displace Posted January 5, 2017 Share Posted January 5, 2017 Still praying Quote Link to comment Share on other sites More sharing options...
chocolate-chip chooky Posted January 5, 2017 Share Posted January 5, 2017 Thinking of you all the time and wishing little Nate strength. Regarding staff appreciation - I think that short hand-written notes mean a lot, as do heart-felt spoken thanks. And I agree that individually wrapped chocolates, lollies, cookies etc are also appreciated. I also think that they'll just know how much you appreciate them. It probably radiates off you. In our time in PICU (about 15 months in one stretch), we really bonded with certain staff and became friends outside of the hospital. One nurse even ended up dating our housemate for a long period of time. We were even involved in staff functions, like their Christmas party one year. It seems odd now, looking back at it, but at the time it felt natural. We were part of that team and we trusted them with our precious and very fragile daughter day in, day out for a long, long time. We always had our favourite nurses. There were the super-competent ones, the super-friendly ones, the ones who 'got' us on a personal level, and the ones who were the whole package. When you walk in and spot one of them with your child that day, you feel immediately happier and your step feels a bit lighter. Sending hugs and love and best wishes to you all xx 1 Quote Link to comment Share on other sites More sharing options...
Caclcoca Posted January 5, 2017 Share Posted January 5, 2017 I am so thankful for the improved update. I hope today has been uneventful, and you see continued improvement. Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 5, 2017 Author Share Posted January 5, 2017 Today has been pretty uneventful. We met with the doc, the fellow, today's nurse, and some other people, and they all agree that he's pretty stable for now, so we're heading home for the night. Keep praying for lung growth!! 36 Quote Link to comment Share on other sites More sharing options...
Luckymama Posted January 5, 2017 Share Posted January 5, 2017 You got it! :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Posted January 5, 2017 Share Posted January 5, 2017 Grow, tiny lungs! Grow for Mama and all your Hive Aunties! 3 Quote Link to comment Share on other sites More sharing options...
displace Posted January 5, 2017 Share Posted January 5, 2017 Yeah for a stable day!! Quote Link to comment Share on other sites More sharing options...
melmichigan Posted January 6, 2017 Share Posted January 6, 2017 (edited) Congrats on a stable day! They call it a roller coaster ride for a reason. :grouphug: Edited January 6, 2017 by melmichigan Quote Link to comment Share on other sites More sharing options...
MistyMountain Posted January 6, 2017 Share Posted January 6, 2017 I am so glad to hear he is stable right now and his vent settings went down. Quote Link to comment Share on other sites More sharing options...
Guest Posted January 6, 2017 Share Posted January 6, 2017 I'm glad it's been an uneventful day. Sleep well Mamma, baby Nathaniel, and the rest of the fam. May God grant you strength, rest and growth. (((HUGS))) Quote Link to comment Share on other sites More sharing options...
Lilaclady Posted January 6, 2017 Share Posted January 6, 2017 Glad he is stable. Continued prayers that he will continue to get better. Quote Link to comment Share on other sites More sharing options...
FaithManor Posted January 6, 2017 Share Posted January 6, 2017 (((Hugs))) glad you had a better report. I hope you get some rest. Quote Link to comment Share on other sites More sharing options...
displace Posted January 6, 2017 Share Posted January 6, 2017 Still praying Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted January 6, 2017 Share Posted January 6, 2017 Good sleep and breathing prayers tonight for Nathaniel and his mama. Quote Link to comment Share on other sites More sharing options...
Guest Posted January 6, 2017 Share Posted January 6, 2017 Such good news! I'm so glad he is stable for the time being and you got some rest. My husband was relieved when I told him too, and we are still praying for Nate's improvement. Quote Link to comment Share on other sites More sharing options...
creekland Posted January 6, 2017 Share Posted January 6, 2017 Hoping today is as stable as yesterday - with some baby steps of progress added in. Still sending prayers and hugs for all of you! 2 Quote Link to comment Share on other sites More sharing options...
Jaybee Posted January 6, 2017 Share Posted January 6, 2017 Hoping little Nate had a good night. You too. :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted January 6, 2017 Share Posted January 6, 2017 I have been praying for Nathaniel and will continue praying for him. Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted January 6, 2017 Share Posted January 6, 2017 Praying for lung growth and continued stability. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted January 6, 2017 Share Posted January 6, 2017 Continuing to pray. I admire your grace under pressure. 3 Quote Link to comment Share on other sites More sharing options...
AnnE-girl Posted January 6, 2017 Share Posted January 6, 2017 Continuing to pray for you all! Quote Link to comment Share on other sites More sharing options...
Caclcoca Posted January 6, 2017 Share Posted January 6, 2017 Praying for lung strength, and hoping that you all had a good day today. Quote Link to comment Share on other sites More sharing options...
Liz CA Posted January 6, 2017 Share Posted January 6, 2017 Checking in to see how little Nathaniel is doing. Quote Link to comment Share on other sites More sharing options...
Innisfree Posted January 7, 2017 Share Posted January 7, 2017 Thinking of you this evening and hoping it's been a good day. Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 7, 2017 Author Share Posted January 7, 2017 He had a good and stable day today. Early blood gases weren't so good, but the last one (noon, I think) was good. They've got his oxygen down quite a bit and tweaked the vent settings, but they're still pretty maxed out. They say the steroids are helping, but of course, he can't be on those forever. So, who knows? Just keep praying. We took DS2, age 8, to meet him, and DS2 thought that was amazing. Hopefully we can get the two smallboys and my parents up there sometime over the weekend. 30 Quote Link to comment Share on other sites More sharing options...
Jaybee Posted January 7, 2017 Share Posted January 7, 2017 Hang in there, little buddy! Grow, lungs, grow. Praying for your family. :grouphug: :grouphug: 2 Quote Link to comment Share on other sites More sharing options...
displace Posted January 7, 2017 Share Posted January 7, 2017 Great news for a stable day. Praying for a stable night. 1 Quote Link to comment Share on other sites More sharing options...
Guest Posted January 7, 2017 Share Posted January 7, 2017 He had a good and stable day today. Early blood gases weren't so good, but the last one (noon, I think) was good. They've got his oxygen down quite a bit and tweaked the vent settings, but they're still pretty maxed out. They say the steroids are helping, but of course, he can't be on those forever. So, who knows? Just keep praying. We took DS2, age 8, to meet him, and DS2 thought that was amazing. Hopefully we can get the two smallboys and my parents up there sometime over the weekend. We've got the praying covered. You keep the rest and taking care of yourself covered. Thinking of y'all often. (((Hugs mamma))) Quote Link to comment Share on other sites More sharing options...
creekland Posted January 7, 2017 Share Posted January 7, 2017 Glad to hear of one more mostly good & stable day. May tomorrow be another one with more progress. Take care - still keeping prayers going. 2 Quote Link to comment Share on other sites More sharing options...
Okra Posted January 7, 2017 Share Posted January 7, 2017 We are thinking about you and your family, and praying for the best. Quote Link to comment Share on other sites More sharing options...
wonderchica Posted January 7, 2017 Share Posted January 7, 2017 We took DS2, age 8, to meet him, and DS2 thought that was amazing. Hopefully we can get the two smallboys and my parents up there sometime over the weekend. Wonderful! That will be a treasured memory for him over the years! Quote Link to comment Share on other sites More sharing options...
Twigs Posted January 7, 2017 Share Posted January 7, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
displace Posted January 8, 2017 Share Posted January 8, 2017 Hoping for boring NICU days and nights. 2 Quote Link to comment Share on other sites More sharing options...
Guest Posted January 8, 2017 Share Posted January 8, 2017 :) thinking of Nathaniel and hoping for nice, strong lungs and a good night for all. 2 Quote Link to comment Share on other sites More sharing options...
happypamama Posted January 8, 2017 Author Share Posted January 8, 2017 Last couple of nights and days weren't great. This morning, they called to say that his blood gases and lungs are getting worse, and he's on full support and still doing poorly. They asked us to come in to discuss the next step with them. Once again, baby needs a miracle, a really big one this time. My poor little boy. I love him so much. Quote Link to comment Share on other sites More sharing options...
LifeLovePassion Posted January 8, 2017 Share Posted January 8, 2017 Keep on fighting, little guy! Quote Link to comment Share on other sites More sharing options...
Heatherwith4 Posted January 8, 2017 Share Posted January 8, 2017 Praying for a miracle. :grouphug: Quote Link to comment Share on other sites More sharing options...
ikslo Posted January 8, 2017 Share Posted January 8, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Posted January 8, 2017 Share Posted January 8, 2017 Praying. (((Hugs))) Quote Link to comment Share on other sites More sharing options...
TheReader Posted January 8, 2017 Share Posted January 8, 2017 Oh, I am so so so so sorry to hear this. Praying for that miracle....Lord, please, heal Nate's lungs. Quote Link to comment Share on other sites More sharing options...
Mom25girls Posted January 8, 2017 Share Posted January 8, 2017 Joining the others in prayer. :grouphug: Quote Link to comment Share on other sites More sharing options...
Selkie Posted January 8, 2017 Share Posted January 8, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Jaybee Posted January 8, 2017 Share Posted January 8, 2017 :grouphug: :grouphug: :grouphug: Praying. Quote Link to comment Share on other sites More sharing options...
ktgrok Posted January 8, 2017 Share Posted January 8, 2017 Praying for a miracle. And for peace as you go through this journey. Quote Link to comment Share on other sites More sharing options...
PinkTulip Posted January 8, 2017 Share Posted January 8, 2017 Praying for a miracle for Nathaniel! Quote Link to comment Share on other sites More sharing options...
debinindy Posted January 8, 2017 Share Posted January 8, 2017 Oh goodness, I'm so sorry about this! :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
AnnE-girl Posted January 8, 2017 Share Posted January 8, 2017 I'm so sorry. Praying for a miracle. Quote Link to comment Share on other sites More sharing options...
Luckymama Posted January 8, 2017 Share Posted January 8, 2017 :grouphug: Holding your sweet baby and your family :grouphug: Quote Link to comment Share on other sites More sharing options...
Junie Posted January 8, 2017 Share Posted January 8, 2017 Praying for your family -- especially your littlest one. Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted January 8, 2017 Share Posted January 8, 2017 :grouphug: Quote Link to comment Share on other sites More sharing options...
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