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About BeachGal

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    Hive Mind Level 6 Worker: Scout Bee

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  1. You can get lymphedema even in the legs after mastectomy. Maybe it’s that.
  2. Your body feels horrible and tired because it’s trying to kill off the virus and make it stop replicating. Your symptoms are showing you how tough the virus is. You are exhausted and need to rest a lot. Don’t try to do much of anything. Maybe some lobster baths if that would help. I hope you turn a corner soon, Terabith. ((( )))
  3. There have been a few studies done that show fasting and a specific fasting-mimicking diet can help with symptoms. Valter Longo at USC and Laura Piccio at WUSTL as well as some other universities here in the US and throughout the world are doing these (small human studies). A big study is being talked about at WUSTL. I’m not sure if it has started yet but you can call or email Dr. Piccio for more info. Not everyone is helped but some are. The senolytic drugs are now being used in human studies for diseases once thought untreatable. Might be worth watching to see if there are any MS studies using these. UWisconsin at Madison recently did a human study using red light therapy — a type of photobiomodulation — to help with fatigue. The microbiome appears to play a role. There might be some clinical studies. If you want to learn more, researcher Rhonda Patrick interviewed Valter Longo where he talks about fasting and MS among other things. Rhonda also interviewed Judith Campisi who discusses the senolytic drugs. I hope your husband can find something that helps. ((()))
  4. Same here. I also mix in a set of China for everyday that my grandma bought me years ago. Only a few pieces have broken and it’s easy to find replacements.
  5. Interesting. A session is only 20” or so, too. Not too long. I’ve been using electromagnetic stimulation for years. Maybe 8? Initially it was for nighttime back pain that woke me around 3 am for about 9-10 months. It took about 6-8 weeks to go away completely but it worked. At times, I will notice a slight twinge of pain and then use my Sota device, usually while reading or watching tv, and it goes away. So, it’s possible that a health problem could rear its ugly head again but maybe a few more sessions at that point would help. We own five devices and my kids all have a Sota as well. That’s great that you’re seeing promising results. 👍🏼 Some insurance companies are starting to pay for it. Maybe others will follow. 🙂
  6. @maize, is it the NeuroStar or something else? It’s so good that insurance is paying for treatments. .
  7. He could be using multiple methods — something on her phone, a secret tracker on her car, pestering friends and looking through social media, and just driving by places where he knows she is likely to be and then following her. Creepy. My roommate in college was stalked by the father of her friend back home, over 800 miles away. It was disturbing to say the least. The school gave her some kind of protection and her father ended up confronting the man back home which, thankfully, ended it. Be careful. ETA This link has some sites that explain how to secretly track someone using iPhone.
  8. If you're really interested, you can probably find coffee enema studies that were carried out somewhere in the world. Not sure of crystals or arsenic. There would have to be enough observed evidence that showed they worked before they designed a study or trial. I don't think any of those examples show that much evidence to go further. Other odd treatments, such as sauna as an example, were observed to have some kind of a beneficial effect on people and then studies were designed and carried out because someone was curious why so many sauna-goers were healthy. It turns out that sauna use generates a lot of heat shock proteins which help other proteins to fold properly. Properly folded proteins are key to a cell's function. Sauna use is something that cardiologists might be prescribing for certain heart problems. They're already studying it at conferences. That's an example of something weird that had an observed benefit in enough people to eventually warrant studies and statistical data. So, I guess the difference is that some things, like crystals, just don't have enough evidence to carry out a study whereas others do. However, when drug companies and regulatory agencies are making claims based on data, it's important that the stats be as correct as possible and properly interpreted. They usually want that, too, because of legal and ethical issues.
  9. I'm not on social media but, yeah, MLM companies. Nooo thanks. A mom I knew used to sell some kind of MLM multivitamin that made crazy claims. If someone made the mistake of telling her a family member had cancer, she would call them and ask them to listen to a recording of someone who claimed to be cured by the vitamins. Such BS. She used to try to sell them to other parents and get teachers to sell as well. Vitamins and supplements really should be more stringently regulated by the FDA. The FDA does to an extent but not nearly enough. A lot of them are made with crappy and even dangerous ingredients and/or either don't have what they claim or don't have as much. Some of them claim to be gluten-free and are found to contain gluten. CVS has started a program called Tested to be Trusted where the supplements are getting tested to see what's actually in them. Only a small sample is tested and it's possible other batches could be different but it's a start, I guess. It's smart because a lot of consumers are becoming savvier and want better quality supplements--not that these are the best quality. I'm getting my flu shot there this Friday and will have to check out the shelves. I'm curious about CBD oil but have no idea what is a reliable brand. I also have no reason to use it for myself so won't be buying it anytime soon! Regarding vaccines, my kids all got the Bexsero and Gardasil 9 as well as the usuals. My husband is going in for the Shingrix vaccine because he did not have outward signs of chicken pox as a child, although he probably did have it. He doesn't want shingles. I will personally be first in line for the universal flu vaccine. I hate the flu and Tamiflu caused crazy anxiety in one of my kids. I will give Xofluza a try if any of us get the flu this year. Some people do have serious reactions from vaccines and I can completely understand their concerns, too.
  10. Reyn Spooner makes some nice ones that are vintage-y that might appeal to a young adult. Some are subdued and others aren’t. I think they’re made in Hawaii but you might find them on eBay, too. Cooke Street is another brand. I think Costco sells Cooke Street but not sure. ABC Store sells them, too, and I think they ship from Arizona if you order on the mainland.
  11. Another problem is that statistical studies can have serious errors. My husband's job, among other things, is to scrutinize statistics used in medical research. MDs are sometimes giving patients advice based on faulty statistics. Just this weekend, dh was talking about some of the errors in cholesterol studies and heart disease. It takes a long time to later change the recommendations. In the meantime, people get treatments based on faulty statistics.
  12. Steve Jobs had a rare type of slow-growing pancreatic cancer called a neuroendocrine tumor (NET) which was discovered accidentally during a scan for kidney stones. Pancreatic NETs are rare and differ from the more common pancreatic tumors, adenocarcinomas. Each originates from different types of cells and thus behaves differently and have different treatments. Removal of NETs often does help with rates of survival to an extent and Jobs did have his removed nine months after he was diagnosed. I don't know why he waited nine months but his doctor might have advised him to do so. Back in 2004 when his tumor was removed, the drugs used then to treat NETs were very harsh, especially on the kidneys. That might have been why he opted out of chemo. He was apparently having problems with kidney stones and maybe he didn't want to tax his kidneys anymore with the chemo. In 2009 they discovered that the cancer had metastacized to his liver and possibly his peritoneum. Someone at Apple confirmed that Jobs had travelled to Switzerland to get a type of radiotherapeutic treatment called PRRT which had not yet been approved by the FDA (and is almost four times more expensive in the US). Many people go there for treatment. (My bil, who is in his 70s, has been involved with PRRT for years here in the US and around the world.) PRRT didn't work for Jobs and he eventually had a liver transplant. It wasn't until 2011 that the newer, better and less harsh drugs now used to treat NETs were approved by the FDA. Jobs died in October 2011 but it is believed that he used at least one of them. As for his diet, Jobs seemed to try weird things but he might have opted to try fasting and eating less protein because of the effect they have on mTOR, IGF-1, the immune system and stem cells. Fasting studies on cancer patients were being carried out about then. **Risk factors for pancreatic NETs are unknown, btw. Only about 5% are believed to be genetic. Not all cancers are genetic. ETA: In his biography Jobs did regret not have surgery immediately but some MDs who specialize in NETs speculated that by the time his was discovered it might have already metastacised. He had an excellent team of doctors and I'm sure it wasn't an easy decision. CBD oil is showing a lot of promise for a variety of problems, including pancreatic cancer. My dad was a pharmacologist (from the 1950s until he died) and thought marijuana was an amazing plant that would eventually be used medicinally. There's a lot to learn, though, but doctors are already giving patients the okay to try it in some cases. pancreatic cancer: pancreatic cancer: other diseases:
  13. Some more ideas: If you're around Millenium Park, Art Institute, Sears Tower, Loop: On Michigan Avenue is the Chicago Athletic Association (part of the Hyatt hotels). The 1st and 2nd floors might be fun to explore. They are offering pop-up dance/exercise classes. Nutella Cafe is not far. In the Loop is Revival Food Hall which has about a dozen smaller versions of some of the best restaurants in the city: Farmer's Fridge, Fat Shallot, Danke, Antique Tacos, Smoque, and Hot Chocolate Bakery (the hot chocolate is supposed to be very good). In that same building is Paper Source where you can find fun paper stuff and little gifts that I think teens would like. Michigan Avenue north of the river: Andy's Jazz Bar allows kids in for lunch and up to a certain hour to listen to jazz but you'd have to check. They offer lunch and might have a minimum drink purchase. Some of the blues clubs might do this too. The big Sephora on Michigan for makeup and perfume. Nearby is Nike and UGG and a Garret Popcorn. Up near Water Tower Place (mall) is Zara, H&M, Uniglo, Anthropologie (biggest area is in basement), Nordstrom Rack. Further west of Michigan is an Escape Room above Trader Joe's. Just west of that is Sweetgreens (amazing salads!) which is part of the old Tree Studios. In the same complex is Alliance Patisserie where you could pick up little cakes to share and eat in their back area which looks out the inner courtyard. POSH is there, too, but it's more of a home store. Across the street is Via Stato which has my favorite pizza. It's almost like a cracker -- very thin, excellent ingredients. If you eat there at lunch time you can get the lunch special. Eataly also has a dessert area and Nutella bar. I think their food is kind of meh but their focaccia on the 2nd floor is fantastic. Oak Street area: Madewell is in the area and a fun little cupcake place called Sprinkles. Toward Mariano Park (Viagra Park) is the hip Velvet Taco which sells unusual tacos and has powerful margaritas. The 2nd floor is fun for watching people on the street. Also on that block is Urban Outfitters. Across the street is Van's and a block away is Doc Marten's. Londo Mondo clothing store might be fun for the grown ups. Gold Coast and south Lincoln Park area: A really nice daytime walk to the zoo is from Dearborn at Division going north along Dearborn to North Avenue and then through some of the park until you see a tunnel that goes under the road. (There are actually two tunnels but take the one that is to the left.) Go through the tunnel and you'll see a broad walkway lined with trees. This is Lincoln Park. Walk noth along that and then veer left and then continue walking past the farm in the zoo until you reach the main entrance on Stockton Drive. Polar bear is close to the entrance. Geja's is not too far. Another nearby restaurant is RJ Grunts. Kingston Mines might allow children to listen to blues before a certain hour. You'd probably want to Uber there. Brunch ideas: Ann Sather's are known for their Swedish food and cinnamon rolls drowning in icing. Multiple locations. m. henry up in Andersonville neighborhood has a fantastic brunch. Dove's Luncheonette is a diner in the hip Wicker Park/Bucktown area where a lot of young people live. Food is fantastic. Lots of tatoos. That area has a ton of amazing restaurants. Very fun area. Lots of kooky shopping places for a teen.
  14. Lincoln Park Zoo offers the Penguin Encounter which allows you to go into the (probably smelly) penguin cage where you can watch them up close and personal. One of my kids did this for a friend’s birthday. This is not offered for polar bears, which is good, but their area is close by. Geja’s Fondue is nearby. A full meal is cheese fondue and salad, meats and veggies, then chocolate fondue and fruits and churros. Wine optional but you can order just one or a combination. You can usually find coupons on Groupon or by signing up and they never make a big deal about them. Mention it’s her birthday and they’ll bring something out for her. Live guitar music, too. You’d want to make reservations if you decide to go because they fill up fast. Dress code is nice jeans and sweater to gowns. The Hancock bar to check out the sky. Children are fine. Get there early to grab a seat. It will be busy on those days. Francesca’s is a store many teen girls like. Not expensive, cute stuff. Lush for bath bombs if she likes them. Michigan Avenue store or Lincoln Park store on Armitage. Gotta go but I’ll try to think of more.
  15. Primary (hereditary) hemochromatosis (HH) is genetic and you should be tested to find out for sure if you have that. (Hemochromatosis is not always genetic. Secondary hemochromatosis is caused by other health problems.) HH is a condition where you absorb most of the iron in food. The excess iron is then stored in your joints and organs where they do damage. People who don’t have HH, only absorb about 1/3 of the iron from their diets. It’s believed to have developed in Ireland thousands of years ago in response to low iron diets. HH is more common in the Irish and Northern European but has been found in people elsewhere. The usual treatment is blood letting and more frequent iron panels to see if it’s in check. If iron panel numbers get into a good range, then no problems but you’ll need to keep checking your iron. Depending on your diet, you might be able to eat the same foods but combine them so that the iron is more likely to be bound and not absorbed in your digestive tract. Read about phytates, oxalates and fiber. Limit eating vitamin C rich foods with high iron foods. There are also websites and forums for people with hemochromatosis that might be helpful. A lot of people have hemochromatosis and don’t even know it. Knowing you have it and doing something about should prevent problems.
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