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Everything posted by prairiewindmomma

  1. I sure as heck don't blame myself for their behaviors. There are times when I think, "Man, I should have anticipated that child might be triggered by this situation." I know what a lot of the triggers are. I can list them. I find myself bracing at times because I know there is a likelihood things won't end well. I actually block my schedule during the first two weeks of any new significant routine change (ie--school starting). I just know that we are going to need a lot of downtime and grace. I also know that we all adapt and move on and that things are so much better than they used to be. I also know that I need some respite time to cope with the significant strain that parenting non-NT children puts on me. Date night, me time, all of that---I do not apologize for it at all. No one should expect any rational adult to go through what we go through without needing some respite time. Anyone that tries to tell me differently will be......educated. Additionally, bringing people onto the team---doctors, therapists, and public schools are all ways in which our personal load can be lightened.
  2. There's no winning with this. In my district, they decided that since the state gave them a 3' spacing guideline (because they can't accommodate everyone with a 6' spacing requirement), even if the person sitting 3 feet away from them was covid positive and symptomatic, NO NOTIFICATION will be given. As long as they were 3' away at all times, they could sit there for hours and hours in the same space....no problem! The bus guidelines here are based on the same 3' principal. It means that children of the same household can sit on the same bench, but no other children can. The windows are down in all weather, which should be awesome because rainy season returns tonight. We've got rain covers for backpacks and full rain gear for clothing, but I am currently searching for small microfiber towels so they can wipe their seats down before they sit. I just told the kids it was outdoor school this year. Currently: the bus mechanic is driving my daughter's bus because there is such tremendous bus driver shortages. The district has purchased a refrigerator tent because there is a shortage of food deliveries from sysco, so they are buying from other sources and storing it in a refrigerator tent in a parking lot so they can stock up to feed people three weeks from now. Several teachers are out, and not enough subs, so my daughter reports that the principal was watching 3 classes in the gym and gym got pushed outside to free up space. They have already abandoned the designated seating for lunch. One of her teachers took off her mask in class 3x(!)--(that one is going to end with an email from me today). It's just SHTF because they are so dang desperate to have everyone in buildings this year... If you were close by, I'd take you out for drinks and we could go sit outside on a patio somewhere.... I've pretty much had it already and we're only in our second week of school.
  3. Our district is doing the same—they are loading homework into Google classrooms, that is it. If you are vaccinated, no quarantine required unless you are personally symptomatic. Ped vaccine can’t come quickly enough!!
  4. I puffy heart love Florastor!! 🥰
  5. How do you 15 minutes a week people do it? It takes me 20 just to get through produce….bananas, apples, clementines, strawberries, blueberries, lemons, limes, cilantro, onions, garlic, peppers, avocados, potatoes, sweet potatoes, mushrooms, salad greens, carrots, tomatoes, cucumbers…those are just the basics plus whatever I might need for certain recipes.
  6. If I could lift over 10 lbs I would just line my chart with rigid shopping bags and load groceries into it, stick them along the conveyer, and then have the cashier load back into the bags.
  7. https://www.amazon.com/Scout-Cart-SCV1-Purpose-Folding/dp/B01H2BLUNA/ref=asc_df_B01H2BLUNA/?tag=hyprod-20&linkCode=df0&hvadid=198070151435&hvpos=&hvnetw=g&hvrand=5964529267911153421&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=9032904&hvtargid=pla-351473689635&psc=1
  8. If the counselor is giving advice to not change the circumstances, then your options are limited if you choose to follow that advice. 🤷‍♀️ It seems the real issue, other than the uncomfortableness he is experiencing, is that he is embarrassing his older brother through over disclosure. Sometimes that happens even if there is no anxiety. My 8yo is also a motor mouth when she is nervous. Awkward for sure, but older brother probably just needs to roll with it. Maybe help him with some phrases on how to cope with that?
  9. Yeah, there are a number of them (over 60) going right now. OHSU and UTSA are the two I know the most about just because of connections, but it’s not an unstudied drug. Of the drugs you mention, I support the monoclonal antibody. If I get covid, that’s my game plan with my medical team. It ain’t perfect, but it works best if you get it by day 5 of symptoms.
  10. The hydroxychloroquine that Wildflower mentions above is also known as Plaquenil. I am doubtful of it’s efficacy in treating covid but it is an absolutely wonderful first line DMARD for lupus, rheumatoid arthritis, and a lot of those nebulous autoimmune things. It can make you blind (you need retina checkups on the regular) and it can mess with the QT rhythm of your heart and should never be used with zpacs or other Qt disrupters…but if a rheumatologist offers it to you know that about 1/3 of autoimmune people are fantastic responders to the med. It is ok for about another 1/3 and the final 1/3 don’t respond.
  11. Currently, 0 minutes. Normally, shopping for a week for our family of six, it takes about 90 minutes. ETA: It also sometimes takes two carts. I am rarely out of the store for under $350.
  12. It was me. I cope with dark humor. ❤️ I am about 15 years into being seriously chronically ill, 20 years (this week!) from my first dr prescribed full bed rest. My advice/coping tips: 1. Chronic illness is isolating. Find some ways to stay connected to friends and community. It is too easy to opt out and stay home and rest—there will be times when you literally cannot—but get out as much as you can especially when you don’t feel like it. 2. Laugh where you can. I have that British self deprecation humor going on. I have a lot of things I can’t control about my life, but my attitude is one of them. 3. Get out in the sunshine. On days I can’t walk, I try to get out for a drive. Fresh air is so important. This also goes back to not being a recluse. Most of my life is takeout/pickup these days—but the librarian walks things to my car, the small shop owner does the same….build ways to make life work. 4. Make healthy simple meals, and teach people how to help. I utilize my instant pot a lot. I have a posted menu, and a binder of recipes. Pretty much everyone in my house can step in on days I am utterly nonfunctional. I often prep meals in the am when I have energy, then uncover my pot and pop it in and turn on the instant pot in the evening. Bagged salads also get utilized a lot. 5. Work through the pain. The less you move the more it builds. Build your core muscles. Build flexibility in your shoulders and hips especially. On days I cannot move my shoulders to dress myself, my husband helps me get my swimsuit on and I get in the hot tub to soak. Heat helps me. 6. Be aggressive with meds. Damage is cumulative. Stop it now, work to prevent it further. I had an early intervention program with immunology and rheumatology. It has made all of the difference. Most of the people I know who tried to avoid meds early on now have fused joints or are getting surgeries. I actually have been in remission for most of my illness. 7. Adapt to what you can do. I can’t scrub with my fingers, so I use a tool and use my wrists. I can’t always lift a bottle of laundry detergent so I use pods sometimes. Most people IRL have no idea of what my daily life looks like because I just make it all work. There are things I have to rely on my family for, but like Jean, I work hard to be as independent as I can be. 8. Yes on the supplements mentioned above. Fwiw, if I could only pick 3, magnesium (the good stuff, not mag oxide) would be #1, D3 + K2 would be #2, and a good B spectrum would be #3. Fwiw, I also do hear a bit of depression warning signals in your posts. I am not self aware when I am depressed. Looking back, there were times when I definitely was…and would have benefited from help. I would ask people in your circle of acquaintanceship and family for additional insight.
  13. Sadly, this is a common enough issue. If she moves into diapers and needs intimate caregiving it's also really common for dementia victims to have emotional outbursts as it will bring back memories of prior abuse even if they don't have the specifics in their reachable memory. I would share with a female supervisor, and also share the detective's warning. She's already a target just by her demographics, cognitive functioning, and placement. As part of that you might ask if you can hang a wifi camera. Odds are they will say no, but I will also share that they sell incognito versions of cameras that are bundled inside of alarm clocks, phone chargers, and bluetooth speakers. If she is in a private room.... I will also give you the heads up that consensual activity between residents is also something we had to deal with, even if there was little memory of what occurred. All of those inhibitions start to go down and all of those human needs are still present.
  14. Forgot to add: if she still has memories of her incident, you may want to give a heads up and work on trauma reduction for showering and bath time. Calm lighting and sounds, a candle or scented product or whatever can really help. Going through another significant shift like this can take her up to 12 weeks to settle in on and if she is feeling insecure it will be harder on her. Changing and bathing were big triggers for a relative.
  15. Amazon has great iron on labels for about $8/100. They ship in from Spain, so they take a few weeks to arrive, but they are well worth it. Include first and last name, and attach them to every single piece of clothing. There are shoe stickers (different seller) you can put inside of shoes (and she may well still wear them as wheelchair footpads are hard on feet). We have done two different setups. One was live-in home style memory care facility. We put my grandparents in the same one, and they shared a bedroom. We brought furniture from home and made it look like their home. Unusual setup for sure, but it worked. We brought a bed, two arm chairs, a small end table (enough to place drinks between the chairs) and a dresser. The other setup has been standard nursing home, all furniture and bedding provided. Honestly; if you are dealing with serious incontinence the laundry setup is going to be better if they provide sheets bedding and pads, and you provide something like a comfort throw quilt or snuggle blanket. Ask specifically what is allowed to be brought, and what is recommended. Bring nothing precious. There will be significant churn in staff and things will disappear. Yes to gift bags, especially to managers (day and night shift). Yes to candy bowl. Yes to set you can place on walls—photos of family, photos of a significant and meaningful trip, photo of her working. Yes to her lotion and chapstick and other comfort items—but don’t bring them in unopened if you can help it. Give no incentive to steal the nice new bath and body stuff, iykwim. Some people bring in their own tv or Alexa or kindle: this is all on her ability to track things. If she has memory issues already, I would lean towards no.
  16. Hugs! One of mine has been ok, the other has gotten permission to eat alone outside. Just being in classrooms all day long is the edge of their tolerance level right now. We are using lunchtime as a decompression break.
  17. Ours is somewhat like that. Basically you get two elective choices per semester—-but there is a wide variety of electives to choose from. Our high school is like that due to budget cuts. They literally are tossing all of the extra money they can at credit recovery programs because they discovered a lot of freshman struggle and then never recover.
  18. I don’t think you can assume every booster will be the same. Shot 3 was easier than shot 2 for me. 🤷‍♀️
  19. They mask. Cloth masks during round 1. Not sure about the others. I doubt they are in N95s. I do know they eat in restaurants occasionally because they used to eat with my parents. 🤦 My parents only gave that up after the husband was in ICU for so long. My parents are older than they, so it scared them.
  20. Yes. Wife is a business owner, and her dh helps with the business so lots of daily exposure. Her dh is no longer working after round 2.
  21. Of the families I know enough of the details on to share…. Family One: our age, kids our age (late teens down to elementary, no obesity, good health). 1. Round 1: prevaccine, dad caught at work and brought home. Dad was tested through work (which was an early outbreak of dozens of people), mom and kids were symptomatic of something but not tested because testing not available. Influenza like. Round 2: prevaccine, went to a high outbreak area about 4 months after round 1. Saw extended family. All six in family one, grandparents, most aunts/uncles/cousins all sick. All tested. All of family one positive. “Like a day of bad allergies” Round 3: This summer. I can’t confirm they are vaccinated as we are no longer close. Plans had been to be vaccinated, but I don’t know for sure they did. Headache, drippy nose, tired, sore throat. Family 2: mid-60s. Good general health, wife has previous heart issues from celiac left long undiagnosed, but stable. 1. round 1: bad influenza—2020 2. round 2: early 2021: wife and husband both seriously ill. Wife went to urgent care 2x, sent on to ER. Husband spent two weeks in hospital on high flow, came home on low flow with nasal cannula. Essentially came home disabled with no stamina. Still has long covid symptoms. vaccine (full series 2 dose): March time frame 3. Round 3: August—milder, like bad colds I can count easily 20 people who have had two rounds. I can also easily count 20 people who have had mild covid post-vaccine. None had hospital stays. I am deeply deeply confused by people who are in a hurry to get it, thinking they will have lasting immunity. Some do get it, I think. Some don’t. It’s kind of a crapshoot. Same with long covid. I get that we are all playing a long game and we need to balance mental health, maintaining the economy, etc. but that doesn’t mean we need to free for all/give up all precautions.
  22. Faith manor, if you were close, I would take you out to lunch at some of the fantastic outdoor restaurant spaces here. (Hugs!!) We are still trying to keep a bubble around Youngest. She is so close to being able to be vaccinated! Just a few more months, hopefully! Oldest is working and going to university. The middles are in public school. They are wearing N95s or equivalent because they have so much exposure. Dh is still working from home. Dh does what shopping I can’t order for. Other than that, we are only going out for medical stuff. We had been doing outdoor dining but stopped when the wave hit hard….largely because our social circle has given up also. I have one friend who will mask while I eat, and then we take turns. I will mask so she can eat. And then vice versa. 🙂 Schools require masks, as do indoor spaces, but people here are largely fed up and doing whatever socially unmasked. The case rates are showing that. I have friends on their third or fourth round of covid.
  23. Thanks!! That is much more reasonable! We have no plans to move, but we rarely do before a move happens upon us.
  24. We're dang lucky that we were able to get to a vaccine so quickly or our summer numbers would have been so much higher. It's heartbreaking.
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