Joanne Posted September 12, 2012 Share Posted September 12, 2012 Well, first, my husband was unable to sustain the changes he made while at the nursing home the first time. His decline was so rapid, and the personality and behavioral changes so intense, that I am worried. We admitted him to the hospital before taking him to the nursing home. This was the Sunday night before last. The hospital discharged him, and we put him back in the nursing home. His ammonia level is still elevated. :confused: It has never taken this long before. I'm afraid that might mean an accelerated rate of liver decline. I also heard the specifics on nursing home medicaid. It was "certed" the first time, which means we got it. But that the certification was for a plan that expected me to pay $1500 A MONTH PLUS his medication (another $600 or so using the Rx company they use). The $1500 a month is more than one of my paychecks and nearly his entire ssd. I can't live with that blow to my budget. But I can't bring him home. It's not in his best interest. Quote Link to comment Share on other sites More sharing options...
Corraleno Posted September 12, 2012 Share Posted September 12, 2012 I am so so sorry, Joanne. :( :grouphug::grouphug::grouphug::grouphug: Jackie Quote Link to comment Share on other sites More sharing options...
elegantlion Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug: I'm sorry. Quote Link to comment Share on other sites More sharing options...
fraidycat Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Jen500 Posted September 12, 2012 Share Posted September 12, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Mimm Posted September 12, 2012 Share Posted September 12, 2012 :grouphug: I'm so sorry Joanne. Quote Link to comment Share on other sites More sharing options...
gingersmom Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
J-rap Posted September 12, 2012 Share Posted September 12, 2012 I'm so sorry. :grouphug::grouphug: It seems so unfair. Quote Link to comment Share on other sites More sharing options...
SwallowTail Posted September 12, 2012 Share Posted September 12, 2012 You were on my mind today. I am so sorry to hear this update. I am praying for you guys, which sounds so inadequate. I wish we could shoulder your burden for a time (or win a lottery for you). Quote Link to comment Share on other sites More sharing options...
Audrey Posted September 12, 2012 Share Posted September 12, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Catwoman Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug::grouphug: Oh, Joanne, I am so sorry to hear about your dh. You have been on such a horrible roller coaster ride through all of this, and I wish I had some words to comfort you, but all I can do is send you :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
celticmom Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
ChristineW Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug:Hopefully this latest episode will get him moved up on the transplant list. Glad your son is there to support you. Quote Link to comment Share on other sites More sharing options...
Rebel Yell Posted September 12, 2012 Share Posted September 12, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
RoughCollie Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Georgiana Daniels Posted September 12, 2012 Share Posted September 12, 2012 :grouphug::grouphug: Try to stay strong. Remember to also take care of yourself. Quote Link to comment Share on other sites More sharing options...
scrapbabe Posted September 12, 2012 Share Posted September 12, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted September 13, 2012 Share Posted September 13, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
QuirkyKapers Posted September 13, 2012 Share Posted September 13, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
justLisa Posted September 13, 2012 Share Posted September 13, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Truscifi Posted September 13, 2012 Share Posted September 13, 2012 :grouphug::grouphug::grouphug: I'm so sorry. Quote Link to comment Share on other sites More sharing options...
IsabelC Posted September 13, 2012 Share Posted September 13, 2012 I'm so sorry that he and you are going through this. Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted September 13, 2012 Share Posted September 13, 2012 :grouphug::grouphug:I am sorry for what you are going through. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted September 13, 2012 Share Posted September 13, 2012 I'm so sorry.:grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted September 13, 2012 Share Posted September 13, 2012 :grouphug: Thanks for the update. Praying for you and for Adrian. I'm so sorry. :grouphug: Quote Link to comment Share on other sites More sharing options...
2cents Posted September 13, 2012 Share Posted September 13, 2012 :grouphug::grouphug::grouphug::grouphug: I'm so sorry. Quote Link to comment Share on other sites More sharing options...
Ellie Posted September 13, 2012 Share Posted September 13, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
melmichigan Posted September 13, 2012 Share Posted September 13, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
In the Rain Posted September 13, 2012 Share Posted September 13, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Shellers Posted September 13, 2012 Share Posted September 13, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
QueenCat Posted September 13, 2012 Share Posted September 13, 2012 :grouphug:Joanne:grouphug: Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted September 16, 2012 Share Posted September 16, 2012 I am so sorry. :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Amber in AUS Posted September 16, 2012 Share Posted September 16, 2012 Hugs. Thinking of you. Quote Link to comment Share on other sites More sharing options...
southcarolinamom Posted September 16, 2012 Share Posted September 16, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted September 16, 2012 Share Posted September 16, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
FaithManor Posted September 16, 2012 Share Posted September 16, 2012 :grouphug: Always thinking of you and Adrian, praying for you too. Faith Quote Link to comment Share on other sites More sharing options...
elfgivas Posted September 16, 2012 Share Posted September 16, 2012 :grouphug: my heart breaks for you. no one promised fair, but this is so far beyond that..... wishing you moments of peace that will sustain you thru all those Other Times. :grouphug: ann Quote Link to comment Share on other sites More sharing options...
PollyOR Posted September 16, 2012 Share Posted September 16, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
extendedforecast Posted September 16, 2012 Share Posted September 16, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
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