ since PeterPan phrased it this way…parents are generally good identifiers of problems and strengths. This expectation is kind of the textbook of an LD presentation, but for kids with lower IQs, it doesn’t always work that way. Also, with NVLD being a pattern within the WISC itself, you have part of the answer—verbal tasks are going to be easier relative to nonverbal ones. That said, you can’t fake high scores, but you can fail to perform to your potential, if that makes sense. So, combined with what you and PeterPan said that I quoted, does your gut says she’s smarter than the WISC says, or does it say that maybe the explanation is less a frank LD and more IQ? No need to answer to us if you don’t want to. If the answer is that you aren’t sure, it will be more clear over time. It might also mean that something she has going on makes parts of all of the IQ testing less reliable. It happens. If you definitely think she’s smarter than she demonstrated, PeterPan’s recommendation to consider side evals over time is definitely more where it’s going to be at for you. It might also indicate something like a hearing issue or problems with eye-teaming and such (developmental optometrists at COVD.org help figure this out). If you have an inkling that this IQ is right, and she has splinter skills with vocabulary, expect later education to get bogged down a bit. It might no matter what, but it might hit a harder and firmer wall if her IQ is actually skewed more to the lower end. She’ll likely need services that are somewhere between a resource room and a regular classroom, and that space is not catered to as much with curriculum or therapy. It will require creativity, advocacy, and hard work to navigate. It sounds like you are well on your way!
  3. That’s annoying, but thank you! Facebook is also using an AI search. Sigh.
  4. I think it’s also fine to use the aids in school while waiting for therapy gains—I just don’t have suggestions for how to make your kid okay with it. Perhaps mild bribery—ice cream or whatever.
  5. Is there a way to turn off AI search? It’s terrible. I am unsure if all the results are AI or just some, and it seems to want to answer my question from its own “brain” rather than bringing me good links that are relevant. It’s really disrupted my getting medical information when I research picky questions where I want results from journals and such.
  6. If you have no family history, you are probably low risk, but I think people need to know this generally. For those at risk, I think the risk is also still time-limited.
  7. I think I’ve been told hormones do affect them, but I don’t have chapter and verse on that. My PT was willing to give me maintenance exercises, but she was also astute about the hypermobility spectrum and was not the first PT I tried in the group. Yes, fluoroquinolones do this. They can also cause aortic changes, especially in older people and people prone to aneurysm formation. They are not good for people with the kinds of connective tissue disorders that cause aneurysms.
  8. I would assume the benefits will be more obvious in a classroom than at home, but you could see gains in both places. My kid was supposed to have a month trial many years ago but actually got two weeks, which wasn’t enough to get past the resistance and awkwardness of having them in. Eventually we were able to get him actual therapy with another audiologist, and his APD is now remediated.
  9. Some kids excel with supports and hard work, but as they hit middle and high school, they will start to struggle with more abstract work. And yes, this does seem like NVLD, but that is not a current diagnosis. It is helpful information though because it describes a pattern of difficulties. I have one kid with an NVLD profile, but it didn’t become a functional difficulty until high school (and oddly, he has lots of nonverbal strengths too—it’s weird!). He also has a recent ASD diagnosis, which is not super unusual with an NVLD profile. The IQ could be accurate, or it could be a bad day. It is likely that the pattern of strengths and weaknesses is accurate even if lower than what is actually true. Lower IQ score with better WIAT scores almost certainly mean she is well-supported with what she’s getting right now. Good job! In spite of the high verbal scores, NVLD will almost certainly mean social and pragmatic language issues down the road, so you might keep that in mind for future supports or even specialized testing with a language therapist.
  10. If you have time, I would love to know how you like it and how it goes. It came out a bit late and pricey for my older one, and my younger one had a class in school. If they need more detailed help, this is my likely next stop!
  11. I taught a young family member to cross-stitch last week! I have a simple flowers in a jar pattern that I work on, but I am slacking as I don’t have a specific project to do when it’s finished.
  12. Someone in my family is double-jointed head to toe, has RA and fibromyalgia, and thrives on ballroom dancing. It keeps her pain free and active. You may have some damage from not knowing how to move your hypermobile body when you were younger. I am mildly hypermobile, and I definitely have things that hurt from not knowing I should do things differently. My stride length is a casualty of this—I walked crazy fast with long strides when I was younger, and I had no idea it was possible because I was constantly hyperextending my knees. Now I am paying. You might not even have asthma. People with non-asthma breathing issues can be labeled as having asthma for years before being diagnosed correctly. Peak flow ended up being meaningless for me, and I need to find out what’s really wrong because it really doesn’t seem like asthma. It’s on my list after some genetics come back on my other kid—one of the likely things that could be going on with that one has a lung component in about 1/3 of patients, and they often get an asthma diagnosis before finding out it’s something else.
  13. Oh, if you end up with DIY options after seeking a pulmonologist, see if you can find old Lisa Westlake videos. Start with the pregnancy ones. Seriously. Then move on to harder ones if you outgrow those. She is an exercise physiologist, and her stuff doesn’t require extraordinary coordination. They are mostly on an exercise ball though if that matters.
  14. I haven’t read replies, but I will go back and look. Get a pulmonologist on board to measure this with pulmonary function testing. You could have more going on. Depending on how much trouble you have exercising, you could qualify for pulmonary rehab. It’s been life-changing for my kiddo, and the exercises incorporate short bursts of everything you want. A referral to a cardiologist might be appropriate, and cardiac rehab is nearly identical to pulmonary rehab. Do you have to do normal strokes? As long as you don’t hurt yourself, something you make up that is gentle and comfy is good!!! Have you considered a water-based class that is not swimming? They have PT in the water as well as more aerobic-style classes that (from my observation) don’t seem to require as much coordination and motor planning as regular aerobics (I am a flunky at regular aerobics due to coordination). Yoga? When I did PT, I needed a PT that would break things down into smaller, gentler component exercises because I would get hurt so easily, but when they did that, it was really helpful. The pulmonary rehab my son did was similar to the broken down gradual PT but without the bursts of cardio. ETA: pulmonary rehab HAS the cardio—typo.
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