sunnylady303 Posted August 25, 2012 Share Posted August 25, 2012 (edited) DD is still in the hospital. Still can't get off the oxygen. Her bowel impaction is worse. My other DD is sick with a fever and I can't take care of her. I am so exhausted I can't think straight. We live an hour away from the hospital so no one can easily bring me food. This is busting our budget. I want to sleep. I want to sleep. I want to sleep. That is all. Edited August 25, 2012 by sunnylady303 Quote Link to comment Share on other sites More sharing options...
Aurelia Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: I hope it gets better for you (all) soon! Quote Link to comment Share on other sites More sharing options...
1bassoon Posted August 25, 2012 Share Posted August 25, 2012 I am so, so sorry. :grouphug: Please keep us updated. Quote Link to comment Share on other sites More sharing options...
Starr Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
happi duck Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Forget-Me-Not Posted August 25, 2012 Share Posted August 25, 2012 Hang in there mama. Do you have a church community or a homeschooling group you can turn to for help? Quote Link to comment Share on other sites More sharing options...
Mommy22alyns Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: I am so sorry. Quote Link to comment Share on other sites More sharing options...
Jennifer in MI Posted August 25, 2012 Share Posted August 25, 2012 Oh no! Where are you!? I'd be happy to bring something to you if you are nearby. (we are on vacation right now near Orlando. We have a full kitchen and I'd be honored to bring something!) :grouphug: Quote Link to comment Share on other sites More sharing options...
Lara in Colo Posted August 25, 2012 Share Posted August 25, 2012 I pray that each hour you sleep equals two hours of rest and recovery. Lara Quote Link to comment Share on other sites More sharing options...
Jan in SC Posted August 25, 2012 Share Posted August 25, 2012 If you feel comfortable sharing where you are, maybe someone can help! Quote Link to comment Share on other sites More sharing options...
MrsBasil Posted August 25, 2012 Share Posted August 25, 2012 (edited) :grouphug::grouphug::grouphug: Edited August 25, 2012 by MrsBasil No idea why the bashful smiley, can't fix it... Quote Link to comment Share on other sites More sharing options...
Little Nyssa Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Ibbygirl Posted August 25, 2012 Share Posted August 25, 2012 DD is still in the hospital. Still can't get off the oxygen. Her bowel impaction is worse. My other DD is sick with a fever and I can't take care of her. I am so exhausted I can't think straight. We live an hour away from the hospital so no one can easily bring me food. This is busting our budget. I want to sleep. I want to sleep. I want to sleep. That is all. :grouphug::grouphug::grouphug::grouphug: I'm so sorry. Praying for you honey. Quote Link to comment Share on other sites More sharing options...
thescrappyhomeschooler Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
NorthwestMom Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug: If you are near Seattle I would bring food. Quote Link to comment Share on other sites More sharing options...
Susann Posted August 25, 2012 Share Posted August 25, 2012 Oh, I'm so sorry for what you're going through!!! Sending :grouphug: and prayers your way. Quote Link to comment Share on other sites More sharing options...
RoughCollie Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: and prayers. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted August 25, 2012 Share Posted August 25, 2012 I'm so sorry things are going so terribly. I hope both of your kids are OK. As others have said, if you post where you are (just a state would be enough,) those of us who live near you might be able to help. Praying for your family. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
SunieDawn Posted August 25, 2012 Share Posted August 25, 2012 Praying for you and your family. Hope God provides rest for your body and your heart. Quote Link to comment Share on other sites More sharing options...
elfgivas Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: hope tomorrow brings good news! (and i hope you're asleep now!) peace, ann Quote Link to comment Share on other sites More sharing options...
TranquilMind Posted August 25, 2012 Share Posted August 25, 2012 DD is still in the hospital. Still can't get off the oxygen. Her bowel impaction is worse. My other DD is sick with a fever and I can't take care of her. I am so exhausted I can't think straight. We live an hour away from the hospital so no one can easily bring me food. This is busting our budget. I want to sleep. I want to sleep. I want to sleep. That is all. I am so sorry! I'd bring you food if you were close enough to get you some! Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Delirium Posted August 25, 2012 Share Posted August 25, 2012 Hope things look up for you soon :) Quote Link to comment Share on other sites More sharing options...
tex-mex Posted August 25, 2012 Share Posted August 25, 2012 Have you spoken to the hospital's social worker or doctor? Often, they have paper vouchers for parents for a meal at the cafeteria. The hospital did this for us when our son was in a coma and in ICU. We were about 400 miles from home and also qualified for staying at the nearby Ronald McDonald house. Many times the nurses will request an extra meal tray be prepared and delivered to the child's room for the parent to eat. Try to sleep the best you can while in the same room -- the chairs are horrible, but do try to nap. HTH Quote Link to comment Share on other sites More sharing options...
Blueridge Posted August 25, 2012 Share Posted August 25, 2012 How is your daughter this morning? And how are you? :grouphug: Quote Link to comment Share on other sites More sharing options...
IsabelC Posted August 25, 2012 Share Posted August 25, 2012 Hope she improves soon and you can manage to fit in some rest :grouphug: Quote Link to comment Share on other sites More sharing options...
Soror Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
sunnylady303 Posted August 25, 2012 Author Share Posted August 25, 2012 Oh thank you all. I needed some support and sympathy. I am still so tired. I did not sleep well last night The enema was awful - and I know it's just an enema but it took four nurses to do it while DD was screaming and begging me not to let them. This, btw, is from the girl that got 11 sticks while looking for an IV in the ER, where they had to finally use ultrasound to find a vein because evidently she's been stuck so much that her veins have started to redirect (:confused: didn't know that happened). She lay there quietly, sweating and with some tears leaking but didn't move or make a sound. The nurses called her "the queen of calm." She was not last night though. Poor girl. She's definitely better. Hospital policy is that she has to be able to stay of oxygen for the night before you can go home. Otherwise she is probably ready to be discharged but she did have to be on oxygen last night. They took her off at 5AM and she is holding steady, still asleep. Maybe that will count? I kind of doubt it. But it looks like maybe tomorrow. I am in Louisville, KY. But I am going to ask to see a social worker about meals. I am hoping we go home tomorrow and that the bowel issue will be okay and that we are not headed back into chronic lung issue land. Really, thanks again for the support. I really needed some. Quote Link to comment Share on other sites More sharing options...
Donna Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Luckymama Posted August 25, 2012 Share Posted August 25, 2012 I hope you can go home today :grouphug: Quote Link to comment Share on other sites More sharing options...
sunnylady303 Posted August 25, 2012 Author Share Posted August 25, 2012 Thanks but it will be tomorrow at the soonest. I am trying to keep perspective but am so exhausted. Quote Link to comment Share on other sites More sharing options...
elfgivas Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: it sounds as if there has been progress though, so that's important! is there someone you know who could be there with you to listen to all the doctor has to say around discharge, etc? when i'm tired and stressed, i think i'm taking it all in, but then discover that i can't remember half of what they said! :grouphug: ann Quote Link to comment Share on other sites More sharing options...
Heather in Neverland Posted August 25, 2012 Share Posted August 25, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug: Praying for all of you. Quote Link to comment Share on other sites More sharing options...
Momma_Bear Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug::grouphug: Praying. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
KnitWit Posted August 25, 2012 Share Posted August 25, 2012 :grouphug::grouphug: Does it appear that her bowel is clear now? Praying for her...and you! Quote Link to comment Share on other sites More sharing options...
ChrisN in NY Posted August 25, 2012 Share Posted August 25, 2012 My first thought was a Ronald McDonald House. There is one in Louisville: Ronald McDonald House in Louisville 550 South First Street Louisville, KY 40202 USA Phone: 502 561-7658 Fax: 502 581-0037 You'd have a room to sleep in and food. The RMH in Long Island, where we've stayed three times since Nov 2011, charges $25/night but won't turn you away if you cannot pay. HTH. :grouphug: Quote Link to comment Share on other sites More sharing options...
Parrothead Posted August 25, 2012 Share Posted August 25, 2012 I'm sorry you and you kids have to go through this. I'm not close enough to do anything but pray for you and your situation. :grouphug: Quote Link to comment Share on other sites More sharing options...
Tiramisu Posted August 26, 2012 Share Posted August 26, 2012 My first thought was a Ronald McDonald House. There is one in Louisville: Ronald McDonald House in Louisville 550 South First Street Louisville, KY 40202 USA Phone: 502 561-7658 Fax: 502 581-0037 You'd have a room to sleep in and food. The RMH in Long Island, where we've stayed three times since Nov 2011, charges $25/night but won't turn you away if you cannot pay. HTH. :grouphug: We stayed at a RMH for $15 per night. Nearby restaurants would deliver delicious food, and everything was included. Dh and I took turns staying over night there, and the one who was in the hospital overnight would go back to the RMH to take a nap during the day or just to shower. And the kitchen was stocked. The tough part, I realize, is that you don't want to leave dd. I wonder if there's a chaplain at the hospital that has contact with a nearby church community that could help you by running a meal or two over. Your poor dd. An enema would be particulary tough on an 11 yo dd, for sure. :( Quote Link to comment Share on other sites More sharing options...
justLisa Posted August 26, 2012 Share Posted August 26, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted August 26, 2012 Share Posted August 26, 2012 (edited) Oh my. Gosh! That is SOOOOOOOOO hard. I had to call dh at 3:30 in the morning to relieve me but we are only 20 - 25 minutes away. Can you get someone to sit with your dd in the hospital so you can sleep? A five hour nap after three nights with no sleep, broken sleep for a week beforehand, made a HUGE difference for me. :grouphug::grouphug::grouphug: Also, get some snacks and bottled water to keep in the room. Hospital cafeteria food is cheap and some of it is pretty good..... At least at our hospitals. I had a very nice poster here tell me how important taking care of muself was and she was ABSOLUTELY right. Some food ant that one break made a WORLD of difference. I probably wouldn't have done it without her reminder. Can I just say those chairs which recline into beds are HORRENDOUS? I was in so much pain I couldn't sleep even if the nurses had left dd alonethrough the night. I will definitely bring an air mattress if I ever have to do that again. :grouphug::grouphug::grouphug: Edited August 26, 2012 by Denisemomof4 Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted August 26, 2012 Share Posted August 26, 2012 I hope your dd stays off the oxygen tonight!!! Quote Link to comment Share on other sites More sharing options...
chickenpatty Posted August 26, 2012 Share Posted August 26, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Soror Posted August 26, 2012 Share Posted August 26, 2012 :grouphug::grouphug::grouphug::grouphug::grouphug: I hope things are going better today. I wish that someone was closer to help you. Quote Link to comment Share on other sites More sharing options...
Tiramisu Posted August 26, 2012 Share Posted August 26, 2012 Oh my. Gosh! That is SOOOOOOOOO hard. I had to call dh at 3:30 in the morning to relieve me but we are only 20 - 25 minutes away. Can you get someone to sit with your dd in the hospital so you can sleep? A five hour nap after three nights with no sleep, broken sleep for a week beforehand, made a HUGE difference for me. :grouphug::grouphug::grouphug: Also, get some snacks and bottled water to keep in the room. Hospital cafeteria food is cheap and some of it is pretty good..... At least at our hospitals. I had a very nice poster here tell me how important taking care of muself was and she was ABSOLUTELY right. Some food ant that one break made a WORLD of difference. I probably wouldn't have done it without her reminder. Can I just say those chairs which recline into beds are HORRENDOUS? I was in so much pain I couldn't sleep even if the nurses had left dd alonethrough the night. I will definitely bring an air mattress if I ever have to do that again. :grouphug::grouphug::grouphug: One night, my body started jerking uncontrollably because I was so overtired and so stressed. I asked permission from dd's nurse to take a mild tranquilizer that my own doctor had given me in case the stress of sitting through dd's eight hour surgery became too much for me. She totally sympathized and told me to go for it. I actually slept for a few hours on the pull out chair and felt much more like a normal human being afterward. We were at a pediatric hospital and they actually had sleeping rooms for parents--only I didn't realize it until after we were sent home! Have someone bring you some Ensure or Boost. I recently had to do that for a friend whose dd was admitted and she said it really helped. It's not real food, but it can help a little. Dehydration and fatigue can leave you really overwhelmed and make the situation seem even worse than it is--as if it could really get any worse! :grouphug: Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted August 26, 2012 Share Posted August 26, 2012 (edited) I think it's awful that our hospital didn't have better options for parents. Kids need their parents to stay. We chose the hospital 10 minutes further away because they have a pediatric floor. No amenities AT ALL.:glare: Edited August 26, 2012 by Denisemomof4 Quote Link to comment Share on other sites More sharing options...
Tammi K Posted August 26, 2012 Share Posted August 26, 2012 Here's hoping today brings peace and healing. :grouphug: Quote Link to comment Share on other sites More sharing options...
IsabelC Posted August 27, 2012 Share Posted August 27, 2012 How is she? Are you home yet? Quote Link to comment Share on other sites More sharing options...
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