Junie Posted October 4, 2016 Share Posted October 4, 2016 :grouphug: Quote Link to comment Share on other sites More sharing options...
BlessedMom Posted October 4, 2016 Share Posted October 4, 2016 Poor sweetie! I am sorry she has been so sick. Hoping she improves soon and that you get some answers. Quote Link to comment Share on other sites More sharing options...
trulycrabby Posted October 4, 2016 Share Posted October 4, 2016 If her symptoms worsen in the night, my advice is to take her to the er again even though you have an appointment in the morning. Something is wrong here, and I think she needs a CT to rule out abdominal obstruction, diverticulitus, appendicitis that was missed by the abdominal ultrasound, or several other things. 4 Quote Link to comment Share on other sites More sharing options...
JFSinIL Posted October 5, 2016 Share Posted October 5, 2016 (edited) I agree with trulycrabby. If naught else, she must be getting dehydrated by now. Poor kid :-( I have my now adult son with autism on daily Miralax (with Gatorade! Great minds think alike!) as he is largely non-verbal at home and can easily get clogged up - when constipated he does act miserable, vomits, loses appetite, etc. I have been to the ER with him and had him scanned and been told he is totally clogged up. That is when I add Milk of Magnesia (in pill form as he refuses the liquid and I don't blame him) and bits of an ex-lax bar. Eventually the "plumbing" gets unclogged. But your dd is vomiting far more than my ds ever did, so I think even if constipation is part of the problem, it is not the only problem. It is just a side problem. Edited October 5, 2016 by JFSinIL Quote Link to comment Share on other sites More sharing options...
amo_mea_filiis. Posted October 5, 2016 Share Posted October 5, 2016 How much miralax did they say to give? My kids'GI will have us do a bottle of magnesium citrate if things get bad. Quote Link to comment Share on other sites More sharing options...
Joyofsixreboot Posted October 5, 2016 Share Posted October 5, 2016 I'm just so sorry for you both. I know how worried you must be. I would be prepared to have a hissy fit, get her admitted for IV's and a GI doc ASAP. Prayers for you both. 4 Quote Link to comment Share on other sites More sharing options...
Selkie Posted October 5, 2016 Share Posted October 5, 2016 I'm so sorry! It must be so frustrating and worrisome to not know what is causing this or how to make your daughter feel better. I hope she gets some relief soon! Quote Link to comment Share on other sites More sharing options...
happi duck Posted October 5, 2016 Share Posted October 5, 2016 (hugs) Quote Link to comment Share on other sites More sharing options...
6packofun Posted October 5, 2016 Share Posted October 5, 2016 I'm so sorry. I pray you get some QUICK answers!! Quote Link to comment Share on other sites More sharing options...
Kerileanne99 Posted October 5, 2016 Share Posted October 5, 2016 I'm just so sorry for you both. I know how worried you must be. I would be prepared to have a hissy fit, get her admitted for IV's and a GI doc ASAP. Prayers for you both. Yes, thinking this totally warrants a hissy fit if necessary! Poor kid has got to be dehydrated and miserable. If you can get her admitted, they tests can be done more quickly. Good luck, and hope you guys get some answers/results soon:( 2 Quote Link to comment Share on other sites More sharing options...
HeWillSoar Posted October 5, 2016 Share Posted October 5, 2016 I'm really sorry you and your daughter are going through this right now. I hope you get some answers soon. This has been going on for too long. Quote Link to comment Share on other sites More sharing options...
maize Posted October 5, 2016 Share Posted October 5, 2016 (edited) I've got no advice but really hope you are able to get in to see the right specialists and find some answers and resolution soon. Your poor little girl :( Edited October 5, 2016 by maize Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 5, 2016 Author Share Posted October 5, 2016 After this morning's visit, we are considering a Zoloft side effect. We added Zofran and will taper off Zoloft. If that doesn't stop the vomiting, then we know it's something else. Ruled out: Appendicitis Bowel obstruction Virus Dd has not lost weight, which surprises me given how little she's been able to keep down. 2 Quote Link to comment Share on other sites More sharing options...
maize Posted October 5, 2016 Share Posted October 5, 2016 This is interesting, has she been on the Zoloft long? It would be nice if getting her off the medication resolves the problem. Have they looked into celiac? Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 5, 2016 Author Share Posted October 5, 2016 This is interesting, has she been on the Zoloft long? It would be nice if getting her off the medication resolves the problem. Have they looked into celiac? She started Zoloft a month ago. We will investigate celiac/other things if this doesn't fix it. 4 Quote Link to comment Share on other sites More sharing options...
aaplank Posted October 6, 2016 Share Posted October 6, 2016 Any updates? Your daughter is weighing heavy on my mind. I hope she's better. Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 8, 2016 Author Share Posted October 8, 2016 She hasn't thrown up today. Fingers crossed this is over. 12 Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted October 8, 2016 Share Posted October 8, 2016 That is a real blessing. Quote Link to comment Share on other sites More sharing options...
RioSamba Posted October 8, 2016 Share Posted October 8, 2016 Wonderful news! Quote Link to comment Share on other sites More sharing options...
aaplank Posted October 9, 2016 Share Posted October 9, 2016 Thanks for the update! So glad for the improvement. Before my daughter was diagnosed with FPIES, they ruled out Cyclic Vomitting Syndrome. You might want to check it out. https://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/cyclic-vomiting-syndrome/Pages/facts.aspx#what Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 9, 2016 Author Share Posted October 9, 2016 *sigh* She just threw up again. :( Quote Link to comment Share on other sites More sharing options...
Lawana Posted October 9, 2016 Share Posted October 9, 2016 Oh no. It must be so frustrating for both of you. Quote Link to comment Share on other sites More sharing options...
maize Posted October 9, 2016 Share Posted October 9, 2016 Oh no :( Poor kid, I hope you get answers soon. Quote Link to comment Share on other sites More sharing options...
Pawz4me Posted October 9, 2016 Share Posted October 9, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
PinkTulip Posted October 9, 2016 Share Posted October 9, 2016 (edited) Shoot! I'm so sorry to see this. I hope you get called in off the cancellation list for your GI soon. In the meantime, I would keep track of what she is eating and her activities: times, etc. and how it relates to her vomiting. Hopefully you can start seeing some patterns that will help you figure things out. Edited October 9, 2016 by PinkTulip 1 Quote Link to comment Share on other sites More sharing options...
UCF612 Posted October 10, 2016 Share Posted October 10, 2016 Thanks for the update! So glad for the improvement. Before my daughter was diagnosed with FPIES, they ruled out Cyclic Vomitting Syndrome. You might want to check it out. https://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/cyclic-vomiting-syndrome/Pages/facts.aspx#what My friend's son was diagnosed with this a few years ago. He suffered for over a year then a nurse asked if he'd ever been tested for diabetes. Turned out he was actually diabetic and was going through vomiting cycles related to blood sugar drops. Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 10, 2016 Author Share Posted October 10, 2016 We already have an appointment for tomorrow. I want to at least do some blood tests to see if there is anything to explain what's happening. It was only a guess that she was reacting to the Zoloft. She had a quarter dose Friday morning, but I haven't given her any meds of any kind since then. I understand that Zoloft will take at least a week to completely clear, but a pharmacist friend of mine said most of it would clear within the first three days. We wrote down approximate times and foods she ate today and I asked her to keep a record going forward. She can't function like this. She's missed two full weeks of school. She can't go to social events. It's terrible. :( 3 Quote Link to comment Share on other sites More sharing options...
umsami Posted October 10, 2016 Share Posted October 10, 2016 Regarding possible chronic constipation and Miralax, my eldest was/is prone to this. He had encopresis from it as well. When he got backed up, we would do basically a small bottle of Miralax over the course of a day....mixed with Gatorade. Sometimes even Fleet enemas as well. It would take that much to get him going. The "normal" dose 1x or 2x/day was just a maintenance dose. Here are some other regimes from various pediatric specialists: http://www.choc.org/programs-services/gastroenterology/bowel-clean-out-with-miralax/ Seattle Children's is similar but they also add Dulcolax. Another pediatric group http://www.legacypediatrics.com/parent-guide/child-behavior/younger-children/bowel-cleanout/ Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted October 10, 2016 Share Posted October 10, 2016 I hope you get some answers today. Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 10, 2016 Author Share Posted October 10, 2016 Day 16: We're checking antibodies for celiac and thyroid (because I have autoimmune thyroid disease). We're also going to try a migraine medication. Follow up appointment on Wednesday. 4 Quote Link to comment Share on other sites More sharing options...
Lilaclady Posted October 10, 2016 Share Posted October 10, 2016 Hoping you get some answers soon. (((((((Hugs))))))) to you and your dd Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 11, 2016 Author Share Posted October 11, 2016 My poor girl is so tired of being sick. She's had visual disturbance (associated with headache), which is why we started trying a migraine med today. Maxalt made her headache go away, but she still threw up a couple of hours later. A couple of hours after that, she threw up again (no food in between times). The headache returned, so I just gave her another dose of Maxalt. Hopefully she will get some sleep. No doubt, she will wake at least once to be sick. 😥 The longer this goes on, the more worried I get about what's wrong. As we rule things out, the scarier or more life-altering explanations are the ones that remain. Quote Link to comment Share on other sites More sharing options...
sbgrace Posted October 11, 2016 Share Posted October 11, 2016 :grouphug: I'm really sorry the med change didn't stop this for her. I can't imagine feeling like that so long :crying: . I hope the answer comes soon, and it's not life-altering. Quote Link to comment Share on other sites More sharing options...
Starr Posted October 11, 2016 Share Posted October 11, 2016 I am so sorry. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
PinkyandtheBrains. Posted October 11, 2016 Share Posted October 11, 2016 I hope you find answers soon. Poor kiddo :( Quote Link to comment Share on other sites More sharing options...
gardenmom5 Posted October 11, 2016 Share Posted October 11, 2016 :grouphug: no suggestions, but I sympathize. 1ds had something similar that went on and off for many months before we got a diagnosis. including trips to the ER, IM narcotics and IVs for hydration. he had a pinched nerve from a fractured vertebra. (the drs ignored the fracture because it was healed.). Quote Link to comment Share on other sites More sharing options...
Joyofsixreboot Posted October 11, 2016 Share Posted October 11, 2016 I'm praying for her. And you. It's hard to be sick and it's hard to love and worry about the one who is sick. Quote Link to comment Share on other sites More sharing options...
UCF612 Posted October 11, 2016 Share Posted October 11, 2016 I'm sorry this isn't ending for you guys. My heart aches for both of you. The only thing as hard as being the one who is sick is bring the mom sick with worry. Quote Link to comment Share on other sites More sharing options...
Another Lynn Posted October 11, 2016 Share Posted October 11, 2016 :grouphug: :grouphug: :grouphug: Hoping your appt Wednesday gives you answers. Quote Link to comment Share on other sites More sharing options...
38carrots Posted October 11, 2016 Share Posted October 11, 2016 :grouphug: Quote Link to comment Share on other sites More sharing options...
mysticmomma Posted October 11, 2016 Share Posted October 11, 2016 I'm so sorry. It may be helpful to get copies of labs, films and radiology reports to refer to or show specialists. Quote Link to comment Share on other sites More sharing options...
EKS Posted October 11, 2016 Share Posted October 11, 2016 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
displace Posted October 11, 2016 Share Posted October 11, 2016 (edited) I'm sorry you're all going through this. Just throwing it out there to see if they checked for H. Pylori infection. It'd be pretty unusual to have so much vomiting but you never know. If you're seeing a pediatric GI then at least you're in the right place. Edited October 11, 2016 by displace Quote Link to comment Share on other sites More sharing options...
RioSamba Posted October 11, 2016 Share Posted October 11, 2016 I'm so sorry, how miserable. I hope your appointment gives you a diagnosis. Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 11, 2016 Author Share Posted October 11, 2016 (edited) I'm not sure the migraine med is doing much. She's still throwing up. Her headache woke her first (with blurry vision), then she puked, then her head and eyes felt better. Trying chicken broth for breakfast. Edited October 11, 2016 by Veritaserum 1 Quote Link to comment Share on other sites More sharing options...
mommytobees Posted October 11, 2016 Share Posted October 11, 2016 This may sound like an odd question, but have any of the doctors done a neuro exam? Kris 4 Quote Link to comment Share on other sites More sharing options...
LifeLovePassion Posted October 11, 2016 Share Posted October 11, 2016 Also echoing the blood sugar check suggestion. I hope you find answers soon. Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 11, 2016 Author Share Posted October 11, 2016 They've checked blood sugar. It's very unlikely to be diabetes at this point. She has not had a neuro exam. I'll ask for more things tomorrow. 1 Quote Link to comment Share on other sites More sharing options...
melmichigan Posted October 11, 2016 Share Posted October 11, 2016 (edited) Has she been checked for serotonin syndrome? This a are major, all be it rare, side effect when you combine or even take some of the medication you are talking about. Zoloft on it's own. Zoloft+Maxalt, Zofran+Maxalt. I have no knowledge of her other meds, but others can contribute, even vitamins and supplements. Blurred vision, headaches, nausea, vomiting, diarrhea or constipation, etc. can all be signs. The timeline you mention could work, and the meds you are using to relive symptoms could continue the cycle. Edited October 11, 2016 by melmichigan 2 Quote Link to comment Share on other sites More sharing options...
Veritaserum Posted October 11, 2016 Author Share Posted October 11, 2016 (edited) We've discussed serotonin syndrome. She hasn't had Zoloft or Zofran since Friday morning. She did have Maxalt twice last night, but this list symptoms from the Mayo Clinic doesn't fit: http://www.mayoclinic.org/diseases-conditions/serotonin-syndrome/basics/symptoms/con-20028946 She threw up again an hour and a half ago. At this point it seems predictably worst between 4pm - 7am (3-5 episodes most evenings/nights). Edited October 11, 2016 by Veritaserum 1 Quote Link to comment Share on other sites More sharing options...
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