Twigs Posted March 8, 2016 Share Posted March 8, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Spryte Posted March 8, 2016 Share Posted March 8, 2016 Thinking of you. Quote Link to comment Share on other sites More sharing options...
Eliz Posted March 8, 2016 Share Posted March 8, 2016 :grouphug: praying for him and for you Quote Link to comment Share on other sites More sharing options...
Reefgazer Posted March 8, 2016 Share Posted March 8, 2016 What an adorable baby! Prayers coming your way! https://www.facebook.com/prayersforbabyG/ They can't get his oxygen saturation up even with oxygen. Fortunately his daddy is the paramedic coming to transfer him. :) Quote Link to comment Share on other sites More sharing options...
Tap Posted March 8, 2016 Share Posted March 8, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Mom25girls Posted March 8, 2016 Share Posted March 8, 2016 :grouphug: and sending prayers. I'm so sorry. Praying that easier days are coming in the very near future. Quote Link to comment Share on other sites More sharing options...
Corraleno Posted March 8, 2016 Share Posted March 8, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
bluemongoose Posted March 8, 2016 Share Posted March 8, 2016 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Alessandra Posted March 9, 2016 Share Posted March 9, 2016 (((Hugs))) Thank you for making the FB page available to non FB people (like me). Caden is an adorable child. Best wishes for a good recovery. 1 Quote Link to comment Share on other sites More sharing options...
Minerva Posted March 9, 2016 Share Posted March 9, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
*Lulu* Posted March 9, 2016 Share Posted March 9, 2016 (((MedicMom))) Thinking of you and your sweet family this evening. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted March 9, 2016 Share Posted March 9, 2016 :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Cindy in FL. Posted March 9, 2016 Share Posted March 9, 2016 Praying for Caden and your family! Quote Link to comment Share on other sites More sharing options...
Mom2Five Posted March 9, 2016 Share Posted March 9, 2016 Prayers for your little one Quote Link to comment Share on other sites More sharing options...
happi duck Posted March 9, 2016 Share Posted March 9, 2016 More (hugs)! Quote Link to comment Share on other sites More sharing options...
LMD Posted March 9, 2016 Share Posted March 9, 2016 Oh no, praying. Quote Link to comment Share on other sites More sharing options...
mamiof5 Posted March 9, 2016 Share Posted March 9, 2016 What a sweet blessing from above! Praying for baby Caden and your family. Thanks for posting the links, he truly is adorable! Will pray for a better day for him and for all of you Quote Link to comment Share on other sites More sharing options...
purpleowl Posted March 9, 2016 Share Posted March 9, 2016 Any update today? Quote Link to comment Share on other sites More sharing options...
MedicMom Posted March 9, 2016 Author Share Posted March 9, 2016 We had a miserable night. I think I got twenty minutes of sleep. He coughed and choked and gagged and vomited all night. We struggled to keep his oxygen saturation above 80. They started antibiotics for a double ear infection that popped up this morning, and my three year old at home spiked a fever and had a febrile seizure. Right now I am home with her while DH is at the hospital. We are exhausted. They said we will likely be at the hospital at least through the weekend. Quote Link to comment Share on other sites More sharing options...
Spryte Posted March 9, 2016 Share Posted March 9, 2016 Oh dear. Will be thinking of you non-stop. ((Hugs)) Quote Link to comment Share on other sites More sharing options...
mominco Posted March 9, 2016 Share Posted March 9, 2016 (((hugs))) and prayers! Quote Link to comment Share on other sites More sharing options...
Lawyer&Mom Posted March 9, 2016 Share Posted March 9, 2016 Hang in there! We are rooting for you! Quote Link to comment Share on other sites More sharing options...
LMV Posted March 9, 2016 Share Posted March 9, 2016 (edited) I'm so sorry Caden is going through this! We will definitely keep him in our prayers. We had a miserable night. I think I got twenty minutes of sleep. He coughed and choked and gagged and vomited all night. We struggled to keep his oxygen saturation above 80.They started antibiotics for a double ear infection that popped up this morning, and my three year old at home spiked a fever and had a febrile seizure. Right now I am home with her while DH is at the hospital.We are exhausted. They said we will likely be at the hospital at least through the weekend. I am a little confused by this though. I presume this means he is already at least intubated on conventional ventilator (although reading your posts it sounds like this might not be the case). [if not, why not, that would be the question I would be asking the physicians if he was my child. Persistent saturations in the 80s can cause damage to the brain and other organs. There would need to be some good explanation for why I should be willing to take this risk with my child.] Does the PICU he is currently in have HFOV and ECMO capabilities? What is the timeframe and criteria for considering these interventions? If his current PICU doesn't have these options what facility is their transfer facility and has his case been discussed with the PICU attending or Ped's Pulmonologist/Cardiologists at that facility?I wish you and Caden all of the best. I pray he is in good hands. Edited March 9, 2016 by LMV 4 Quote Link to comment Share on other sites More sharing options...
MamaBearTeacher Posted March 9, 2016 Share Posted March 9, 2016 Prayers for Caden and your whole family. May health return to you very soon! Quote Link to comment Share on other sites More sharing options...
MedicMom Posted March 9, 2016 Author Share Posted March 9, 2016 (edited) I'm so sorry Caden is going through this! We will definitely keep him in our prayers. I am a little confused by this though. I presume this means he is already at least intubated on conventional ventilator (although reading your posts it sounds like this might not be the case). [if not, why not, that would be the question I would be asking the physicians if he was my child. Persistent saturations in the 80s can cause damage to the brain and other organs. There would need to be some good explanation for why I should be willing to take this risk with my child.] Does the PICU he is currently in have HFOV and ECMO capabilities? What is the timeframe and criteria for considering these interventions? If his current PICU doesn't have these options what facility is their transfer facility and has his case been discussed with the PICU attending or Ped's Pulmonologist/Cardiologists at that facility? I wish you and Caden all of the best. I pray he is in good hands. They are not being aggressive enough. It's on my list of things to discuss today. He is on high flow but not intubated. He is maintaining 89-92% today on 6 lpm but that still seems low to me for a ten month old. Overnight was really rough and he was consistently between 76-85% on the nasal cannula. I do think a lot of that was their inability to determine when he needed to be suctioned. The transfer facility(where he would go if they determine they can't manage him here) is Strong Memorial Hospital in Rochester. They have full capabilities for anything we need but I am still hoping we don't get to that point. They did tell me this is likely to get worse before it gets better. Caden was a little less wheezy this morning. I am taking care of my daughter right now and then DH and I are going to switch. Edited March 9, 2016 by MedicMom Quote Link to comment Share on other sites More sharing options...
Seasider Posted March 9, 2016 Share Posted March 9, 2016 Oh Medicmom, you and your family are in my prayers. What a tough situation. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted March 9, 2016 Share Posted March 9, 2016 Continuing to pray Quote Link to comment Share on other sites More sharing options...
Matryoshka Posted March 10, 2016 Share Posted March 10, 2016 They are not being aggressive enough. It's on my list of things to discuss today. He is on high flow but not intubated. He is maintaining 89-92% today on 6 lpm but that still seems low to me for a ten month old. Overnight was really rough and he was consistently between 76-85% on the nasal cannula. I do think a lot of that was their inability to determine when he needed to be suctioned. The transfer facility(where he would go if they determine they can't manage him here) is Strong Memorial Hospital in Rochester. They have full capabilities for anything we need but I am still hoping we don't get to that point. They did tell me this is likely to get worse before it gets better. Caden was a little less wheezy this morning. I am taking care of my daughter right now and then DH and I are going to switch. Do they have him on continuous albuterol? When my dd got pneumonia and they couldn't get her sats up, they transferred her to Children's in less than 24 hours so she could be on continuous albuterol and I think maybe also a higher concentration of oxygen? She was 8 years old, so not even as young. And she still was in the PICU for a few days (and in the hospital for 8 altogether), and wasn't really properly conscious for those days - and that was with the more aggressive treatment. I'd insist on the transfer. :grouphug: :grouphug: :grouphug: :grouphug: 1 Quote Link to comment Share on other sites More sharing options...
Lanny Posted March 10, 2016 Share Posted March 10, 2016 I will include Caden and your family in my prayers. Quote Link to comment Share on other sites More sharing options...
MedicMom Posted March 10, 2016 Author Share Posted March 10, 2016 So. I came back today(my husband was here all day) to find a flurry of activity in his room. Respiratory therapy had come in to do a breathing treatment and never turned his oxygen back on, leading to an Spo2 of 70. I'm not even sure why they turned it off. I was, um, not happy or political. He just spiked a fever for the first time since yesterday morning. In good news, he is satting ok right now on the nasal cannula and the nurse just said his lungs are sounding better. My husband is taking the night shift so I can sleep tonight. Quote Link to comment Share on other sites More sharing options...
displace Posted March 10, 2016 Share Posted March 10, 2016 :( keeping you all in my thoughts Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted March 10, 2016 Share Posted March 10, 2016 I'm so sorry. Hugs to all of you. He is absolutely adorable! Quote Link to comment Share on other sites More sharing options...
melmichigan Posted March 10, 2016 Share Posted March 10, 2016 They are not being aggressive enough. It's on my list of things to discuss today. He is on high flow but not intubated. He is maintaining 89-92% today on 6 lpm but that still seems low to me for a ten month old. Overnight was really rough and he was consistently between 76-85% on the nasal cannula. I do think a lot of that was their inability to determine when he needed to be suctioned. The transfer facility(where he would go if they determine they can't manage him here) is Strong Memorial Hospital in Rochester. They have full capabilities for anything we need but I am still hoping we don't get to that point. They did tell me this is likely to get worse before it gets better. Caden was a little less wheezy this morning. I am taking care of my daughter right now and then DH and I are going to switch. I would agree, they aren't being aggressive enough. I hope he has a better night tonight, and am keeping you all in my thoughts. My DD has CP from low oxygen levels (not at delivery). Quote Link to comment Share on other sites More sharing options...
RioSamba Posted March 10, 2016 Share Posted March 10, 2016 I just prayed for sweet Caden and your entire family, and the medical team as well. I hope you are sleeping tonight. Quote Link to comment Share on other sites More sharing options...
SeaConquest Posted March 10, 2016 Share Posted March 10, 2016 Prayers for a speedy and complete recovery. Quote Link to comment Share on other sites More sharing options...
happypamama Posted March 10, 2016 Share Posted March 10, 2016 Have prayed for you and Caden multiple times and will do so again right now! Hugs to all of you. Quote Link to comment Share on other sites More sharing options...
happi duck Posted March 10, 2016 Share Posted March 10, 2016 More (hugs)...thinking of all of you. Quote Link to comment Share on other sites More sharing options...
Eagle Posted March 10, 2016 Share Posted March 10, 2016 Thinking of your family and hoping things improved through the night. :grouphug: Quote Link to comment Share on other sites More sharing options...
ScoutTN Posted March 10, 2016 Share Posted March 10, 2016 Praying! :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Vida Winter Posted March 10, 2016 Share Posted March 10, 2016 Praying for Caden and your whole family. :grouphug: Quote Link to comment Share on other sites More sharing options...
MedicMom Posted March 10, 2016 Author Share Posted March 10, 2016 Caden was up and playing in the crib for a while this morning which is a HUGE improvement. He tired quickly and desatted, so now he is sleeping on Mommy. He continues to drink clear liquids well. The doctors have not been in today yet, so I don't really know anything more. 25 Quote Link to comment Share on other sites More sharing options...
Seasider Posted March 10, 2016 Share Posted March 10, 2016 Caden was up and playing in the crib for a while this morning which is a HUGE improvement. He tired quickly and desatted, so now he is sleeping on Mommy. He continues to drink clear liquids well. The doctors have not been in today yet, so I don't really know anything more. Sounds like good news! You must be so terribly exhausted. How's your other little patient? Quote Link to comment Share on other sites More sharing options...
ktgrok Posted March 11, 2016 Share Posted March 11, 2016 Still praying for you. And taking this as a reminder for the rest of us to keep our sick kids HOME! You never know who you are exposing, and I'm sure this was passed on by a kid who had RSV but wasn't a preemie, and thought it was "just a cold" or "just a snotty nose". 3 Quote Link to comment Share on other sites More sharing options...
MedicMom Posted March 11, 2016 Author Share Posted March 11, 2016 Caden will not be discharged today. they tried him without oxygen last night and it didn't work, so he is back on oxygen and we will be at the hospital at least another day. My daughter seems to be doing better. I am sure she had RSV too, but she is older and was not a preemie. She's rebounding pretty well. 8 Quote Link to comment Share on other sites More sharing options...
happypamama Posted March 11, 2016 Share Posted March 11, 2016 Glad your daughter is doing better. Sorry Caden is still in the hospital. Poor baby. Quote Link to comment Share on other sites More sharing options...
Eagle Posted March 11, 2016 Share Posted March 11, 2016 :grouphug: still thinking of your family today. Quote Link to comment Share on other sites More sharing options...
happi duck Posted March 11, 2016 Share Posted March 11, 2016 (Hugs) Quote Link to comment Share on other sites More sharing options...
melmichigan Posted March 12, 2016 Share Posted March 12, 2016 I'm glad to hear they are both improving. :grouphug: Quote Link to comment Share on other sites More sharing options...
EmilyGF Posted March 12, 2016 Share Posted March 12, 2016 Praying for you. Our son (now 4) was in the NICU for 4 or 5 days with RSV at 6 weeks. Emily Quote Link to comment Share on other sites More sharing options...
Anne in CA Posted March 12, 2016 Share Posted March 12, 2016 Praying for Caden AND Mama. I am so, so sorry. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.