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That was the worst day of my life


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I am terrified and reeling. Last night I checked on my baby, and found he had pulled a blanket over his head. He was breathing but nonresponsive, and didn't come all the way around until the ambulance arrived about fifteen minutes later. The paramedic said he was fine and didn't need to be transported, but we called our pediatrician and took him to the closest ER on our own. The doctor there thought it sounded like a seizure, and that was why he couldn't move the blanket, so he had us drive to the children's hospital. We stayed there overnight, and after a lot of monitoring they said it might have been an atypical seizure, but it was more likely caused by his reflux.

 

So, if you followed all of that, does that even sound reasonable? An "acute life threatening event" from the fact that he spits up a lot? Has anyone ever heard of that? Or has anyone had an atypical seizure with an infant? He hasn't had any risk factors for seizures, which I think was part of why they leaned toward reflux, although the doctors said that we'll probably never know for sure.

 

I am terrified that something is wrong every time he starts falling asleep or every time he doesn't smile at something, even though he was giggling and charming all the staff in the ER and on the neurology floor. I'm convinced it's my fault for swaddling him in the blanket, even though everyone said it was possible but unlikely that the blanket was the cause. I also feel like I should have considered some kind of treatment for reflux, even though the spitting up has never seemed to bother him. I'm worried CPS is going to show up at the door. I'm afraid it's going to happen again. I'm worried that I now know that my location first gets sent to the adjoining county's 911 system and they need to transfer me to the correct county before dispatching.

 

I get sick to my stomach just thinking about what could have happened every time I look at him.

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You weren't kidding about the worst day! First of all I think you did the right thing by getting him to the ER regardless of what the paramedics said. If the doc is suspecting a seizure I would demand an EEG. Many seizures occur around sleep cycles and can cause vomiting. I would want that ruled out ASAP.

 

Hopefully everything is fine and your sweet baby never has another event but I would want to rule some things out.

 

God Bless,

Elise in NC

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I am terrified and reeling. Last night I checked on my baby, and found he had pulled a blanket over his head. He was breathing but nonresponsive, and didn't come all the way around until the ambulance arrived about fifteen minutes later. The paramedic said he was fine and didn't need to be transported, but we called our pediatrician and took him to the closest ER on our own. The doctor there thought it sounded like a seizure, and that was why he couldn't move the blanket, so he had us drive to the children's hospital. We stayed there overnight, and after a lot of monitoring they said it might have been an atypical seizure, but it was more likely caused by his reflux.

 

So, if you followed all of that, does that even sound reasonable? An "acute life threatening event" from the fact that he spits up a lot? Has anyone ever heard of that? Or has anyone had an atypical seizure with an infant? He hasn't had any risk factors for seizures, which I think was part of why they leaned toward reflux, although the doctors said that we'll probably never know for sure.

 

I am terrified that something is wrong every time he starts falling asleep or every time he doesn't smile at something, even though he was giggling and charming all the staff in the ER and on the neurology floor. I'm convinced it's my fault for swaddling him in the blanket, even though everyone said it was possible but unlikely that the blanket was the cause. I also feel like I should have considered some kind of treatment for reflux, even though the spitting up has never seemed to bother him. I'm worried CPS is going to show up at the door. I'm afraid it's going to happen again. I'm worried that I now know that my location first gets sent to the adjoining county's 911 system and they need to transfer me to the correct county before dispatching.

 

I get sick to my stomach just thinking about what could have happened every time I look at him.

 

You will probably never know what happened. You didn't do anything wrong, really you didn't. *hugs*

 

I have been through this in a similar way. Ultimately, my son is fine and hasn't had an issue since it happened. We had all sorts of testing, stayed at Children's for a week and in the end we got a generic name for what happened. It's been three years, I've been getting better but yes, it is a terrible thing to experience.

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We have to follow up with our doctor this week. The doctor in the hospital said that if anything happens again (heaven forbid), we're going to move on to brain scans and an EEG. I asked quite a few questions while we were at the hospital, but I'm coming up with a lot more as I've had a bit of time to think about what happened.

 

Thank you guys.

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Do you mind sharing how old your little one is? This does sound absolutely terrifying, and as a mom expecting another one that also swaddles, I am wondering how he got out of the blanket. I only started swaddling with my littlest ds but he didn't like it very long. The time I did swaddle, he wasn't big or strong enough to get out. I am not in any way saying that you did anything wrong, just want to know if I shouldn't swaddle again and if yours is older than mine when I stopped.

 

((Hugs)) to you. I cannot imagine your fear. My niece had pretty severe reflux and I don't recall her having anything like this, but I do know they kept her mattress elevated for a long time.

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I'm so sorry for your terrifying experience.

 

May I suggest a wearable blanket or swaddler rather than a loose one that can get over his head? I am NOT saying this to blame you, just thinking that may be able to give you a little more peace of mind, the fact he can't get it over his head again accidentally. We aren't allowed to have ANY item in the crib until a child is 18months old so had the baby wear a swaddler for several months and then long sleepers once they were no longer swaddled.

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You will probably never know what happened. You didn't do anything wrong, really you didn't. *hugs* I have been through this in a similar way. Ultimately, my son is fine and hasn't had an issue since it happened. We had all sorts of testing, stayed at Children's for a week and in the end we got a generic name for what happened. It's been three years, I've been getting better but yes, it is a terrible thing to experience.

 

How long did it take for the panic to fade?

 

Do you mind sharing how old your little one is? This does sound absolutely terrifying, and as a mom expecting another one that also swaddles, I am wondering how he got out of the blanket. I only started swaddling with my littlest ds but he didn't like it very long. The time I did swaddle, he wasn't big or strong enough to get out. I am not in any way saying that you did anything wrong, just want to know if I shouldn't swaddle again and if yours is older than mine when I stopped. ((Hugs)) to you. I cannot imagine your fear. My niece had pretty severe reflux and I don't recall her having anything like this, but I do know they kept her mattress elevated for a long time.

 

He's 4 months old. I don't do it all the time, but he still startles easily when I lay him down, so I was doing it rarely to keep him from jerking and waking himself up as I placed him in his bed. I've always done it when my babies were really little, but not all the time once they were a bit bigger. Even the hospital couldn't make up their mind. A couple of the nurses asked me if I wanted him wrapped up, but the discharge instructions and doctors said not to. (Not that I would ever again.)

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Super scary! :grouphug: :grouphug: :grouphug:

 

No advice but I understand the feeling.

 

When my youngest was 18 months old or so, I was walking through the room in which he was playing and just happened to look down and see that he was choking. I flipped him upside down and slapped his back and a marble flew out. I have no idea where it even came from! I was shaken for days and days. I was afraid to leave him alone even for a minute and was very overprotective for months.

 

Hugs to you!

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How long did it take for the panic to fade?

 

The panic was gone after about 6months but I will never, ever get over that feeling I had. I tuck them in at night, constantly check on them until they are asleep, and then at random times at night I check on everyone again. When my littler ones are napping, I go in and check on them as well. It's been a long road and I wonder when I will sleep through the night again, probably once no one is "little" anymore (not that I know what age that ends). I used to sleep through the night, only waking when someone woke up. Now, it's random sleep, few hours here and there. It's hard but you will get through it.

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Oh, sweetie! I'm so sorry.

 

Fwiw, many seizures do happen when someone first goes to sleep and first wakes up.

 

By atypical, I wonder if they just meant not a tonic-colonic seizure ((not a seizure where the person stiff and shaking .)

 

Many, many seizures are atypical in that sense. Staring spells can be because of seizure activity.

 

I'd push hard for an EEG. LMK what happens. DD has had many EEGs. There is a protocol a few of us on here can help you with.

 

It is very hard. You've had quite a shock. Just take it one day at a time.

 

(((Hugs)))

 

Eta: a couple other thoughts. Write down everything you remember about what happened now, while it is fresh in yr mind. This will help later with doctors.

 

Did the paramedics take his pulse ox? Was it normal?

 

If he did have a seizure you might have found him in a postictal phase. The seizure is over but the person is not yet back to baseline/normal.

 

Also, watch him today. This could be part of an illness. Illness can lower someone's seizure threshold if he is already prone to them or a person can have a one time only seizure along with an illness. It is almost a which came first situation until a pattern develops.

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I'm so sorry for your terrifying experience.

 

May I suggest a wearable blanket or swaddler rather than a loose one that can get over his head? I am NOT saying this to blame you, just thinking that may be able to give you a little more peace of mind, the fact he can't get it over his head again accidentally. We aren't allowed to have ANY item in the crib until a child is 18months old so had the baby wear a swaddler for several months and then long sleepers once they were no longer swaddled.

 

They do now make awesome swaddle blankets that I wish I had been available for my first four babies. I bought mine at Target and Amazon.

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You poor thing-how terrifying! You are a good mommy who experienced a scary health issue with her baby.

 

I swaddled all my babies, so please don't blame yourself! If the docs are leaning toward something related to reflux, you might want to seek out a pediatric gastronenterologist. It could allow you to speak to someone who would have seen all kinds of related issues and help you decide if that is the track to pursue.

 

And if it is any small comfort at all, my brother experienced something similar as an infant. Docs never figured it out, he never had another problem, and is now 50 years old.

 

Lots of hugs to you and your peanut.

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So, if you followed all of that, does that even sound reasonable? An "acute life threatening event" from the fact that he spits up a lot? Has anyone ever heard of that? Or has anyone had an atypical seizure with an infant? He hasn't had any risk factors for seizures, which I think was part of why they leaned toward reflux, although the doctors said that we'll probably never know for sure.

 

When my brother was 2 he was very sick--possibly the flu. So sick that mom had him sleeping in the living room where he could be watched more easily. He was sleeping on his back and threw up while he was sleeping. It went back down and he stopped breathing and was unresponsive. He started turning blue! Mom was able to get him breathing and thankfully for us we lived across the street from a small hospital clinic so she ran him over. They checked him out and except for being very sick he was fine. But during those minutes of panic it was quite frightening.

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:grouphug:

 

I would also see if there is a way to call your county directly if you need an ambulance. I know it is not as quick as 911 but a direct number posted by all the phones might be quicker. I would call a non-emergency number and ask for advice.

 

When we lived in the states it seemed like our area worked quicker by calling the police station, that dispatched the ambulance from the fire station two minutes from our house with 911 you could get the county one which took far longer.

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:grouphug: That's scary. I'm another mom who had a baby that had an EEG. When my oldest was 4 or 5 months old, she was in her swing and when I looked over, her eyes were rolled up and her whole body was shaking. It scared the life out of me. They did tests, and I don't even remember what, but they never diagnosed her with anything. They just said to bring her back if it happened again. I watched her as carefully as I could and even checked on her many times through the night. I wish I could remember how long it took me to calm down. I'm sorry. But it never happened again nor did she have any other health problems. My son had awful reflux. I had him sleeping on his tummy (tummy sleeping wasn't frowned on then) so if he threw up it wouldn't choke him. He had reflux until he was about 2 when it just stopped altogether. It was weird. He's not had any further problems either. I know you are beside yourself with worry. It's understandable because it was shocking. But it was nothing you did and CPS isn't going to come to your house. You'll drive yourself crazy thinking that. :grouphug:

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:grouphug: :grouphug: :grouphug:

 

I can't imagine the terror you must have felt! No idea if what the doctor says sounds right or not. I'd maybe take him to the pediatrician and maybe he/she can refer you to a specialist who can give you more answers. ER doctors aren't often equipped to diagnose everything. Our friend is an ER doctor and the stuff he DOESN'T know scares me!

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When dd5 was an infant we spent a bvery long day in teh children's hospital having tests and eeg's done because she appeared to have a seizure. Her body went rigid, head arched back, hands spayed for almost a minute, no other movement, just locked in place like that, (IOW it scared teh crap out of me and I had never seen anything like it in 20 years of childminding and parenting). In the end they ruled it was her reflux, that she had got hit with a bad case of heartburn and the shock from the pain and trying to get away from it is what caused what I had seen. They put her on reflux meds (I forget what they were called), and it never happened again. Eventually she grew out of the reflux. If she had done that in bed with a blanket I could see it becoming an issue since she would not have pushed the blanket off her face, As it was she did that on the changing pad when I laid her down to change.

 

 

If it is reflux and you are now treating it, something like this will likely never happen again.

 

As for fear of CPS at your door. Good gracious, they won't come for that. My oldest son has always been into trouble, so we have been the hospital for many many injuries that are bizarre, like the time he was a tot and bit right through my drinking glass when i was giving him a sip of water. He did it once with a different glass and I thought it was a fluke, but he did it again a month later this time getting a mouth full of glass (no cuts though), so off we went for xrays to check for glass in his throat/stomach). Or the time I thought he and dd ate a whole bottle of centrum and we had to be airlifted to teh children's hosptial in the city until they were tested and treated and the nurses kept referring to them as teh drug babies, and then my then dh found the pills in the pot of soup I had been making for lunch. and on it goes. And that is just 1 of my 4, all of them have given me grey hair over the years from frights,. Ds14 started at birth with apneas, but they all have had things happen that had me worrying and anxious but they overcame and have no ill effects and CPS was never called for any of the things. So cross that worry off your list.

 

Ambulance time, 15 minutes is not a long time even with the transfer they have to do. If it will help calm your nerves take an infant and child first aid and CPR course, that way you will know how to respond in those 15 minutes and feel empowered not fearful.

 

Lastly, record this in the baby book so when he has kids of his own you can list it among the other things he did to scare the crap out of you growing up, when he calls you upset about something his kid did to scare him.

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I am going to see what we can do about the ambulance thing. I asked our neighbor across the road before. He said to call 911, and he works with the fire department on the other side of the highway. They are closer than the ones who came, but they are also in the other county.

 

I guess he is ok today. Nothing has been wrong and he's doing all the things he is supposed to. I'm constantly second-guessing whether or not his reactions are as quick as they usually are or if he is interacting as much as usual. He just chomped on my thumb pretty hard, which he does all the time. That's reassuring.

 

I've thought about the different monitors. I'm not sure what we're going to do yet.

 

I have been writing everything down.

 

s. Did the paramedics take his pulse ox? Was it normal? If he did have a seizure you might have found him in a postictal phase. The seizure is over but the person is not yet back to baseline/normal.

 

They checked to see if his color returned after they pressed down on his nails and skin, and they listened with a stethoscope. That was it. At the time I was so happy he was responding and that they said he was ok that I didn't think about anything else. I believe the monitors at the hospital for that said he was at 99/100%. He wasn't blue when I first picked him up.

 

That is very scary and I'm so sorry that you are going through this. I know that reflux can irritate the vagus nerve which can affect your heart and respiration rates. Is that what the doctor was thinking?

 

They really didn't elaborate on it at all. They just said it was probably the cause.

 

 

Thanks for all the hugs everyone. It's also nice to hear that other people have had something like this happen without any further problems.

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(((Hugs))) How scary!!! I'm so glad he's okay though!!! Please don't feel bad though. My kids have all had reflux and we ended up in the ER with my oldest from him choking. The other 3 I just put on their tummy so they wouldn't choke. Thinking of you and hope all is okay.

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Aahh! :grouphug: :grouphug: I just saw this after reading your pm. I am so sorry, do you need anything?

 

 

I sent you a message back. I think we're good right now.

 

His chest x-ray was clear, so I don't think he aspirated. It didn't seem like choking either, because he didn't stop breathing or turn blue. His breathing was fast and shallow though. I'm adding these questions to my list.

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So sorry that happened! You must have been terrified. Do you know they have baby monitors that will sound an alarm if your baby stops breathing? I had one for my kids when they were little because we had a friend who had lost their child to SIDS and I was very anxious about it. Here's what we had http://www.amazon.com/HiSense-BabySense-Infant-Movement-Monitor/dp/B0039UEJCI/ref=sr_1_sc_1?ie=UTF8&qid=1356909803&sr=8-1-spell&keywords=Angelheart+baby+monitor . It really set my mind at ease.

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:grouphug: :grouphug: I don't think I will ever forget that feeling of utter terror, the hair sticks up on the back of my neck just reading your post. Something similar happened to DS when he was 31/2 months old, but he was swaddled with nothing by his face and wasn't breathing when I found him in his crib. In the end it was attributed to his reflux. It was explained as being like a bubble in the throat and from everything I'm told isn't as uncommon as one would think. He was on Prevacid from 8 weeks of age for severe reflux. He wore an oxygen saturation monitor on his foot from that point until he was 18 months old. It would alarm if his pulse or oxygen level were outside of set parameters.

 

He did end up hospitalized a month or two later with aspiration pneumonia but follow up swallow studies were clear, it was just from the reflux.

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:grouphug: :grouphug: :grouphug:

 

 

Our preemie boy had problems with obstructive apnea, due to reflux. He took meds for the reflux, and was on an apnea monitor for several months; a couple of times I had to stimulate him after he had triggered the alarm. He would not choke or gasp out loud, just lay there and succumb to the reflux, and it was very frightening. He is now a strapping, healthy thirteen year old, thank the Lord. :)

 

Will your doctor prescribe an apnea monitor for a few months so you can get a good night's rest?

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The problem I'm seeing with the over-the-counter monitors is that they wouldn't have alarmed yet when I found him, because he was still moving. I don't know how the different medical grade ones work though.

 

:grouphug: :grouphug: I don't think I will ever forget that feeling of utter terror, the hair sticks up on the back of my neck just reading your post. Something similar happened to DS when he was 31/2 months old, but he was swaddled with nothing by his face and wasn't breathing when I found him in his crib. In the end it was attributed to his reflux. It was explained as being like a bubble in the throat and from everything I'm told isn't as uncommon as one would think. He was on Prevacid from 8 weeks of age for severe reflux. He wore an oxygen saturation monitor on his foot from that point until he was 18 months old. It would alarm if his pulse or oxygen level were outside of set parameters.

 

He did end up hospitalized a month or two later with aspiration pneumonia but follow up swallow studies were clear, it was just from the reflux.

 

Thank you so much for explaining that. How did you keep the monitor on? When we were in the hospital he had one, but no matter what we tried he got it off within five minutes if he woke up even a little.

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