Joanne Posted August 5, 2011 Share Posted August 5, 2011 It's official; I hate life right now. I took him to a different hospital this time, hoping for more responsiveness. I can tell you what is going to happen. We are going to have to separate - at least on paper. I will need to find a way for him to live in Harris County. My lease is not up until January. With this decline - even while compliant with meds - he won't make January. This is absurd beyond belief. Quote Link to comment Share on other sites More sharing options...
susancollins Posted August 5, 2011 Share Posted August 5, 2011 I am so sorry!! Praying for you! :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
mo2 Posted August 5, 2011 Share Posted August 5, 2011 How awful. :grouphug: Quote Link to comment Share on other sites More sharing options...
justamouse Posted August 5, 2011 Share Posted August 5, 2011 I've been training myself to not say it, but in this case I think it appropriate. Oh my God. And that's a prayer. :grouphug: Quote Link to comment Share on other sites More sharing options...
mama2cntrykids Posted August 5, 2011 Share Posted August 5, 2011 BIG HUGS Joanne! I can not imagine what you;re going through. I will pray. Quote Link to comment Share on other sites More sharing options...
FaithManor Posted August 5, 2011 Share Posted August 5, 2011 It's official; I hate life right now. I took him to a different hospital this time, hoping for more responsiveness. I can tell you what is going to happen. We are going to have to separate - at least on paper. I will need to find a way for him to live in Harris County. My lease is not up until January. With this decline - even while compliant with meds - he won't make January. This is absurd beyond belief. Joanne, :grouphug::grouphug::grouphug: I wish I could do something. I can't except pray. But, dh and I, would like to join with you in saying @#$%^&&@#$%^&*! The absurdity is beyond imagination. Faith Quote Link to comment Share on other sites More sharing options...
simka2 Posted August 5, 2011 Share Posted August 5, 2011 Good gracious!!!!! I am so sorry! You know I actually considered an on paper seperation with dh and all our house stuff too. It is a horrible place to be. I have never lived in a city that makes things so difficult for you if you are middle class. Quote Link to comment Share on other sites More sharing options...
stormy weather Posted August 5, 2011 Share Posted August 5, 2011 :grouphug: Quote Link to comment Share on other sites More sharing options...
jenL Posted August 5, 2011 Share Posted August 5, 2011 Oh Joanne... my heart is breaking for you right now! Sending prayers up that this visit will get you more response. I am so sorry you are at the ER again. :grouphug: Quote Link to comment Share on other sites More sharing options...
Pink Fairy Posted August 5, 2011 Share Posted August 5, 2011 Oh no! :crying: Quote Link to comment Share on other sites More sharing options...
Onceuponatime Posted August 5, 2011 Share Posted August 5, 2011 So sorry you are going through this. Praying for strength for you and wisdom for the doctors. Quote Link to comment Share on other sites More sharing options...
i.love.lucy Posted August 5, 2011 Share Posted August 5, 2011 I'm so sorry!:grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted August 5, 2011 Share Posted August 5, 2011 :grouphug: Quote Link to comment Share on other sites More sharing options...
CalicoKat Posted August 5, 2011 Share Posted August 5, 2011 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
BridgeTea Posted August 5, 2011 Share Posted August 5, 2011 (((Joanne))) #&*!!*# and *hack**hack**spit!** on the system that makes stuff like this happen Quote Link to comment Share on other sites More sharing options...
astrid Posted August 5, 2011 Share Posted August 5, 2011 Oh gosh I am SO sorry, Joanne! Wishing I could do something to make things easier for you. I'm sending you hugs and holding you in the light, though those things seem so inadequate. Hugs, astrid Quote Link to comment Share on other sites More sharing options...
ChristineW Posted August 5, 2011 Share Posted August 5, 2011 I'm so sorry. I hope this hospital can give you some answers. Why do you need an "paper" separation? Is it for income limits? or because he needs to be in Harris County? Unless your job requires that you reside in the county, I'd consider breaking the lease. You are going to need proof of residency to get aid from Harris County and it isn't likely the two of you can afford two leases. Does your Dh have a job? If so, would he qualify for aid as a single person? What impact might a legal separation have on your abilility to make medical decisions for him? I am praying for peace and healing, Christine Quote Link to comment Share on other sites More sharing options...
Twolittleboys Posted August 5, 2011 Share Posted August 5, 2011 :grouphug:Really sorry for what you are going through. My mother suffered from a similar condition (luckily without the health care worries though). It is very frightening. Quote Link to comment Share on other sites More sharing options...
UnsinkableKristen Posted August 5, 2011 Share Posted August 5, 2011 That completely sucks. I am so sorry. Quote Link to comment Share on other sites More sharing options...
OLG Posted August 5, 2011 Share Posted August 5, 2011 Blasted horrible! I will pray. :grouphug: Quote Link to comment Share on other sites More sharing options...
Anne in CA Posted August 5, 2011 Share Posted August 5, 2011 I am just sooo sorry. Just so that you know I have already been praying for you quite a bit. God brings you to my mind and I know you are loved and not forgotten. :grouphug::grouphug::grouphug::grouphug::grouphug::grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
elegantlion Posted August 5, 2011 Share Posted August 5, 2011 :grouphug::grouphug: I'm sorry. Quote Link to comment Share on other sites More sharing options...
gingersmom Posted August 5, 2011 Share Posted August 5, 2011 :grouphug: Quote Link to comment Share on other sites More sharing options...
LidiyaDawn Posted August 5, 2011 Share Posted August 5, 2011 Ok - every time I've said something about the US health care system and how it doesn't seem right that people could be refused care if they couldn't pay, I always get told "oh no, they HAVE to treat you" … if he's actually sick enough that you're saying things like "won't make it until___" doesn't that mean that they HAVE to treat him? Can they honestly say "Nope, go home and die unless you have money?" ??? That's so, so wrong. Quote Link to comment Share on other sites More sharing options...
Audrey Posted August 5, 2011 Share Posted August 5, 2011 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
AuntieM Posted August 5, 2011 Share Posted August 5, 2011 Oh, no... wish there were magic words... :grouphug::grouphug::grouphug: Please know that we are standing by your side in prayer. Quote Link to comment Share on other sites More sharing options...
Slartibartfast Posted August 5, 2011 Share Posted August 5, 2011 Ok - every time I've said something about the US health care system and how it doesn't seem right that people could be refused care if they couldn't pay, I always get told "oh no, they HAVE to treat you" … if he's actually sick enough that you're saying things like "won't make it until___" doesn't that mean that they HAVE to treat him? Can they honestly say "Nope, go home and die unless you have money?" ??? That's so, so wrong. The ER *has* to treat you. No one HAS to pay for meds, or regular care with a physician. Yes, people die due to lack of affordable care. If you are doing poorly one can always go to the ER and be treated but that is the only place that HAS to treat you. Quote Link to comment Share on other sites More sharing options...
jelbe5 Posted August 5, 2011 Share Posted August 5, 2011 :grouphug: Praying for your family! Quote Link to comment Share on other sites More sharing options...
Slartibartfast Posted August 5, 2011 Share Posted August 5, 2011 :grouphug::grouphug::grouphug::grouphug::grouphug: I am so sorry Joanne :( Quote Link to comment Share on other sites More sharing options...
Desert Rat Posted August 5, 2011 Share Posted August 5, 2011 Joanne, I'm so sorry. There are no words. You're in my thoughts. Quote Link to comment Share on other sites More sharing options...
chickenpatty Posted August 5, 2011 Share Posted August 5, 2011 :grouphug: I'm so sorry! :grouphug: Quote Link to comment Share on other sites More sharing options...
Joanne Posted August 5, 2011 Author Share Posted August 5, 2011 Ok - every time I've said something about the US health care system and how it doesn't seem right that people could be refused care if they couldn't pay, I always get told "oh no, they HAVE to treat you" … if he's actually sick enough that you're saying things like "won't make it until___" doesn't that mean that they HAVE to treat him? Can they honestly say "Nope, go home and die unless you have money?" ??? That's so, so wrong. Hospitals, through the ER, have to treat and stabilize you. In fact, that is what they are doing again). They are admitting him. The problem is when you need specialized care for the underlying condition. We can't pay a specialist, and Liver Centers won't take us without a self pay contract. I literally can't get him into see a specialist. He's seen 3 liver Drs @ 2 hospitals - and none of them have offered outside care or ideas. Today's Dr. Talked a lot about transplant - but that requires medical care and the system; both of which are not accessible to us. Quote Link to comment Share on other sites More sharing options...
Amy in NH Posted August 5, 2011 Share Posted August 5, 2011 (edited) If you separate, and the worse happens, will you lose his SS survivor benefits? I agree with breaking the lease if it's because you need to move to get him the care he needs. ETA: I just saw the other thread about the SS Disability application. Is there some sort of medical advocacy center that could help you find the care he needs/help with the follow-through on the paperwork? Edited August 5, 2011 by Amy in NH Quote Link to comment Share on other sites More sharing options...
Melinda in VT Posted August 5, 2011 Share Posted August 5, 2011 I'm so sorry. You are high on my list of People I Really Wish Would Catch a Break. Prayers and thoughts seem so inadequate, but you have mine anyway. Quote Link to comment Share on other sites More sharing options...
LidiyaDawn Posted August 5, 2011 Share Posted August 5, 2011 Ok - every time I've said something about the US health care system and how it doesn't seem right that people could be refused care if they couldn't pay, I always get told "oh no, they HAVE to treat you" … if he's actually sick enough that you're saying things like "won't make it until___" doesn't that mean that they HAVE to treat him? Can they honestly say "Nope, go home and die unless you have money?" ??? That's so, so wrong. Hospitals, through the ER, have to treat and stabilize you. In fact, that is what they are doing again). They are admitting him. The problem is when you need specialized care for the underlying condition. We can't pay a specialist, and Liver Centers won't take us without a self pay contract. I literally can't get him into see a specialist. He's seen 3 liver Drs @ 2 hospitals - and none of them have offered outside care or ideas. Today's Dr. Talked a lot about transplant - but that requires medical care and the system; both of which are not accessible to us. What does that *mean* … (the bolded) ? If a person has, say, cancer and the required treatment (to save them) is chemotherapy… can the hospital refuse to treat you with that if you don't have money? If your husband needs a transplant to live - do they not have to do it? Don't doctors take some kind of oath to "do no harm"?? :( Quote Link to comment Share on other sites More sharing options...
Slartibartfast Posted August 5, 2011 Share Posted August 5, 2011 (edited) What does that *mean* … (the bolded) ? If a person has, say, cancer and the required treatment (to save them) is chemotherapy… can the hospital refuse to treat you with that if you don't have money? If your husband needs a transplant to live - do they not have to do it? Don't doctors take some kind of oath to "do no harm"?? :( They have to stabilize you, as in give you fluids, pain meds, or other short term treatments. They do not have to do chemo and they do not have to perform a transplant. If you walk in with an injury they would treat it, but with long term illnesses, that's different. :( Edited August 5, 2011 by Sis Quote Link to comment Share on other sites More sharing options...
dirty ethel rackham Posted August 5, 2011 Share Posted August 5, 2011 "First do no harm" does not mean treat everybody. It means do not DO any that will do more damage than good. The operative word is DO. Stabilize means get the person to the point that they do not need immediate care at the moment. ETA: Joanne, I am so sorry you and your family are going through this. You are in my prayers! Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted August 6, 2011 Share Posted August 6, 2011 Oh Joanne!!! I won't stop praying . . . :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
LidiyaDawn Posted August 6, 2011 Share Posted August 6, 2011 What does that *mean* … (the bolded) ? If a person has, say, cancer and the required treatment (to save them) is chemotherapy… can the hospital refuse to treat you with that if you don't have money? If your husband needs a transplant to live - do they not have to do it? Don't doctors take some kind of oath to "do no harm"?? :( They have to stabilize you, as in give you fluids, pain meds, or other short term treatments. They do not have to do chemo and they do not have to perform a transplant. If you walk in with an injury they would treat it, but with long term illnesses, that's different. :( You aren't "stable" if you're still dying. :confused: Man, no wonder you guys need a health care overhaul down there! Quote Link to comment Share on other sites More sharing options...
Mergath Posted August 6, 2011 Share Posted August 6, 2011 I'm so, so sorry you're having to go through this. :grouphug: I'll continue to keep you in my thoughts. I haven't been able to get online much, and I'm not sure exactly what your insurance situation is, but could you just pick up and move to a completely different state that will give you some kind of coverage for your dh's condition? I know here in Minnesota, you can get MA or MinnesotaCare even if you make a decent amount of money, and it covers quite a bit. We've been on it for awhile now, and they've covered one hundred percent of all my dd's stuff for her genetic disorder, all my epilepsy stuff, all my dh's mental illness stuff.... And we've got some amazing medical facilities here in MN. If you guys could move here and get some kind of help, you're welcome to stay in my tiny little apartment. Quote Link to comment Share on other sites More sharing options...
eternalknot Posted August 6, 2011 Share Posted August 6, 2011 What an awful situation; I'm so sorry for your family, and I hope out there lurking somewhere near is the break your husband needs. ((hugs)) Quote Link to comment Share on other sites More sharing options...
AlmiraGulch Posted August 6, 2011 Share Posted August 6, 2011 My heart goes out to you. I don't even know you but I truly wish I could take some of this burden from you. No one deserves all of this. Quote Link to comment Share on other sites More sharing options...
homeschooltoone Posted August 6, 2011 Share Posted August 6, 2011 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Guest Dulcimeramy Posted August 6, 2011 Share Posted August 6, 2011 Joanne, I hope it helps a little to know that so many of us care and are praying for miracles. I'm so sorry it has come to this for your DH and kids and you. :grouphug: Quote Link to comment Share on other sites More sharing options...
extendedforecast Posted August 6, 2011 Share Posted August 6, 2011 :grouphug: I'm so sorry that your dh can't get the care he needs. It makes me so angry with our health care system. How bad/difficult would it be to break your lease and move into Harris co.? I'll be praying for your dh's health. :grouphug: Quote Link to comment Share on other sites More sharing options...
NoPlaceLikeHome Posted August 6, 2011 Share Posted August 6, 2011 What does that *mean* … (the bolded) ? If a person has, say, cancer and the required treatment (to save them) is chemotherapy… can the hospital refuse to treat you with that if you don't have money? If your husband needs a transplant to live - do they not have to do it? Don't doctors take some kind of oath to "do no harm"?? :( Yes you can be refused chemo, radiation and even surgery for cancer. These are not considered emergency treatment as well as a host of other treatments. My mom was told if she could not pay her bill for chemo and radiation then no treatment:(. There are documented stories of many, many people not able to get needed care due to a lack of health insurance. This is reason one million and one we need medicare for all IMHO. Quote Link to comment Share on other sites More sharing options...
NoPlaceLikeHome Posted August 6, 2011 Share Posted August 6, 2011 :grouphug::grouphug: I hope you find some health care soon. I am sorry you are going through this:(. Quote Link to comment Share on other sites More sharing options...
JulieH Posted August 6, 2011 Share Posted August 6, 2011 (edited) Yes you can be refused chemo, radiation and even surgery for cancer. These are not considered emergency treatment as well as a host of other treatments. My mom was told if she could not pay her bill for chemo and radiation then no treatment:(. There are documented stories of many, many people not able to get needed care due to a lack of health insurance. This is reason one million and one we need medicare for all IMHO. That's just aweful. I don't understand that. I personally know someone who is not a legal resident of the US who not only got all her chemo and radiation 100% free, but also a double mastectomy AND reconstruction. 100% on the taxpayers. I love her to pieces, but it upsets me to know that this is happening in this country and others are suffering so terribly. It's just wrong. ETA: the situation I'm referring to is not in the past, but is a current situation that has been happening over the past 2 years. Edited August 6, 2011 by JulieH to add a note Quote Link to comment Share on other sites More sharing options...
plansrme Posted August 6, 2011 Share Posted August 6, 2011 If you get a quickie divorce and a quickie remarriage, your marriage gives you a special enrollment right under HIPAA, and you could enroll your husband under the plan where you work immediately upon your remarriage. Of course the plan may have a pre-existing condition exclusion, but many, many plans do not any more. I don't know what the divorce laws are in your state, but in many states, you can get a divorce in 30 days and remarry the next. Terri Quote Link to comment Share on other sites More sharing options...
astrid Posted August 6, 2011 Share Posted August 6, 2011 (edited) That's just aweful. I don't understand that. I personally know someone who is not a legal resident of the US who not only got all her chemo and radiation 100% free, but also a double mastectomy AND reconstruction. 100% on the taxpayers. I love her to pieces, but it upsets me to know that this is happening in this country and others are suffering so terribly. It's just wrong. ETA: the situation I'm referring to is not in the past, but is a current situation that has been happening over the past 2 years. So I surmise from your post that in order to "deserve" (my word) medical care and life-saving treatments, one must: 1. be able to foot the bill for hundreds of thousands of medical bills or have great health insurance. 2. be a legal resident Good to know. Again, Joanne-- I"m so sorry. This just makes me so angry. So incredibly angry. And so utterly disgusted with our health care system. astrid Edited August 6, 2011 by astrid Quote Link to comment Share on other sites More sharing options...
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