Lang Syne Boardie Posted September 7, 2014 Share Posted September 7, 2014 Last week - diagnosed with sprained calf muscle. Today - diagnosed in ER with deep vein thrombophlebitis, multiple huge clots from calf to groin. He's been started on blood thinner (Xarelto?) tonight, will see hematologist in the morning. It's assumed he must have a rare clotting disorder to have this problem as a healthy 17yo boy. The risks have been explained and we're all terrified. Very upset. Quote Link to comment Share on other sites More sharing options...
Ethel Mertz Posted September 7, 2014 Share Posted September 7, 2014 You and yours have my prayers. So sorry he is having to go through this. :grouphug: Quote Link to comment Share on other sites More sharing options...
Catwoman Posted September 7, 2014 Share Posted September 7, 2014 :grouphug: :grouphug: :grouphug: Tibbie, I'm so sorry -- thank goodness you got him to the hospital! I hope the medicine starts working quickly. Sending many hugs and prayers. :( Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted September 7, 2014 Share Posted September 7, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Slartibartfast Posted September 7, 2014 Share Posted September 7, 2014 :grouphug: Quote Link to comment Share on other sites More sharing options...
JennyD Posted September 8, 2014 Share Posted September 8, 2014 Oh no! I'm so sorry to hear this. I'm thinking of you all and hoping for a speedy recovery. Quote Link to comment Share on other sites More sharing options...
FloridaLisa Posted September 8, 2014 Share Posted September 8, 2014 Tibbie ~ I'm so sorry! What a shock. I'm so sorry. It's really hard to process that your kids may have something that may cause health issues for them long term. I've been there and it's one of the hardest things I had to work through. So glad that an apparent injury flushed this out though so that you all can deal with it and get the best proactive care available. Sending you hugs and prayers, Lisa :grouphug: Quote Link to comment Share on other sites More sharing options...
linders Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: Scary. Sending positive thoughts. Quote Link to comment Share on other sites More sharing options...
umsami Posted September 8, 2014 Share Posted September 8, 2014 I'm so sorry and will be praying for you. You might want to ask about genetic testing. I inherited something called Prothrombin II deficiency. DH's family has Factor V deficiency. Unfortunately, our eldest got both…double whammy….which means he has about a 77% chance of developing blood clots in his lifetime. Quote Link to comment Share on other sites More sharing options...
Starr Posted September 8, 2014 Share Posted September 8, 2014 Is he home or in the hospital? Praying for a good recovery and good info from the doctor tomorrow! :grouphug: :grouphug: :grouphug: i had one post op, pretty scary. I can't imagine one just surprising you. I'm so sorry. Quote Link to comment Share on other sites More sharing options...
Pawz4me Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
chiguirre Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: I hope you get better news tomorrow. Quote Link to comment Share on other sites More sharing options...
MrsDarcy Posted September 8, 2014 Share Posted September 8, 2014 I would be crushed too! Praying for the best possible out come for your ds. It is good they found out about this, and he's on xarelto already. Quote Link to comment Share on other sites More sharing options...
unsinkable Posted September 8, 2014 Share Posted September 8, 2014 I'm praying! I'm really sorry. :grouphug: Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted September 8, 2014 Share Posted September 8, 2014 Very scary. Praying this stabilizes to an easily managed condition. And prayers for peace to you and the family. Quote Link to comment Share on other sites More sharing options...
Joyofsixreboot Posted September 8, 2014 Share Posted September 8, 2014 Prayers for healing, wise doctors and peace. Quote Link to comment Share on other sites More sharing options...
Luckymama Posted September 8, 2014 Share Posted September 8, 2014 Oh my gracious! :grouphug: Quote Link to comment Share on other sites More sharing options...
idnib Posted September 8, 2014 Share Posted September 8, 2014 What a scary way to find this out. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Mandylubug Posted September 8, 2014 Share Posted September 8, 2014 how scary! :grouphug: said a prayer! Quote Link to comment Share on other sites More sharing options...
BlessedMom Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: Praying for you & your son. :grouphug: Quote Link to comment Share on other sites More sharing options...
mommymilkies Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: I hope he makes a speedy recovery and it turns out to be a fluke!! Quote Link to comment Share on other sites More sharing options...
Lady Florida. Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: Quote Link to comment Share on other sites More sharing options...
texasmama Posted September 8, 2014 Share Posted September 8, 2014 Hugs and prayers, Tibbie. My father had DVT with hundreds of clots and made a full recovery, even in his 70's. Quote Link to comment Share on other sites More sharing options...
happi duck Posted September 8, 2014 Share Posted September 8, 2014 (Hugs) Quote Link to comment Share on other sites More sharing options...
J-rap Posted September 8, 2014 Share Posted September 8, 2014 Praying for your son. Have doctors considered surgically inserting a filter to prevent the clots from traveling to a major organ? (There's a specific name for that filter, but I can't remember it -- sorry.) The fact that doctors are aware of this condition now before anything serious has happened is HUGE. There is SO much they can do for blood clotting conditions nowadays. Has he been diagnosed with Moyamoya disease? That is one that I know about. Again, blood clotting conditions are very manageable now once they are known. Best wishes to you and your son!! Quote Link to comment Share on other sites More sharing options...
Cinder Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: Quote Link to comment Share on other sites More sharing options...
mom31257 Posted September 8, 2014 Share Posted September 8, 2014 Praying! Quote Link to comment Share on other sites More sharing options...
MyLittleWonders Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: Praying! Quote Link to comment Share on other sites More sharing options...
PinkyandtheBrains. Posted September 8, 2014 Share Posted September 8, 2014 <hugs> Quote Link to comment Share on other sites More sharing options...
elfgivas Posted September 8, 2014 Share Posted September 8, 2014 many hugs and prayers. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: Quote Link to comment Share on other sites More sharing options...
TCB Posted September 8, 2014 Share Posted September 8, 2014 Praying for your son and for your whole family :grouphug: Quote Link to comment Share on other sites More sharing options...
fraidycat Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: :grouphug: Hoping for the best possible care for your DS. Quote Link to comment Share on other sites More sharing options...
Stacia Posted September 8, 2014 Share Posted September 8, 2014 Sending hugs. Quote Link to comment Share on other sites More sharing options...
Lang Syne Boardie Posted September 8, 2014 Author Share Posted September 8, 2014 Thank you so much for all the prayers! They sent him home overnight, after a dose of meds at the hospital. We were OK with that at the time, but when bedtime finally arrived and he was in so much pain, and had a fever again, I really wished they'd kept him. Waiting on the hematologist's office to open right now. He wanted me to stay with him last night, even though I am getting over a very serious upper respiratory infection and am coughing very nastily, very constantly. :/ He said it wasn't keeping him awake, to stay anyway. My other teens moved a bed into the front room for him so he won't have to climb his bunkbed ladder and so I can watch over him. That's all I did all night, watch him sleep...and cough. A WTM'er and one of the moms who started Sandbox to Socrates with me is driving here from two states away, to help out for a day or two. I am blown away by this. I told her people's families often don't do that much, and she said, "Well, family is what you make it to be." <3 One more complicating factor here -- DH is out of state for work. This is the first time in our 19 years of marriage that we've been separated like this. He's working at a military armory, and able to stay (luckily) with my parents who live in a mountainous area with very poor cell reception, so communication is almost nil until the weekends unless we have a true emergency. DH was here yesterday, took our son to the ER and helped out, drove all night to get to work. :/ These are really hard times for our family. Thanks again for all the prayers. Quote Link to comment Share on other sites More sharing options...
texasmama Posted September 8, 2014 Share Posted September 8, 2014 (((hugs))) I am so sorry that things have aligned to present such a challenge for your family! I am praying and holding your family in my heart. Bless the WTM-er who is helping you. Family is what you make it. Quote Link to comment Share on other sites More sharing options...
East Coast Sue Posted September 8, 2014 Share Posted September 8, 2014 Praying for your family. I am so glad to hear that a WTM'er has been such a good friend and support for you. What a blessing! Many prayers and hugs to you and your family. Quote Link to comment Share on other sites More sharing options...
Corraleno Posted September 8, 2014 Share Posted September 8, 2014 I'm so sorry things are so difficult right now. :sad: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Lawana Posted September 8, 2014 Share Posted September 8, 2014 I am so sorry your family is going through this! Please take care of yourself and get some sleep. You need to be at least somewhat rested in order to make good decisions. Quote Link to comment Share on other sites More sharing options...
unsinkable Posted September 8, 2014 Share Posted September 8, 2014 Praying for your son. Have doctors considered surgically inserting a filter to prevent the clots from traveling to a major organ? (There's a specific name for that filter, but I can't remember it -- sorry.) The fact that doctors are aware of this condition now before anything serious has happened is HUGE. There is SO much they can do for blood clotting conditions nowadays. Has he been diagnosed with Moyamoya disease? That is one that I know about. Again, blood clotting conditions are very manageable now once they are known. Best wishes to you and your son!! Do you mean an IVC filter? Inferior Vena Cava filter Quote Link to comment Share on other sites More sharing options...
Soror Posted September 8, 2014 Share Posted September 8, 2014 Prayers and hugs! Quote Link to comment Share on other sites More sharing options...
kroe1 Posted September 8, 2014 Share Posted September 8, 2014 Met a really nice boy once who had antithrombin III deficiency. His first DVT was about age 15. The hardest part for him was giving up football because he could not play a contact sport and be on blood thinners. Otherwise, his life didn't change much. Prayers for your son from Florida. Quote Link to comment Share on other sites More sharing options...
Kalypso Posted September 8, 2014 Share Posted September 8, 2014 So sorry to hear you are going through this. I hope your son and you feel better today and that you are able to get some answers quickly. :grouphug: Quote Link to comment Share on other sites More sharing options...
Tammyla Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: Prayers. :grouphug: Quote Link to comment Share on other sites More sharing options...
NorthwestMom Posted September 8, 2014 Share Posted September 8, 2014 :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: Lots of love to you and your son, and your friend is AWESOME. Quote Link to comment Share on other sites More sharing options...
creekland Posted September 8, 2014 Share Posted September 8, 2014 Hugs and prayers from here and hoping you both get better & feel better soon. :grouphug: Hope it works out ok with DH at work and trying to keep in touch. More :grouphug: . Kudos to your "family." I love the Hive... Quote Link to comment Share on other sites More sharing options...
J-rap Posted September 8, 2014 Share Posted September 8, 2014 Do you mean an IVC filter? Inferior Vena Cava filter Yes, that's it. Thanks. Quote Link to comment Share on other sites More sharing options...
gaillardia Posted September 8, 2014 Share Posted September 8, 2014 My father and my sister had clotting issues too and it started with my sis when she was 19. She's now in her 60's, manages it with medication and in her case she doesn't do well with sitting or standing for long periods of time which can lead to clotting. It can be scary each time she has had a clot but she has always been very aware of the symptoms and always got it seen to pronto. She tested positive for the genetic testing for clotting, I can't remember the names of any of it. Your WTM family friend is coming to you so you can rest and get better. I'm sorry your son has been in so much pain. Prayers for you and your family. It will be okay. :grouphug: Quote Link to comment Share on other sites More sharing options...
LNC Posted September 8, 2014 Share Posted September 8, 2014 Praying for your son and whole family. Quote Link to comment Share on other sites More sharing options...
wapiti Posted September 8, 2014 Share Posted September 8, 2014 So sorry! Another vote to test for thrombophilias, including the genetic ones (e.g., my mother, myself, and ds11 are heterozygous for Factor V Leiden, FVL) Quote Link to comment Share on other sites More sharing options...
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