Elizabeth in MN Posted May 15, 2012 Share Posted May 15, 2012 I'd love to know or see who all is dealing with Autism Spectrum Disorder. My dd, 11.5, just was diagnosed last week. Right now I'm feeling a bit alone and a lot lost. Going through the pages of this sub-board is a bit confusing because of different people using different terminology. The new diagnostic criteria doesn't help matters, either. So Hi, I'm Elizabeth and my daughter has ASD. :grouphug: Quote Link to comment Share on other sites More sharing options...
Twilight Woods Posted May 15, 2012 Share Posted May 15, 2012 "Aspergers" here. DD 6. :) Quote Link to comment Share on other sites More sharing options...
Dandelion Posted May 15, 2012 Share Posted May 15, 2012 DS8 has Asperger's. Hope you find the support and answers you need to shake that "alone and lost" feeling soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
TippyCanoe Posted May 15, 2012 Share Posted May 15, 2012 . Quote Link to comment Share on other sites More sharing options...
frugalmama Posted May 15, 2012 Share Posted May 15, 2012 Suspected Asperger's / ASD here - dd age almost 6. We are just starting down the path to an official diagnosis. Quote Link to comment Share on other sites More sharing options...
MomatHWTK Posted May 15, 2012 Share Posted May 15, 2012 We got a lot of "NOS" instead of the Asperger's dx. Doctor doesn't want to commit until the mood issues are under control. I think maybe she's thinking that he would look less Aspie if they were. I think the Aspie is showing more now that the mood stuff is getting worked out. I have not read it yet, but lots of BTDT moms recommend the autism book by Tony Attwood. Here's a central website with resources: http://aspergersyndrome.org/ Also visit Autism Speaks. Quote Link to comment Share on other sites More sharing options...
rafiki Posted May 15, 2012 Share Posted May 15, 2012 . Quote Link to comment Share on other sites More sharing options...
hsmamainva Posted May 15, 2012 Share Posted May 15, 2012 I have an 18yo son with Aspergers (diagnosed at age 6) I also have a 10yo daughter with Autism & mixed receptive expressive language disorder (diagnosed at age 3) Quote Link to comment Share on other sites More sharing options...
chiguirre Posted May 16, 2012 Share Posted May 16, 2012 Greg Wiggle is moderately autistic, somewhat verbal (he uses speech to communicate, but it's not fluent). Geezle has hf autism and talks my ear off. He's struggling to learn to write and do math, but he can read pretty well now. Quote Link to comment Share on other sites More sharing options...
Crimson Wife Posted May 16, 2012 Share Posted May 16, 2012 My youngest was diagnosed with autism back in December at 2 yrs. 11 mos. At that point, she was moderately impaired, but the developmental pediatrician said that when she's older and her speech & language have developed more, she'll most likely present similar to an Aspie. Quote Link to comment Share on other sites More sharing options...
Cortana Posted May 16, 2012 Share Posted May 16, 2012 Our 10yo ds has high-functioning autism (dx at age 6). Our 12yo ds has down syndrome. Our 3yo dd has speech and cognitive delays and we suspect possible ADHD. Quote Link to comment Share on other sites More sharing options...
Finnella Posted May 16, 2012 Share Posted May 16, 2012 13 yo old Aspie here Quote Link to comment Share on other sites More sharing options...
Nature Posted May 16, 2012 Share Posted May 16, 2012 Teenage son with Asperger's. Quote Link to comment Share on other sites More sharing options...
Misty Posted May 16, 2012 Share Posted May 16, 2012 3 daughters diagnosed with Asperger's... 14, 11, & almost 9. 5 1/2 yr old son not on the spectrum. Quote Link to comment Share on other sites More sharing options...
Amirah Posted May 16, 2012 Share Posted May 16, 2012 3 yr old non verbal waiting on a official diagnosis ( we will get wait listed for an assessment will take 14 months -2yrs) unofficial diagnosis low functioning Autism. he is actually getting worse by the day Quote Link to comment Share on other sites More sharing options...
MamaSheep Posted May 16, 2012 Share Posted May 16, 2012 Ds just turned 15, and was diagnosed with Asperger's when he was 5. Quote Link to comment Share on other sites More sharing options...
Jennifer-72 Posted May 16, 2012 Share Posted May 16, 2012 Ds7 was dx as PDD-NOS at 2 1/2. Quote Link to comment Share on other sites More sharing options...
specialmama Posted May 16, 2012 Share Posted May 16, 2012 My boy has classic autism, or what autism used to look like before the umbrella. He will be 11 soon, and was dx'd a few days before his second birthday. Quote Link to comment Share on other sites More sharing options...
ClassicMom Posted May 16, 2012 Share Posted May 16, 2012 9yo son with ASD, ADHD, and OCD here. You are not alone. Quote Link to comment Share on other sites More sharing options...
houseofkids&pets Posted May 16, 2012 Share Posted May 16, 2012 DS12 was diagnosed with PDD-NOS at 3.5 years old. Our autism consultant commented that he would probably meet the criteria for a diagnosis of autism now. DS9 is quirky due to social anxiety issues, but is not on the spectrum. He was been diagnosed with dyslexia, dyscalculia, and dysgraphia last June. DD12 is doing great academically, but is having more issues with what appears to be anxiety and OCD. We are currently looking for a therapist/psychologist to address her needs. Brain wiring is so complex!! Quote Link to comment Share on other sites More sharing options...
Kathryn Posted May 16, 2012 Share Posted May 16, 2012 DS6 was diagnosed with autism last year in March and called "high functioning" because his IQ was above average. Quote Link to comment Share on other sites More sharing options...
prissygirls Posted May 16, 2012 Share Posted May 16, 2012 My eight year old dd is diag. PDD-Nos. She just got diagnosed this Feb. So I often feel alone and overwhelmed. Quote Link to comment Share on other sites More sharing options...
AmyinMD Posted May 16, 2012 Share Posted May 16, 2012 My 4 yo has an Autism diagnosis. He was diagnosed just after turning 3. He's lower functioning and has almost no verbal ability beyond some labeling. When he was first diagnosed we were led to believe he was moderate but he's just gotten worse over time. His language is worse today than it was 2 years ago. He attends public school because his needs are so great I just cannot meet them with having other children I'm homeschooling. He really requires one on one support. He's currently in a mod/high functioning class and they are trying to move him to a severe classroom. It has 1 teacher, 5 assistants, a SLP, and OT for 8 children. Quote Link to comment Share on other sites More sharing options...
SkateLeft Posted May 16, 2012 Share Posted May 16, 2012 My son was originally diagnosed with ASD around 2yo. He had no spontaneous language until almost 4. We know now more about the medical causes underlying my son's DX, so we don't offer refer to his ASD diagnosis anymore. Up until this year, he was in the public school special ed system, and had an active IEP under the autism criteria. He currently receives private speech, OT, developmental services and adaptive PE. Quote Link to comment Share on other sites More sharing options...
PrincessAriel Posted May 16, 2012 Share Posted May 16, 2012 nt Quote Link to comment Share on other sites More sharing options...
Aoife Posted May 16, 2012 Share Posted May 16, 2012 my 5yo is a high functioning autistic Quote Link to comment Share on other sites More sharing options...
MomatHWTK Posted May 16, 2012 Share Posted May 16, 2012 I read this article last week regarding play therapy for autism: http://online.wsj.com/article/SB10001424052702304451104577389893715036310.html If you go to the website of the hospital mentioned in the article there are more resources and information. Quote Link to comment Share on other sites More sharing options...
melmichigan Posted May 16, 2012 Share Posted May 16, 2012 One DD is diagnosed Gifted w/AS (it is different than just AS according to the specialists). Another DD is PDD-NOS. With another DD everything now falls under her CP diagnoses. I have no idea what all that will mean with the new criteria. Quote Link to comment Share on other sites More sharing options...
ravinlunachick Posted May 16, 2012 Share Posted May 16, 2012 My son is mild to moderately (depending on whom you ask) autistic. He also has apraxia, which prevents him from relying on speaking as his main form of communication. Words slip out, now and then, clear as day, but he is completely unable to reproduce them, despite getting speech therapy from 18mos-5yrs old. He primarily uses ProLoQuo on the iPad for expressive communication. He's getting much better with it, and we've been shocked to discover recently just how much he knows. He has begun reading basic sight words and names *without any instruction*! He goes to public school, although we've been conflicted over that this past year. Basically, he was in a terrible, awful placement with very low-functioning kids and a teacher who knew nothing about autism and who had essentially written him off. We argued and pressed and demanded and advocated on his behalf, and lo and behold, got a wonderful new placement for him for next year, as he begins kindergarten. We are extremely hopeful for this fall, and I look forward to working with him this summer. I love stumbling upon something he knows! He gets so excited, and claps and cheers for himself, and looks at me with those big blue eyes as if to say, "YES!!! You FINALLY get me!!" :001_wub: I ♥ that boy. Quote Link to comment Share on other sites More sharing options...
freeindeed Posted May 16, 2012 Share Posted May 16, 2012 We do not have a definite autism diagnosis yet, but we are fairly certain that our dd4 is on the spectrum. She is also visually impaired and has other developmental delays as well. Quote Link to comment Share on other sites More sharing options...
EmilyinND Posted May 16, 2012 Share Posted May 16, 2012 Asperger's DS 13 Quote Link to comment Share on other sites More sharing options...
CarolineN Posted May 17, 2012 Share Posted May 17, 2012 8yo ds- pdd-nos 5yo ds- autism 2yo ds- speech delay, suspected on the spectrum, gets weekly speech and 2x weekly toddler group for social skills I also have an 8 month old son. He's on track now, but so were the other 3. I'll probably bring him to be evaluated by Early Start sometime between 18 and 24 months. Quote Link to comment Share on other sites More sharing options...
Critterfixer Posted May 17, 2012 Share Posted May 17, 2012 One of my 8yr old ds twins was diagnosed at age 2 as autistic, suspected of being hFA. He's the most outgoing of the entire family. He's slowly showing a grudging interest in the printed word and enjoys math and building things. His current obsession are windmills and water pipes and he enjoyed building dams in the creek back when we had rain. I'm strongly suspected of being an Aspie, although I have not pursued an official diagnosis for myself. Quote Link to comment Share on other sites More sharing options...
Guest tdk316 Posted May 17, 2012 Share Posted May 17, 2012 No official diagnosis (waiting to see how the OT and speech work first) but one with sensory processing disorder (SPD), ADHD and severe anxiety and the other with other speech and SPD issues... you're not alone! Just read a good book - "Shut Up About Your Perfect Kid" - it's a lot less judgmental than the title suggests. I identified with a lot that the authors were saying, especially about their acceptance processes. It's worth a look IMHO. :001_smile: Hang in there! Quote Link to comment Share on other sites More sharing options...
Celia Posted May 17, 2012 Share Posted May 17, 2012 My 7yr old ds is on the spectrum - dx PDD-NOS. Doc said he fits aspie characteristics, except for a speech delay. He was diagnosed a year ago, and I remember the lost/overwhelmed feeling all too well. Sometimes it still hits me like a ton of bricks, but less often. You have lots of support here, so post whenever you need it! Quote Link to comment Share on other sites More sharing options...
Holly IN Posted May 17, 2012 Share Posted May 17, 2012 My daughter has High Functionig Autism. She was diagnosed when she was 3 yrs old. Holly Quote Link to comment Share on other sites More sharing options...
dsmith Posted May 17, 2012 Share Posted May 17, 2012 I have a 13yo ds with Aspergers. Quote Link to comment Share on other sites More sharing options...
cjbeach Posted May 17, 2012 Share Posted May 17, 2012 Cam the Man's mom here! 11yo Aspie with side orders of hyperlexia, dysgraphia, auditory memory issues, and Sensorimotor issues. Quote Link to comment Share on other sites More sharing options...
HSmomNY Posted May 17, 2012 Share Posted May 17, 2012 DS2 was diagnosed with classic autism at 2 . Quote Link to comment Share on other sites More sharing options...
mc26 Posted May 17, 2012 Share Posted May 17, 2012 Mom to a 9 yo Aspie here. He also has a smidge of hyperlexia, some ADD (Inattentive) and a boatload of anxiety. Quote Link to comment Share on other sites More sharing options...
Irishmommy Posted May 18, 2012 Share Posted May 18, 2012 Still waiting for more test results, but probably Aspergers. He also has ADHD and anxiety. He is extremely smart and creative. Quote Link to comment Share on other sites More sharing options...
Maverick_Mom Posted May 18, 2012 Share Posted May 18, 2012 (edited) Ds2 has Asperger's (in addition to ADHD and a seizure disorder). He is 13 and is "officially" in 6th grade -- working at grade level or above in math, reading at about a 4th grade level. He scares me with math -- although I wouldn't say he's advanced in math, he understands concepts intuitively. I'll start explaining the lesson, and he'll cut me off -- "Got it, Mom. I know how to do this." Emotionally, he's probably more like 8 or 9. He loves nature (tarantulas and sharks in particular), the Titanic, and anything related to Legos. When he's talking about subjects of interest to him, he uses this pedantic "little professor" voice and will talk your ear off. He can recite endless streams of movie dialogue ad infinitum (and ad nauseam :D). He has the lowest frustration tolerance level known to man and, although he has good days (or at least parts of days), in general he hates school. He was in ps for a year several years ago, and it was a terrible experience for him and for our family (I'm sure it was no picnic for the school, either). Over four years later, he still gets upset when talking about his time in ps. So we homeschool (which we were doing before he was diagnosed and before his year in ps), and it's the lesser of two evils for him. Anger is a problem for him; he is terribly irritable when he's frustrated and wants to punish the world. Any kind of competition upsets him. I think counseling would be a very good thing, but we're running into roadblocks with his pediatrician (who thinks meds would be better for him) and the insurance company. He may yet drive me to drink, but when he is having a good day, I couldn't be happier. Edited May 18, 2012 by Maverick_Mom Quote Link to comment Share on other sites More sharing options...
swellmomma Posted May 18, 2012 Share Posted May 18, 2012 I suspect ds13 has aspergers along with a mood disorder, so far his Dx changes constantly based on who sees him and no one can agree on a course of treatment so he remains untreated. DS8 is thought by most of those working with him that he has PDD of some sort. I have to get him the psychoeducational testing before the neurodevelopmental clinic will bother to see him. So it could be a while before that Dx comes along. Quote Link to comment Share on other sites More sharing options...
Tap Posted May 18, 2012 Share Posted May 18, 2012 Aspergers dd5 Quote Link to comment Share on other sites More sharing options...
wy_kid_wrangler04 Posted May 18, 2012 Share Posted May 18, 2012 Ds 7 was diagnosed last year at 6 with High Functioning Autism. He also has ADD, tourettes and Sensory Processing Disorder. He really REALLLLLLLLY struggles with school work. I am sure if you look you will see a rollar coaster of posts from me about him. Good days and really bad days! We are on a downward spiral currently :001_huh: Quote Link to comment Share on other sites More sharing options...
Finnella Posted May 19, 2012 Share Posted May 19, 2012 One DD is diagnosed Gifted w/AS (it is different than just AS according to the specialists). I would think it would be since someone isn't required to be Gifted in order to have an AS diagnosis. My son has the AS, the Gifted, and LDs. (I never knew that was possible.) I'm worried about the new criteria; I'm afraid my son might be stripped of his diagnosis. I guess we're "fortunate" in the sense that we still have an ADD and 3 LD diagnoses to fall back on if he needs accommodations. It still concerns me. Quote Link to comment Share on other sites More sharing options...
Verity Posted May 19, 2012 Share Posted May 19, 2012 13DS with Asperger's - Quote Link to comment Share on other sites More sharing options...
DawnM Posted May 19, 2012 Share Posted May 19, 2012 14 year old diagnosed with Asperger's and Non Specific LDs. Dawn Quote Link to comment Share on other sites More sharing options...
jolley Posted May 19, 2012 Share Posted May 19, 2012 ds 10 (diagnosed at 7) has high functioning autism and learning disorders Quote Link to comment Share on other sites More sharing options...
dalynnrmc Posted May 20, 2012 Share Posted May 20, 2012 No dx here, but 13yo highly suspected of HFA or possible Asperger's. Just starting to consider getting a dx. I'm sure gifted, dealing with anxiety, and (at least lately, not sure if it's just puberty) attention and/or forgetfulness kind of stuff.... Closest we've gotten to any dx's include the ps dx in K of semantic pragmatic disorder (language processing) and "probably a little hyperlexia." In his pK year he saw a child psych who said he was highly intelligent, reading on at least a 4th grade level (at 4 years old), and "the rest is probably just self-esteem issues, don't you think...?" Um... no...! :001_huh: It was such a relief to me when I discovered info on HFA/AS and knew that my son was really dealing with some true issues, and that it wasn't just me being a bad mom. You are not alone! Quote Link to comment Share on other sites More sharing options...
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