cintinative Posted October 29, 2021 Share Posted October 29, 2021 3 minutes ago, WildflowerMom said: Quick update... 'Something' is happening in my other arm now, too. Being sent for ultrasound. Dr has mentioned maybe autoimmune disorder causing vasculitis, blood clot, or possibly something else. 😞 Had blood drawn today. She said my last bloodwork (I don't know if she meant from the hospital 2 weeks ago or from her office) showed elevated iron, but I don't think it was bad high, just elevated. I am extremely tired and worn out. I couldn't even hold a to-go box of food the other day. Dh had to take it from me. I don't know what, if anything, is going on. I'm tired. What is your blood pressure like? Are you sure your other infection is gone? Are they going to check your WBC count? 1 Quote Link to comment Share on other sites More sharing options...
MercyA Posted October 29, 2021 Share Posted October 29, 2021 Oh, sweetheart. Hugs and prayers and love to you. Praying they get it figured out and treated quickly! 1 1 Quote Link to comment Share on other sites More sharing options...
Anne Posted October 29, 2021 Share Posted October 29, 2021 Oh I’m sorry- praying for you and sending hugs… Anne 1 Quote Link to comment Share on other sites More sharing options...
fraidycat Posted October 29, 2021 Share Posted October 29, 2021 I hope they can figure out what it is ASAP and that you recover quickly. 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 8 minutes ago, cintinative said: What is your blood pressure like? Are you sure your other infection is gone? Are they going to check your WBC count? Blood pressure is around 117/72 I think. They’re extending my doxycycline several more days and putting me on steroids for a few days to see what happens while we get the blood results in. I don’t anticipate my blood numbers being off. She called the head dr in (around 85yo) because she’s stumped. She mentioned lupus, RA, blood clot, C-word). I looked up some stuff and saw a couple of AI things it could be. Of course, it could be nothing. That’s what always seems to happen to me. I feel like crap, blood work shows nothing, and nothing really happens. 6 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 Oh yes, they’re checking WBC, at least I’m guessing. They’re doing all the stuff she could think of. If it’s a blood clot (she doesn’t think it is, but maybe?), she’s sending me to a blood dr to check on clotting disorders as this will be the second in a few years. 2 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 My arms and armpits hurt. 1 6 Quote Link to comment Share on other sites More sharing options...
DreamerGirl Posted October 29, 2021 Share Posted October 29, 2021 1 minute ago, WildflowerMom said: My arms and armpits hurt. Please go to the ER now. I would be rather safe than sorry. 2 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 9 minutes ago, DreamerGirl said: Please go to the ER now. I would be rather safe than sorry. Don't worry, I've already seen 2 docs today and am waiting for the hospital to fit me in for an ultrasound. I'm just whining and it scared the crap out of me when the other dr came in and they talked off in the corner. I just want my arms to stop hurting. We had 2 trees cut down last week and I need to smooth out the dirt but I can't even lift my arms hardly, much less drag a rake around. Waiting around is the pits. How long does it usually take to get blood work back? My mind is going in all kinds of bad directions right now. 3 4 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 I'm headed to ultrasound now! 8 Quote Link to comment Share on other sites More sharing options...
bibiche Posted October 29, 2021 Share Posted October 29, 2021 Hope you get some good answers soon, @WildflowerMom and feel better even sooner. Hugs. 1 Quote Link to comment Share on other sites More sharing options...
Acorn Posted October 29, 2021 Share Posted October 29, 2021 I hope you feel better soon and get some answers. 1 Quote Link to comment Share on other sites More sharing options...
cbollin Posted October 29, 2021 Share Posted October 29, 2021 hugs and prayers 1 Quote Link to comment Share on other sites More sharing options...
Junie Posted October 29, 2021 Share Posted October 29, 2021 praying for you! 1 Quote Link to comment Share on other sites More sharing options...
PeterPan Posted October 29, 2021 Share Posted October 29, 2021 45 minutes ago, WildflowerMom said: She called the head dr in (around 85yo) because she’s stumped. If they don't find something definitive with the ultrasound, please go to a big city and get some care. This does not sound like it's going the right direction. 2 2 Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted October 29, 2021 Share Posted October 29, 2021 Sending good thoughts your way. I hope they figure out what is going on 1 Quote Link to comment Share on other sites More sharing options...
Soror Posted October 29, 2021 Share Posted October 29, 2021 Hugs and prayers for you. 1 Quote Link to comment Share on other sites More sharing options...
Kareni Posted October 29, 2021 Share Posted October 29, 2021 53 minutes ago, WildflowerMom said: I'm headed to ultrasound now! Sending good thoughts your way. Regards, Kareni 1 Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted October 29, 2021 Share Posted October 29, 2021 Praying for you 1 Quote Link to comment Share on other sites More sharing options...
Carol in Cal. Posted October 29, 2021 Share Posted October 29, 2021 Praying, hon. Are they checking for C diff? That can go downhill fast. 2 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 No blood clot. That’s what I was hoping for since it would be an easy fix. I doubt my bloodwork will show anything, but we’ll see. I’m tired and sore. Picking up a pizza. 6 2 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 37 minutes ago, Carol in Cal. said: Praying, hon. Are they checking for C diff? That can go downhill fast. No stomach problems. Ds had Cdiff and I don’t have the bathroom issues. Just extreme fatigue, achy, painful red places where the veins are. 3 Quote Link to comment Share on other sites More sharing options...
Starr Posted October 29, 2021 Share Posted October 29, 2021 I’m so sorry! It’s so good they are testing you now. 💗 1 Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted October 29, 2021 Share Posted October 29, 2021 Do you have lupus? (I remember Auto-immune but can't remember if it included lupus). Phlebitis (inflammation of veins) can be related. 3 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 16 minutes ago, Jean in Newcastle said: Do you have lupus? (I remember Auto-immune but can't remember if it included lupus). Phlebitis (inflammation of veins) can be related. That’s one of the things she mentioned it could be. I have fibro and IC right now. Quote Link to comment Share on other sites More sharing options...
Condessa Posted October 29, 2021 Share Posted October 29, 2021 2 hours ago, WildflowerMom said: How long does it usually take to get blood work back? My mind is going in all kinds of bad directions right now. My son’s monthly blood work usually takes less than an hour to come back, with the ck results always taking a few hours longer than everything else. 1 Quote Link to comment Share on other sites More sharing options...
Ausmumof3 Posted October 29, 2021 Share Posted October 29, 2021 Thinking of you. 1 Quote Link to comment Share on other sites More sharing options...
Ausmumof3 Posted October 29, 2021 Share Posted October 29, 2021 Some wildflower pics from here for you while you’re waiting 💜 15 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 29, 2021 Author Share Posted October 29, 2021 1 minute ago, Ausmumof3 said: Some wildflower pics from here for you while you’re waiting 💜 Beautiful!!! Thank you! I've started my steroid so I'm not as sore right now. Wish I could get some news on bloodwork, but I have no idea when that'll happen. 5 Quote Link to comment Share on other sites More sharing options...
Catwoman Posted October 29, 2021 Share Posted October 29, 2021 Praying for you! 1 Quote Link to comment Share on other sites More sharing options...
Storygirl Posted October 29, 2021 Share Posted October 29, 2021 I really hope they can figure it out soon! It's horrible to be miserable and scared. 1 1 Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted October 29, 2021 Share Posted October 29, 2021 FWIW, I can usually get my metabolic panels and cbc with differentials back in a couple of hours, but the more complicated stuff is usually the next day or two, depending on what was run and why. In particular, I have had a rheumatologist who only has a specific pathologist read ana or other labs that require some skill for interpretation. If you have a medical portal, you might also check there. My hospital will release labs directly to the portal, but it might take another day or two for the doctor to call me. Hugs, I am sorry you are having to play the waiting game. 3 1 Quote Link to comment Share on other sites More sharing options...
Arcadia Posted October 29, 2021 Share Posted October 29, 2021 7 hours ago, WildflowerMom said: . We had 2 trees cut down last week and I need to smooth out the dirt but I can't even lift my arms hardly, much less drag a rake around. Waiting around is the pits. How long does it usually take to get blood work back? My mind is going in all kinds of bad directions right now. I get hives from tree “dust” so I think it would be safer to let your husband handle the tree debris. My comprehensive metabolic panel and complete blood count takes an hour. Some blood test results aren’t auto released and takes a few hours to show up on my patient portal. My doctors usually let me know if a blood test is going to take a few days for results to be uploaded. Think the thyroid blood test was one of those that took more than than a day. 1 1 Quote Link to comment Share on other sites More sharing options...
Hen Posted October 30, 2021 Share Posted October 30, 2021 thinking of you, hoping you get answers soon. 1 Quote Link to comment Share on other sites More sharing options...
cintinative Posted October 30, 2021 Share Posted October 30, 2021 Any update? Praying. 1 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 30, 2021 Author Share Posted October 30, 2021 2 hours ago, cintinative said: Any update? Praying. No update. I’ve googled and scared myself. I should’ve known not to do that. I’m sure it’s something simple, but my mind is racing. 8 Quote Link to comment Share on other sites More sharing options...
itsheresomewhere Posted October 30, 2021 Share Posted October 30, 2021 Slightly odd thought- any chance you have changed your deodorant or checked to see if the company has a new source for ingredients? I know someone very well who had an issue similar to what you are describing and that was what it was. Took her three months, numerous specialists, lots of trying this medication and then her son’s allergist figured it out. 5 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 30, 2021 Author Share Posted October 30, 2021 3 minutes ago, itsheresomewhere said: Slightly odd thought- any chance you have changed your deodorant or checked to see if the company has a new source for ingredients? I know someone very well who had an issue similar to what you are describing and that was what it was. Took her three months, numerous specialists, lots of trying this medication and then her son’s allergist figured it out. No I haven’t, but I’m so glad you posted this because it’s making me feel better about it being something simple! You’ve got me thinking!! 💛 8 Quote Link to comment Share on other sites More sharing options...
Ausmumof3 Posted October 31, 2021 Share Posted October 31, 2021 15 hours ago, WildflowerMom said: No I haven’t, but I’m so glad you posted this because it’s making me feel better about it being something simple! You’ve got me thinking!! 💛 Still thinking of you and hoping for a positive update soon 1 1 Quote Link to comment Share on other sites More sharing options...
popmom Posted October 31, 2021 Share Posted October 31, 2021 I’m praying, too. 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted October 31, 2021 Author Share Posted October 31, 2021 41 minutes ago, Ausmumof3 said: Still thinking of you and hoping for a positive update soon Me, too! Maybe no news is good news? Idk. So far, the new lumps on my veins are still there. Dr wanted to see what steroids would do and after 2 days, I’d say the steroids may have stopped it from progressing, but the redness hasn’t changed and the knots are still there. Line is still on my vein in the original arm from two weeks ago. It still is bruised but not real red and no lumps. I’m stumped, tbh. 3 3 Quote Link to comment Share on other sites More sharing options...
Shoeless Posted October 31, 2021 Share Posted October 31, 2021 Have they checked for tick-borne illnesses? 3 Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted October 31, 2021 Share Posted October 31, 2021 Sending good thoughts your way. I really hope they can come up with a idea of what it is soon. 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted November 1, 2021 Author Share Posted November 1, 2021 Tell me that this is probably nothing. I am in panic mode right now, waiting on call back from dr. I thought I'd wake up this morning a it would be all but gone, but it's creeped further up the vein and there's another lump. Whole vein is tender. This could just be lymph something right? Just something because I need to lose weight, im more susceptible to some luymph issue right? I've felt bad all weekend, joints in pain, burning face, burning skin on my arms. This best scenario is just some blood infection or lymph thing right? 10 Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted November 1, 2021 Share Posted November 1, 2021 Just now, WildflowerMom said: Tell me that this is probably nothing. I am in panic mode right now, waiting on call back from dr. I thought I'd wake up this morning a it would be all but gone, but it's creeped further up the vein and there's another lump. Whole vein is tender. This could just be lymph something right? Just something because I need to lose weight, im more susceptible to some luymph issue right? I've felt bad all weekend, joints in pain, burning face, burning skin on my arms. This best scenario is just some blood infection or lymph thing right? Call the doc asap or the ER. Sending so many good thoughts your way. Please check in when you can today. 4 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted November 1, 2021 Author Share Posted November 1, 2021 Right arm this morning. i have more faith in my docs than the dr at the ER, I have to wait and see what they say. But thank you for caring so much. 💛💛💛💛 I’m going thru all scenarios, it could just be an infection right? Just strep or staph? 1 Quote Link to comment Share on other sites More sharing options...
OH_Homeschooler Posted November 1, 2021 Share Posted November 1, 2021 Has any doctor considered compartment syndrome? https://orthoinfo.aaos.org/en/diseases--conditions/compartment-syndrome/ Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted November 1, 2021 Author Share Posted November 1, 2021 5 minutes ago, OH_Homeschooler said: Has any doctor considered compartment syndrome? https://orthoinfo.aaos.org/en/diseases--conditions/compartment-syndrome/ Would that happen in both arms? I don't *think* it's that, but dang that sounds better than what is floating around in my head right now. 1 Quote Link to comment Share on other sites More sharing options...
WildflowerMom Posted November 1, 2021 Author Share Posted November 1, 2021 This could be lupus, right? 2 of cousins have it. My face has been red all weekend, cheeks. Joints in pain 2 Quote Link to comment Share on other sites More sharing options...
itsheresomewhere Posted November 1, 2021 Share Posted November 1, 2021 Make sure they check you for Lyme disease. It can do weird things to the body. 2 Quote Link to comment Share on other sites More sharing options...
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