unsinkable Posted September 6, 2010 Share Posted September 6, 2010 She has had partial-complex seizures in the past but we've been mostly dealing w/absence seizure the past 2 years. We're visiting relative out of town & she has a fairly long partial-complex seizure this morning just as we were headed out to do some fun family stuff. She's exhausted now & discouraged b/c she feels/felt so out of control. She felt it coming on and said it was like she was trapped in her own brain. My poor dolly. Prayers & good thoughts would be greatly appreciated. Love you ladies! :grouphug: Quote Link to comment Share on other sites More sharing options...
TN Mama Posted September 6, 2010 Share Posted September 6, 2010 Prayers said! :grouphug: Quote Link to comment Share on other sites More sharing options...
Pam L in Mid Tenn Posted September 6, 2010 Share Posted September 6, 2010 I have prayed. :grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted September 6, 2010 Share Posted September 6, 2010 :grouphug: Quote Link to comment Share on other sites More sharing options...
Jennifer in MI Posted September 6, 2010 Share Posted September 6, 2010 Oh, how scary! I'm so sorry. Of course I'll pray.:grouphug: I still vividly remember the day my ds, then 7 had his first grand mal seizure. It was horrible. Luckily, he only had two and he's been fine ever since. They never found a cause. But, I worry about it! Quote Link to comment Share on other sites More sharing options...
StaceyinLA Posted September 6, 2010 Share Posted September 6, 2010 Hoping she gets to feeling better! Quote Link to comment Share on other sites More sharing options...
gingersmom Posted September 6, 2010 Share Posted September 6, 2010 :grouphug: Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted September 6, 2010 Share Posted September 6, 2010 Praying and :grouphug:s. Quote Link to comment Share on other sites More sharing options...
MamaT Posted September 6, 2010 Share Posted September 6, 2010 :grouphug: How scary for her (and you). Praying here. Quote Link to comment Share on other sites More sharing options...
jenL Posted September 6, 2010 Share Posted September 6, 2010 Praying for her! :grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted September 6, 2010 Share Posted September 6, 2010 Praying for her. Quote Link to comment Share on other sites More sharing options...
lllll Posted September 6, 2010 Share Posted September 6, 2010 Praying for her. :grouphug: Quote Link to comment Share on other sites More sharing options...
Teachin'Mine Posted September 6, 2010 Share Posted September 6, 2010 :grouphug: Praying for both of you. Quote Link to comment Share on other sites More sharing options...
sheryl Posted September 6, 2010 Share Posted September 6, 2010 :grouphug: Praying for you, your dd and family. Like Jennifer in MI I too remember the day my dd had her grand mal in 2007. The seizure "type" changed into absence seizures. She's been seizure free now for 2.5 years. Be encouraged! I also sent you a pm. Sheryl <>< Quote Link to comment Share on other sites More sharing options...
Quiver0f10 Posted September 7, 2010 Share Posted September 7, 2010 :grouphug: praying. Quote Link to comment Share on other sites More sharing options...
chickenpatty Posted September 7, 2010 Share Posted September 7, 2010 I'm sorry! My ds has been having absence seizures for 1 1/2 years and in the past few days he has had some really unusual ones. I'm actually planning to call the neuro again tmro. It's so sad that our kids have to deal with these kinds of things. (((hugs))) to you and your dd. Quote Link to comment Share on other sites More sharing options...
BeckyFL Posted September 7, 2010 Share Posted September 7, 2010 So very sorry! Praying! :grouphug: Quote Link to comment Share on other sites More sharing options...
Starr Posted September 7, 2010 Share Posted September 7, 2010 Tell her I'm sorry and that I'm praying for her. I hope the doctors can get everything in order soon. Quote Link to comment Share on other sites More sharing options...
Whereneverever Posted September 7, 2010 Share Posted September 7, 2010 :grouphug: My DD2 has seizures- if you need to talk PM me. Quote Link to comment Share on other sites More sharing options...
Pink Fairy Posted September 7, 2010 Share Posted September 7, 2010 Praying here too! :grouphug: Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted September 7, 2010 Share Posted September 7, 2010 :grouphug: Praying :grouphug: Quote Link to comment Share on other sites More sharing options...
unsinkable Posted September 8, 2010 Author Share Posted September 8, 2010 Thanks for all the prayers. I am still baffled & discouraged about why this happened after she'd been doing well. Anyway, thanks again. Quote Link to comment Share on other sites More sharing options...
gracesteacher Posted September 8, 2010 Share Posted September 8, 2010 My DH has seizures. He was born in full grand mal seizure He seized all partical) the way up till he was about 10 then started back up at 27 with a grandmal behind the wheel in rush hour traffic 100ft from an active crosswalk. He just quit work in May to be the stay at home because I believe has been siezing in his sleep. He just had another series of them that they are blaming on heat. Have they tried your dc on keto diet? We will say prayers for you both Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted September 8, 2010 Share Posted September 8, 2010 :grouphug: My dh has epilepsy. We're sure hoping neither of our kids develop it. Rosie Quote Link to comment Share on other sites More sharing options...
gracesteacher Posted September 8, 2010 Share Posted September 8, 2010 Rosie do they know what caused your husbands? Quote Link to comment Share on other sites More sharing options...
Mama Geek Posted September 8, 2010 Share Posted September 8, 2010 :grouphug: Epilepsy has run through my family. My great grandmother had it, but I don't know any details. My dad started having grand mal seizures in his forties that they never got under control, but he has since passed away. My younger brother had seizures as a young teen, but has had no problems for probably 15 years and is drug free. Quote Link to comment Share on other sites More sharing options...
ma23peas Posted September 8, 2010 Share Posted September 8, 2010 So sorry!! I hope she is feeling better soon! I can only share my experience...but from lots of study, many of these 'unexpected' events are triggered by puberty/hormonal changes/stress...some of those you can't control, others you just have to wait for the body to digest and come up with a way to manage it... I had clonic/tonic seizures in college....my first year at college I did the opposite..I lost 100 pounds (walking 10 miles a day across campus and not being able to fit much food in made it happen) but once the first 30 pounds came off in 2 months, I really thought I can get all this weight off, I am fairly tall and carried my weight okay, might have gotten into a size 18 but mostly 16's...so I started buying slimfast for a quick meal on the go...some days I'd have 2 and some days just one, but pretty much everyday until I reached a healthy weight....THEN I started the seizures...I had never had seizures...my brother had grand mal 3-5x but since has been on meds, and a cousin had them but out of 50 other cousins and aunts/uncles, no issues...so who knows if I was predisposed..but after studying phenylalanine more closely, I made a distinct connection between the amts in Slim-fast and seizures...the evidence is there..and the types of seizures associated with it are documented...I'm just one case among many...but I have struggled to remove all traces of it from my diet....very hard to do!! I think it is addictive!! :( It won't hurt to remove those types of things..it may not help, but wanted to share and pray your daughter recovers well with no more incidences! Tara Quote Link to comment Share on other sites More sharing options...
unsinkable Posted September 8, 2010 Author Share Posted September 8, 2010 Thanks again. I appreciate the stories & prayers! Thanks for the advice on artificial sweetners. The kids don't have artificial sweeteners. I actually gave them up myself this summer. Yay, me! :D Quote Link to comment Share on other sites More sharing options...
Tammyla Posted September 8, 2010 Share Posted September 8, 2010 :grouphug:Prayers:grouphug: Quote Link to comment Share on other sites More sharing options...
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