bethben Posted November 5, 2013 Share Posted November 5, 2013 Post made dh nervous so it's been deleted. Beth Quote Link to comment Share on other sites More sharing options...
Catwoman Posted November 5, 2013 Share Posted November 5, 2013 :grouphug: :grouphug: :grouphug: I'm so sorry you guys are going through such a rough time. :( Quote Link to comment Share on other sites More sharing options...
elegantlion Posted November 5, 2013 Share Posted November 5, 2013 (((Beth))) :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
gardenmom5 Posted November 5, 2013 Share Posted November 5, 2013 :grouphug: btdt. I hope things get better for you. Quote Link to comment Share on other sites More sharing options...
Ripley Posted November 5, 2013 Share Posted November 5, 2013 It's a horrible feeling, to feel like you're trapped and every side is closing in on you. I don't have any answers, just support and sympathy for your struggle. I hope something comes along soon to bring your family some relief. ((hugs)) Quote Link to comment Share on other sites More sharing options...
Lara in Colo Posted November 5, 2013 Share Posted November 5, 2013 I listened, so you were heard. My heart breaks for you and yours. I wish I could give you a hug and a cup of cocoa and just listen some more. Lara Quote Link to comment Share on other sites More sharing options...
gingersmom Posted November 5, 2013 Share Posted November 5, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
regentrude Posted November 5, 2013 Share Posted November 5, 2013 I am sorry. No advice, just good thoughts for you and your family. Quote Link to comment Share on other sites More sharing options...
Chris in VA Posted November 5, 2013 Share Posted November 5, 2013 Vent away, any time. So many hugs to you--wish they helped. Quote Link to comment Share on other sites More sharing options...
fraidycat Posted November 5, 2013 Share Posted November 5, 2013 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
bolt. Posted November 5, 2013 Share Posted November 5, 2013 I'm sorry. That's crummy. I'm mad that societies don't always take disabilities seriously. Quote Link to comment Share on other sites More sharing options...
zimom Posted November 5, 2013 Share Posted November 5, 2013 Hugs. I do hear you and I understand as best possible. We have a child with medical needs (adopted also) and we would be in a similar predicament if it were not for an angel of a provider we found for her several years ago that helped us out considerably financially when our insurance would not. One of my soap boxes is SSI/SSDI for kids. I'm sure you probably understand. Quote Link to comment Share on other sites More sharing options...
Tap Posted November 5, 2013 Share Posted November 5, 2013 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Guest submarines Posted November 5, 2013 Share Posted November 5, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Tammyla Posted November 5, 2013 Share Posted November 5, 2013 :grouphug: I wish I had something to make it better somehow. I hope something works out soon for your family. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted November 5, 2013 Share Posted November 5, 2013 Super big hugs. I could identify with a lot of your post. I hope a way is made open and clear before you. Quote Link to comment Share on other sites More sharing options...
Jaz Posted November 5, 2013 Share Posted November 5, 2013 I'm sorry it's so tough right now. Quote Link to comment Share on other sites More sharing options...
celticmom Posted November 6, 2013 Share Posted November 6, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
Sparkle Posted November 6, 2013 Share Posted November 6, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
Lilaclady Posted November 6, 2013 Share Posted November 6, 2013 :grouphug: :grouphug: so sorry you guys are going through this, hoping for a reprieve very soon. Quote Link to comment Share on other sites More sharing options...
Tammi K Posted November 6, 2013 Share Posted November 6, 2013 I so sorry. I wish I had answers. A cyber hug :grouphug: doesn't seem like much but know that I'll be praying for you. I wish you didn't have to fight so hard. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted November 6, 2013 Share Posted November 6, 2013 :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: Vent away, we are hearing you Quote Link to comment Share on other sites More sharing options...
creekland Posted November 6, 2013 Share Posted November 6, 2013 I'm listening too. Wish i had an answer. Vent anytime. We'll listen. My thoughts exactly. Huge :grouphug: from here. And feel free to vent anytime. I wish your hubby's current job could restore his salary. Is there any chance of that if the economy improves? Quote Link to comment Share on other sites More sharing options...
unsinkable Posted November 6, 2013 Share Posted November 6, 2013 (((Beth))) I am sorry I can't do more than read and sympathize. Quote Link to comment Share on other sites More sharing options...
Danestress Posted November 6, 2013 Share Posted November 6, 2013 I hear you girl. I kept thinking about you yesterday. Quote Link to comment Share on other sites More sharing options...
bethben Posted November 6, 2013 Author Share Posted November 6, 2013 My husband's company felt like he and some others in his company were making too much for their positions, so a bunch got pay cuts or had their salaries capped. So, even when my husband gets excellent reviews for his job, he doesnt get a cost of living increase either because his salary has also been capped. The company is doing financially very well. Quote Link to comment Share on other sites More sharing options...
KungFuPanda Posted November 6, 2013 Share Posted November 6, 2013 I feel your pain. I'm currently in the market for a vehicle with a ramp for DSs power chair. The sticker shock may kill me. We're transferring in and out of a sedan now and using his manual chair when we go out, but that is no longer ideal for him or me. He's catching up to me weight-wise, so I won't be able to do this much longer. We bought a two story house before my son was diagnosed. We got VERY lucky with the donation of a stairlift through the MDA. Still, I would love to live on a single story some day. We do have a roll-in shower that we put in AFTER A TREE CRUSHED OUR HOUSE. That was traumatic. Add to that DH was furloughed for a week, then missed 3 more days to stay home with DS because I was hospitalized with a kidney infection two weeks ago. We definitely have days (weeks? years?) where we wonder why the Universe has it in for us. Oh, and our daughter will go to college next year and plans A, B, and C to pay for it have not panned out. We lived through a two-year unemployment when the economy tanked because NOBODY was willing to under-employ DH and nobody was hiring at this level. (This happened right after DS was diagnosed with muscular dystrophy, so we were a bit of a mess.) It's all maddening. It makes me wonder if we were a family of puppy kickers in a former life or something. Yep, I feel your pain and I wouldn't wish it on anyone. Quote Link to comment Share on other sites More sharing options...
bethben Posted November 6, 2013 Author Share Posted November 6, 2013 Too bad I didn't know about your van needs last month. We had a low mileage ramp van with some rust that we sold for what it was actually worth rather than a jacked up price. Those vans are ridiculously over priced. Yes! I'll take a used mini rampvan with over 100k miles on it for $30k! That's a steal! Insane. Everything in this industry is grossly overpriced. I just priced out a chair lift on a non-straight stairway. Since it's "custom", they'll charge us minimum $20k. For a cheapy seat on a rail. And now let's extensively tax overpriced medical equipment! That should really help disabled people get around and take care of basic needs even easier. Makes sense...yes, I'm getting a little bitter. Quote Link to comment Share on other sites More sharing options...
KungFuPanda Posted November 6, 2013 Share Posted November 6, 2013 Too bad I didn't know about your van needs last month. We had a low mileage ramp van with some rust that we sold for what it was actually worth rather than a jacked up price. Those vans are ridiculously over priced. Yes! I'll take a used mini rampvan with over 100k miles on it for $30k! That's a steal! Insane. Everything in this industry is grossly overpriced. I just priced out a chair lift on a non-straight stairway. Since it's "custom", they'll charge us minimum $20k. For a cheapy seat on a rail. And now let's extensively tax overpriced medical equipment! That should really help disabled people get around and take care of basic needs even easier. Makes sense...yes, I'm getting a little bitter. We've only started needing heavy equipment a few years ago, so we're still learning. I swear I want to sell our house and move into an accessible senior community, but we're not nearly old enough :-/ If you don't mind my asking, HOW did you decide which and what type of vehicle to get? My head is spinning from it all. Side entry, rear entry, mini van, full van, dodge, Honda, Chrysler, ford. Ugh! I hate it. Quote Link to comment Share on other sites More sharing options...
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