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kbutton

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About kbutton

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    kbutton

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  1. Actually, now that I think about it, when I was in 5th grade, several of us went on a FIELD TRIP in the back of a teacher's covered pickup truck. The field trip was about 45 minutes or an hour away! No one thought anything of it. I think there were other kids in other private vehicles as well. We'd ride in the back of station wagons on substantial trips also, whether they had a fold down seat in the trunk area or not.
  2. I remember using Netscape to access the internet. Fun thread. I remember the cigarette vending machines. I had to make sure the web-based help I wrote would display correctly in Netscape, lol! We had two rotary phones for a long time. I remember it being a big deal to get a touch tone phone. Both of the rotary phones lacked a phone jack--they were wired directly into the wall. I remember when it was no big deal to ride around in the bed of a pickup truck around town or on a short trip.
  3. Well, that's an answer, cubed! I hope the answers are really helpful and lead to better outcomes for your family so everyone can be their best version of themselves. Be kind to yourself often as you digest this and move forward.
  4. Would he be responsive to knowing that the therapy will stop if it's no longer helpful, but for now, you're seeing him bloom and grow in xyz ways? Can you explain that it's like fertilizer? Some of the therapies he's getting are overdue because it took a long time to find the right therapists, labels, etc. Can you explain that you're making up for lost time, and that each thing you are doing makes work easier later? (This helps my son, though he's not looking forward to doing longer writing later like his friends have to do, lol! But he does understand that he needs the skills for his own goals.) Does it help him realize this is to meet certain goals of making him the best version of himself that he can be? This one doesn't fly as easily for my son unless it makes him feel better directly (like OT did), but this is because the skills he's getting are 90% about jumping through a hoop for future goals. I'm curious if this is coming up with his supplements too (why he has to take them when other people do not)--if it's not but it could later, how you handle this could feed into how you end up handling that. You definitely don't want him to fight taking supplements that keep him calm and workable! On a side note, I would seriously caution you to not make a contrast IRL to people you talk to about physical issues, like having been burned, as being different to a neurological difference. It's not going to go good places. I kind of understand why you are bringing it up here, but the feelings for those who have been forever changed physically are probably not running toward logically detaching their changed body from their inner selves. Not from what I've heard people who have had a trauma like that say. I am watching (from afar) someone go through that reckoning right now, and it's NOT pretty. Hugs. Obviously I have kiddos going through this too, but it's been a little easier here on the neurological front, and we mostly have an end goal in sight. We are very close to hitting a potentially ugly stage with the younger one about his genetic diagnosis. His awareness is growing, and his body image is in the forefront as he's about to hit a big growth spurt and be in the worst of puberty. And for him, the news only gets scarier--"Yes, you'll likely live to a ripe old age, but it won't be without significant discomfort, pain, and possibly disability. Also, you're likely to have to have your chest opened up for major surgery at least once to achieve old age. Looking different and having major activity restrictions is just the tip of the iceberg." It's known in the disease community that this leads to some really rough years of reckoning (and sometimes really poor choices). Hang in there!
  5. My son will be on beta blockers (or potentially a related drug) for life due to cardiac issues. he had a little fatigue at first, but it's not as pronounced now (and it's also hard to distinguish from fatigue due to numerous other causes). He doesn't experience a difference in migraine frequency as far as we can tell. No anxiety as a result. Most of the time, if he's anxious, it's due to environmental noise (he has auditory processing disorder), and he uses musician's earplugs for that.
  6. My BIL was a PTA for a while, but that was too long ago to be useful information. He eventually became a prosthetist instead. He loves it. You might see what she thinks of that idea. There are also people that fit and make orthotics. I would think those jobs might appeal to a similar group of people that would like PTA, in case you need more ideas. I have a friend who is an OTA, and she worked for an agency that contracted with nursing homes and home health care. I don't know what she made (she recently changed jobs due to physical limitations), but she made more than what I'm seeing on this thread for OTAs. However, if she didn't have a "facility" where she could see patients one after the other, she had to manage her own schedule, drive all over creation, etc. with no reimbursement for miles and things like that. So, if you work for an agency that sends you to facilities, you have a really good deal. I am guessing that PTAs have similar kinds of opportunities where the pay varies or other things have to be factored in to see if you really get the average salary. It may also vary a lot depending on local health system or major insurances at play in the area.
  7. I believe some friends used it for trauma with a child adopted from foster care, and it was very helpful.
  8. I agree, assuming you have the luxury of choice. Life it too short to spend all your time asking people to do their own job, lol! Especially with healthcare. Don't apologize to a practice about not having a rock solid relationship with a pediatric practice--if you don't get sick, that should be expected. I don't think you should have to defend that fact to anyone.
  9. Well, what is considered acceptable in a child of 9 or so, and what is considered acceptable at 11 is very different--by 11, they will expect the kids to maybe have caught up or evened out, and the norms for tests get more robust. For instance, my younger son has some really serious movement and coordination issues, but he's always passed the tests by the skin of his teeth while clearly being a hot mess. We got private therapy, but he still has issues, and so it goes on. Well, finally, this year, he qualified for PT to be put in his IEP--he is not gaining ground on motor skills as fast as peers, so now, the norms finally captured a big enough gap between his functioning and what is typical. All that to say, if you can't afford private testing (which would be helpful, I think), you might be able to get somewhere with the school now. Or, get the private testing and take it to the school. It's also VERY important to get the RIGHT testing. The Test of Narrative Language is becoming more standard, but no one ran that on my kids when going through the school. The private SLP didn't run it. I had to ask for it (the private educational psychologist ran it). Even with hints that my older son had issues with narrative language, his scores were SHOCKING. He looks fantastic on other language tests. The school, by law, has to do a multi-factored evaluation, and you can do some research (or ask if anyone has links) to show the school that testing for narrative language IS an essential part of a multi-factored evaluation when language issues are in question at all.
  10. I have a lot of food reactions, so we keep it really simple for dinner. Other people had better lunch ideas than me, but our dinners are meat, veggies, starch. The starch is often brown rice. It can be oatmeal. So, we might have stir fry sometimes or oatmeal pancakes with bacon and sweet potatoes. I do try to make two veggies at supper. It's really predictable and not terribly hard. We buy a lot of frozen veggies to keep it simple. Trader Joe's has frozen beets that are delicious (Whole Foods had some that we tried that were NOT). That's one of those foods that are frustratingly variable, but we like them--one batch of beets might take 40 minutes to cook and another batch a couple of hours; they might taste like a hunk of iron or be almost as sweet as fruit. The frozen beets keep it simple, and they turn out really sweet and seem to cook for a consistent amount of time every time. We find that TJ's often have an upscale version of some veggie we like but don't usually make a fuss about. For instance, they have carrot medallions that come in several colors and have seasoning added. They are wonderful to add to a dish in progress or to eat on their own. It's kind of fun to shop there for some playful version of a the same old, same old.
  11. Now I am curious what your career field is.
  12. We'd be having a silent car ride with pull-overs for infractions. Maybe you can record their really childish behavior and then play it back for their friends at church. 🤣
  13. I think I have read that peroxide is really good for showers, but there are a few caveats (which is why I haven't messed with it much--dish soap works for us)... It can bleach things, so you have to be careful with it in the laundry It has to be keep in a light-proof container, so you can't mix a bunch of ahead as easily unless you find the right kind of spray bottle
  14. I agree--the Story Grammar Marker stuff from Mindwing Concepts has been a huge help for my son that has issues with the kinds of things you are describing for narration. We are using Thememaker, Critical Thinking Triangle in Action, and Making Connections. He's doing all this with an SLP, but some parents are very comfortable with the tool. Comprehension workbooks, on the other hand, were rarely helpful. I do recommend Inference Jones, both levels, from The Critical Thinking Company. Those are excellent. But they won't fix the narrative language problem that you are describing. They are for inferencing and nothing else. My son's inferencing skills are improving greatly with the Story Grammar stuff.
  15. Update us if you are going to use it for a while. My younger kiddo could really use something like that maybe. The Choice Works looks good too, but it appears to be only on the ipad if you want the calendar version.
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