mommyoffive Posted March 23, 2017 Share Posted March 23, 2017 I am so glad it came back normal. I am glad you are going to a Lyme doctor. I hope that provides the answers that you need. Quote Link to comment Share on other sites More sharing options...
Mimm Posted March 23, 2017 Share Posted March 23, 2017 I am thrilled at your non-diagnosis! I've been stalking this thread for days. You've been on mine and my daughter's minds so much this week. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted March 23, 2017 Share Posted March 23, 2017 Thank you for the update -- I never thought I'd be praying for someone to have Lyme disease, but all things considered, it seems to be the best possibility. I'm so glad it's looking like it's not ALS!!! :grouphug: 6 Quote Link to comment Share on other sites More sharing options...
Insertcreativenamehere Posted March 23, 2017 Share Posted March 23, 2017 So glad for your update and your upcoming appointment. :) Quote Link to comment Share on other sites More sharing options...
Reefgazer Posted March 23, 2017 Share Posted March 23, 2017 (edited) This is such good news! If you have to be diagnosed with one or the other, I'm hoping you have Lyme! The update: I think my neuro is a lovely man. He might be a little pessimistic. I had a CLEAN EMG on Monday. Clean. 100% Normal. So he tells me this fiasco could be early ALS but there is NO motor neuron damage (denervation) or compensation (reinervation) found. Which, IMO and Dr. Google's, makes that little assumption very unlikely. My doctor says he has seen it happen before but it's rare, maybe PLS. Frankly, I am thinking Lyme. Lyme has been misdiagnosed as ALS before and my thoughts are if I look like a jackass and I'm totally wrong and it *is* ALS, so what? And seriously - if I had ALS I would be the 1 in 165 million to get it before forty. Then I have a slow moving form? Even more rare? AND I have two clean EMGs? That would make those stats so off the chart rare. I refuse to drink the kool-aid. Or at least not until it's being poured down my throat. So the update? 1. I have a clean EMG. 2. I (currently) do NOT have a diagnosis. :) 3. I have an appointment with a Lyme doc in Wisconsin in early April. Yes, yes, I do. (dance) All I want for Christmas is Ceftriaxone and it is looking like an April Christmas. Edited March 23, 2017 by reefgazer Quote Link to comment Share on other sites More sharing options...
BearWallowSchool Posted March 23, 2017 Share Posted March 23, 2017 (edited) I am so happy to read your post!!!!! I can't figure out why they won't just give you the antibiotics and see if they work. This. What's the deal? Why won't they? I don't post much, but I've thought about you a lot. It feels weird to hope you have Lyme disease. I will hope for Lyme, but pray that it all goes away and you are healed. :) Edited March 23, 2017 by BearWallowSchool 2 Quote Link to comment Share on other sites More sharing options...
Jaybee Posted March 23, 2017 Share Posted March 23, 2017 Your update is encouraging! Thanks for letting us know! Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted March 23, 2017 Share Posted March 23, 2017 I am so happy to read your post!!!!! I can't figure out why they won't just give you the antibiotics and see if they work. Because long term antibiotics have risks. I was on antibiotics for 6 months straight one year. The next year I was on antibiotics for 7 months straight. It was very hard. It kills good gut flora even though I was very religious about taking high doses of probiotics separated by a couple of hours from the antibiotics. Antibiotics used long term often stop working. Then you have to go to another one - not just in the same class of antibiotics, but one in another class. I ended up going through 8 different classes of antibiotics. In my case, because it was active infections that were getting worse, they were running out of options. At the end, my body was just reacting to any antibiotic because my immune system was overreacting big time. We finally got a hold of it, but it was a very dicey time. And I had to have other treatments which were very painful to help support my body so that it would finally kick in. I'm now on medications for my immune system which have made a world of difference but my team of doctors (because by the end I had four doctors following all of this and helping to support me) are very alert to even the slightest chance of me having infections again. My gut is only now starting to recover a couple of years later. My liver is also only now starting to get out of the worrisome range in it's numbers. My doctors still monitor me every 3 months (unless something pops up where I might need to go in sooner). 12 Quote Link to comment Share on other sites More sharing options...
MercyA Posted March 23, 2017 Share Posted March 23, 2017 Thank you, Jesus! :hurray: :hurray: :hurray: We'll keep praying. :grouphug: 3 Quote Link to comment Share on other sites More sharing options...
clementine Posted March 23, 2017 Share Posted March 23, 2017 Great update! Praying for the best April Christmas ever!!! Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted March 23, 2017 Share Posted March 23, 2017 PS - I also got C-Diff from being on long term antibiotics. Very difficult, painful and hard to treat as well. OP - I am not posting things about antibiotics to discourage you. But just to point out that doctors have reasons for being careful about how they go about all this. If you go this route, it may be the best thing for you but you want to be monitored by a good doctor for the best possible outcomes. 5 Quote Link to comment Share on other sites More sharing options...
displace Posted March 23, 2017 Share Posted March 23, 2017 Praying for you Quote Link to comment Share on other sites More sharing options...
J-rap Posted March 23, 2017 Share Posted March 23, 2017 Wow! What an encouraging update!! Thanks for letting us know! Will continue to keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
Guest Posted March 23, 2017 Share Posted March 23, 2017 I am so thrilled for you on the clean emg! Praise God! Lyme isn't awesome but it's a heck of a lot better for you long term, so I hope you can find a good Lyme doctor to help you with this. I'm absolutely rejoicing for you and your family! Quote Link to comment Share on other sites More sharing options...
Meriwether Posted March 23, 2017 Share Posted March 23, 2017 :hurray: :hurray: :hurray: :hurray: :hurray: A clean EMG! 1 Quote Link to comment Share on other sites More sharing options...
Rebecca Posted March 23, 2017 Share Posted March 23, 2017 BlsdMama, I am SO so so so so glad to read this update. Thank you for sharing, Rebecca 1 Quote Link to comment Share on other sites More sharing options...
creekland Posted March 23, 2017 Share Posted March 23, 2017 Adding my sense of relief with this news! :party: Thanks for updating - and may they figure out what it all is and be able to fix it for you... 1 Quote Link to comment Share on other sites More sharing options...
zoobie Posted March 23, 2017 Share Posted March 23, 2017 Yay for ALS being ruled out. I hope you get answers soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
Jenn in FL Posted March 23, 2017 Share Posted March 23, 2017 Kelly... :party: :party: :party: In honor of post # 201, I think you need a new "To Do" list and in no particular order: Grab your 'right hand gal' :001_wub: and go kiss those last two babies. Think about making an heirloom baby gift for the impending arrival! Savor your bright and bubbly gal skipping out the door. Give the lil lady with a heart of solid gold an extra tight hug. Her momma "gets" her. Reflect on the joy of being able to have your middle two ladies at home with you. The boys??? Feed 'em. Again. Remember to tell your DH how AMAZING you think he is. The entire Hive is sharing your joy today. A CLEAN report is HUGE. No words here...just joy. 21 Quote Link to comment Share on other sites More sharing options...
Heatherwith4 Posted March 23, 2017 Share Posted March 23, 2017 I'm so glad to hear this news! I've been praying for you a lot. 1 Quote Link to comment Share on other sites More sharing options...
ktgrok Posted March 23, 2017 Share Posted March 23, 2017 oh i am SO glad!!!! crying happy tears! Quote Link to comment Share on other sites More sharing options...
Liz CA Posted March 23, 2017 Share Posted March 23, 2017 Halleluja! So relieved ALS is unlikely. I will pray you get a definite diagnosis so treatment can begin. Quote Link to comment Share on other sites More sharing options...
edelweiss Posted March 23, 2017 Share Posted March 23, 2017 Very excited and relieved to read this update! Quote Link to comment Share on other sites More sharing options...
Ausmumof3 Posted March 23, 2017 Share Posted March 23, 2017 I am so glad to read this. Quote Link to comment Share on other sites More sharing options...
Ewe Mama Posted March 23, 2017 Share Posted March 23, 2017 I have happy, thankful tears from your update. Quote Link to comment Share on other sites More sharing options...
JoJosMom Posted March 23, 2017 Share Posted March 23, 2017 Thank you for the update -- I never thought I'd be praying for someone to have Lyme disease, but all things considered, it seems to be the best possibility. I'm so glad it's looking like it's not ALS!!! :grouphug: Exactly what I wanted to say. Thank you, Jesus! 3 Quote Link to comment Share on other sites More sharing options...
melmichigan Posted March 23, 2017 Share Posted March 23, 2017 Crying happy tears here too. I'm so glad to hear the EMG was clean! :party: Quote Link to comment Share on other sites More sharing options...
Another Lynn Posted March 23, 2017 Share Posted March 23, 2017 SO, SO thankful to read your update! Praise God!!! Quote Link to comment Share on other sites More sharing options...
Innisfree Posted March 23, 2017 Share Posted March 23, 2017 So glad to hear this news! Now hoping Lyme turns out to be the answer and respond beautifully to treatment. Quote Link to comment Share on other sites More sharing options...
Spryte Posted March 23, 2017 Share Posted March 23, 2017 Huge happy hugs! May your new LLMD be fabulous! 2 Quote Link to comment Share on other sites More sharing options...
Guest Posted March 23, 2017 Share Posted March 23, 2017 So hopeful after reading your update! Quote Link to comment Share on other sites More sharing options...
MistyMountain Posted March 23, 2017 Share Posted March 23, 2017 I am relieved to hear your update. I was worried when you did not post for a few days. Quote Link to comment Share on other sites More sharing options...
jjeepa Posted March 24, 2017 Share Posted March 24, 2017 Yay for the clean test! Thankful to read your encouraging update! Quote Link to comment Share on other sites More sharing options...
38carrots Posted March 24, 2017 Share Posted March 24, 2017 I've been thinking about you a lot. So relieved to read this update. Quote Link to comment Share on other sites More sharing options...
Jackie in AR Posted March 24, 2017 Share Posted March 24, 2017 Praise God! What a wonderful update. :party: Quote Link to comment Share on other sites More sharing options...
Hen Posted March 24, 2017 Share Posted March 24, 2017 so relieved for you!!! Quote Link to comment Share on other sites More sharing options...
AnneBlessedx4 Posted March 24, 2017 Share Posted March 24, 2017 I am so very glad for you! !!!!!!!!!!!!!!!!!!!!!!!*!!!there aren't enough exclamation points to express it! Quote Link to comment Share on other sites More sharing options...
idnib Posted March 24, 2017 Share Posted March 24, 2017 :hurray: :hurray: :hurray: Quote Link to comment Share on other sites More sharing options...
MomsintheGarden Posted March 25, 2017 Share Posted March 25, 2017 Hooray! Hope you get some Lyme answers soon. I still think there's a good chance it's Lyme. Quote Link to comment Share on other sites More sharing options...
RioSamba Posted March 26, 2017 Share Posted March 26, 2017 I'm so happy to read this update! PTL! Quote Link to comment Share on other sites More sharing options...
Mama Geek Posted March 26, 2017 Share Posted March 26, 2017 :grouphug: :party: We have an extended family member that is on the other side of chronic lyme. It is a miserable road but with a good light at the end of the tunnel. Quote Link to comment Share on other sites More sharing options...
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