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Everything posted by kbutton

  1. DH says, "What doesn't kill you makes you stronger."
  2. I can deal with the outright "masks violate my rights" people far more easily than the ones that post stuff like this: The constant undermining everything without actually saying anything of substance is so passive aggressive and insidious. Funny/not funny flip flop from someone controversial on this very idea: https://www.wthrockmorton.com/2021/08/30/who-said-this-about-vaccine-mandates/
  3. It took me a minute also!
  4. We had this with Best Buy, but we were able to send the purchase back.
  5. I have had this sort of situation go all different ways. At one store that was chronically incompetent, I finally stopped trying to rectify errors because it was happening nearly every time I went to the store (long checkout lines every time followed by long waits in the line for the manager were getting to be ridiculous), and there were times that I told the person who was checking me out that they were making a mistake, and they didn’t double check with a a manager, etc. I am not responsible to train their people. Eventually, I stopped shopping there for multiple reasons, though there was a “straw that broke the camel’s back incident” that prompted it. We use their pharmacy now, but that’s about it. Their pharmacy seems to be well run. ETA: To be clear, this was a grocery store that had checkers that rang things up wrong all the time, missed stuff, etc. The largest ticket item was photo developing, and the problems were usually of the nature of having them treat a mail-in rebate form like a coupon, lol!
  6. The International Mission Board of the SBC is requiring vaccines for their missionaries and all missionary kids over 16. Sounds more like a pragmatic decision than anything, but I am glad they’re doing this. https://www.washingtonpost.com/religion/2021/09/18/southen-baptist-missionaries-covid-vaccine/?utm_campaign=wp_to_your_health&utm_medium=email&utm_source=newsletter&wpisrc=nl_tyh&wpmk=1&pwapi_token=eyJ0eXAiOiJKV1QiLCJhbGciOiJIUzI1NiJ9.eyJjb29raWVuYW1lIjoid3BfY3J0aWQiLCJpc3MiOiJDYXJ0YSIsImNvb2tpZXZhbHVlIjoiNWZlZjYzNzI5YmJjMGYyNTEyYmNmYzQyIiwidGFnIjoiNjE0OGVlNmM5ZDJmZGE5ZDQxZDk3YzcxIiwidXJsIjoiaHR0cHM6Ly93d3cud2FzaGluZ3RvbnBvc3QuY29tL3JlbGlnaW9uLzIwMjEvMDkvMTgvc291dGhlbi1iYXB0aXN0LW1pc3Npb25hcmllcy1jb3ZpZC12YWNjaW5lLz91dG1fY2FtcGFpZ249d3BfdG9feW91cl9oZWFsdGgmdXRtX21lZGl1bT1lbWFpbCZ1dG1fc291cmNlPW5ld3NsZXR0ZXImd3Bpc3JjPW5sX3R5aCZ3cG1rPTEifQ.rrKKHjP0d5pKq5rce5mJhxMkPZ0QXwMesjEFA8NPsq0
  7. Not having any luck starting a long goodbye poll. I am not sure what I'm doing wrong, but the button to finish/publish the post stays grayed out no matter what I do. I used both tabs, and I filled in each area of the form.
  8. I should set up a poll. It's not common where I live now, and it's something that "outsiders" who came to visit where I grew up often found odd. The watch for deer part was sometimes utterly baffling to people from elsewhere.
  9. I am not yet reading the other responses, but I thought I'd let you know that trampolines don't have the greatest reputation among many in the medical community regardless of age. Unless you're a gymnast, lol! Are individual needs and abilities something that can change this risk/benefit analysis? Yes, for sure. I know people that are super coordinated and would find other high risk activities if they didn't have a trampoline, and they would also probably be fine with those risks. But if my kids went over there, using the trampoline would be a hard no. It's not okay for our kids--the coordination level is not there, and people who are good at things like trampolines often don't realize the risk for someone who is not. That's our family's boundary. If it was not respected, it would cause a rift. I wouldn't feel bad about another family's choice of what they do as long as my kid is not encouraged to get on the trampoline in spite of our concerns (or excluded/pressured socially in the moment based on not getting on the trampoline; if you're having a trampoline party, feel free to not invite us, lol!). I would be irate if someone put a close relative (say my parent/grandparent) on a trampoline if they were suffering from a condition where their own judgment is likely to be impaired unless they were the kind of person who loved to be on a trampoline before their diagnosis and were still in good shape for it. Do I think it needs to cause a huge ruckus in the family? I guess that depends on the family dynamics and the general level of common sense the caregiver usually displays. My older family members tend to be cautious types. I have in-laws that are not. If the in-law is taking care of an in-law, I might say something, but I'd only really be upset if an in-law is taking care of one of my relatives. For instance, my MIL is capable of hurting herself doing everyday things, and she's not cautious. If her son, my not cautious BIL, puts her on a trampoline in her dotage, I would shake my head and just say, "natural course of events--what else do you expect? Just don't do it around me in case I could get charged for not speaking up." If a different in-law on my side of the family puts my own mom on a trampoline in her dotage, and she has dementia, there would be hell to pay. My mom would be unlikely to do that in her right mind. (If she starts a new trampoline hobby, I'll have to reformulate.)
  10. If testing not easily available locally, you can google genetic counselors [I missed some of the specifics] Be familiar with The Ritter Rules and share them!!! Family history--best data for you to have if there is a family history is to know aortic measurement at dissection. Family history of brain aneurysm means you need imaging for that as well. Bicuspid aortic valve--what risk does that convey when someone doesn't have an identified gene?--at least one screening of the brain for brain aneurysm is likely to be recommended; aortic aneurysm with no family history of intercranial aneurysm--family members don't need a screening for brain aneurysm [This is really new information for me, and I follow this quite closely. If you're just cruising along because you know all of this, don't miss this part!] {Okay, so they don't get into the weeds with this, but I think this is what they are saying: At least one BAV in family + plus at least one aortic condition + at least one brain aneurysm = need screening for brain aneurysm. If the genetics are unknown, BAV = screen for brain aneurysm. Don't quote me on that, but watch for more guidelines.} [Some garbled discussion; missing quite a lot in this next section of questions]
  11. Genetic testing--varying results, recommendations in light of possible negative results or uncertain results... VUS--variant of uncertain significance treated as negative test results, so recommendations for that gene do not apply (some exceptions); recommend screening aortas of family members anyway [patients who have an aortic condition still treated even with a VUS, just limited in conclusions you can draw] Parents, siblings, children are first-degree relatives If a strong family history, they will often screen additional relatives Timing/frequency for family member imaging: still don't have hard and fast data Generally, adults need re-screening 3-4 years if negative on echocardiogram; older adults (70 ish) with normal results probably don't need repeat imaging If onset is consistent/known, repeat imagining doesn't need to be as frequent in individuals who don't have obvious disease on imaging Genetic data also tells us whether aneurysms are likely to show up in other parts of the body, such as the brain
  12. More... Treatment guidelines come out of the Montalcino Aortic Consortium Example: PRKG1 gene--people often have dissections before/without enlargement of the aorta and have lost family members as young as 18, leading to recommending aortic repair at age 17 for another family member 80% of people who have aortic dissections are low-risk for a dissection, so more variants need to be identified (some risk factors are identified such as BP or pregnancy) Fluoroquinolone antibiotics increase the risk of dissection--could other drugs increase the risk as well? Human tissue studies and mouse models of disease also yield data that show changes at the tissue level, sometimes based on drugs If someone in your family has aortic disease or has had a dissection, you need genetic counseling [preferably through an aortic center] Some of this counseling is offered through The John Ritter Foundation Other funding sources: AHA NIH also Canadian organization (missed name) The Marfan Foundation Other charitable foundations often started by families who lost someone due to aortic disease
  13. More... 60-100 genes (estimated) are yet to be identified! Lots of variety inside of families--age of developing conditions/dissecting, size of aneurysm when it dissects, etc., what percentage of people in the family who have dissections; includes a family who has dissection without enlargement of the aorta (makes identifying the gene super important) International collaboration exists--aortic centers around the world have clinicians willing to volunteer their time gathering and entering patient data (very cool!) [May want to check out Montalcino Aortic Consortium] 2/3 men, 1/3 women affected in general population--women more likely to pass the disease on without having disease-related changes themselves; men more likely to present younger as well; why is currently unknown Type A and Type B dissections both increase with age When broken down by individual gene, risk can be differentiated and can vary by decade of life, size of aorta, etc. [Research and genetic testing is very important!!!] Genes can help identify when children are at risk of dissection (very gene-specific) All of this data leads to management decisions--monitoring and intervention
  14. From the webinar I'm currently watching: 20% of people with an aortic condition have a first degree relative with an aortic condition. These genes can skip generations. [My comment: not all genes are identified, but sometimes the family tree can show it anyway.] First degree relatives need imaging. Don't put it off. Sometimes people are not identified in the ER because physicians don't always keep up with genetic research. The Wall Street Journal published a story about mismanagement in families that don't have syndromic aortic disease (caused by something like Marfan Syndrome, which has outward signs). The Jon Ritter Foundation's research arm is trying to fix the education gap and provide resources for families. They partner with families to recruit families for the studies as well (families with two or more folks with aortic disease). This program is identifying previously unidentified genes.
  15. Events: https://www.johnritterfoundation.org/projects-3 Registering for one gets you access to all. I am not sure if they are being recorded for later. Recognizing signs: https://www.johnritterfoundation.org/ritter-rules This is just one organization dedicated to aortic disease, but many of the others are diagnosis-specific (Marfan Syndrome, etc.). If you want more information, tag me. I am pretty passionate about this topic.
  16. Frustratingly true. A lot of people do not understand that damage from viruses can be cumulative as well, so if you've had the flu multiple times, for instance, that your body could be primed for that one next thing (virus, illness, stress, vaccine) could put you over the top for some kind of complication.
  17. It seems to be the norm here, and it's disconcerting--do I trigger a shorter or longer stay by when I serve dessert after dinner, etc.? It's a mystery. Thankfully we have a few friends that are not like this, but they are not the norm here either.
  18. See, I grew up with the long goodbye and now live in a state where people just get up and leave without warning. DH and I (and DH grew up in a very different state from me) were so baffled at first--did we do something wrong? Do we smell funny? We still don't ever have any idea of when the magic "it's time to go" thing will erupt if we have company. We're both introverts, but we're the type to enjoy a good visit and then just crash later instead of feeling stressed if it goes too long.
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