Virg Posted December 27, 2011 Share Posted December 27, 2011 Last night my DSS15 walking into the kitchen to frost the cake he was making and completely blacked out. He fell on the floor but didn't hit his head. He had his eyes open within a second but just stared blankly and didn't seem to recognize me. He finally realized I was asking him what happened and said, "I don't know. I saw red spots and then everything went black." I helped him up after a few minutes and he couldn't walk on his right leg. When he got to his bed I called his dad and after he calmed down enough we started asking him questions. His right arm started shaking violently. He said his entire right arm was tingling and painful. His right leg was tingling, his thigh hurt and his foot was numb. His dad rushed home (he only works a few minutes away) and we took him to the ER. I had to basically carry him out to the car. At first the ER seemed really concerned. They immediately drew blood, put in an IV, and started fluids before the dr even came in. They asked if he had eaten (day after Christmas he had been snacking all day lol) and if he does drugs or drinks. Which he doesn't. The dr seemed concerned also and ordered a CT scan and and EKG. His blood work came back with his white blood cell count normal and they said he was very slightly dehydrated. (Of course he had been crying for 20 minutes from the pain and the fact he was terrified.) The EKG was normal and his CT scan didn't show any bleeds. His arm wasn't shaking anymore. They said he must have stood up too fast (he had been standing for a full minute or two and said he felt fine until the second before he blacked out). At that point his right arm and leg were still tingling but he was able to limp to the car. We took him home and put him to bed, they said to rest so he has. This morning his arm feels "fine" but his leg is worse. The whole leg is tingling and his thigh hurts really bad. When he moves his foot his leg tingles even worse. I called his dr and they wanted me to take him to the ER, when I told them they had sent him home like this they were really confused and finally scheduled us for Thurs morning. They didn't think he had stood up too fast. A couple people have suggested a seizure and that was never mentioned at the hospital at all. He has FASD and when I looked up seizures and epilepsy last night there was a bunch of links about the connection between them. Does anyone have any ideas? advice? gone through anything like this? I am kind of freaked out and am waiting for our health ins liaison to call me back. ETA: Sorry so long! Thanks for reading it all! :) Quote Link to comment Share on other sites More sharing options...
parias1126 Posted December 27, 2011 Share Posted December 27, 2011 This happened to me as a teen, but I hadn't eaten in days because I had an eating disorder and no One in my family knew. What about blood pressure? Did then check that? Quote Link to comment Share on other sites More sharing options...
QuirkyKapers Posted December 27, 2011 Share Posted December 27, 2011 :grouphug: Sounds scary. If it doesn't stop soon I would take him to the ER again. Quote Link to comment Share on other sites More sharing options...
Whereneverever Posted December 27, 2011 Share Posted December 27, 2011 The continued tingling doesn't sound like a seizure to me. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted December 27, 2011 Share Posted December 27, 2011 I would try to get in to a neurologist. I don't like the wait until Thursday to see a doctor though. Do you have any other choices of ERs - particularly a Children's hospital? I've found them to be more responsive to my kid's needs. Quote Link to comment Share on other sites More sharing options...
Starr Posted December 27, 2011 Share Posted December 27, 2011 Do you have a Children's Hospital near by? Quote Link to comment Share on other sites More sharing options...
tmulcahy Posted December 27, 2011 Share Posted December 27, 2011 The ER should have referred you to a neurologist. They can do an EEG and a more thorough neuro work up. I think that would be a better route than the general practitioner. I would avoid the ER unless things get worse. Best wishes and prayers for you and your son. Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted December 27, 2011 Share Posted December 27, 2011 What did he look like? Did he look like a ghost or zombie before he fell? If so, here is what my middle has- neurally mediated hypotension. What that means is her nerves by her heart are wired wrongly. When she is supposed to get higher blood pressure, instead the incorrect signal is that her blood pressure should be lowered. The blood goes to the legs and she ends up looking ghastly and then she faints. Often she doesn't faint but does near fainting. She feels out of sorts for a day or so after any significant incident. It took us a long time to get it figured out. Part of the reason for it being harder for her diagnosis was that she takes adhd medications which raise blood pressure and helped control the problem for her while she is on them. They also helped mask the problem when they did a tilt test in the morning with her on the medications. But she definitely has it. She is now on two different medications to increase blood pressure and has to drink 60 oz. of sports drinks a day plus put salt on many foods and eating processed foods is good for her (lots of sodium). With neurally mediated hypotension, it is much more commonly a female problem but I am sure it exists for some males too. The problem often resolves by mid 20's but not for all people. The person who follows her is a cardiologist- used to be a pediatric cardiologist and now a cardiologist who specializes in electrical problems with the heart (more commonly arrhythmias but also this type of problem too). Quote Link to comment Share on other sites More sharing options...
Virg Posted December 27, 2011 Author Share Posted December 27, 2011 We do have a children's hospital up in SLC. Do you think just take him to their ER? He says he felt fine until immediately before he passed out. He "zones out" a lot but never gets dizzy or anything. He goes running every day, even in the 20º weather and has never had a problem before. Oh they are calling me back! will update Quote Link to comment Share on other sites More sharing options...
Pink Fairy Posted December 27, 2011 Share Posted December 27, 2011 I would be doing exactly what you are doing, so no added advice. Hope you get some answers soon! :grouphug: Quote Link to comment Share on other sites More sharing options...
Rebecca Posted December 27, 2011 Share Posted December 27, 2011 I don't know anything... but did they check for stroke? That would be my question... Quote Link to comment Share on other sites More sharing options...
Leav97 Posted December 27, 2011 Share Posted December 27, 2011 The continued tingling doesn't sound like a seizure to me. :iagree: Sounds more like a blood clot to me. Quote Link to comment Share on other sites More sharing options...
Trresh Posted December 27, 2011 Share Posted December 27, 2011 I wonder if he could have hurt himself when he fell....pinched nerve, herniated disc, etc... The tingling limbs might not be related to the black out. I kind of doubt it, though. Quote Link to comment Share on other sites More sharing options...
Ottakee Posted December 27, 2011 Share Posted December 27, 2011 Keep us posted. I know this can be scary. Has this happened before? Is he accurate with his descriptions of how he is feeling/sequence of events, etc? I know my son with FASD can have a hard time with this which makes figuring out what is really going on harder. Neurologist sounds like the way to go or a Children's hospital ER where they would have a neurologist on call that could see him today yet. Quote Link to comment Share on other sites More sharing options...
Starr Posted December 27, 2011 Share Posted December 27, 2011 Yes you can go right to the ER at the Children's Hospital. Quote Link to comment Share on other sites More sharing options...
DianeW88 Posted December 27, 2011 Share Posted December 27, 2011 We do have a children's hospital up in SLC. Do you think just take him to their ER? He says he felt fine until immediately before he passed out. He "zones out" a lot but never gets dizzy or anything. He goes running every day, even in the 20º weather and has never had a problem before. Oh they are calling me back! will update You're here in Utah? Yes, take him to Primary!! They are amazing and will check him out thoroughly and get an accurate diagnosis for you. Quote Link to comment Share on other sites More sharing options...
bbmom Posted December 27, 2011 Share Posted December 27, 2011 I would definitely take him to the ER at Primary Children's Quote Link to comment Share on other sites More sharing options...
SweetMissMagnolia Posted December 27, 2011 Share Posted December 27, 2011 How scary....I agree with the other posters-I'd see if I could go to another e/r (children's hospital if possible)--goodness how frustrating that they sent you guys home.... :iagree: Sounds more like a blood clot to me. I was thinking that too--hope you get some answers and that it's nothing serious....:grouphug: Quote Link to comment Share on other sites More sharing options...
JumpedIntoTheDeepEndFirst Posted December 27, 2011 Share Posted December 27, 2011 Some types of "zoning out" can be seizures. I wouldn't give up on this until you get some answers. Hope your son feels better soon! Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted December 28, 2011 Share Posted December 28, 2011 What did he look like? Did he look like a ghost or zombie before he fell? If so, here is what my middle has- neurally mediated hypotension. What that means is her nerves by her heart are wired wrongly. When she is supposed to get higher blood pressure, instead the incorrect signal is that her blood pressure should be lowered. The blood goes to the legs and she ends up looking ghastly and then she faints. Often she doesn't faint but does near fainting. She feels out of sorts for a day or so after any significant incident. It took us a long time to get it figured out. Part of the reason for it being harder for her diagnosis was that she takes adhd medications which raise blood pressure and helped control the problem for her while she is on them. They also helped mask the problem when they did a tilt test in the morning with her on the medications. But she definitely has it. She is now on two different medications to increase blood pressure and has to drink 60 oz. of sports drinks a day plus put salt on many foods and eating processed foods is good for her (lots of sodium). With neurally mediated hypotension, it is much more commonly a female problem but I am sure it exists for some males too. The problem often resolves by mid 20's but not for all people. The person who follows her is a cardiologist- used to be a pediatric cardiologist and now a cardiologist who specializes in electrical problems with the heart (more commonly arrhythmias but also this type of problem too). Hhhhmmmmmm. We are finally getting answers for dd12. She has been having issues since she was 4. She will be seeing her 14th doctor next week, an electrophysiologic (sp?) cardiologist. She was diagnosed last year with vasovagal syncope. I looked up your dd's condition, they appear to be the exact same thing. Dd has the same symptoms, and we were told about the blood rushing down to her legs. I finally know why dd's face turns blue. She has gotten EXTREMELY tired and weak lately. Did your dd's symptoms worsen as she got near puberty? OP, I do not see a link to seizures. The limbs tingling, especially prolonged tingling, don't sound like seizures. I am wondering if your son has anything like Christina's and my dd has. Pay attention to symptoms if they happen again. I definitely think a good children's hospital is a good idea, as well as a good pediatric neurologist. I know how scary it all is.:grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted December 28, 2011 Share Posted December 28, 2011 We do have a children's hospital up in SLC. Do you think just take him to their ER? He says he felt fine until immediately before he passed out. He "zones out" a lot but never gets dizzy or anything. He goes running every day, even in the 20º weather and has never had a problem before. Oh they are calling me back! will update "zoning out" a lot most definitely could be seizures. :sad: Quote Link to comment Share on other sites More sharing options...
ma23peas Posted December 28, 2011 Share Posted December 28, 2011 Praying for your son! I suffered from clonic tonic seizures that started at age 18 and came intermittently for three years...they ended just as quickly as they started. I did not zone out, but would just fall...all the muscles in my body for one split second would stop receiving messages..so I would crumple and watch it happening on the way down...all tests were normal but on the sleep deprivation test I had an abnormal EEG...so get whatever testing you can. My brother would zone out with seizures...when he zones out make specific notes as to how many times it takes for him to unzone...film it if possible...let us know! My brother could be talking on the phone and jst lose the ability to talk. Quote Link to comment Share on other sites More sharing options...
Farrar Posted December 28, 2011 Share Posted December 28, 2011 "zoning out" a lot most definitely could be seizures. :sad: Just seconding this. I had a student years ago who had a seizure disorder. You'd be sitting talking to her and she'd suddenly get all glazed over as if she was just "zoning out." Then she'd be fine a moment later - "Huh? Yeah, blah blah blah..." as if nothing happened and she was just caught in a thought. If her mother had not come and given us all info so we could help her track this and recognize it, you never would have known. Good luck and hugs! I hope you get the help you need. Quote Link to comment Share on other sites More sharing options...
higginszoo Posted December 28, 2011 Share Posted December 28, 2011 Just seeing this, hoping that you made the trip up to the ER at Primary. We've spent quite a bit of time there, but they did get a diagnosis pretty quickly for my ds's somewhat unusual condition and then got us to the right pediatric specialist (at Intermountain) to get more information. Quote Link to comment Share on other sites More sharing options...
Whereneverever Posted December 28, 2011 Share Posted December 28, 2011 Zoning out can be absence seizures. It doesn't explain the continued tingling, though. Quote Link to comment Share on other sites More sharing options...
Mergath Posted December 28, 2011 Share Posted December 28, 2011 Definitely sounds like something neurological. That ER doc should be fired for not referring you to a neurologist. :glare: Does he have a history of migraines? Migraines can do some really wacky things to your body. Quote Link to comment Share on other sites More sharing options...
Sun Posted December 28, 2011 Share Posted December 28, 2011 I don't know anything...but did they check for stroke? That would be my question... :iagree: The prolonged tingling/difficulty using his leg and arm (on the same side of the body) worries me. Kids can have strokes, and they are much less likely to be recognized promptly because they're just not on the radar screen of many physicians dealing with kids. It's probably not likely, but I would definitely want someone medical to think about it. I hope you got some answers. Please update us. :grouphug: Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted December 28, 2011 Share Posted December 28, 2011 My son had a stroke during delivery. Children can have strokes. Most of them have an underlying clotting disorder that usually doesn't get diagnosed until the child has a stroke. The arm and leg shaking sounds like a seizure. My son has epilepsy and that is exactly what happens to him. His arm or leg are limp for a while after he has a seizure but he hasn't mentioned a tingling feeling though. Hope you get some answers soon! God Bless, Elise in NC Quote Link to comment Share on other sites More sharing options...
unsinkable Posted December 28, 2011 Share Posted December 28, 2011 Praying for your son! I suffered from clonic tonic seizures that started at age 18 and came intermittently for three years...they ended just as quickly as they started. I did not zone out, but would just fall...all the muscles in my body for one split second would stop receiving messages..so I would crumple and watch it happening on the way down...all tests were normal but on the sleep deprivation test I had an abnormal EEG...so get whatever testing you can. My brother would zone out with seizures...when he zones out make specific notes as to how many times it takes for him to unzone...film it if possible...let us know! My brother could be talking on the phone and jst lose the ability to talk. Those sound like drop siezures, not tonic-clonic siezures. They sound "atonic." You lose consciousness with a tonic-clonic seizure and your body convulses. What ever they were tho', seizures $uck. I'm glad yours stopped. Quote Link to comment Share on other sites More sharing options...
QuirkyKapers Posted December 28, 2011 Share Posted December 28, 2011 Just wondering if everything is ok? Didn't see an update. Quote Link to comment Share on other sites More sharing options...
Parrothead Posted December 28, 2011 Share Posted December 28, 2011 I hope you are able to update us soon. Quote Link to comment Share on other sites More sharing options...
In the Rain Posted December 28, 2011 Share Posted December 28, 2011 :bigear: Any update? I hope your son is doing better. :grouphug: Quote Link to comment Share on other sites More sharing options...
TheCoffeeChick Posted December 28, 2011 Share Posted December 28, 2011 :grouphug:Praying all is well and hoping for an update :bigear: Quote Link to comment Share on other sites More sharing options...
Alicia64 Posted December 28, 2011 Share Posted December 28, 2011 Just read this and hoping for an update too. I also can't believe that the ER doc didn't send the family to a nuerologist. . .?! :grouphug: Praying for the very best outcome. Alley Quote Link to comment Share on other sites More sharing options...
kitten18 Posted December 29, 2011 Share Posted December 29, 2011 Hoping for an update. :grouphug: Quote Link to comment Share on other sites More sharing options...
iona Posted December 29, 2011 Share Posted December 29, 2011 :grouphug: hope you are getting the help you need. Quote Link to comment Share on other sites More sharing options...
fraidycat Posted December 29, 2011 Share Posted December 29, 2011 Praying for a quick answer and that your DSS is well. Quote Link to comment Share on other sites More sharing options...
5knights3maidens Posted December 29, 2011 Share Posted December 29, 2011 Just saw this. Praying for your son. :grouphug: Quote Link to comment Share on other sites More sharing options...
KnitWit Posted December 29, 2011 Share Posted December 29, 2011 :grouphug: Very concerned and praying Quote Link to comment Share on other sites More sharing options...
MamaSheep Posted December 29, 2011 Share Posted December 29, 2011 Just seeing this, and hoping you went to Primary. They were wonderful when my ds was having seizures. If you are there and need anything PM me. I mean it. Quote Link to comment Share on other sites More sharing options...
Teachin'Mine Posted December 29, 2011 Share Posted December 29, 2011 We do have a children's hospital up in SLC. Do you think just take him to their ER? He says he felt fine until immediately before he passed out. He "zones out" a lot but never gets dizzy or anything. He goes running every day, even in the 20º weather and has never had a problem before. Oh they are calling me back! will update Praying. :grouphug: Quote Link to comment Share on other sites More sharing options...
East Coast Sue Posted December 29, 2011 Share Posted December 29, 2011 :grouphug: I hope your son is doing better. It is so scary to see our dc sick or hurt. Quote Link to comment Share on other sites More sharing options...
J-rap Posted December 29, 2011 Share Posted December 29, 2011 Hope your son is doing better. A neurological doc is my recommendation too. Now. I know that migraines, seizures, and strokes can cause those symptoms. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted December 30, 2011 Share Posted December 30, 2011 :grouphug::grouphug::grouphug: Praying for your son -- I hope you're able to get some answers soon, and that it turns out to be something minor and easily treated. Quote Link to comment Share on other sites More sharing options...
hmschooling Posted December 30, 2011 Share Posted December 30, 2011 Postural Orthostatic Tachycardia Syndrome can happen within 10 minutes of standing, greatly increase heart rate to the point of fainting, and decreased heart rate also means not enough O2 to muscles which would cause pain. Any cause of orthostatic intolerance could do so, and I know there are many, many causes of it. But, yes...certainly a connection between FASD and seizures. There's a knowledgeable mom on the board about FASD... littleWMN Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted December 30, 2011 Share Posted December 30, 2011 :grouphug: Quote Link to comment Share on other sites More sharing options...
obsidian Posted December 30, 2011 Share Posted December 30, 2011 Any update yet? I hope your son is ok!:grouphug: Quote Link to comment Share on other sites More sharing options...
East Coast Sue Posted December 30, 2011 Share Posted December 30, 2011 I'm hoping your son is doing better. Please update when you can. :grouphug: and prayers. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted December 30, 2011 Share Posted December 30, 2011 Any updates? Praying here! :grouphug: Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted December 30, 2011 Share Posted December 30, 2011 bumping in the hope of an update Quote Link to comment Share on other sites More sharing options...
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