BlsdMama Posted July 16, 2020 Share Posted July 16, 2020 I'm nothing but a mess this morning. I woke up with a dream of having lost my voice. It's one of those things that does happen with this disease but I fear this more than all the rest of the things. I woke up sobbing this morning and restarted each time a kid woke up and wished me good morning. My voice cracked a few times this week and it's probably from the dust of sanding cabinet doors, lol, and I'm probably just being overtired and silly. But, still, it serves as a reminder and it's something I don't want to think about. Yet, here I am, with my head all in that instead of anything useful or purposeful. Pray for me this morning? I am feeling pretty off kilter this morning and can't seem to get my head centered on the here and now like I usually can. We've got a ton planned for today, thank goodness. DH is off work and we're doing all the things. I just need to get out of my head! 8 26 Quote Link to comment Share on other sites More sharing options...
marbel Posted July 16, 2020 Share Posted July 16, 2020 Oh, I'm so sorry. You are in my prayers this morning. Quote Link to comment Share on other sites More sharing options...
DoraBora Posted July 16, 2020 Share Posted July 16, 2020 I am praying for you. 1 Quote Link to comment Share on other sites More sharing options...
Selkie Posted July 16, 2020 Share Posted July 16, 2020 (((Kelly))) Quote Link to comment Share on other sites More sharing options...
Zoo Keeper Posted July 16, 2020 Share Posted July 16, 2020 Praying for you. Quote Link to comment Share on other sites More sharing options...
Just Kate Posted July 16, 2020 Share Posted July 16, 2020 Praying for you right now. Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted July 16, 2020 Share Posted July 16, 2020 praying..hugs Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted July 16, 2020 Share Posted July 16, 2020 Sending prayers and hugs to you this morning. Quote Link to comment Share on other sites More sharing options...
Random Posted July 16, 2020 Share Posted July 16, 2020 I will pray for you, too. Quote Link to comment Share on other sites More sharing options...
cintinative Posted July 16, 2020 Share Posted July 16, 2020 Praying. This is a heavy load you are carrying, and of course, there will be times when the future will seem overwhelming. Matthew 11:28-30 ESV : 28 "Come to me, all who labor and are heavy laden, and I will give you rest. 29 Take my yoke upon you, and learn from me, for I am gentle and lowly in heart, and you will find rest for your souls. 30 For my yoke is easy, and my burden is light.” "A yoke is a wooden beam normally used between a pair of oxen or other animals to enable them to pull together on a load when working in pairs" He is plowing this hard ground beside you. 4 Quote Link to comment Share on other sites More sharing options...
ktgrok Posted July 16, 2020 Share Posted July 16, 2020 Praying for peace for you. Quote Link to comment Share on other sites More sharing options...
TheReader Posted July 16, 2020 Share Posted July 16, 2020 (((hugs & prayers))) Quote Link to comment Share on other sites More sharing options...
RootAnn Posted July 16, 2020 Share Posted July 16, 2020 Prayers for you. Quote Link to comment Share on other sites More sharing options...
Pen Posted July 16, 2020 Share Posted July 16, 2020 Praying Quote Link to comment Share on other sites More sharing options...
hjffkj Posted July 16, 2020 Share Posted July 16, 2020 praying Quote Link to comment Share on other sites More sharing options...
mumto2 Posted July 16, 2020 Share Posted July 16, 2020 Praying........sending hugs too. Quote Link to comment Share on other sites More sharing options...
almondbutterandjelly Posted July 16, 2020 Share Posted July 16, 2020 praying Quote Link to comment Share on other sites More sharing options...
sangtarah Posted July 16, 2020 Share Posted July 16, 2020 Praying for you. Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted July 16, 2020 Share Posted July 16, 2020 Yes, praying for you this morning. It can be really hard to clear those dream vapors. Hugs. Quote Link to comment Share on other sites More sharing options...
sbgrace Posted July 16, 2020 Share Posted July 16, 2020 Praying for you. Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted July 16, 2020 Share Posted July 16, 2020 Lifting you up in prayer. May you have a blessed day with your family. Quote Link to comment Share on other sites More sharing options...
Denise in IN Posted July 16, 2020 Share Posted July 16, 2020 Praying for you right now! Quote Link to comment Share on other sites More sharing options...
math teacher Posted July 17, 2020 Share Posted July 17, 2020 Praying Quote Link to comment Share on other sites More sharing options...
BlsdMama Posted July 17, 2020 Author Share Posted July 17, 2020 4 hours ago, CuriousMomof3 said: I am so sorry you are going through this. I am praying for peace for you. Have you started learning AAC, or working to develop skills now so that you are prepared when you need them? My middle son lost most of his ability to speak last December, we were really fortunate that we had the opportunity to practice AAC skills before that, and as a result he already had some fluency, and we were able to get him communicating pretty quickly, it made a very difficult time a little easier. Please feel free to reach out if you want to hear a little about what we did, and about some of my experiences with various AAC options. Thank you all so much for the prayers It was a truly good day from start to finish. ❤️ This is the hardest part of what I’m struggling through and the unpredictable progression. I wish it would follow a route, but then again, my progression has largely been slow so I guess I’m glad it hasn’t been predictable! Curious Mom, my communication will need to be via gaze. I am supposed to record my voice and I’ve been putting it off. I need to just tackle it. With ALS, we also lose all body movements, so we’re very limited in our options. I have played with gaze software in a university class I took a couple years ago in adaptive technology. It was clumsy and as much as I should practice, I will not. I love my life and just can’t force myself to think of the “when” any sooner than I’m forced right now. After diagnosis I came to terms with the idea that I’m dying. But, lately, I’ve really felt like I’m living with ALS. We are not on friendly terms but I can suffer her and her afflictions and still enjoy life. I cannot fathom not speaking to my littles. I think sometimes that is worse than death by far. Some days this disease is too big for me. But God. Thank you so very much for your prayers. This morning was very hard for me and not all that easy on the ones who understood the tears. 8 Quote Link to comment Share on other sites More sharing options...
Junie Posted July 17, 2020 Share Posted July 17, 2020 Praying for you. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted July 17, 2020 Share Posted July 17, 2020 Hugs Quote Link to comment Share on other sites More sharing options...
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