Crissy Posted July 19, 2009 Share Posted July 19, 2009 for my cousin, Amanda? She is a wife, a mother of two young children and a first grade teacher. She had surgery for a deviated septum on Tuesday. She came home the same day, but has been in so much pain and has found no relief from her pain medication. I don't know what happened between Thursday (the last time I got a message about her) and today, but my parents just called to let me know that she's in the hospital, in intensive care. She is unconscious, and they do not know what is wrong with her. Quote Link to comment Share on other sites More sharing options...
Karen sn Posted July 19, 2009 Share Posted July 19, 2009 OMG! How awful. That is really scary because the nose is so close to the brain. I wonder if some bacteria got into her head. What kind of test are they running? Not to scare you - just to push further research - where did she get the surgery? And has anyone checked for necrotizing fasciaitis (sp?)? I don't know why that popped up in my brain but this is very scary. Quote Link to comment Share on other sites More sharing options...
mommaduck Posted July 19, 2009 Share Posted July 19, 2009 Praying. Quote Link to comment Share on other sites More sharing options...
Blessedfamily Posted July 19, 2009 Share Posted July 19, 2009 Certainly will. How awful. Quote Link to comment Share on other sites More sharing options...
Starr Posted July 19, 2009 Share Posted July 19, 2009 :grouphug: Lots of prayer coming for all of you! How sad and scary. Quote Link to comment Share on other sites More sharing options...
1bassoon Posted July 19, 2009 Share Posted July 19, 2009 Praying - Please update as you are able. Quote Link to comment Share on other sites More sharing options...
Tree House Academy Posted July 19, 2009 Share Posted July 19, 2009 Oh my. I am thinking she must have some kind of infection. I hope she is feeling better soon! Prayers coming her way. Quote Link to comment Share on other sites More sharing options...
Rita Posted July 19, 2009 Share Posted July 19, 2009 praying for her and her family Quote Link to comment Share on other sites More sharing options...
Crissy Posted July 19, 2009 Author Share Posted July 19, 2009 OMG! How awful.That is really scary because the nose is so close to the brain. I wonder if some bacteria got into her head. What kind of test are they running? Not to scare you - just to push further research - where did she get the surgery? And has anyone checked for necrotizing fasciaitis (sp?)? I don't know why that popped up in my brain but this is very scary. I wish I had more information to share. I am in Washington and she is in Colorado. The information I do have about her condition came from her dad, through my parents. My poor uncle is distraught. She was home for two days after the surgery and complaining about her pain medication not working. The last note I got from her said her husband was picking up a different Rx for her and she was hoping it would work. Scary, indeed. Thank you for your thoughts, Karen. Quote Link to comment Share on other sites More sharing options...
Mommyof4ks Posted July 19, 2009 Share Posted July 19, 2009 Oh my. Praying for her. :grouphug: Quote Link to comment Share on other sites More sharing options...
RoughCollie Posted July 19, 2009 Share Posted July 19, 2009 Praying here. Quote Link to comment Share on other sites More sharing options...
TeacherZee Posted July 19, 2009 Share Posted July 19, 2009 Is she septic? My dad just spent three weeks in hospital with septicaemia. It was very very scary. He is doing much better now but is still on medication and sick leave. She and her family will be in my thoughts! :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Kathleen in VA Posted July 19, 2009 Share Posted July 19, 2009 Praying here as well.:grouphug: Quote Link to comment Share on other sites More sharing options...
2cents Posted July 19, 2009 Share Posted July 19, 2009 They're in my thoughts. Please keep us posted. :( Quote Link to comment Share on other sites More sharing options...
joannqn Posted July 19, 2009 Share Posted July 19, 2009 Wow, that is scary! I had that surgery a few years ago and recovery was relatively easy...a few days of pain meds and an awful full feeling in the nose...but I never needs as much of the meds as they prescribed. I hope they figure it out and she gets better soon! Quote Link to comment Share on other sites More sharing options...
kalanamak Posted July 19, 2009 Share Posted July 19, 2009 for my cousin, Amanda? Poor Amanda. She must be young. Youth is about the best thing to have if you are in the ICU....every other organ is still peppy. Hope they find the root problem quickly.... Quote Link to comment Share on other sites More sharing options...
Joanne Posted July 19, 2009 Share Posted July 19, 2009 Wow. {{hugs}} Praying. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted July 19, 2009 Share Posted July 19, 2009 Crissy, :grouphug:. Praying here. You know you can call me anytime. Quote Link to comment Share on other sites More sharing options...
jensway Posted July 19, 2009 Share Posted July 19, 2009 She will be in our prayers. :grouphug: Quote Link to comment Share on other sites More sharing options...
Tammyla Posted July 19, 2009 Share Posted July 19, 2009 :grouphug:Praying here for Amanda.:grouphug: Quote Link to comment Share on other sites More sharing options...
elegantlion Posted July 19, 2009 Share Posted July 19, 2009 Praying here :grouphug: Quote Link to comment Share on other sites More sharing options...
Melanie in WI Posted July 19, 2009 Share Posted July 19, 2009 Praying here. Quote Link to comment Share on other sites More sharing options...
BMW Posted July 19, 2009 Share Posted July 19, 2009 Joining in prayer for Amanda and family. Quote Link to comment Share on other sites More sharing options...
Crissy Posted July 19, 2009 Author Share Posted July 19, 2009 Thank you all! I am hoping to hear something this moring, and will share an update as soon as I know more. Quote Link to comment Share on other sites More sharing options...
Karen sn Posted July 19, 2009 Share Posted July 19, 2009 Do you have any updates? Find out from her husband what tests they are running. My first thought is infection. But my second is that there could be some physical pressure in her brain. (She did say she was in uncontrolable pain!). Did they do an MRI? Quote Link to comment Share on other sites More sharing options...
tricia Posted July 19, 2009 Share Posted July 19, 2009 :grouphug: please keep us posted. Quote Link to comment Share on other sites More sharing options...
Crissy Posted July 19, 2009 Author Share Posted July 19, 2009 Do you have any updates?Find out from her husband what tests they are running. My first thought is infection. But my second is that there could be some physical pressure in her brain. (She did say she was in uncontrolable pain!). Did they do an MRI? I just talked to my dad. I have to rely on him for information since the only phone numbers I have are home land lines, and my uncle is calling Dad only when he knows something new. This morning they say they believe it is a virus that appears to be spreading rapidly. I asked, "What sort of virus?" but my dad didn't know. He said they are trying to get it under control before her lungs become involved and a respirator is necessary. I asked what tests had been run, but he didn't know that either. It all seems so bizarre to me, so coincidental that she has some strange virus that didn't attack until the day after her surgery. :confused: I am going to try to gather more information, but I don't think my dad is asking any questions when he gets his brother on the phone. He is just taking the information my uncle gives him and calling my sisters and me to share it. Quote Link to comment Share on other sites More sharing options...
Nicole M Posted July 19, 2009 Share Posted July 19, 2009 Oh, Crissy! This is so scary. Sending prayers and good thoughts. Quote Link to comment Share on other sites More sharing options...
mom2koh Posted July 19, 2009 Share Posted July 19, 2009 Praying here! :grouphug: Quote Link to comment Share on other sites More sharing options...
blessed2fosteradopt Posted July 19, 2009 Share Posted July 19, 2009 I am so sorry your family is going through this. I will pray for strength, healing and peace for all involved. Quote Link to comment Share on other sites More sharing options...
Mrs. Frankweiler Posted July 19, 2009 Share Posted July 19, 2009 She's in my prayers. :grouphug: Quote Link to comment Share on other sites More sharing options...
Mom2boys Posted July 19, 2009 Share Posted July 19, 2009 It all seems so bizarre to me, so coincidental that she has some strange virus that didn't attack until the day after her surgery. :confused: It could be that she contracted a staph infection when she had her surgery. I'll be praying for you all. :grouphug: Quote Link to comment Share on other sites More sharing options...
Doran Posted July 19, 2009 Share Posted July 19, 2009 I just talked to my dad. I have to rely on him for information since the only phone numbers I have are home land lines, and my uncle is calling Dad only when he knows something new. This morning they say they believe it is a virus that appears to be spreading rapidly. I asked, "What sort of virus?" but my dad didn't know. He said they are trying to get it under control before her lungs become involved and a respirator is necessary. I asked what tests had been run, but he didn't know that either. It all seems so bizarre to me, so coincidental that she has some strange virus that didn't attack until the day after her surgery. :confused: I am going to try to gather more information, but I don't think my dad is asking any questions when he gets his brother on the phone. He is just taking the information my uncle gives him and calling my sisters and me to share it. How frightening. Keeping Amanda in my thoughts. :sad: Quote Link to comment Share on other sites More sharing options...
Jenny in Atl Posted July 19, 2009 Share Posted July 19, 2009 :grouphug: Quote Link to comment Share on other sites More sharing options...
Desert Rat Posted July 19, 2009 Share Posted July 19, 2009 She's in my prayers. Quote Link to comment Share on other sites More sharing options...
Jean too Posted July 20, 2009 Share Posted July 20, 2009 Praying here. Quote Link to comment Share on other sites More sharing options...
mom31257 Posted July 20, 2009 Share Posted July 20, 2009 Praying. Quote Link to comment Share on other sites More sharing options...
Crissy Posted July 20, 2009 Author Share Posted July 20, 2009 Thank you all for your continued prayers and wishes. The doctors have diagnosed Amanda with Guillain Barre Syndrome and are treating her accordingly. It started in her hands and feet, and moved rapidly towards her trunk. As of yesterday afternoon she was being given nutrition via IV, and was on a respirator. I mentioned yesterday what an unbelievable coincidence it was to me that she contracted such an aggressive virus in the days following her surgery, so I was surprised to see this statement in the link above: Occasionally, surgery or vaccinations will trigger the syndrome. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted July 20, 2009 Share Posted July 20, 2009 I am glad that they know what it is. Praying for her recovery still. Is her family doing ok? Quote Link to comment Share on other sites More sharing options...
Karen sn Posted July 21, 2009 Share Posted July 21, 2009 Thank you all for your continued prayers and wishes. The doctors have diagnosed Amanda with Guillain Barre Syndrome and are treating her accordingly. It started in her hands and feet, and moved rapidly towards her trunk. As of yesterday afternoon she was being given nutrition via IV, and was on a respirator. I mentioned yesterday what an unbelievable coincidence it was to me that she contracted such an aggressive virus in the days following her surgery, so I was surprised to see this statement in the link above: I don't buy this one bit. Even the link states: Guillain-Barré is called a syndrome rather than a disease because it is not clear that a specific disease-causing agent is involved. It's just a fancy word for a set of SYMPTOMS. Much like Fibromyalgia means muscle pain - but everyone who has it may have a different CAUSE. Did they do an MRI and make sure there is no pressure being placed on her brain due to dislodged cartiledge or other faulty issues with her RECENT surgery? Did they do a blood test for bacteria? Where did she have the surgery? Something doesn't sound right to me. And as nurse I can tell you what I have seen - medical treatment after something like this happens is sometimes less about getting to the root of the problem and sometimes more about covering someone's @ss. Unfortunate, but true in some cases. I could be completely wrong - but I don't think her cause is that mysterious.....she had surgery that she never got pain relief from and now is in a coma? Hmmmm....... Quote Link to comment Share on other sites More sharing options...
Perry Posted August 19, 2009 Share Posted August 19, 2009 Crissy, How is your cousin? Did I miss an update? I hope she's on the mend. Quote Link to comment Share on other sites More sharing options...
houseofrabbits Posted August 19, 2009 Share Posted August 19, 2009 Praying! Liz Quote Link to comment Share on other sites More sharing options...
Crissy Posted August 19, 2009 Author Share Posted August 19, 2009 Thank you for asking, Perry, and my thanks to all who are continuing to pray and send good wishes. Here is a brief update I recieved from my aunt a couple of days ago. Amanda is a fighter! She is still progressing very slowly, but some progressis better than none. The pulmonary docs are working to get Amanda off of the trach. She is working real hard to breath on her own. She still has swallowing issues so it is tiring for her. We have yet to find out if the MRSA is gone, but should know soon. Her fever is almost non-existent and that is a wonderful thing. She can open her eyes briefly now and then and had a couple of real good visits with Sam and Tori. They love seeing their mommy. She is asking what day it is and cries when she won't be able to see Sammy off to his first day of Kindergarten on the 17th. We can communicate with her a little better as the amount of sedation has been reduced. Her pain is mostly in her legs and the physical therapy helps a lot. She has also had a couple of migraines that have given her grief. Quote Link to comment Share on other sites More sharing options...
DawnM Posted August 19, 2009 Share Posted August 19, 2009 Wait.....so she had MRSA? And is this just a coincidence that it happened right at the time of her surgery? Dawn Quote Link to comment Share on other sites More sharing options...
Crissy Posted August 19, 2009 Author Share Posted August 19, 2009 Wait.....so she had MRSA? And is this just a coincidence that it happened right at the time of her surgery? Dawn She had sinus surgery and had been home recovering for a couple of days when she developed Guillain-Barré syndrome. While she has been in the hospital she contracted MRSA. It has been an horrible month for her and her family. I understand that she may spend another month to two months in the hospital, and that complete recovery could take over a year. My dad told me last night that she is experiencing severe pains in her arms and legs, but that as bad as it sounds, it is actually good news as she is regaining feeling and use of her limbs. Quote Link to comment Share on other sites More sharing options...
Mad Jenny Flint Posted August 20, 2009 Share Posted August 20, 2009 I just saw this today. I am so sorry for Amanda. I will be thinking of her and her family, especially the kids. You take care, Quote Link to comment Share on other sites More sharing options...
houseofrabbits Posted September 2, 2009 Share Posted September 2, 2009 Thanks for the update. Continuing to pray for Amanda. What a difficult and long road. Lis Quote Link to comment Share on other sites More sharing options...
JudyJudyJudy Posted September 2, 2009 Share Posted September 2, 2009 This is so awful. She will be in my thoughts. :grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted September 2, 2009 Share Posted September 2, 2009 I will be praying for her, Crissy. What a horrible situation. Quote Link to comment Share on other sites More sharing options...
Nicoleab2 Posted September 2, 2009 Share Posted September 2, 2009 Praying. Peace and comfort to you all through this time. Quote Link to comment Share on other sites More sharing options...
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