TraciWA Posted August 17, 2008 Share Posted August 17, 2008 Would you please pray for this mom from our local co-op. I know she is terrified about this. She has several little ones at home. Thanks. Below you will find her email she sent out. I am pretty scared right now. My Breast MRI came back and shows unexplained inflammation in my breast that could be inflammatory breast cancer, a very rare and aggressive breast cancer. It also showed something on my lung that they want a CAT scan on to confirm. I guess I am afraid I have the inflammatory breast cancer and it has spread to my lungs which would make it a stage 5 and if that is the case I am not even sure if they would do chemo. ect. I am experiencing a lot of pain in my chest and my breast area. It feels very painful and pressured. It is scary to lay down and I am pretty much on pain killers all day. Please pray for me to get a breast biopsy on monday with quick results back on everything and for the pain to decrease. I am very afraid and I just love my kids and husband so much. Pray for strength for my family and I and that we will keep close to Jesus through it all. Love, Julie P.s. I asked my doctor to give me anti biotics in case it is a major unexplained breat infection and he did give them to me although he does not think I have an infection Quote Link to comment Share on other sites More sharing options...
Amy in Orlando Posted August 17, 2008 Share Posted August 17, 2008 Oh WOW - she must be so terrified. I'm scared for her. I will be praying for her and her family. I hope the initial diagnosis is wrong and it's something fixable. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted August 17, 2008 Share Posted August 17, 2008 How hard! Praying here. :grouphug: Quote Link to comment Share on other sites More sharing options...
Mama Lynx Posted August 17, 2008 Share Posted August 17, 2008 You got it. Please keep us updated. Quote Link to comment Share on other sites More sharing options...
sdWTMer Posted August 17, 2008 Share Posted August 17, 2008 How awful. It's tragic, actually. This is a scary disease! I have been reading a blog (http://www.punkrockmommy.org) about a mom who had IBC. It's a death sentence. :( Actually, I have read 2 blogs on this is in the past year. The punkrockmommy blogger (Andrea) just died around July 4th after fighting it a year. Just a year. If this woman has Stage 5 then she could have even less. I'm so sorry and will pray! It's scary that she shares my name! Quote Link to comment Share on other sites More sharing options...
Alenee Posted August 17, 2008 Share Posted August 17, 2008 How scary! I will definately keep her in my prayers. Quote Link to comment Share on other sites More sharing options...
sdWTMer Posted August 17, 2008 Share Posted August 17, 2008 Would you please pray for this mom from our local co-op. I know she is terrified about this. She has several little ones at home. Thanks. Below you will find her email she sent out. I am pretty scared right now. My Breast MRI came back and shows unexplained inflammation in my breast that could be inflammatory breast cancer, a very rare and aggressive breast cancer. It also showed something on my lung that they want a CAT scan on to confirm. I guess I am afraid I have the inflammatory breast cancer and it has spread to my lungs which would make it a stage 5 and if that is the case I am not even sure if they would do chemo. ect. I am experiencing a lot of pain in my chest and my breast area. It feels very painful and pressured. It is scary to lay down and I am pretty much on pain killers all day. Please pray for me to get a breast biopsy on monday with quick results back on everything and for the pain to decrease. I am very afraid and I just love my kids and husband so much. Pray for strength for my family and I and that we will keep close to Jesus through it all. Love, Julie P.s. I asked my doctor to give me anti biotics in case it is a major unexplained breat infection and he did give them to me although he does not think I have an infection Please tell her that she can look up this man in Santa Monica and try to get in a clinical trial...http://www.sarcomaoncology.com/Patients_Families/Doctors1.htm This clinical trial is one that punkrockmommy had tried to get into and couldn't. Maybe this Dr. could point her in the right direction. If, in fact, she has IBC. I'm so very sorry. :crying: My heart is heavy tonight for her and her family! Quote Link to comment Share on other sites More sharing options...
Once Posted August 17, 2008 Share Posted August 17, 2008 Praying here too. I hope she finds a little peace until the tests are done and results aare back. Must be scarry to face this over a weekend. Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted August 17, 2008 Share Posted August 17, 2008 I will be praying here. Waiting is the hardest time. Quote Link to comment Share on other sites More sharing options...
OnTheBrink Posted August 17, 2008 Share Posted August 17, 2008 praying for healing. Poor thing. Quote Link to comment Share on other sites More sharing options...
Brindee Posted August 17, 2008 Share Posted August 17, 2008 :crying: Ohhhh my, that IS very scary! I am praying for her and her family! Please let her know she is being prayed for all around the country (and world?)! :grouphug: Quote Link to comment Share on other sites More sharing options...
Vida Winter Posted August 17, 2008 Share Posted August 17, 2008 Praying here. I recently went through a breast scare and it was horrible, I felt so alone. Mine turned out okay. I am praying hard that hers will too. :grouphug: Dana Quote Link to comment Share on other sites More sharing options...
TN Mama Posted August 17, 2008 Share Posted August 17, 2008 Traci, I have prayed for your friend. Very scary... Quote Link to comment Share on other sites More sharing options...
Colleen Posted August 17, 2008 Share Posted August 17, 2008 Oh, Traci, this is so sad. Having to wait and wonder this weekend ~ that alone makes me emotional, just thinking of it. I've only heard a little bit about inflammatory breast cancer, but all that I've heard sounds...not good. Please keep us posted. Quote Link to comment Share on other sites More sharing options...
Kathy in MD Posted August 17, 2008 Share Posted August 17, 2008 Praying. Quote Link to comment Share on other sites More sharing options...
Trivium Academy Posted August 17, 2008 Share Posted August 17, 2008 Praying Quote Link to comment Share on other sites More sharing options...
Jean too Posted August 17, 2008 Share Posted August 17, 2008 Praying for her. Quote Link to comment Share on other sites More sharing options...
Jill- OK Posted August 17, 2008 Share Posted August 17, 2008 Please keep us updated. Quote Link to comment Share on other sites More sharing options...
Twinmom Posted August 17, 2008 Share Posted August 17, 2008 Wow, how terrifying. I'll be praying for her and for her family. Quote Link to comment Share on other sites More sharing options...
Kathleen in VA Posted August 17, 2008 Share Posted August 17, 2008 Praying for peace of mind and healing. Quote Link to comment Share on other sites More sharing options...
sweetbaby Posted August 17, 2008 Share Posted August 17, 2008 praying! Quote Link to comment Share on other sites More sharing options...
dragons in the flower bed Posted August 17, 2008 Share Posted August 17, 2008 I just took a minute to visualize her all wrapped in blue healing energy, the whatever-it-is in her chest dissolving to nothing. Please keep us informed. Quote Link to comment Share on other sites More sharing options...
TraciWA Posted August 18, 2008 Author Share Posted August 18, 2008 I will keep you informed as soon as I know anything. I am relaying to her that you are praying. Quote Link to comment Share on other sites More sharing options...
newlifemom Posted August 18, 2008 Share Posted August 18, 2008 Oh please count me in too. Prayed and praying. Quote Link to comment Share on other sites More sharing options...
Chris in CA Posted August 18, 2008 Share Posted August 18, 2008 praying! Quote Link to comment Share on other sites More sharing options...
teamturner Posted August 18, 2008 Share Posted August 18, 2008 I will pray for this family! Quote Link to comment Share on other sites More sharing options...
Sparkle Posted August 18, 2008 Share Posted August 18, 2008 Praying for Julie. Our pastor's wife also has IBC, and she is doing very well, so there is hope. I'll pray that it's not cancer though! Quote Link to comment Share on other sites More sharing options...
Tracy in Ky Posted August 19, 2008 Share Posted August 19, 2008 Please let us know when you have an update. Quote Link to comment Share on other sites More sharing options...
Denise in IN Posted August 19, 2008 Share Posted August 19, 2008 How scary for her...I will pray. Please keep us updated. Quote Link to comment Share on other sites More sharing options...
TraciWA Posted August 19, 2008 Author Share Posted August 19, 2008 This email came out to our group today. Please keep praying for her. Thanks so much. Precious Ladies, Thank you all so much for your prayers and nice notes, I have felt such comfort from them. I have my CT apt. this week for the lung and the breast biopsy next week. I am sort of encouraged that they don't seem to think I need the biopsy asap as maybe it does not look as urgent to them as I had thought. Also, dear Michelle talked me into actually going to the hospital and read the MRI report and it said something about the "finding" being fluid on my lung not a tumor so I feel much relief as if it is cancer at least it has not appeared to spread. I had broken my wrist in three places from a huge fall a few weeks ago also (this has been a hard year!) so think I may have injured my lung then so it does not seem to be related to breast inflammation. I know God is teaching me so much through this, I had thought what I learned from my brothers problems would be enough for years but I guess not :) and I am just trying to rest in Him and not worry. I will update you all when I hear the results. Thanks so much again, you are all very nice and I feel so thankful for you all! -- Blessings, Julie Quote Link to comment Share on other sites More sharing options...
Tree House Academy Posted August 19, 2008 Share Posted August 19, 2008 God love her. Her faith is so stong. I pray this is not breast cancer. I have a friend whose mother died of IBC when she (the friend) was just 16. It is a scary and fast advancing type - but it is good news that her doctors do not seem to feel an extreme urgency. This is the 3rd breast cancer scare in a mom I have heard of today! Quote Link to comment Share on other sites More sharing options...
8filltheheart Posted August 23, 2008 Share Posted August 23, 2008 Bumping. Is there any update on this mom? We've been praying for her. Quote Link to comment Share on other sites More sharing options...
mom31257 Posted August 23, 2008 Share Posted August 23, 2008 I'll be praying for her! Quote Link to comment Share on other sites More sharing options...
hsmamainva Posted August 24, 2008 Share Posted August 24, 2008 Continuing to pray here and hoping for great news from the doctors over the next few days!!! :grouphug: Quote Link to comment Share on other sites More sharing options...
ekarl2 Posted August 24, 2008 Share Posted August 24, 2008 There is a homeopathic protocol called Budwig. It was "invented" by Dr. Johanna Budwig in Germany 50 years ago. There is a big yahoo group called flaxseedoil2 with thousands of people who follow this diet/protocol. There is no magic pill or snake oil. It's just diet and flax seed oil you can get at the health food store. If allopathic (conventional) doctors have no answers or treatment, it certainly wouldn't hurt to go this route. Dr. Budwig was able to bring people back to health who were literally on their deathbeds. She is in my prayers, Erin Quote Link to comment Share on other sites More sharing options...
TraciWA Posted August 26, 2008 Author Share Posted August 26, 2008 Thanks to all who have been praying. Please don't stop!............ Below is the latest email update she sent out. Hi, I had my biopsy today. At first the surgeon was freaking me out because the CT scan came back in such wording that he was very concerned that I may have Inflammatory Breast Cancer. However, once he examined me and took about 4 core biopsy's in different places, he said it did not look to him like it. He said he will call as soon as he knows.....3 to 7 days. He said his bigger concern is the thing they found on the MRI and CT around my lung/heart and kidney. He said it is a large mass so I have to have an ultra sound in 2 days. He said he has never seen anything like it and had other Dr's look at it and they have not either. So, if the ultrasound does not tell him what it is then they have to go in and drill two holes in my chest to find out what it is and biopsy it. I told him about my huge fall that broke my wrist and asked it it could be caused by that as I fell about 6 feet on my right side, he didn't think so. I still think it does have to do with the fall as after the fall I could not sleep for about a week as there was a huge pain in my chest that I literally thought I was dying and it hurt more when I laid down-I just didn't put the fall with the chest pain together until after the MRI report. Anyway, after I started antibiotics it got better and is real good now. Please continue praying for me as I really do feel that the Lord is lifting me out of fear through His people as I can not explain the underlying peace through the fear of having all this happen. Could you please pray that the "thing" will go away by my ultrasound this thursday at 3pm or shrink considerably. I don't relish the thought of having to have my chest drilled....scary. Please also pray my dr. will give me more antibiotics as my pain has lessened. They don't think it is helping and are worried about putting me on them when they think it won't help, but I know it is. I was taking pain killers every three hours but now it is 1/2 one only at night time. I am never on them so I just believe they are helping. Thanks for all the nice notes, I did not have time to respond to them as we have been crazy here! Love, Julie Quote Link to comment Share on other sites More sharing options...
sdWTMer Posted August 26, 2008 Share Posted August 26, 2008 Well, that's good about it probably not being IBC, how scary! Lord willing, the other mass isn't cancer at all. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted August 27, 2008 Share Posted August 27, 2008 Still praying here. It is so hard to wait for all the tests to be done and all the appointments to be made. I hope she gets some news soon - that it is good news. Quote Link to comment Share on other sites More sharing options...
elegantlion Posted August 27, 2008 Share Posted August 27, 2008 I've been through cancer treatment. (It was mild cancer, but still scary). The only thing you can be in charge of while you are dealing with the what ifs is your attitude. You are sort of at the mercy of your appointments and being where they tell you to be. I remember clinging to having a good attitude, because I was so unsure about everything else. Prayers will continue, keep us updated. Quote Link to comment Share on other sites More sharing options...
hsmamainva Posted August 27, 2008 Share Posted August 27, 2008 Thank you for the update! Continuing to pray here!!!! Quote Link to comment Share on other sites More sharing options...
Jean too Posted August 27, 2008 Share Posted August 27, 2008 Thanks for updating. Praying for Julie. Quote Link to comment Share on other sites More sharing options...
TraciWA Posted September 7, 2008 Author Share Posted September 7, 2008 This is the latest update on my friend. It is good news! I am so happy to report that my breast biopsies came back negative yea! There is still inflammation in my chest area for unknown reasons but at least I do not have cancer! The other thing they found in my chest area during the MRI is very rare. It says in the paperwork that they believe it to be a hypeochoic structure that is a pericardial cyct. My doctor said that because they are rare there is not a lot of research of causes and such so he said he could either remove it or watch it every six or so months to make sure it does not grow to big. He said there is a record of one growing and holding 1/2 gallon of water! I guess I am wondering why I went through all of this but know for sure that God is good and I will always remember how He carried me through all this junk this year. I hope it is okay to say that I hope that this year has held enough stress! Thank you all for caring! -- Blessings, Julie Quote Link to comment Share on other sites More sharing options...
sdWTMer Posted September 7, 2008 Share Posted September 7, 2008 This is the latest update on my friend. It is good news! I am so happy to report that my breast biopsies came back negative yea! There is still inflammation in my chest area for unknown reasons but at least I do not have cancer! The other thing they found in my chest area during the MRI is very rare. It says in the paperwork that they believe it to be a hypeochoic structure that is a pericardial cyct. My doctor said that because they are rare there is not a lot of research of causes and such so he said he could either remove it or watch it every six or so months to make sure it does not grow to big. He said there is a record of one growing and holding 1/2 gallon of water! I guess I am wondering why I went through all of this but know for sure that God is good and I will always remember how He carried me through all this junk this year. I hope it is okay to say that I hope that this year has held enough stress! Thank you all for caring! -- Blessings, Julie Awesome! Glad to hear it! Thank God. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted September 7, 2008 Share Posted September 7, 2008 I'm so glad that she does not have inflammatory breast cancer. That is truly scary. Quote Link to comment Share on other sites More sharing options...
hsmamainva Posted September 8, 2008 Share Posted September 8, 2008 Thanks for the update!!! Awesome news!!!! :) Quote Link to comment Share on other sites More sharing options...
magistramom Posted September 8, 2008 Share Posted September 8, 2008 In my thoughts and prayers here, too! Quote Link to comment Share on other sites More sharing options...
muffinmom Posted September 8, 2008 Share Posted September 8, 2008 Great, great news! Quote Link to comment Share on other sites More sharing options...
BamaTanya Posted September 8, 2008 Share Posted September 8, 2008 Praying here! Glad to hear the good news! Quote Link to comment Share on other sites More sharing options...
happykids Posted September 8, 2008 Share Posted September 8, 2008 . Quote Link to comment Share on other sites More sharing options...
Amy in Orlando Posted September 8, 2008 Share Posted September 8, 2008 Thanks for keeping us updated! I'm so relieved she got good news. Quote Link to comment Share on other sites More sharing options...
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