Joanne Posted May 12, 2016 Share Posted May 12, 2016 (edited) It appears my Crohns is present throughout my digestive track. In addition to the lower portion issues and severe colon inflammation, today we confirmed the following: hiatus hernia, moderately severe chronic gastritis in the antrum, erosive gastritis in the stomach, duodenitis and 2nd portion of of the duodenum. Edited May 12, 2016 by Joanne Quote Link to comment Share on other sites More sharing options...
TianXiaXueXiao Posted May 12, 2016 Share Posted May 12, 2016 I'm so sorry! (((Hugs))) Quote Link to comment Share on other sites More sharing options...
VANURSEPRAC Posted May 12, 2016 Share Posted May 12, 2016 ((((( Hugs))))) What meds have they put you on? Quote Link to comment Share on other sites More sharing options...
mamiof5 Posted May 12, 2016 Share Posted May 12, 2016 Sorry!!! What can they do about it? Quote Link to comment Share on other sites More sharing options...
Eagle Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
displace Posted May 12, 2016 Share Posted May 12, 2016 I'm sorry. I hope your doctors are able to help you. Quote Link to comment Share on other sites More sharing options...
Seasider Posted May 12, 2016 Share Posted May 12, 2016 It's good that you have a clear picture of what's going on in there. I'm sorry there's SO MUCH going on in there! I just keep thinking and hoping that you're going to feel a lot better once a good treatment plan is established. Hopefully there will be no delay in getting treatment underway. I'm sorry you have to deal with all this. 4 Quote Link to comment Share on other sites More sharing options...
hornblower Posted May 12, 2016 Share Posted May 12, 2016 That sucks Joanne :( Quote Link to comment Share on other sites More sharing options...
Stacia Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
sbgrace Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: I"m so sorry. :crying: My BIL is doing pretty well with his IBD with medication. I hope similar treatment is possible when it's so widespread. :grouphug: Quote Link to comment Share on other sites More sharing options...
Tsuga Posted May 12, 2016 Share Posted May 12, 2016 I'm so sorry. I have a relative with severe Crohn's. It's awful. I am just so sorry. :( Quote Link to comment Share on other sites More sharing options...
NorthwestMom Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
fraidycat Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Posted May 12, 2016 Share Posted May 12, 2016 Oh man. That is terrible. I hope they can get this sorted out soon. :( Quote Link to comment Share on other sites More sharing options...
East Coast Sue Posted May 12, 2016 Share Posted May 12, 2016 (((Hugs))) Quote Link to comment Share on other sites More sharing options...
Alessandra Posted May 12, 2016 Share Posted May 12, 2016 It's good that you have a clear picture of what's going on in there. I'm sorry there's SO MUCH going on in there! I just keep thinking and hoping that you're going to feel a lot better once a good treatment plan is established. Hopefully there will be no delay in getting treatment underway. I'm sorry you have to deal with all this. This. And (((hugs))) Quote Link to comment Share on other sites More sharing options...
creekland Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: Wow. :grouphug: And yuck. :( Hopefully now that they have figured out what is going on they can also figure out how to fix it. Best wishes as you tackle it all. :grouphug: Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted May 12, 2016 Share Posted May 12, 2016 Sounds so painful and awful. I hope your health starts to turn for the better now that these issues are being addressed. :grouphug: Quote Link to comment Share on other sites More sharing options...
Tammyla Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: Quote Link to comment Share on other sites More sharing options...
JFSinIL Posted May 12, 2016 Share Posted May 12, 2016 Oh you poor baby, that all sounds AWFUL! :-( What diet and medications can they use to help you recover as much as possible? Quote Link to comment Share on other sites More sharing options...
Greta Posted May 12, 2016 Share Posted May 12, 2016 Joanne, I'm so sorry. I don't know much about Crohn's, so I don't even know what the treatment options are. But I really hope they'll be able to find one that works for you. :grouphug: Quote Link to comment Share on other sites More sharing options...
El... Posted May 12, 2016 Share Posted May 12, 2016 Aw, hun. That's a lot. :grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: I hope you get good treatment and that it helps. Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: Have they checked for C Diff infection? It's often comorbid with Crohn's. 3 Quote Link to comment Share on other sites More sharing options...
ScoutTN Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: So sorry! I hope you can find some effective treatment and feel better soon. Quote Link to comment Share on other sites More sharing options...
VinNY Posted May 12, 2016 Share Posted May 12, 2016 (edited) :grouphug: :grouphug: :grouphug: Have they checked for C Diff infection? It's often comorbid with Crohn's. When my child was hospitalized with Crohns, they tested his stool for C Diff and other things like parasites. Hopefully the same protocol was done with JoAnne. He also had both an endoscopy and colonoscopy. Edited May 12, 2016 by VinNY 1 Quote Link to comment Share on other sites More sharing options...
VinNY Posted May 12, 2016 Share Posted May 12, 2016 JoAnne as you may have been told already, the Crohns and Colitis Foundation is a great website/source of information. Quote Link to comment Share on other sites More sharing options...
Ann.without.an.e Posted May 12, 2016 Share Posted May 12, 2016 I'm so sorry. Again, ds has this and I hate when I hear of anyone getting this awful disease. (((hugs))) DS is not doing the chemo meds they suggest and he is doing very well. The side effects of the meds aren't a gamble we personally desired to risk. Some people do great on the meds though so no judgement if that is your decision. If you want to know what he does, just PM me. Quote Link to comment Share on other sites More sharing options...
trulycrabby Posted May 12, 2016 Share Posted May 12, 2016 I am so sorry! I hope they find a good treatment plan so you can start feeling better. :grouphug: Quote Link to comment Share on other sites More sharing options...
SparklyUnicorn Posted May 12, 2016 Share Posted May 12, 2016 Sorry to hear that Joanne. Quote Link to comment Share on other sites More sharing options...
happi duck Posted May 12, 2016 Share Posted May 12, 2016 (Hugs) Quote Link to comment Share on other sites More sharing options...
MercyA Posted May 12, 2016 Share Posted May 12, 2016 I'm sorry, Joanne. :( I hope you are able to start treatments soon. Quote Link to comment Share on other sites More sharing options...
Joanne Posted May 12, 2016 Author Share Posted May 12, 2016 When my child was hospitalized with Crohns, they tested his stool for C Diff and other things like parasites. Hopefully the same protocol was done with JoAnne. He also had both an endoscopy and colonoscopy. I was tested before he put me on steroids. 1 Quote Link to comment Share on other sites More sharing options...
Reflections Posted May 12, 2016 Share Posted May 12, 2016 :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Laurie4b Posted May 12, 2016 Share Posted May 12, 2016 Ouch! That's a lot to process. :grouphug: I hope you get some help and relief soon. Quote Link to comment Share on other sites More sharing options...
PollyOR Posted May 13, 2016 Share Posted May 13, 2016 I'll add more hugs. :grouphug: Quote Link to comment Share on other sites More sharing options...
LifeLovePassion Posted May 13, 2016 Share Posted May 13, 2016 (edited) I'm sorry, it is a difficult thing. I was diagnosed at age 3. I have been on many different meds over the course of things. I hope you can find the right ones for you soon. Remicade infusions pulled me out of my last bigger flare followed by a big diet change (specific carbohydrate diet, then introduced more foods and am now gluten free and minimal dairy) Edited May 13, 2016 by LifeLovePassion 1 Quote Link to comment Share on other sites More sharing options...
Mothersweets Posted May 13, 2016 Share Posted May 13, 2016 I'm so sorry to hear this, Joanne. :( I hope the doctors can help you manage this so you can get some relief right away. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
katilac Posted May 13, 2016 Share Posted May 13, 2016 Wow, you should get an award just for walking around with all that going on! It's crazy how bad it is, and you just found out. Best of luck establishing a good treatment plan quickly. Quote Link to comment Share on other sites More sharing options...
Twigs Posted May 13, 2016 Share Posted May 13, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
mominco Posted May 13, 2016 Share Posted May 13, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Joyofsixreboot Posted May 14, 2016 Share Posted May 14, 2016 :grouphug: continuing to send positive energy your way. Quote Link to comment Share on other sites More sharing options...
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