Not such good news from the upper endoscopy.......

[Joanne]

It appears my Crohns is present throughout my digestive track. In addition to the lower portion issues and severe colon inflammation, today we confirmed the following: hiatus hernia, moderately severe chronic gastritis in the antrum, erosive gastritis in the stomach, duodenitis and 2nd portion of of the duodenum.

 

 

 

 

Edited May 12, 2016 by Joanne

[TianXiaXueXiao]

I'm so sorry! (((Hugs)))

[VANURSEPRAC]

((((( Hugs)))))

 

What meds have they put you on?

 

[mamiof5]

Sorry!!! What can they do about it?

[Eagle]

:grouphug: :grouphug: :grouphug:

[Jean in Newcastle]

:grouphug: :grouphug: :grouphug:

[displace]

I'm sorry. I hope your doctors are able to help you.

[Seasider]

It's good that you have a clear picture of what's going on in there. I'm sorry there's SO MUCH going on in there!

 

I just keep thinking and hoping that you're going to feel a lot better once a good treatment plan is established. Hopefully there will be no delay in getting treatment underway. I'm sorry you have to deal with all this.

[hornblower]

That sucks Joanne :( 

[Stacia]

:grouphug: :grouphug:

[sbgrace]

:grouphug:  I"m so sorry. :crying: My BIL is doing pretty well with his IBD with medication. I hope similar treatment is possible when it's so widespread.  :grouphug:

[Tsuga]

I'm so sorry. I have a relative with severe Crohn's. It's awful. I am just so sorry. :(

[NorthwestMom]

:grouphug: :grouphug: :grouphug:

[fraidycat]

:grouphug: :grouphug: :grouphug:

[Guest]

Oh man. That is terrible. I hope they can get this sorted out soon. :(

[East Coast Sue]

(((Hugs)))

[Alessandra]

It's good that you have a clear picture of what's going on in there. I'm sorry there's SO MUCH going on in there!

 

I just keep thinking and hoping that you're going to feel a lot better once a good treatment plan is established. Hopefully there will be no delay in getting treatment underway. I'm sorry you have to deal with all this.

This.

 

And (((hugs)))

[creekland]

:grouphug: Wow.  :grouphug:

 

And yuck.  :(

 

Hopefully now that they have figured out what is going on they can also figure out how to fix it.

 

Best wishes as you tackle it all.   :grouphug:

[PrincessMommy]

Sounds so painful and awful.  I hope your health starts to turn for the better now that these issues are being addressed.  :grouphug:

[Tammyla]

:grouphug:

[JFSinIL]

Oh you poor baby, that all sounds AWFUL!   :-(    What diet and medications can they use to help you recover as much as possible? 

[Greta]

Joanne, I'm so sorry.  I don't know much about Crohn's, so I don't even know what the treatment options are.  But I really hope they'll be able to find one that works for you.  :grouphug:

[El...]

Aw, hun.  That's a lot.  :grouphug:

[TravelingChris]

:grouphug:  :grouphug:  :grouphug:  I hope you get good treatment and that it helps.

[Harriet Vane]

:grouphug:  :grouphug:  :grouphug:

 

Have they checked for C Diff infection? It's often comorbid with Crohn's.

 

 

[ScoutTN]

:grouphug:  :grouphug:  :grouphug:

 

So sorry! I hope you can find some effective treatment and feel better soon.

[VinNY]

:grouphug:  :grouphug:  :grouphug:

 

Have they checked for C Diff infection? It's often comorbid with Crohn's.

 

 

When my child was hospitalized with Crohns, they tested his stool for C Diff and other things like parasites. Hopefully the same protocol was done with JoAnne. He also had both an endoscopy and colonoscopy.

Edited May 12, 2016 by VinNY

[VinNY]

JoAnne as you may have been told already, the Crohns and Colitis Foundation is a great website/source of information. 

[Ann.without.an.e]

I'm so sorry.  Again, ds has this and I hate when I hear of anyone getting this awful disease.  

(((hugs)))

 

 

DS is not doing the chemo meds they suggest and he is doing very well.  The side effects of the meds aren't a gamble we personally desired to risk.  Some people do great on the meds though so no judgement if that is your decision.  If you want to know what he does, just PM me. 

[trulycrabby]

I am so sorry! I hope they find a good treatment plan so you can start feeling better. :grouphug:

[SparklyUnicorn]

Sorry to hear that Joanne.

 

 

[happi duck]

(Hugs)

[MercyA]

I'm sorry, Joanne. :( I hope you are able to start treatments soon.

[Joanne]

When my child was hospitalized with Crohns, they tested his stool for C Diff and other things like parasites. Hopefully the same protocol was done with JoAnne. He also had both an endoscopy and colonoscopy.

I was tested before he put me on steroids.

[Reflections]

:grouphug:  :grouphug:  :grouphug:  :grouphug:

[Laurie4b]

Ouch! That's a lot to process.  :grouphug:   I hope you get some help and relief soon. 

[PollyOR]

I'll add more hugs.  :grouphug:

[LifeLovePassion]

I'm sorry, it is a difficult thing. I was diagnosed at age 3. I have been on many different meds over the course of things. I hope you can find the right ones for you soon. Remicade infusions pulled me out of my last bigger flare followed by a big diet change (specific carbohydrate diet, then introduced more foods and am now gluten free and minimal dairy)

Edited May 13, 2016 by LifeLovePassion

[Mothersweets]

I'm so sorry to hear this, Joanne. :(  I hope the doctors can help you manage this so you can get some relief right away. :grouphug: :grouphug: :grouphug:

[katilac]

Wow, you should get an award just for walking around with all that going on! It's crazy how bad it is, and you just found out. 

 

Best of luck establishing a good treatment plan quickly. 

[Twigs]

:grouphug:  :grouphug:  :grouphug:

[mominco]

:grouphug:  :grouphug:  :grouphug:

[Joyofsixreboot]

:grouphug: continuing to send positive energy your way.