Quiver0f10 Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
extendedforecast Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: I'm so sorry. Quote Link to comment Share on other sites More sharing options...
Xuzi Posted October 4, 2012 Share Posted October 4, 2012 Many prayers of comfort and healing for you and your family.:grouphug: Quote Link to comment Share on other sites More sharing options...
DianeW88 Posted October 4, 2012 Share Posted October 4, 2012 Thank you, everyone. All right- nobody else better make me laugh! :glare: :lol: I'm on these boards so much, you all feel like a second family to me sometimes. I do feel support from here, and it does help. I appreciate everyone's thoughts and concerns and prayers. Yeah. I don't think I've really registered it yet. The only person who burst into tears when he saw me was my other best friend, Matt. He just couldn't keep it together. The only question I kept asking the doctors was "How could it just start hurting so suddenly?" They told me that it had probably finally become so big that it had twisted the ovary and that was the pain I was feeling. There is sort of more of a back story, which I'm too drained to go into, now, but I guess there were signs that something was wrong, but I just attributed them to other things. I'm very, very angry at the doctor I went to see last summer because I thought I must have a thyroid problem. I knew something was wrong. I eat extremely healthily, exercise, etc. I was even keeping track of everything I ate at that point. I told him that for the way I ate and the amount of activity I did, I thought I should have way more energy. I told him that simple things like taking a shower or going grocery shopping exhausted me. I told him I couldn't figure out why my feet were swollen all the time and that I really should be losing some weight. He told me that I needed to be really honest with myself about what I was eating, and that I could consider cutting out carbs completely, and that my feet were swollen because I was heavy. He didn't listen to a thing I said. I actually left his office in tears. And then, my thyroid and other blood levels that he checked came back normal, so he was basically done with me. When I'm up to it, he is going to get a scathing letter. Please don't beat yourself up about this. Those tests would not have shown ovarian cancer. It is almost impossible to diagnose at an early stage. My mother had ovarian cancer, and my OB/GYN now gives me an annual transv*ginal ultrasound to examine my ovaries. That's really the only way it can be diagnosed early. The C-125 blood test is so wildly inaccurate many doctors won't even order one. Physically looking at your ovaries is the only way to tell if there is a problem. Obviously doing that on every woman who walks in for an annual exam would be cost prohibitive, so essentially, there is NO screening test out there for ovarian cancer. And since it isn't a high research priority, I don't anticipate that there will be one forthcoming. Unfortunately. Quote Link to comment Share on other sites More sharing options...
susancollins Posted October 4, 2012 Share Posted October 4, 2012 Lynne, I am praying for you!!!! I am glad you have such a supportive family unit! :grouphug::grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
prairiegirl Posted October 4, 2012 Share Posted October 4, 2012 Wow! I got chills just from reading your post. :grouphug::grouphug: and prayers for you. Quote Link to comment Share on other sites More sharing options...
momto2Cs Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Melanie in WI Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug: I'm sorry. I'll be praying for you and your family. Quote Link to comment Share on other sites More sharing options...
NoPlaceLikeHome Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
MelAR05 Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug::grouphug: Praying for you and your family!! Quote Link to comment Share on other sites More sharing options...
Tutor Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Thank you for taking the time to update us and to give us the opportunity to pray for you. :grouphug: Quote Link to comment Share on other sites More sharing options...
Scarlett Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: I have no words. :( :grouphug: Quote Link to comment Share on other sites More sharing options...
Rebel Yell Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
SJ. Posted October 4, 2012 Share Posted October 4, 2012 You are living my worst nightmare, I am so sorry. :grouphug: I'm glad you have a support network to help you through everything. You can beat this. Wishing you a quick recovery from your surgery and strength as you go through treatment. Quote Link to comment Share on other sites More sharing options...
misidawnrn Posted October 4, 2012 Share Posted October 4, 2012 Wow, what an ordeal. My thoughts are with you for fast healing and no more bad news. Quote Link to comment Share on other sites More sharing options...
Katy Posted October 4, 2012 Share Posted October 4, 2012 I'm very, very angry at the doctor I went to see last summer because I thought I must have a thyroid problem. I knew something was wrong. I eat extremely healthily, exercise, etc. I was even keeping track of everything I ate at that point. I told him that for the way I ate and the amount of activity I did, I thought I should have way more energy. I told him that simple things like taking a shower or going grocery shopping exhausted me. I told him I couldn't figure out why my feet were swollen all the time and that I really should be losing some weight. He told me that I needed to be really honest with myself about what I was eating, and that I could consider cutting out carbs completely, and that my feet were swollen because I was heavy. He didn't listen to a thing I said. I actually left his office in tears. And then, my thyroid and other blood levels that he checked came back normal, so he was basically done with me. When I'm up to it, he is going to get a scathing letter. Hi. I'm so sorry for everything you're going through. You might want to contact a medical malpractice attorney and consider filing a lawsuit. I used to be more blase about this sort of thing, but if he didn't even give you the option of doing more tests when you were certain there was something wrong, he is guilty of malpractice. And you are going to have plenty of medical bills and expenses. And unfortunately doctors take lawsuits more seriously than scathing letters, if for no other reason than that if they don't, their insurance will get yanked. Quote Link to comment Share on other sites More sharing options...
Kim in Appalachia Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Oh my, how traumatic. :grouphug: My mom had went through something similar when I was young. She thought she was pregnant (which is what she wanted), but ended up in surgery, and then a complete hysterectomy. There was a large cyst, and then they found cancer. You try to be thankful that they found the ovarian cancer to early, before it's too late, but it's hard not to be in shock and morn what you've lost. :grouphug: Quote Link to comment Share on other sites More sharing options...
Stayseeliz Posted October 4, 2012 Share Posted October 4, 2012 Oh my! Praying!! Quote Link to comment Share on other sites More sharing options...
catz Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Lynne - thinking of you and your family non-stop right now. And yes, some doctor does deserve a kick in the pants. I had a similar experience with a doctor a while back and some auto-immune issues. Not nearly this serious though! Please keep us up to date if/when you can? Sending many peaceful and healing thoughts. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
EmmaNZ Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Kimberly in IN Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: You are in our prayers. Quote Link to comment Share on other sites More sharing options...
momtoamiracle Posted October 4, 2012 Share Posted October 4, 2012 I don't remember exactly what tests he did. I remember getting the form letter with the results and it saying that everything tested within the normal range. I wish I had saved it, but when it came, it made me so upset again at the way he treated me, that I crumpled it up in a ball and threw it away. He was such a condescending a$$hole. Of course, I'm kicking myself in the pants that I never followed up with someone else. I'm kicking myself in the pants because I never found a new ob/gyn when my old one moved away. I'm kicking myself in the pants that the last time I had a pelvic exam was 4 years ago by my family doctor. I don't really get sick, so I haven't been to the doctor in ages for her to suggest getting another pap, so I just let it slide. LADIES- GET REGULAR EXAMS!!!!!!!!! It is because of my previously mentioned friend that I get a pap every year. I went seven years without going. You just never know. Stupid dr. Quote Link to comment Share on other sites More sharing options...
nertsmommy Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
besroma Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
PollyOR Posted October 4, 2012 Share Posted October 4, 2012 Lynne :grouphug: I want to encourage you. Saturday I will be attending an open house for a friend/homeschooling mom who is celebrating 10 years of being cancer free. Life hasn't been easy for her (colostomy (?) and lymph nodes that don't work properly in one leg), but she celebrates every year. Quote Link to comment Share on other sites More sharing options...
mumto2 Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Mommy22alyns Posted October 4, 2012 Share Posted October 4, 2012 Oh my. I am so very sorry. :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Country Mouse Posted October 4, 2012 Share Posted October 4, 2012 I am so, so sorry. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
ma23peas Posted October 4, 2012 Share Posted October 4, 2012 More hugs for you! And so happy your pain is diminished..soreness is much more tolerable than unyielding pain any day! Please, please have the hospital or oncologist forward the results to that OB...he NEEDS to know that if he sees a pt. with your symptoms again, to be more thorough and check it out. I am struggling with that right now, had a kidney ailment the first of the year that was pretty rough...now I have another one and after 3 doctors, finally getting one that is doing the right tests..we have to be diligent in our care...too often doctors presuppose what our problem is without clear markers to guide them! Quote Link to comment Share on other sites More sharing options...
lamppost Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Just want to give you some support. :grouphug: Quote Link to comment Share on other sites More sharing options...
Hunter's Moon Posted October 4, 2012 Share Posted October 4, 2012 Oh my, Lynne :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
edelweiss Posted October 4, 2012 Share Posted October 4, 2012 I am so, so, very sorry that you are dealing with this. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
ThisIsTheDay Posted October 4, 2012 Share Posted October 4, 2012 Lynne. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
PiCO Posted October 4, 2012 Share Posted October 4, 2012 There is sort of more of a back story, which I'm too drained to go into, now, but I guess there were signs that something was wrong, but I just attributed them to other things. Don't beat yourself up. My late dh wasn't diagnosed until stage 4. He would not have been concerned, but a doctor detected a problem at a routine aviation physical. In retrospect, dh had a LOT of small symptoms that should have alerted us to a problem- his waist was getting larger for no apparent reason (enlarged spleen), he was getting a lot of colds, when he usually never got sick. He was no longer cold all the time, his knees hurt more than usual. I actually got kind of mad at him, because he couldn't tell me if his knee pain was joint pain or muscular pain. The pain was caused by a tumor in his spine. Your doctor sounds like a complete ass, but even having a good doctor that orders all the right tests might only speed up a diagnosis by a month or two. Take care of yourself and your family- it's a roller coaster. :grouphug: Quote Link to comment Share on other sites More sharing options...
Georgiana Daniels Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug: Continuing to pray God's peace for you during this season. So thankful you are surrounded with loving family and you are healing well. Quote Link to comment Share on other sites More sharing options...
Tina Posted October 4, 2012 Share Posted October 4, 2012 Wow. What a shocker. Good thing they did surgery! I'll be praying for your recovery. So glad you have all that love around you, taking care of you. Just take it easy. :grouphug: Quote Link to comment Share on other sites More sharing options...
ChrisB Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Wow. You have been through a lot! Praying for you! Elise in NC Quote Link to comment Share on other sites More sharing options...
butterflymommy Posted October 4, 2012 Share Posted October 4, 2012 Lynne I'm in shock reading this. IMO the last dr you saw is guilty of malpractice. I'm so terribly sorry. Your post has so much bravery in it that I'm in awe! :grouphug: Quote Link to comment Share on other sites More sharing options...
SwallowTail Posted October 4, 2012 Share Posted October 4, 2012 Oh Lynn, I am praying for you.:grouphug: Quote Link to comment Share on other sites More sharing options...
Lady Florida. Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Nestof3 Posted October 4, 2012 Share Posted October 4, 2012 Tears of joy and sadness for you. I know I don't know you in real life, but I know you here. I'm so glad you went in. I wish you the best for your recovery. Quote Link to comment Share on other sites More sharing options...
MooCow Posted October 4, 2012 Share Posted October 4, 2012 Oh my goodness! I am praying for you. :grouphug: Quote Link to comment Share on other sites More sharing options...
Mom-ninja. Posted October 4, 2012 Share Posted October 4, 2012 You must be in shock. I'm so sorry. :grouphug: Quote Link to comment Share on other sites More sharing options...
*Lulu* Posted October 4, 2012 Share Posted October 4, 2012 Wow... I am so sorry. What an ordeal. I'm so glad that they did catch it and that they're treating it aggressively. You absolutely cannot blame yourself for not following up, or second guess your decisions. I'm so angry for you that the other doctor blew you off but as others said, that's unfortunately common. We are all here for you and thinking of you. :grouphug: Do whatever you need to care for yourself. :iagree: and :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
jrn Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Chelle in MO Posted October 4, 2012 Share Posted October 4, 2012 I so wish we could all give him a WTM smackdown. My sister Laura said I'd better not tell her his name. That's my kind of sister!! Quote Link to comment Share on other sites More sharing options...
Audrey Posted October 4, 2012 Share Posted October 4, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Tiberia Posted October 4, 2012 Share Posted October 4, 2012 I'm so sorry you're having to go through all this. It must be a great shock. It's ok to be in shock for a while. You've been through a lot in a short time, and you have a long journey ahead of you. Your world has changed. It sounds like you have the support and the courage to make it through. Give yourself permission to cry, grieve, be angry, be thankful, be weak, be strong, be loved. You will get through this. :grouphug: Quote Link to comment Share on other sites More sharing options...
fastforward Posted October 4, 2012 Share Posted October 4, 2012 :grouphug: Praying for you. Quote Link to comment Share on other sites More sharing options...
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