funschooler5 Posted February 16, 2013 Author Share Posted February 16, 2013 Thanks everyone. I did have the nurse bring me a pump, but it's just a hand one so I haven't been able to get a lot of milk but I'll keep trying. DH called and for me a hotel room so I think I'll try there. They do have a lactation room but I've been just sitting in the corner pumping. I will try to contact a social worker. It's difficult because I don't really want to say any of this in front of DH. He's been very emotional (understandably) and he says that feels like he's ruining everyone's lives. I keep reminding him that this is short term, that he needs to concentrate on getting well. Both of our families live in our town and they helped a lot after his last hospital visit...cleaning, babysitting, and staying with us. But they have to go home eventually and we have to learn to deal with this disease as a family. The problem is that there is no "normal." He'll be ok one day (no pain, able to walk to the bathroom) and one little thing like eating the wrong food (we figured out salad does a number on him) and he'll be in serious pain or have to be hospitalized. It's just really hard being away from the kids and everyone right now. I'm hoping that the university hospital (where he would be getting a transplant) has better lodging for kids. Joanne thank you ::hugs:: ::hugs:: ::hugs:: I know you're going through the same thing. How do you do it working several jobs?? This is such a horrendous disease. So many ups and downs. I will pm you soon. Quote Link to comment Share on other sites More sharing options...
RoughCollie Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: and prayers. Quote Link to comment Share on other sites More sharing options...
NorthwestMom Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: It is hard to be the one holding everything together, especially when you are desperately afraid. Lots of love and best wishes to you. Quote Link to comment Share on other sites More sharing options...
Word Nerd Posted February 16, 2013 Share Posted February 16, 2013 I'm sorry you and your family have to deal with so much. :grouphug: Quote Link to comment Share on other sites More sharing options...
twinmami01 Posted February 16, 2013 Share Posted February 16, 2013 No words...just prayers and hugs. Quote Link to comment Share on other sites More sharing options...
regentrude Posted February 16, 2013 Share Posted February 16, 2013 No advice, just good thoughts and hugs. Quote Link to comment Share on other sites More sharing options...
justamouse Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Twigs Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Corraleno Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: :grouphug: Jackie Quote Link to comment Share on other sites More sharing options...
Mom-2-7 Posted February 16, 2013 Share Posted February 16, 2013 I'm so sorry. I can't imagine the stress. I am praying for you and your family. :grouphug: Quote Link to comment Share on other sites More sharing options...
Kaleidoscope Posted February 16, 2013 Share Posted February 16, 2013 I'm so sorry. Prayer and hugs Quote Link to comment Share on other sites More sharing options...
Joanne Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: prayers sent and more :grouphug: Have you explored the possibility of one of the family members (DH's father, mother, siblings) being a donor for him? The liver regenerates, so he would only need a portion of a donor's liver. You may be able to bypass "the list" this way. "It" doesn't work quite like that. Quote Link to comment Share on other sites More sharing options...
Durriyyah Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
BlessedMom Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: I am so sorry you are facing such tough times. Praying for your DH and your whole family! :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Night Elf Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Jen in PA Posted February 16, 2013 Share Posted February 16, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
sbgrace Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
AmyontheFarm Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
atozmom Posted February 17, 2013 Share Posted February 17, 2013 I am so, so sorry. Prayers coming your way. :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
M&NMom Posted February 17, 2013 Share Posted February 17, 2013 I'm so sorry you're going through this. I'll keep you all in my prayers. Tina Quote Link to comment Share on other sites More sharing options...
Pod's mum Posted February 17, 2013 Share Posted February 17, 2013 Prayers from here for your family. I can't imagine having to chose to be with babe or sick husband. Peace be with you. Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted February 17, 2013 Share Posted February 17, 2013 I'm so sorry you're dealing with this. I totally get your wanting your babies with you at a time like this. I know I'd feel exactly the same way- especially with that little one. Prayers that things improve very soon. Quote Link to comment Share on other sites More sharing options...
Scarlett Posted February 17, 2013 Share Posted February 17, 2013 So so sorry. I hope you can get some relief soon, Quote Link to comment Share on other sites More sharing options...
KnitWit Posted February 17, 2013 Share Posted February 17, 2013 Oh my goodness! My heart just aches for you on so many levels. You and your dh and family will be in my thoughts and prayers. Quote Link to comment Share on other sites More sharing options...
bzymom Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: :grouphug: I am so sorry you have so much on your shoulders. I will certainly keep your family in my prayers. Quote Link to comment Share on other sites More sharing options...
Miss Marple Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: I'm so sorry. Praying for strength and stamina for you all. Quote Link to comment Share on other sites More sharing options...
besroma Posted February 17, 2013 Share Posted February 17, 2013 Prayers and {{hugs}}. I wonder if, given your situation, the lactation center at the hospital would rent a hospital-grade breast pump at a reduced rate. You would be done so much faster, with much less effort. Quote Link to comment Share on other sites More sharing options...
HollyinNNV Posted February 17, 2013 Share Posted February 17, 2013 No advice-just hugs!! Please try and take care of yourself,too Holly Quote Link to comment Share on other sites More sharing options...
QuirkyKapers Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
mumto2 Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
funschooler5 Posted February 17, 2013 Author Share Posted February 17, 2013 Well it looks like I'm going to be seeing my baby after all, and DD15. After I last posted I fell asleep and woke up and threw up twice. I picked up a thermometer and some soup and went to the hotel to rest. My temp was 100.7 so they don't want me in the room with DH. I fell asleep until 6pm and my breasts were engorged...no way I could pump them now. My dad is going to bring the baby and my oldest daughter to me, since I won't be able to go to the hospital to visit him for awhile now. I guess the baby was throwing up last night too, so I definitely want her nursing. Going to get a mask for older DD and she will be getting a flu shot at the hospital. She was with me and the baby most of the week so I assumed she's already been exposed but better safe than sorry. Ugh not the way I wanted to see them but so looking forward to it. Apparently DH's attending dr was throwing up today too.i guess we don't actually know if it's the flu or some other bug, but poor DH feels terrible about us all being exposed to it. I wish he could stop worrying about that. His electrolytes are back down again so they are going to back off on the Lactulose (a laxative they use to treat his confusion). I wish the poor guy could have one day without something bad happening. :( Quote Link to comment Share on other sites More sharing options...
readinmom Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
besroma Posted February 17, 2013 Share Posted February 17, 2013 I am glad you will have time to rest and nurse your baby, but I am so sorry that you are both sick! Quote Link to comment Share on other sites More sharing options...
tex-mex Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Reflections Posted February 17, 2013 Share Posted February 17, 2013 I'm so sorry. :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Incognito Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
nd293 Posted February 17, 2013 Share Posted February 17, 2013 I am so sorry you're going through this. Quote Link to comment Share on other sites More sharing options...
Susan in TN Posted February 17, 2013 Share Posted February 17, 2013 (((Hugs))) Quote Link to comment Share on other sites More sharing options...
swellmomma Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
Pod's mum Posted February 17, 2013 Share Posted February 17, 2013 Hold your babe. Have a cry. Sleep.If you can. :grouphug: Quote Link to comment Share on other sites More sharing options...
Another Lynn Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: I am so sorry. Enjoy this time with the baby as much as you can and let yourself rest! Quote Link to comment Share on other sites More sharing options...
Faithr Posted February 17, 2013 Share Posted February 17, 2013 I hope you feel better. I am glad though you got a chance to rest even though it is because you are sick! Social workers have to deal with emotional patients all the time. Emotional everybody! You can share your concerns with the s.w. about your dh's emotional state and she/he can be discrete about planning. You don't have to plan right there in front of dh, in other words. Feel better! Quote Link to comment Share on other sites More sharing options...
Kimberly in IN Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
chiguirre Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: I hope things take a turn for the better soon. Quote Link to comment Share on other sites More sharing options...
Ruby Rose Posted February 17, 2013 Share Posted February 17, 2013 Praying for you. Don't worry about what happens when everyone has to go home. Take it one day at a time. You will get through this. So sorry you have to though. :( Quote Link to comment Share on other sites More sharing options...
Tiramisu Posted February 17, 2013 Share Posted February 17, 2013 I'm so sorry. :grouphug: I hope you can get a little rest and quiet time with your baby without the virus being too horrible. Quote Link to comment Share on other sites More sharing options...
fraidycat Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Laurie4b Posted February 17, 2013 Share Posted February 17, 2013 :grouphug: prayers sent and more :grouphug: Have you explored the possibility of one of the family members (DH's father, mother, siblings) being a donor for him? The liver regenerates, so he would only need a portion of a donor's liver. You may be able to bypass "the list" this way. Yes! A woman I know did this for a friend of hers. It turned out she was a compatible donor. She gave 2/3 of her liver and kept 1/3 (I am pretty sure that is accurate and not reversed)! But she now has a full liver back and her friend has a fully functioning liver of her own! :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: You really are going through a lot. Are you allowed to keep the baby with you in the hospital during the day? Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted February 18, 2013 Share Posted February 18, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
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