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Terabith

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Just now, Thatboyofmine said:

I guess we could go to one in the next town, which is def a better hospital.  
can you do that?   I mean, what does insurance think if you go further away to a different ER.  

I really don't know very much about this, but I bet you can figure this out about your insurance. It would be about "in network" vs "not in network" and not about towns, right?? Like, we use our insurance when we travel to different states.

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Without knowing his baseline it's hard.

6 minutes ago, Thatboyofmine said:

I guess we could go to one in the next town, which is def a better hospital.  
can you do that?   I mean, what does insurance think if you go further away to a different ER.  
I don't have doubt that our ER will admit him, the next dr on call did say she would admit him, but said he'd probably get better at home.   And I def feel better knowing they're full.  What a shame that I feel that way about our hospital.  We may need to do some serious thinking about the future when all this is over...  

If his albuterol is due at 9pm, I'd give it at 8:30 and contact the doctor on call. That would cover your insurance if it's out of network.  He wasn't given any steroids?

 

Edited by melmichigan
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Just now, Thatboyofmine said:

His CT scan did show pneumonia and he was sent home with another Rx for azithromyacin and keflex (sp??).   Is that what they gave you, MT?  This is his second round of azithromyocin.   
 

I guess we are just so disgusted with our ER.  When I called his doctor's office today (they sent out the nebulizer & albuterol), even the nurse said, "if you have to take him to the ER  [of our local hospital], they'll have to send him to xxx or xxx or somewhere else because our hospital is at capacity, which is a good thing for him to be sent elsewhere".   😳.  I mean, even the nurse of the number one doctors office in our town said that.  🤦🏻‍♀️

It was Azithromycin. They also gave me an inhaler-it was the kind that the twist the bottom one way and then the other. I can't remember the name, but it was over $200 even with insurance. I was already on albuteral, so they said keep taking that. They also gave my hydroxyquine or however it is spelled. And another round of oral steroids. I was also taking 91 mg baby aspirin, zinc, and vitamin c. Oh, they also put me on Mucinex Max Fast Day and Night. 

Would your DH consent to go to a different ER? 

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3 minutes ago, Thatboyofmine said:

he is talking about going to see some piece of crap dr in nearby town who is giving out hydrochloriniqie or whatever that stuff is called to whoever has covid.   His friend told him about it.   Maybe it would work?  Did they ever prove that it does do something positive?     

All indications are that it does nothing at all for serious disease. (Doesn't seem to work as preventative, either, but last I checked that's at least somewhat less well studied.) 

There are now fairly large randomized trials in the US for it showing zero effect, so I really wouldn't count on that. 

Edited by Not_a_Number
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The things I've seen that seem like they work are steroids, and also a few newer things that are probably not available in local hospitals, like the antibody cocktail and also maybe there was a promising antidepressant that seemed like it might work?? 

Also, proning is supposed to help breathe? 

I'm sorry, I'm really not a doctor, I'm just playing one on this thread 😕 . @wathe, @TCB, @Mrs Tiggywinkle, thoughts?? 

Edited by Not_a_Number
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80s are too low. And I am very conservative with treating people with oxygen(we don’t even give any until around 92% and many, many people live fine around 90 as their baseline).

Insurance only cares about mileage and closest hospital if you take an ambulance. If you drive yourself, they don’t care unless it’s an out of network situation.

80s is too low.  It doesn’t mean he’s on death’S doorstep, but it does mean that he likely needs some further treatments.

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Just now, Mrs Tiggywinkle said:

80s are too low. And I am very conservative with treating people with oxygen(we don’t even give any until around 92% and many, many people live fine around 90 as their baseline).

Insurance only cares about mileage and closest hospital if you take an ambulance. If you drive yourself, they don’t care unless it’s an out of network situation.

80s is too low.  It doesn’t mean he’s on death’S doorstep, but it does mean that he likely needs some further treatments.

Thank you. I really have no clue what I'm talking about here (if reading medical advice online could make doctors, we'd all be MDs), so thank you very much for chiming in. 

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My RN friend says anything below 93 means a trip to the ER to head things off before they get really bad.  She also says lying prone can help, and sleeping on your back or sitting back in a recliner is not recommended because it puts too much pressure on struggling lungs.  

If he was near that 93 mark a few times I probably wouldn’t make him go, but being in the 80s is really quite low and I wouldn’t be comfortable with him staying home.  Has he been up and moving around?  Knowing his number when he’s ambulatory or immediately after is apparently the important number.  

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10 minutes ago, Thatboyofmine said:

Ok, he is prone.  Oxygen is low, but not crazy low, so we'll keep checking. He said if he gets some sleep (will be up again in less than 4 hrs for breathing treatment), he thinks he'll feel better.   I did tell him I'll take him to the other ER nearby and he said that sounded good to him and as soon as he felt any worse, we'd go.  
 

For all of you who've dealt with this crap already, and especially for those who've lost people dear to you--I cannot express how sorry I am that you ever had to go through this crap.   It is a roller coaster and every time I look on news sites, something has changed; ie this med definitely works, few months later that med definitely does not work; it's contagious this way, month later and it's contagious that way; and on and on.  It's mind-boggling all the information and misinformation going around about this.  Anyway, huge huge gigantic hugs for all of you.   

By the way, if he’s really struggling to breathe, go ahead with another neb treatment even if it’s not quite time yet. Watch his heart rate so it doesn’t get ridiculously high, and honestly if he’s still struggling after two nebs I’d head to the ER.  If the ER you want to go to is more than a few miles away, please call an ambulance. Most ambulances can start another breathing treatment, supplemental oxygen, monitor his heart rate and rhythm, and start IV steroid treatment all before he gets to the ER.  Even if the ER is full and he’s waiting for treatment, they can’t just dump him off the stretcher into the waiting room chair once treatment like that is started, and paramedics are really good at knowing who needs a bed and advocating for it.  Treatment and monitoring can continue while on the stretcher.

paramedics also tend to know which local hospitals and swamped and which might be a better one to go to.

Edited by Mrs Tiggywinkle
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12 minutes ago, Thatboyofmine said:

Ok, he is prone.  Oxygen is low, but not crazy low, so we'll keep checking. He said if he gets some sleep (will be up again in less than 4 hrs for breathing treatment), he thinks he'll feel better.   I did tell him I'll take him to the other ER nearby and he said that sounded good to him and as soon as he felt any worse, we'd go.  
 

For all of you who've dealt with this crap already, and especially for those who've lost people dear to you--I cannot express how sorry I am that you ever had to go through this crap.   It is a roller coaster and every time I look on news sites, something has changed; ie this med definitely works, few months later that med definitely does not work; it's contagious this way, month later and it's contagious that way; and on and on.  It's mind-boggling all the information and misinformation going around about this.  Anyway, huge huge gigantic hugs for all of you.   

It's his second albuterol treatment. Realize that if the numbers are low now, right after the treatment, they will most likely be lower in 3 hours.  I can understand that the hospital was full and they sent him home hoping the antibiotics would kick in before his pneumonia worsened, but it doesn't sound like that has worked.  

Please call the doctor on call if you aren't going to head to the hospital now.  They may agree that his levels are okay and add something like a steroid, or they may also agree that he needs to have additional emergency treatment.  If your hospitals are busy you have no idea how long you will need to wait for treatment and it would be better to go right after albuterol.

Edited by melmichigan
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@Thatboyofmine, I can't give medical advice by internet.  But I will suggest you have a look at UpToDate - specifically the article called "Coronavirus disease 2019 (COVID-19): Outpatient evaluation and management in adults", section "DETERMINE IF IN-PERSON EVALUATION WARRANTED", subsection "Criteria for ED evaluation and likely hospital admission".  The first three bullet points in that subsection will likely be helpful.

UpToDate is a clinical resource used by clinicians (and very $$$$$ for a subscripton, let me tell you).  They've made all their Covid content free access to all.  It's really a fantastic resource.

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Just as an update: I did my first workout in 2.5 weeks. It was a low impact 15 minute one. MY wind was terrible, but I expected that. 

Kids are good but they do get out of breath more easily than I expected. My 2 dds went on a hike yesterday and they both commented that they were huffing and puffing on the way to the car.

Dh is better. He is still dealing with fever, but he went to dr this morning and they listened to his lungs. Lungs aren't bad, but they did give him antibiotics to kick whatever bacterial is cooking (they think the fever could be an indication that a secondary infection is kicking in.) He is still VERY easily fatigued.

It's been almost FIVE weeks since he went to work. He came home December 2 when his mom was admitted to ICU; He was on FMLA, then bereavement when she passed and now Covid leave from being sick. He has worked a little from home, though. 

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9 minutes ago, Thatboyofmine said:

I can’t go in with him and he’s already texted and said they’re sending him home.   Unfortunately, it’ll be a cold day in hell to get him to see the dr again (except the whacko dr) or call emt now.  I’ll have to do it without him knowing, if I have to, I guess.    
I know he’s so discouraged and not breathing well.  It’s going to be an awful night back at home.  

I’m so angry.   The dr on call said get him to the ER, so we did.  And... 🤷🏻‍♀️.  

I’m so sorry 😞
I hope he improves soon.  

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7 minutes ago, Thatboyofmine said:

If he tested positive Monday of last week, started symptoms on Sunday, round about how long will he be contagious?   
is pneumonia contagious?

can y’all tell I’m losing my marbles that I can’t remember this crap? 

Typically after fourteen days you are safe but infectiousness starts dropping rapidly a lot earlier than that so while he still could be, the risk would be much lower now.   I can’t find the graph right now.


edited to add from a quick google search it looks like viable virus hasn’t been detected much after 8-9 days.  There are rare exceptions but for most that is the pattern.

Edited by Ausmumof3
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1 minute ago, Thatboyofmine said:

Ok, he is up and says he is feeling better this morning.  I force fed him a banana (the last thing he wanted) and he’s drinking coffee.  

I gave him a steroid (I have them in my medicine cabinet) and will give him one twice a day for a bit, then start weaning.   Yes, that is my own call, not something the dr told me to do.  I’m taking the shit by the horns now.   I’m watching his heart rate with the steroids closely.   I also have bp monitor (his bp is excellent).   He’s been on high doses before, no problem.  

I’ve also added probiotics (florastor) and magnesium (I’ll give at night). I’m pushing fluids.   Enforcing breathing treatments.   Watching oxygen levels.  Forcing him up and walking.   What else am I missing?    


I’m going to call dr today and see when he can be retested to see if he is still carrying the virus.  

I hate I feel like I have to take this into my own hands, but we cant get help down here.   I guess you have to actually be blue to be admitted to the hospital.  

Anyway, today is looking up and we’re kicking covids ass starting (last night).  
 

i woke up this morning equal parts motivated and pissed off. 🤷🏻‍♀️

No point in re testing.  You can carry inactivated virus for months.  A test within 3 months means nothing.  10 days from onset of symptoms is when they are considered not contagious anymore.  Anecdotally, when my family went through it (4 households) going by that rule didn't infect anyone else although most of us padded it a bit and didn't come out of isolation right at 10 days.  Oh and fever free without medication for 24 hrs and symptoms improving. This is per cdc. 

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1 minute ago, Thatboyofmine said:

I couldn’t sign anything, they wouldn’t let me in the waiting room.  The ER dr didn’t give him oxygen.  His level stayed at 91 while he was there, which figures.  🤦🏻‍♀️   In fact, when he released him, dh was out of it and feeling on verge of collapse and that dr didn’t escort him down the hall.  He literally said “just walk down there, you’ll see an exit.” And turned and left the room.  

Is your hospital system overwhelmed? 

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7 minutes ago, Thatboyofmine said:

Ok, he is up and says he is feeling better this morning.  I force fed him a banana (the last thing he wanted) and he’s drinking coffee.  

I gave him a steroid (I have them in my medicine cabinet) and will give him one twice a day for a bit, then start weaning.   Yes, that is my own call, not something the dr told me to do.  I’m taking the shit by the horns now.   I’m watching his heart rate with the steroids closely.   I also have bp monitor (his bp is excellent).   He’s been on high doses before, no problem.  

I’ve also added probiotics (florastor) and magnesium (I’ll give at night). I’m pushing fluids.   Enforcing breathing treatments.   Watching oxygen levels.  Forcing him up and walking.   What else am I missing?    


I’m going to call dr today and see when he can be retested to see if he is still carrying the virus.  

I hate I feel like I have to take this into my own hands, but we cant get help down here.   I guess you have to actually be blue to be admitted to the hospital.  

Anyway, today is looking up and we’re kicking covids ass starting (last night).  
 

i woke up this morning equal parts motivated and pissed off. 🤷🏻‍♀️

Give him a baby aspirin every day. Strokes and heart attacks are common with Covid, and that may help prevent it.

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21 minutes ago, busymama7 said:

Is your hospital system overwhelmed? 

There are specific guidelines for admission here right now, and our hospital is no longer overwhelmed or even close to it. Still, 91% spo2 with a diagnosis of pneumonia wouldn’t qualify for admission.  80s would, but anything about 90 or above is considered stable of the underlying cause is known, such as pneumonia.  It’s all based on clinical symptoms too—if he’s at 91% and not having any signs of distress, that’s not going to warrant admission.  

If their hospital systems are overwhelmed the admission criteria will be even more stringent.

Also they likely won’t retest, because it won’t tell you much of anything. People are testing positive for months after no longer being contagious or even sick from it.

Edited by Mrs Tiggywinkle
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I have a question.  I see a lot of "rest" advice, but I have also seen advice to keep moving, not sleep on one's back, etc., in order to reduce the risk of pneumonia and death.  What is the correct advice?

(We don't have it, but I want to know in case anyone I know catches it.)

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Just now, SKL said:

I have a question.  I see a lot of "rest" advice, but I have also seen advice to keep moving, not sleep on one's back, etc., in order to reduce the risk of pneumonia and death.  What is the correct advice?

(We don't have it, but I want to know in case anyone I know catches it.)

Might be for different stages? For long haulers, "rest" seems correct. For pneumonia, I'm not sure what the right thing is -- obviously, sleep is still good, but perhaps other positions are advocated? 

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Just now, SKL said:

I have a question.  I see a lot of "rest" advice, but I have also seen advice to keep moving, not sleep on one's back, etc., in order to reduce the risk of pneumonia and death.  What is the correct advice?

(We don't have it, but I want to know in case anyone I know catches it.)

I know I said, “rest,” so speaking for myself only ... I mean don’t go trying to catch up on laundry, clean the inevitable mess in the kitchen, or generally try to do a bunch of housework or something the moment you feel better.  

Move around, short walks, eat healthy, push fluids, sleep as needed. 

My downfall is that the moment I feel better after having been sick ... I over-do and end up worse.  My friend who is a long hauler who’d never before been sick, really, has struggled with this.

Not sure that’s helpful, but that’s where I’m coming from.

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1 hour ago, SKL said:

I have a question.  I see a lot of "rest" advice, but I have also seen advice to keep moving, not sleep on one's back, etc., in order to reduce the risk of pneumonia and death.  What is the correct advice?

(We don't have it, but I want to know in case anyone I know catches it.)

For those with breathing issues, they say not to sleep on your back. Stomach is best, side is okay. Even in a recliner, you're not supposed to recline. On the back is not good for the lungs.

Get up and move for 5 minutes every hour to help with blood flow and breathing, even in the middle of the night 

But, no to catching up on dishes and laundry and other tasks that need to be done, That's not resting. 

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Well, my 2nd oldest son came down this afternoon saying his throat hurt and he had a headache. You know we've tested so much the last couple of days. We went to our pediatrician and got him tested. He's positive. We just figured out where he got it. Our bonus son caught it from his dad's girlfriend. He stayed over Friday night with us. This royally sucks. We're lucky to have one of Boston's best infectious med doctors as a good friend so he's talked us through what we need to do.

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33 minutes ago, YaelAldrich said:

Well, my 2nd oldest son came down this afternoon saying his throat hurt and he had a headache. You know we've tested so much the last couple of days. We went to our pediatrician and got him tested. He's positive. We just figured out where he got it. Our bonus son caught it from his dad's girlfriend. He stayed over Friday night with us. This royally sucks. We're lucky to have one of Boston's best infectious med doctors as a good friend so he's talked us through what we need to do.

Oh no, I am sorry.  Sending lots of good thoughts to your family. 

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37 minutes ago, YaelAldrich said:

Well, my 2nd oldest son came down this afternoon saying his throat hurt and he had a headache. You know we've tested so much the last couple of days. We went to our pediatrician and got him tested. He's positive. We just figured out where he got it. Our bonus son caught it from his dad's girlfriend. He stayed over Friday night with us. This royally sucks. We're lucky to have one of Boston's best infectious med doctors as a good friend so he's talked us through what we need to do.

Oh no 😞 . I'm really sorry to hear that. I hope you don't catch it and he has a mild case. 

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7 minutes ago, Thatboyofmine said:

All of you with sick loved ones, I’m sending many prayers and (((hugs))) to you tonight.    
 

 

sweating—- anyone who had covid deal with this?  Sweating, mostly at night, straight through multiple changes of shirts and sheets??    I told dh I would be checking his oxygen off and on all night because I know this could point to that being low.  But the sweating... OMG the sweating! 😳😳😳

Oh yes, lots of sweating. Tons of sweating. Keep him hydrated.

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3 hours ago, YaelAldrich said:

Well, my 2nd oldest son came down this afternoon saying his throat hurt and he had a headache. You know we've tested so much the last couple of days. We went to our pediatrician and got him tested. He's positive. We just figured out where he got it. Our bonus son caught it from his dad's girlfriend. He stayed over Friday night with us. This royally sucks. We're lucky to have one of Boston's best infectious med doctors as a good friend so he's talked us through what we need to do.

I’m so sorry. Prayers for all of you as you deal with this. 
 

Do you care to share what your doctor friend told you?

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My MIL had Covid the week or 2 before Christmas. The virus is so random- she is mid 70s, has a multitude of comorbidities- some quite serious- blood pressure issues, asthma, diabetes, and a recent cancer diagnosis! Fortunately she had not started chemo yet. She claims she was asymptomatic, but we feel she had mild symptoms. 

Before the diagnosis (routine test) she was complaining that she had never felt more exhausted, nauseous, or generally just bad, ever. She blamed it on the weather (and cancer, of course), but she'd had cancer undetected for a while and the weather has been variable forever. She had no classic symptoms like loss of smell, cough, or breathing difficulties, and they cleared her to begin chemo 10 days after her positive test! She felt bad (due to weather, of course) for about 7-10 days. 

It's so strange how sometimes young, healthy people have such hard times while those who you'd expect to be most likely to get seriously ill can have mild cases or be asymptomatic. 

I hope everyone here is doing better! We live several states from MIL so had no exposure. It's no surprise she caught it, however. Her church had an outbreak and many of her caretakers and visitors ended up catching it. 

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Small update on my IL’s nursing home.  They had another four cases on FIL’s floor a few days ago, and moved them to the quarantine wing.  This meant another postponement for MIL joining FIL, she had to stay off that floor for a few more days. But they must be all clear now, because today they moved MIL into FIL’s room.  They are together again after not seeing each other for more than a year!  Through roommates with Covid, and both landing in the quarantine wings for exposures.  It’s such a relief.

I want to hug the person who made it happen.  The official protocol said they should have been kept apart for another ten days or so, but I think this administrator finally took pity on FIL, after he called her just begging to see his wife, for a visit.  MIL has dementia, so the isolation has been bad.  I’m hopeful this will help orient her.

So that is my semi-Covid related story.  It’s such a weird virus, that FIL didn’t catch it despite everyone around him having it.  I’m terribly grateful that ILs are together again.
 

Thinking of all of you who are sick, or have sick family members, and wishing the very best.  

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6 hours ago, Thatboyofmine said:

All of you with sick loved ones, I’m sending many prayers and (((hugs))) to you tonight.    
 

 

sweating—- anyone who had covid deal with this?  Sweating, mostly at night, straight through multiple changes of shirts and sheets??    I told dh I would be checking his oxygen off and on all night because I know this could point to that being low.  But the sweating... OMG the sweating! 😳😳😳

My daughter (19) was ill off and on for several weeks in September and October. Her symptoms would wax and wane. Night sweats, nausea, and fatigue were the main symptoms. Her pediatrician said she believed it was COVID, so I took her to be tested. It was negative, but I still think it was COVID. She had bloodwork done to check for mono, etc. it all came back negative. You are the first I’ve seen mention the night sweats. My dd would have to change clothes in the middle of the night. She has been isolating with us mostly, but she did do some babysitting and church nursery work a couple of times. That’s the only way she could have been exposed. 

You’ve been on my mind. I’m glad you are updating. Praying for a quick recovery.

Edited by popmom
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My niece tested positive at Christmas. Her husband and older dd (4yo) are negative. My sister, who has seen her and the grandkid, tested negative twice. Some other family members among her ILs are positive (that is where, presumably, she caught it). 

She has a little new baby around 6 months old. I wonder about this because I assume she is not quarantined from the baby and I *think* she’s bfing him. I don’t know how that figures in to the health of either one. Sister says doctors don’t test infants. I’m confused on this point - is the baby definitely going to get covid? Is it even advisable to nurse a baby if you have covid? - but my sister is hard to talk to about this. It’s out of my hands in any case; I don’t have much influence there. But I was mulling this over afa what I would do if it were my dd and (imaginary) grandchild. 

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8 hours ago, Just Kate said:

I’m so sorry. Prayers for all of you as you deal with this. 
 

Do you care to share what your doctor friend told you?

Get everyone else in the family tested today (the day after my DS's diagnosis) to try to catch more positive cases and shave off quarantine times for everyone. Test again on Monday. If my daughter is not sick and not symptomatic, she can go back to school Wednesday. My oldest son, whose friend (our bonus son) "brought" this to us 😢, decided he wanted to stay in their joint room and catch covid. I love obstinate people. 🙄 I slept fitfully last night with my Totobobo mask on. It's much easier to do that when you are hopped up on morphine (as I was in the hospital when I broke my leg)!

Our pediatrician is taking the kids this morning and my DH and I are waiting for our request to go through our doctor.

 

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Yes, breastfeeding is recommended if mom is Covid positive. It is assumed baby has already been exposed, so the antibodies from breastmilk are important. But it is advised mom mask and wash hands when holding baby, etc. 

 

Edited by ktgrok
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2 hours ago, Quill said:

My niece tested positive at Christmas. Her husband and older dd (4yo) are negative. My sister, who has seen her and the grandkid, tested negative twice. Some other family members among her ILs are positive (that is where, presumably, she caught it). 

She has a little new baby around 6 months old. I wonder about this because I assume she is not quarantined from the baby and I *think* she’s bfing him. I don’t know how that figures in to the health of either one. Sister says doctors don’t test infants. I’m confused on this point - is the baby definitely going to get covid? Is it even advisable to nurse a baby if you have covid? - but my sister is hard to talk to about this. It’s out of my hands in any case; I don’t have much influence there. But I was mulling this over afa what I would do if it were my dd and (imaginary) grandchild. 

I’m sorry about your family members. I just wanted to comment regarding the being-around-the-baby thing. My one anecdotal regarding this is as follows: when my niece (15yo) tested positive for covid a few months back, my SIL *SLEPT* with her every night. She was terrified that niece, who is asthmatic, would have problems breathing in the night and she wouldn’t hear her. I don’t know how, but SIL didn’t get covid. She got tested multiple times (3, I think) during the quarantine period and never got it. This is a weird, weird virus. I do wonder if nursing gives baby antibodies—one would think it does. 
 

I hope your family recovers easily and quickly!

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Just a minor update on a family I mentioned before.  The Mom1's mom & dad had Covid, and Mom1, her dh and 3 kids all got sick, but were not tested.  They assumed it was Covid though.  (Everyone recovered within the usual time frame.)  To get confirmation, dh was recently tested for antibodies, and he has them.

I tried to find out how long between the illness and the positive antibody test, but it is unclear (2nd hand info).  It seems like it's been somewhere between 2 & 4 months.  I've read that the longer you wait, the less likely antibodies will be detected, but I don't know the general time range.

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9 hours ago, kand said:

It’s so strange and unpredictable. I’m very glad your mother-in-law did well with it.

I almost didn't post about MIL because I felt so guilty that she did well when many people are struggling! 

But this thread was for the full range of personal stories so I went ahead. I do feel a bit of bystanders' survivor's guilt, however! 

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