Joanne Posted May 12, 2012 Share Posted May 12, 2012 For a concussion (he falls a lot now), and acute episodes of encephalopathy. He's there now. I need to research adult daycare and assisted living options. He's not safe alone anymore. Remember the specialist appointment I scheduled in February for May? That appointment was this week. The liver specialist basically told me that I needed to keep him alive long enough to get *worse* so he could be put on the list for a transplant. Worse? He operates at a level I used to take him to the hospital for. I don't think he's going to make it to and through "worse" in order to get a transplant. He also spent a few days under stabilization care for suicidal ideation/plans. Quote Link to comment Share on other sites More sharing options...
Rebecca Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: I am so sorry. Quote Link to comment Share on other sites More sharing options...
hana Posted May 12, 2012 Share Posted May 12, 2012 I am so sorry to hear this, Joanne. Quote Link to comment Share on other sites More sharing options...
BlessedMom Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug: I am very so sorry. :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Mabeline Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug:I am so sorry.:grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Ellie Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: I'm so sorry, Joanne. I wish there were something I could do. :( Quote Link to comment Share on other sites More sharing options...
Miss Peregrine Posted May 12, 2012 Share Posted May 12, 2012 :( :grouphug: Quote Link to comment Share on other sites More sharing options...
Wendi Posted May 12, 2012 Share Posted May 12, 2012 Oh, Joanne, I'm so sorry to hear this. It breaks my heart. :grouphug: Wendi Quote Link to comment Share on other sites More sharing options...
elegantlion Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Big Buckin' Longhorn Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: I'm so sorry. I'm thinking of your family often. :grouphug: Quote Link to comment Share on other sites More sharing options...
Halftime Hope Posted May 12, 2012 Share Posted May 12, 2012 Oh, Joanne. I'm so very sorry. I will be praying that you will see many miracles in the next few days and in the months to come. May I pray for you? If not, just close this, OK? :grouphug: Father in heaven, we ask you to preserve Adrian's life, and to walk alongside him and Joanne through this time. Bless them with healing and with provision of a new liver for Adrian. Give Joanne peace and comfort. Amen. :grouphug: Quote Link to comment Share on other sites More sharing options...
southcarolinamom Posted May 12, 2012 Share Posted May 12, 2012 I'm so sorry. :grouphug: Quote Link to comment Share on other sites More sharing options...
justamouse Posted May 12, 2012 Share Posted May 12, 2012 Joanne, I am so sorry. It is so unfair. Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted May 12, 2012 Share Posted May 12, 2012 Oh Joanne, I am so very, very sorry. Continuing in prayer for Adrian and for you. :grouphug: Quote Link to comment Share on other sites More sharing options...
Catwoman Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: I'm so sorry, Joanne. I wish you didn't have to make such tough decisions, because these are the kind of things that make you feel terrible, no matter what you do. :grouphug: And FWIW, I don't understand why the doctors wouldn't have put Adrian on the transplant list long ago. It just doesn't make sense. :( Quote Link to comment Share on other sites More sharing options...
Country Mouse Posted May 12, 2012 Share Posted May 12, 2012 I'm so sorry, Joanne. :grouphug: Quote Link to comment Share on other sites More sharing options...
Teachin'Mine Posted May 12, 2012 Share Posted May 12, 2012 I'm so sorry. :grouphug::grouphug::grouphug: I was so hoping the specialist would have been able to get him on the list. Praying for a miracle for him. :grouphug: Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted May 12, 2012 Share Posted May 12, 2012 I'm sorry, Joanne. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Twigs Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Michelle in AL Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: To you. You've been through so much and have been so strong, this truly does not seem fair at all. I've lived only some of the stresses you've been through and am exhausted at times. I can only imagine what you are going through now. Know that you are strong and that people care! I hope he can get a transplant soon. I'm a nurse that's taken care of many liver pts and can't even imagine what "worse" would be! Quote Link to comment Share on other sites More sharing options...
Audrey Posted May 12, 2012 Share Posted May 12, 2012 :grouphug:Joanne:grouphug: Quote Link to comment Share on other sites More sharing options...
QueenCat Posted May 12, 2012 Share Posted May 12, 2012 :grouphug:Joanne:grouphug: Quote Link to comment Share on other sites More sharing options...
Mrs Mungo Posted May 12, 2012 Share Posted May 12, 2012 I can't believe everything that you've been through. I can't imagine your heartbreak over losing your best friend and partner. I'm so sorry. Quote Link to comment Share on other sites More sharing options...
i.love.lucy Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: Joanne I am so sorry. Quote Link to comment Share on other sites More sharing options...
LizzyBee Posted May 12, 2012 Share Posted May 12, 2012 I'm sorry. :grouphug: Quote Link to comment Share on other sites More sharing options...
Lady Florida. Posted May 12, 2012 Share Posted May 12, 2012 :grouphug:Joanne:grouphug: I wish I was there to give you a real hug and to be able to help you with the day to day stuff. Quote Link to comment Share on other sites More sharing options...
Chris in VA Posted May 12, 2012 Share Posted May 12, 2012 Oh hon, there are no words. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Wyndie Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Teachin'Mine Posted May 12, 2012 Share Posted May 12, 2012 Joanne, maybe a wheelchair or a scooter could help to prevent some falls, at least temporarily. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
clementine Posted May 12, 2012 Share Posted May 12, 2012 You both have been through so much. I am so sorry that you are going through all of this. :grouphug: Prayers for you both. Quote Link to comment Share on other sites More sharing options...
Tammyla Posted May 12, 2012 Share Posted May 12, 2012 How heartbreaking. Quote Link to comment Share on other sites More sharing options...
NorthwestMom Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: I am so sorry to read this. Quote Link to comment Share on other sites More sharing options...
Trish Posted May 12, 2012 Share Posted May 12, 2012 For a concussion (he falls a lot now), and acute episodes of encephalopathy. He's there now. I need to research adult daycare and assisted living options. He's not safe alone anymore. Remember the specialist appointment I scheduled in February for May? That appointment was this week. The liver specialist basically told me that I needed to keep him alive long enough to get *worse* so he could be put on the list for a transplant. Worse? He operates at a level I used to take him to the hospital for. I don't think he's going to make it to and through "worse" in order to get a transplant. He also spent a few days under stabilization care for suicidal ideation/plans. I am so sorry. Since it is the doctor who refers the patient to the liver transplant list, does this mean the specialist you're dealing with does not feel he is bad enough to qualify? Did he specify what he meant by "worse?" The lists are long enough without waiting to get worse! :grouphug: Quote Link to comment Share on other sites More sharing options...
PollyOR Posted May 12, 2012 Share Posted May 12, 2012 :banghead: :grouphug: Quote Link to comment Share on other sites More sharing options...
Joanne Posted May 12, 2012 Author Share Posted May 12, 2012 Valerie, I welcome, believe in, and love prayer. Thank you. Oh, Joanne. I'm so very sorry. I will be praying that you will see many miracles in the next few days and in the months to come. May I pray for you? If not, just close this, OK? :grouphug: Father in heaven, we ask you to preserve Adrian's life, and to walk alongside him and Joanne through this time. Bless them with healing and with provision of a new liver for Adrian. Give Joanne peace and comfort. Amen. :grouphug: Quote Link to comment Share on other sites More sharing options...
Little Nyssa Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
*Inna* Posted May 12, 2012 Share Posted May 12, 2012 I'm so sorry, Joanne. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Truscifi Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
MamaSheep Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
MelAR05 Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: and praying. Quote Link to comment Share on other sites More sharing options...
gingersmom Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
TN Mama Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: You have my prayers, Joanne. I'm so sorry. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted May 12, 2012 Share Posted May 12, 2012 You and Adrian remain in my thoughts and prayers.:grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
KS_ Posted May 12, 2012 Share Posted May 12, 2012 I'm so sorry, Joanne :grouphug: Quote Link to comment Share on other sites More sharing options...
EKS Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Onceuponatime Posted May 12, 2012 Share Posted May 12, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Unicorn. Posted May 12, 2012 Share Posted May 12, 2012 Joanne, I'm so sorry. I remember how happy you were when you and Adrian found each other. It was like reading a fairy tale w/ the happy ending. Praying for a miracle for him. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
LittleIzumi Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug::grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted May 12, 2012 Share Posted May 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
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