happypamama Posted January 9, 2017 Author Share Posted January 9, 2017 (edited) And he's still hanging on. His sats have actually gotten better at times; at one point they were at the high point for the day for quite a while. Then we moved him from my chest to DH's again, and he's bounced around more. Nobody really knows what's going on. We're just enjoying him and soaking up his precious baby sweetness for as long as we can. (I did get some video of his noises, though I don't know if they came out well or not since he's so very quiet. A friend came and took a bunch of photos of him and us. I don't really have video of him moving much, because he's all covered with blankets, but if we put him back in the isolette, I'll try to get some.) It's a miracle that he even got here alive and that we got this much time with him. I'm truly grateful for that. I still believe that God can do a very mighty miracle and defy all expectations, and I am praying that He will, while also praying that He will let me handle things if that is not His will. I also cannot thank you all enough for the incredibly helpful information in this thread. You all truly helped make a terrible situation a good experience. Edited January 9, 2017 by happypamama 37 Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted January 9, 2017 Share Posted January 9, 2017 I'm glad this thread can provide company without interruption. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 9, 2017 Author Share Posted January 9, 2017 I'm glad this thread can provide company without interruption. :grouphug: :grouphug: :grouphug: Yes, indeed. I get email pop-ups that there are replies, and I check it periodically. It is a pleasant company, comfort, and distraction -- just what I needed. 16 Quote Link to comment Share on other sites More sharing options...
eternalsummer Posted January 9, 2017 Share Posted January 9, 2017 I'm so glad you get this time with him, either way. It has to feel so good (even amidst the worry and sadness), being close to him and comforting him. 1 Quote Link to comment Share on other sites More sharing options...
FaithManor Posted January 9, 2017 Share Posted January 9, 2017 (edited) (((Hugs))) I wish I could be there for you to lean on. Edited January 9, 2017 by FaithManor Quote Link to comment Share on other sites More sharing options...
PollyOR Posted January 9, 2017 Share Posted January 9, 2017 We're just enjoying him and soaking up his precious baby sweetness for as long as we can. :001_wub: Love and peace to you and your family. Quote Link to comment Share on other sites More sharing options...
maize Posted January 9, 2017 Share Posted January 9, 2017 I've been crying off and on all day over little Nathaniel. I am so glad for the time you have together with him and pray that all of you will be wrapped in comfort, whatever comes. 2 Quote Link to comment Share on other sites More sharing options...
JustEm Posted January 9, 2017 Share Posted January 9, 2017 So good to hear you are getting lots of time with him in your arms. 2 Quote Link to comment Share on other sites More sharing options...
scholarly Posted January 9, 2017 Share Posted January 9, 2017 So many hugs to you. And so much love to that baby. Quote Link to comment Share on other sites More sharing options...
Ailaena Posted January 9, 2017 Share Posted January 9, 2017 I am so, so glad you finally get baby snuggles, I'm so thankful you are sharing this journey, and I'm just sending love your way 2 Quote Link to comment Share on other sites More sharing options...
busymama7 Posted January 9, 2017 Share Posted January 9, 2017 I have been reading along and praying for baby Nathaniel all along. I am saddened by the news that he is not doing well. I pray for peace for you and your family. I have a Nathaniel and have also had to say goodbye to a sweet baby of mine much too soon. Know that you have love and support here and other places. I'm glad you got pictures. Those are so precious to me. 5 Quote Link to comment Share on other sites More sharing options...
BooksandBoys Posted January 9, 2017 Share Posted January 9, 2017 Peace and love to you, precious Nathaniel, and all of your family. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted January 9, 2017 Share Posted January 9, 2017 :grouphug: :grouphug: :crying: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Posted January 9, 2017 Share Posted January 9, 2017 Still praying for you and him. I'm so glad you're getting more time to really soak up his sweetness. Quote Link to comment Share on other sites More sharing options...
Amira Posted January 9, 2017 Share Posted January 9, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
RootAnn Posted January 9, 2017 Share Posted January 9, 2017 Checking in on you. Praying. Quote Link to comment Share on other sites More sharing options...
displace Posted January 9, 2017 Share Posted January 9, 2017 Praying for your family and DS. Quote Link to comment Share on other sites More sharing options...
creekland Posted January 9, 2017 Share Posted January 9, 2017 Still thinking of all of you - and praying. I'm glad you've gotten to hold him for quite some time (at least compared to what was expected yesterday). I'd love a miracle. My heart goes out to you during this time in your lives. Quote Link to comment Share on other sites More sharing options...
Guest Posted January 9, 2017 Share Posted January 9, 2017 Still thinking of you, your family, and sweet Nathaniel. Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 9, 2017 Author Share Posted January 9, 2017 Still thinking of all of you - and praying. I'm glad you've gotten to hold him for quite some time (at least compared to what was expected yesterday). I'd love a miracle. My heart goes out to you during this time in your lives. Thank you, all of you. Yes, we have been given so much more time than we ever could have expected. We thought yesterday morning we were talking about hours and minutes, but we just said hello to the nurse who had him yesterday until 7, who is back for today's shift. He was up and down all night, and a few times we thought the end was very near, but every time I put him back on my chest, he stabilizes and is happy. It is probably just prolonging the inevitable, but he hasn't sent the clear message that he is done here, so we just keep him cuddled up and are enjoying him. 37 Quote Link to comment Share on other sites More sharing options...
Guest Posted January 9, 2017 Share Posted January 9, 2017 I am so glad you are getting to soak up this time and are recovered enough to enjoy it. My heart goes out to you so much. I don't know what to say beyond we pray for you often and think of you and that sweet baby even though we haven't met. Sending you both prayers and hugs. Quote Link to comment Share on other sites More sharing options...
Lawana Posted January 9, 2017 Share Posted January 9, 2017 Thank you so much for the update. You and Nate are in my thoughts frequently. Nothing like a baby and his mama. He knows where he wants to be. 2 Quote Link to comment Share on other sites More sharing options...
Guest Posted January 9, 2017 Share Posted January 9, 2017 (edited) Thank you so much for the update. You and Nate are in my thoughts frequently. Nothing like a baby and his mama. He knows where he wants to be. Exactly my thoughts. He just wants his mommy and it's the very best place for him to be right now. Crying for you both tonight :grouphug: Edited January 9, 2017 by Arctic Mama Quote Link to comment Share on other sites More sharing options...
ktgrok Posted January 9, 2017 Share Posted January 9, 2017 Still praying for him and you and your family. And that if his time comes, he has a peaceful transition from the arms of his mother to the arms of his heavenly father. 7 Quote Link to comment Share on other sites More sharing options...
MedicMom Posted January 9, 2017 Share Posted January 9, 2017 Thank you, all of you. Yes, we have been given so much more time than we ever could have expected. We thought yesterday morning we were talking about hours and minutes, but we just said hello to the nurse who had him yesterday until 7, who is back for today's shift. He was up and down all night, and a few times we thought the end was very near, but every time I put him back on my chest, he stabilizes and is happy. It is probably just prolonging the inevitable, but he hasn't sent the clear message that he is done here, so we just keep him cuddled up and are enjoying him. I believe in miracles, for I have seen many. Sometimes the miracle is life; sometimes the miracle is the healing and restorative power of a mother's love. 6 Quote Link to comment Share on other sites More sharing options...
Selkie Posted January 9, 2017 Share Posted January 9, 2017 I just want to say that you are an absolutely amazing mom. Your love for little Nate shines through in everything you write. :grouphug: 3 Quote Link to comment Share on other sites More sharing options...
TheReader Posted January 9, 2017 Share Posted January 9, 2017 Continuing to pray for precious Nathaniel and you, your husband, your older kiddos.... 1 Quote Link to comment Share on other sites More sharing options...
maize Posted January 9, 2017 Share Posted January 9, 2017 Thinking of you this morning. 1 Quote Link to comment Share on other sites More sharing options...
Jaybee Posted January 9, 2017 Share Posted January 9, 2017 Thinking of you and praying for you. So sweet that you are getting these precious moments with your little guy. It's obvious he wants his mommy right now. :001_wub: 1 Quote Link to comment Share on other sites More sharing options...
Garga Posted January 9, 2017 Share Posted January 9, 2017 Been thinking about you non-stop for the past day and last night. Thought and prayed for you when I was falling asleep last night and you were my first thought this morning. It was wonderful to wake up and read that Nathaniel was snuggling with you guys. 5 Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted January 9, 2017 Share Posted January 9, 2017 Thank you for taking the time to update. Sending you more prayers. 1 Quote Link to comment Share on other sites More sharing options...
Gentlemommy Posted January 9, 2017 Share Posted January 9, 2017 Still thinking about you...glad you are snuggling with your baby. Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 9, 2017 Author Share Posted January 9, 2017 (edited) DP Edited January 9, 2017 by happypamama 2 Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 9, 2017 Author Share Posted January 9, 2017 He did okay when we put him in the isolette for an hour or so so we could eat, freshen up, pump, and get his exam and care done. Sats went down to 50s and 60s, even down to 40s a bit, but he's back to kangarooing with me, and now he's in the 70s again. Doctors say that they will do whatever we want in that respect, but they're happy for him to stay with me until that is no longer even enough. He's a bit of an enigma. They say he has no bowel sounds, but he's pooped a couple of times recently. (The surgeons are less convinced that he has a blockage.) 13 Quote Link to comment Share on other sites More sharing options...
Spryte Posted January 9, 2017 Share Posted January 9, 2017 You are in our hearts. ((Hugs)) Quote Link to comment Share on other sites More sharing options...
Starr Posted January 9, 2017 Share Posted January 9, 2017 We have a cozy "Than Man." I"m so glad you are getting time to cozy with yours. Many blessings. 1 Quote Link to comment Share on other sites More sharing options...
maize Posted January 9, 2017 Share Posted January 9, 2017 Thank you for the update, it is amazing how a baby will respond to snuggling up with mom and dad. Were you able to get any sleep last night? 1 Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 9, 2017 Author Share Posted January 9, 2017 Thank you for the update, it is amazing how a baby will respond to snuggling up with mom and dad. Were you able to get any sleep last night? A tiny bit. I attempted to pump at about 3, while holding him, but sitting forward made his hose kink, and his sats went way down. We moved him to the isolette and got him settled back down, and I left him there for a couple of hours so I could sleep in the chair next to him and so they could get a stable blood gas reading (not spectacular). Other than that, I've dozed a little, but he really needs me right now. He does okay for Daddy but really does better for me. 16 Quote Link to comment Share on other sites More sharing options...
Insertcreativenamehere Posted January 9, 2017 Share Posted January 9, 2017 Continued prayers for all of you. Sent from my iPhone using Tapatalk Quote Link to comment Share on other sites More sharing options...
FaithManor Posted January 9, 2017 Share Posted January 9, 2017 Much love from me to you, Happypamama. Quote Link to comment Share on other sites More sharing options...
RioSamba Posted January 9, 2017 Share Posted January 9, 2017 It is a privilege to see the power and beauty of your love for Nathaniel. 9 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted January 9, 2017 Share Posted January 9, 2017 Hugs Quote Link to comment Share on other sites More sharing options...
Junie Posted January 9, 2017 Share Posted January 9, 2017 It is a privilege to see the power and beauty of your love for Nathaniel. :iagree: Quote Link to comment Share on other sites More sharing options...
debinindy Posted January 9, 2017 Share Posted January 9, 2017 (edited) I know this must be so hard, but the love you are showing is very beautiful! Edited January 9, 2017 by debinindy 3 Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted January 9, 2017 Share Posted January 9, 2017 Hearing you talk about the amazing bond the two of you have is so powerful. Sending strength and prayers. 1 Quote Link to comment Share on other sites More sharing options...
displace Posted January 9, 2017 Share Posted January 9, 2017 Thinking and praying for you and your time together. Quote Link to comment Share on other sites More sharing options...
Heatherwith4 Posted January 9, 2017 Share Posted January 9, 2017 Praying for you all today. Quote Link to comment Share on other sites More sharing options...
Innisfree Posted January 9, 2017 Share Posted January 9, 2017 Thinking of you all. Quote Link to comment Share on other sites More sharing options...
Lilaclady Posted January 9, 2017 Share Posted January 9, 2017 (edited) Praying for you and your family. You are one strong and loving mama. Edited January 9, 2017 by Lilaclady 1 Quote Link to comment Share on other sites More sharing options...
East Coast Sue Posted January 9, 2017 Share Posted January 9, 2017 Praying for you and your sweet baby. Quote Link to comment Share on other sites More sharing options...
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