Happy Camper Posted October 31, 2020 Share Posted October 31, 2020 Ugh, as if 2020 wasn't hard enough! What a horrible shock. I will be praying for RI and for your family. Hang in there and try to take care of yourself. If anyone offers to help, ask them to bring over some of those bottled smoothie drinks. When you are under stress and spending time at the hospital, it can be a challenge to eat well. When my child was in the hospital for 9 days (very different circumstances), I really appreciated a friend providing those to me. Any quick and easy, nutritious snacks would do. ❤️ 1 Quote Link to comment Share on other sites More sharing options...
cintinative Posted October 31, 2020 Share Posted October 31, 2020 I am so sorry. Praying for you and please keep us posted. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted November 2, 2020 Share Posted November 2, 2020 really hoping the surgery went well Sending more positive thoughts Hugs Quote Link to comment Share on other sites More sharing options...
Laura Corin Posted November 2, 2020 Share Posted November 2, 2020 Best wishes to your whole family. Quote Link to comment Share on other sites More sharing options...
ktgrok Posted November 2, 2020 Share Posted November 2, 2020 I'm praying for Ri, the medical staff, and your whole family. Quote Link to comment Share on other sites More sharing options...
lmrich Posted November 2, 2020 Share Posted November 2, 2020 Praying for peace and healing❤️ Quote Link to comment Share on other sites More sharing options...
Jentrovert Posted November 2, 2020 Share Posted November 2, 2020 I am hoping the surgery went well and thinking of your whole family. ❤ Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted November 2, 2020 Share Posted November 2, 2020 Praying for Ri, your family, the surgeon and all the staff who will be treating Ri. Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 2, 2020 Author Share Posted November 2, 2020 (edited) 30 minutes ago, Jentrovert said: I am hoping the surgery went well and thinking of your whole family. ❤ The surgery will be on Thursday. After all his other tests came out clear, they decided to do it then instead of pulling everyone in on the weekend. He and all the kids were excited to have him home for the weekend, and we squeezed two birthdays as well as a Halloween celebration in while we had the chance. Things are a whirlwind, making arrangements and packing and swinging between different levels of grief while not losing it in front of the kids and trying to enjoy these last few days for of family time all together. Also trying to get everyone’s simplified schoolwork completely open and go with instructions written out for the various people who will be helping them with school. (My kids homeschool through a charter, which means we cannot just take off several weeks entirely whenever we want.) Ri has to be quarantined after his covid swab Tuesday morning, and my foster girls have to go to visitation during that time, so they are going to respite with a friend of mine tonight. My other kids are going to stay with cousins on Wednesday. Edited November 2, 2020 by Condessa 17 Quote Link to comment Share on other sites More sharing options...
Lady Florida. Posted November 2, 2020 Share Posted November 2, 2020 I'm so sorry you have to go through this. Sending hugs and positives thoughts. ❤️ Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 2, 2020 Author Share Posted November 2, 2020 (edited) And in the meantime, Ri is doing better than he has in weeks. He’s on a medication to get the swelling in and around his spine down before the surgery, so he’s moving better and with less pain. He has had a couple of falls, though, which is concerning. Edited November 2, 2020 by Condessa 16 Quote Link to comment Share on other sites More sharing options...
Laura Corin Posted November 2, 2020 Share Posted November 2, 2020 Thinking of you all. Quote Link to comment Share on other sites More sharing options...
bibliophile Posted November 2, 2020 Share Posted November 2, 2020 I'm so sorry to hear this! I will be praying for your son and family. I sent you a PM Quote Link to comment Share on other sites More sharing options...
Tanaqui Posted November 2, 2020 Share Posted November 2, 2020 We're getting better at treating tumors and cancer every single year, so I hope that this all goes as well as possible, as quickly and smoothly as possible. Quote Link to comment Share on other sites More sharing options...
Ditto Posted November 2, 2020 Share Posted November 2, 2020 I am praying for all of you. Sending you lots of hugs. I am just very sorry this is happening. It sounds like you guys had a good weekend (under the circumstances) and I'm glad he was able to be home with all of you. Please continue to keep us update, especially once surgery is over Thursday (as you are able, of course). Quote Link to comment Share on other sites More sharing options...
AmandaVT Posted November 2, 2020 Share Posted November 2, 2020 @Condessa - I am praying for the best results possible and an easy recovery for your DS! 💜 Quote Link to comment Share on other sites More sharing options...
mumto2 Posted November 3, 2020 Share Posted November 3, 2020 Sending Prayers! Quote Link to comment Share on other sites More sharing options...
Alicia64 Posted November 3, 2020 Share Posted November 3, 2020 I wasn't sure if I should share, but my boys are best friends w/ W. (and his brother B.). When W. was 2 he was diagnosed with leukemia. (We met W. at 5.) All the boys loved Star Wars so before W. would get treatment, my boys would tell him, "May the force be with you." (W. is 15 and in remission today.) ((((Condessa)))) They have so, so much for children. And the surgeons and nurses will be there for Ri 1000 percent. (My husband works for a children's hospital and says it's different b/c everyone cares so, so much.) Sending you love and strength. W. 2 Quote Link to comment Share on other sites More sharing options...
Robin M Posted November 3, 2020 Share Posted November 3, 2020 Hugs and Prayers winging your way! Quote Link to comment Share on other sites More sharing options...
Shoeless Posted November 3, 2020 Share Posted November 3, 2020 Oh I'm am so sorry. I can't imagine the strain and heartache you must have right now. You are all in my thoughts. (((hug))) Quote Link to comment Share on other sites More sharing options...
Junie Posted November 5, 2020 Share Posted November 5, 2020 Praying for all of you tonight and praying that Ri's surgery tomorrow goes perfectly. 1 Quote Link to comment Share on other sites More sharing options...
Ottakee Posted November 5, 2020 Share Posted November 5, 2020 Praying for all of you and his medical team today. Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 5, 2020 Share Posted November 5, 2020 Thinking of you and Ri and praying for you this morning. Quote Link to comment Share on other sites More sharing options...
East Coast Sue Posted November 5, 2020 Share Posted November 5, 2020 Lifting Ri and his medical team in prayer. Quote Link to comment Share on other sites More sharing options...
ktgrok Posted November 5, 2020 Share Posted November 5, 2020 (edited) Praying for a safe, successful surgery for Ri today, and for peace and calm for your family. Lord Jesus Christ, Good Shepherd of the sheep, you gather the lambs in your arms and carry them in your bosom: We commend to your loving care this child, Ri. Relieve his pain, guard him from all danger, restore to him your gifts of gladness and strength, and raise him up to a life of service to you. Hear us, we pray, for your dear Name's sake. Amen. Edited November 5, 2020 by ktgrok 3 Quote Link to comment Share on other sites More sharing options...
Amethyst Posted November 5, 2020 Share Posted November 5, 2020 Thinking of you and Ri today. Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted November 5, 2020 Share Posted November 5, 2020 Praying. Quote Link to comment Share on other sites More sharing options...
dirty ethel rackham Posted November 5, 2020 Share Posted November 5, 2020 Praying for you and Ri today! Quote Link to comment Share on other sites More sharing options...
Jentrovert Posted November 5, 2020 Share Posted November 5, 2020 Thinking of you today! Quote Link to comment Share on other sites More sharing options...
Ditto Posted November 5, 2020 Share Posted November 5, 2020 Thinking of you today and praying. Many hugs. Quote Link to comment Share on other sites More sharing options...
mominco Posted November 5, 2020 Share Posted November 5, 2020 Thinking of you (((hugs))) Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted November 5, 2020 Share Posted November 5, 2020 Thinking of you and your son today. 1 Quote Link to comment Share on other sites More sharing options...
Kareni Posted November 5, 2020 Share Posted November 5, 2020 Sending good thoughts your way. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
Alicia64 Posted November 5, 2020 Share Posted November 5, 2020 Thinking of your family today. ♥♥♥ Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted November 5, 2020 Share Posted November 5, 2020 Sending all my prayers your way. Quote Link to comment Share on other sites More sharing options...
Lori D. Posted November 5, 2020 Share Posted November 5, 2020 Praying for a surgery that addresses all the issues and creates no additional problems, and for a speedy recovery (and effective PT/rehab, if that is needed). And sending more hugs ((((((Condessa and family)))))) Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted November 5, 2020 Share Posted November 5, 2020 Hugs and positive thoughts Quote Link to comment Share on other sites More sharing options...
Laura Corin Posted November 5, 2020 Share Posted November 5, 2020 Best wishes to you all. Quote Link to comment Share on other sites More sharing options...
Alicia64 Posted November 5, 2020 Share Posted November 5, 2020 Thinking of your family today. ♥♥♥ Quote Link to comment Share on other sites More sharing options...
Frances Posted November 6, 2020 Share Posted November 6, 2020 I so hope everything went well today. Your family is in my thoughts. Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted November 6, 2020 Share Posted November 6, 2020 Praying surgery went well and that you find all the resources you need--help, support, peace, and strength. Quote Link to comment Share on other sites More sharing options...
BeachGal Posted November 6, 2020 Share Posted November 6, 2020 Oh my. Hoping surgery went well for Ri. As if this year hasn't been hard enough. Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 6, 2020 Author Share Posted November 6, 2020 Ri’s surgery was this morning. The doctor said he got over 90% of the tumor, and possibly all of it. (Apparently there were some cells left behind that were unclear if they were tumor cells or not). Ri was screaming and screaming afterwards, even on three different serious pain meds. He wanted both of us, but the recovery room would not allow it. It wasn’t until a few hours after he woke up and they had transferred him to the PICU that they made an exception to let us both be with him together for 20 minutes, when he finally stopped screaming. He can’t move his left leg, and had no sensation in it, but now the feeling is coming back, creeping down from the top. He can now feel down to a couple of inches below the knee, so hopefully that will continue and motion will follow. His right leg was numb at first, too, but he could always move it and the feeling came back to it quickly. 5 13 Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 6, 2020 Author Share Posted November 6, 2020 All in all, while there are still a lot of things to wait and see on, it’s looking pretty successful and he could have had significantly worse damage. 23 Quote Link to comment Share on other sites More sharing options...
Corraleno Posted November 6, 2020 Share Posted November 6, 2020 I'm so glad to hear the good news, but thinking about your little boy screaming in pain for his mommy and daddy made me cry. I can't even imagine the stress and trauma you guys are going through with this. Sending hugs and positive thoughts for the best possible outcome. 3 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted November 6, 2020 Share Posted November 6, 2020 huge huge hugs thank you for the update continuing to send positive thoughts Quote Link to comment Share on other sites More sharing options...
NorthwestMom Posted November 6, 2020 Share Posted November 6, 2020 I am hoping and praying that he makes a full recovery. I can't imagine what you are going through. So many hugs. Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 6, 2020 Share Posted November 6, 2020 3 hours ago, Condessa said: Ri’s surgery was this morning. The doctor said he got over 90% of the tumor, and possibly all of it. (Apparently there were some cells left behind that were unclear if they were tumor cells or not). Ri was screaming and screaming afterwards, even on three different serious pain meds. He wanted both of us, but the recovery room would not allow it. It wasn’t until a few hours after he woke up and they had transferred him to the PICU that they made an exception to let us both be with him together for 20 minutes, when he finally stopped screaming. He can’t move his left leg, and had no sensation in it, but now the feeling is coming back, creeping down from the top. He can now feel down to a couple of inches below the knee, so hopefully that will continue and motion will follow. His right leg was numb at first, too, but he could always move it and the feeling came back to it quickly. i am so sorry you are going through this. i hope they are able to make him comfortable soon and that you get good results from the testing. Praying for you and Ri. Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 6, 2020 Author Share Posted November 6, 2020 The hospital’s COVID policy of only one parent at a time would still be awful, but easier to bear if it made logical sense to prevent the spread. But surely having the same two people per child in the hospital, but passing through all the hallways and elevators several times a day and having contact with people outside each time they switch off with the other parent, would be more likely to spread coronavirus than those same people staying in a closed room with their child the whole time, wouldn’t it? It just feels sadistic. 14 Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 6, 2020 Share Posted November 6, 2020 24 minutes ago, Condessa said: The hospital’s COVID policy of only one parent at a time would still be awful, but easier to bear if it made logical sense to prevent the spread. But surely having the same two people per child in the hospital, but passing through all the hallways and elevators several times a day and having contact with people outside each time they switch off with the other parent, would be more likely to spread coronavirus than those same people staying in a closed room with their child the whole time, wouldn’t it? It just feels sadistic. I am so sorry you are dealing with this. It does feel sadistic. It certainly did to us. I hope things get a little easier today. I am still praying, for peace and pain relief for you and Ri, and good outcomes. Quote Link to comment Share on other sites More sharing options...
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