Ali in OR Posted July 5, 2014 Share Posted July 5, 2014 Praying that all goes smoothly with your ds and praying for provision for all of your needs. I'm so sorry you have that headache on top of the health concerns. When my sister had her transplant, she had rotating caregivers. It is true that she needed someone with her 24/7, but it was sometimes her dh, sometimes a friend, most family members took a turn. I think it was nice for her and also nice for the rest of us to get some quality time with her and feel like we were doing something to help. 2 Quote Link to comment Share on other sites More sharing options...
Twigs Posted July 5, 2014 Share Posted July 5, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
mumto2 Posted July 5, 2014 Share Posted July 5, 2014 Praying :grouphug: Quote Link to comment Share on other sites More sharing options...
serene Posted July 5, 2014 Share Posted July 5, 2014 :grouphug: praying for your family Quote Link to comment Share on other sites More sharing options...
Rose in BC Posted July 5, 2014 Share Posted July 5, 2014 I will pray for you. ((Hugs)) Quote Link to comment Share on other sites More sharing options...
Violet Crown Posted July 5, 2014 Share Posted July 5, 2014 May the Lord be merciful to you and your family. Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted July 5, 2014 Share Posted July 5, 2014 :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Kareni Posted July 5, 2014 Share Posted July 5, 2014 Sending good thoughts for positive news on all fronts. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted July 5, 2014 Share Posted July 5, 2014 :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Kimberly in IN Posted July 5, 2014 Share Posted July 5, 2014 Praying for all of your needs! :grouphug: Quote Link to comment Share on other sites More sharing options...
Catwoman Posted July 5, 2014 Share Posted July 5, 2014 Thank you for posting the update. Still praying for your son, and will also pray for financial help for your family. Quote Link to comment Share on other sites More sharing options...
East Coast Sue Posted July 6, 2014 Share Posted July 6, 2014 Thank you for your update. I will certainly hold your son and your family close in prayer. Praying for strength and provision in all areas you mentioned. Quote Link to comment Share on other sites More sharing options...
trulycrabby Posted July 6, 2014 Share Posted July 6, 2014 Your family is in my prayers. :grouphug: Quote Link to comment Share on other sites More sharing options...
catz Posted July 6, 2014 Share Posted July 6, 2014 I am so hoping for strength and healing for your son and stamina and financial ease for all of you. :grouphug: I truly hope the transplant unit did not seriously say your ds needed the SAME caregiver 24-7 through transplant. I used to volunteer in a transplant unit and family was recommended to take respite by family life regularly. I urge all of you to take care of yourselves too and allow others to help you however they can. I know not dozens of people can serve as an advocate and caregiver in the hospital, but having a few people able to "trained" to handle that role might be a good idea even if your DH is the primary caregiver. So many well wishes coming at you. :grouphug: 1 Quote Link to comment Share on other sites More sharing options...
Stacia Posted July 6, 2014 Share Posted July 6, 2014 Many hugs, eaglei. Quote Link to comment Share on other sites More sharing options...
fraidycat Posted July 6, 2014 Share Posted July 6, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Chris in VA Posted July 6, 2014 Share Posted July 6, 2014 Went thru my two brothers' transplants--it is a hard and scary time, but also a hopeful one. Just wanted to give you lots of hugs and prayers. Quote Link to comment Share on other sites More sharing options...
Miss Marple Posted July 6, 2014 Share Posted July 6, 2014 Keeping you and yours in our prayers - for health and all other aspects of life and living. 1 Quote Link to comment Share on other sites More sharing options...
Eagle Posted July 6, 2014 Share Posted July 6, 2014 :grouphug: :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted July 7, 2014 Share Posted July 7, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
sbgrace Posted July 7, 2014 Share Posted July 7, 2014 Praying. :grouphug: Quote Link to comment Share on other sites More sharing options...
QueenCat Posted July 7, 2014 Share Posted July 7, 2014 So many thoughts and prayers continue to go out to you from many of us here. Quote Link to comment Share on other sites More sharing options...
bzymom Posted July 7, 2014 Share Posted July 7, 2014 Keeping your son and family in my prayers. Quote Link to comment Share on other sites More sharing options...
JustEm Posted July 7, 2014 Share Posted July 7, 2014 Praying! Quote Link to comment Share on other sites More sharing options...
Just Another Jen Posted July 7, 2014 Share Posted July 7, 2014 Praying Quote Link to comment Share on other sites More sharing options...
BlessedMom Posted July 7, 2014 Share Posted July 7, 2014 Praying Quote Link to comment Share on other sites More sharing options...
FloridaLisa Posted July 7, 2014 Share Posted July 7, 2014 Praying for you all and especially your son and all details surrounding the transplant. Lisa Quote Link to comment Share on other sites More sharing options...
Liz CA Posted July 7, 2014 Share Posted July 7, 2014 Just letting everyone know who checks in here that we have established an "Eaglei Fund." Anyone who wants to donate, please PM Liz CA. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted July 7, 2014 Share Posted July 7, 2014 :grouphug: Quote Link to comment Share on other sites More sharing options...
Isabella Posted July 7, 2014 Share Posted July 7, 2014 :grouphug: Quote Link to comment Share on other sites More sharing options...
eaglei Posted July 29, 2014 Author Share Posted July 29, 2014 Dear Hive Members,I want to thank you all for your prayers and for the financial help you so kindly offered earlier this month. Our hearts were deeply touched with your generosity, and with your selfless desire to help. What a blessing you have been! I stand in awe at your wonderful kindness to us.This has been a busy week with more traveling for more mandated medical meetings and tests. Our heads are swimming with all that there is to consider. I will try to do a more appropriate update before long.I am on a work computer, so must keep this short. My family and I just wanted to be sure you knew how thankful and appreciative we are to you. Our prayer is that God would mightily bless each of you and your families.Sincerely,eaglei 15 Quote Link to comment Share on other sites More sharing options...
creekland Posted July 30, 2014 Share Posted July 30, 2014 :grouphug: It's good to hear from you - and may everything go well with the meetings and tests. :grouphug: Quote Link to comment Share on other sites More sharing options...
eaglei Posted August 13, 2014 Author Share Posted August 13, 2014 Just a quick update; I am on borrowed computer time. The two days of meetings and testing went well, but were overwhelming. All the test results came back very good, which means ds is in the best possible position for transplant - the “only†thing wrong is the leukemia. None of his major organs (heart, lungs, etc.) show any damage from all the previous chemo and radiation. The information in the meetings was overwhelming. We met with the head doctor and learned many more nitty-gritty details - and it is going to be VERY hard on everyone, but especially on ds. Encouraging news from this doctor (as opposed to the last one we saw) is that he put survivability at 60-80% and higher (the 80%-plus being for patients from households of faith). Ds signed the paperwork, but said he reserved the right to change his mind; said, with the new info, he needed time to think about it, pray about it, and talk with pastor. The doctor was actually good with this and commended him for not rushing this major decision. Ds needs to be “all there†and they would rather he be sure now, than to have doubts later. Since the paperwork wasn’t yet complete (on their end), that gave ds more time to study and pray on it. He has not reached a final decision, but appears to be leaning towards it. (His conversation, for example, will begin with, "When I'm in the hospital ..." - or - "Mom, have you thought about such-and-such during the time dad and I are gone ..." - or - "If thus-and-such happens while I'm away ..." - or - "I need to take care of this now since I won't be here for ..." - etc.) However, he has some additional questions, based on info this doctor provided and also has a slightly modified time line that he wants to present to the doctor. Dh and I actually think ds’ time line is preferable - it “feels†more right. Just not sure how the doctor will take it. In the meantime, ds continues to live and do and be, and to do things the doctors say he shouldn’t be able to do - like chopping down trees with an ax, or working up wood both with a chainsaw and an ax, and a myriad of other activities (mostly outdoors). He seems to be trying to put a lot of living into each day . . . as if he's storing it up for later when so many things won't be allowed . . . It is God’s grace and mercy that is keeping him. Now, ds needs peace over the stem cell transplant overall, and God’s continued intervention as well as guidance. As far as jobs/finances go, there have been no changes, except that another month is now upon us. I don’t know if I am so much “holding onto†as I am “clinging to - grasping onto†the only One Who has all the answers. My apologies for the delay in getting this update posted. Please know that your prayers and good thoughts are MUCH appreciated, and that there are times when we/I can feel them holding us up and helping us to carry on. 12 Quote Link to comment Share on other sites More sharing options...
chocolatechip Posted August 13, 2014 Share Posted August 13, 2014 :grouphug: Thanks for the update. Continued prayers for you all! May God give you strength! Quote Link to comment Share on other sites More sharing options...
bzymom Posted August 13, 2014 Share Posted August 13, 2014 Prayers and many ((hugs)). Quote Link to comment Share on other sites More sharing options...
Stacia Posted August 13, 2014 Share Posted August 13, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Woodland Mist Academy Posted August 13, 2014 Share Posted August 13, 2014 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Tammi K Posted August 13, 2014 Share Posted August 13, 2014 :grouphug: Continuing to keep your family in prayer. Quote Link to comment Share on other sites More sharing options...
Zoo Keeper Posted August 13, 2014 Share Posted August 13, 2014 Continued hugs and prayers... Quote Link to comment Share on other sites More sharing options...
creekland Posted August 13, 2014 Share Posted August 13, 2014 Thanks for the additional update. Will definitely continue to keep you all in prayers. :grouphug: Quote Link to comment Share on other sites More sharing options...
mumto2 Posted August 13, 2014 Share Posted August 13, 2014 Praying :grouphug: Quote Link to comment Share on other sites More sharing options...
Acorn Posted August 13, 2014 Share Posted August 13, 2014 To live and do and be... Awesome words. I hold your family in my prayers. Quote Link to comment Share on other sites More sharing options...
Kareni Posted August 13, 2014 Share Posted August 13, 2014 Continuing to send good thoughts. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
prairiegirl Posted August 13, 2014 Share Posted August 13, 2014 :grouphug: :grouphug: Eaglei :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
idnib Posted August 14, 2014 Share Posted August 14, 2014 Thanks for the update. Wishing for the best. Quote Link to comment Share on other sites More sharing options...
eaglei Posted September 23, 2014 Author Share Posted September 23, 2014 Just a quick update - still using borrowed computers. Ds made the prayerful and conscientious decision to reenter the hospital Monday, September 22, for another week’s round of chemo. This “booster†round is to keep him in remission until January. (His last chemo was four months ago). Staying in remission is imperative if he plans to do the transplant. Still no definitive decision other than he is still leaning towards January - the doctors are good with this, especially since he opted to have this round of chemo.In the meantime, he continues to live and do and be; still confounding the doctors with all he is doing. He still needs peace over the stem cell transplant overall, and God’s continued intervention and guidance.We greatly appreciate your prayers for us. This is a very hard situation and, as you know, has been compounded by other demanding issues.My apologies for the delay in getting this update posted. Please know that we greatly appreciate your prayers! We continue to hold on to the only One Who has all power. 18 Quote Link to comment Share on other sites More sharing options...
Kareni Posted September 23, 2014 Share Posted September 23, 2014 Continuing to send good thoughts for you and your son, eaglei. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted September 23, 2014 Share Posted September 23, 2014 Continuing to pray. Please don't apologize! You are doing very well in a very difficult situation. Quote Link to comment Share on other sites More sharing options...
Guest Posted September 23, 2014 Share Posted September 23, 2014 Eageli, your son and family remain in my thoughts. Quote Link to comment Share on other sites More sharing options...
BlessedMom Posted September 23, 2014 Share Posted September 23, 2014 :grouphug: Praying :grouphug: Quote Link to comment Share on other sites More sharing options...
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