JudoMom Posted November 4, 2010 Share Posted November 4, 2010 (edited) I just got back from seeing my GI doctor and I received my liver biopsy results. I have inflammation in both parts of the liver (I forget how he described the two parts). On a scale from 1-4, one is a 2 and one is a 3 (he described the 3 as significant). I also have more scarring than he would expect to see in someone my age and health. I also have very little fat, so that part doesn't line up with fatty liver disease (which was the previous theory). I haven't touched any alcohol since I was 19. He did an upper GI on me in September, and I had inflammation in my esophagus. I have bilateral pain in my hands, thumbs, fingers, elbows, shoulders and toes (that is getting more severe), but my ANA is negative and my SED rate isn't ever elevated. I've been getting a tightness in my chest, and I'm never rested. I don't remember the last time I felt good. He told me he has no answers and doesn't know what's going on. I lost 85+ pounds in 2006, so he wonders if somehow it could be residual and is now clearing up, but my alt/ast numbers were normal until October 2009 so it doesn't really make sense to either of us that my previous obesity and weight loss would be the cause. So now, I get to go to a liver specialist in a major city an hour away. I'm scared, and I'd like answers. The question marks are wearing on me. I really appreciate your prayers. ETA: I forgot to mention that I still haven't told my parents or brother anything about this, so if you know me on FB, please don't mention this over there :). Edited November 5, 2010 by JudoMom Quote Link to comment Share on other sites More sharing options...
4kiddies Posted November 4, 2010 Share Posted November 4, 2010 :grouphug::grouphug: I hope you get some answers soon! Quote Link to comment Share on other sites More sharing options...
********* Posted November 4, 2010 Share Posted November 4, 2010 Oh dear. :grouphug: I know from my dh's multiple chronic heath issues that the question marks can be much harder to deal with than the diagnosis. Praying answers for you. Please keep us update when you can. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted November 4, 2010 Share Posted November 4, 2010 :grouphug: Praying, JudoMom Quote Link to comment Share on other sites More sharing options...
NanceXToo Posted November 4, 2010 Share Posted November 4, 2010 :grouphug: You will be in my thoughts! Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted November 4, 2010 Share Posted November 4, 2010 You are in my thoughts and prayers. :grouphug::grouphug::grouphug: Something that may help, as my dd30 began to get sick and was not getting better, there were many liver issues that were tested - biopsies, genetic tests. Turns out that a genetic test for whether or not her body produces glutathione answered most of the liver issues. She takes it now as a supplement. Anyway, I know how hard the waiting is -- there very likely is a simple answer to all of this.:grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Tammyla Posted November 4, 2010 Share Posted November 4, 2010 :grouphug:praying here:grouphug: Quote Link to comment Share on other sites More sharing options...
mrsrevmeg Posted November 4, 2010 Share Posted November 4, 2010 Praying for you :grouphug: Quote Link to comment Share on other sites More sharing options...
Miss Marple Posted November 4, 2010 Share Posted November 4, 2010 I just got back from seeing my GI doctor and I received my liver biopsy results. I have inflammation in both parts of the liver (I forget how he described the two parts). On a scale from 1-4, one is a 2 and one is a 3 (he described the 3 as significant). I also have more scarring than he would expect to see in someone my age and health. I also have very little fat, so that part doesn't line up with fatty liver disease (which was the previous theory). I haven't touched any alcohol since I was 19. He did an upper GI on me in September, and I had inflammation in my esophagus. I have bilateral pain in my hands, thumbs, fingers, elbows, shoulders and toes (that is getting more severe), but my ANA is negative and my SED rate isn't ever elevated. I've been getting a tightness in my chest, and I'm never rested. I don't remember the last time I felt good. He told me he has no answers and doesn't know what's going on. I lost 85+ pounds in 2006, so he wonders if somehow it could be residual and is now clearing up, but my alt/ast numbers were normal until October 2009 so it doesn't really make sense to either of us that my previous obesity and weight loss would be the cause. So now, I get to go to a liver specialist in a major city an hour away. I'm scared, and I'd like answers. The question marks are wearing on me. I really appreciate your prayers. :grouphug: Praying for answers as well as good liver biopsy results. Quote Link to comment Share on other sites More sharing options...
Unicorn. Posted November 4, 2010 Share Posted November 4, 2010 :grouphug: and Prayers. I hope you get some answers soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
chickenpatty Posted November 4, 2010 Share Posted November 4, 2010 :grouphug: Praying for you, Judomom! Quote Link to comment Share on other sites More sharing options...
MamaAkins Posted November 4, 2010 Share Posted November 4, 2010 I will be praying for you. Question marks are often harder than dealing with a diagnosis. I will be praying for quick, positive results and for the doctors to have wisdom in figuring out what is going on. Quote Link to comment Share on other sites More sharing options...
Starr Posted November 4, 2010 Share Posted November 4, 2010 Praying all gets resolved soon. I find those specialists can be full of info and quite comforting. Quote Link to comment Share on other sites More sharing options...
Jen in PA Posted November 4, 2010 Share Posted November 4, 2010 :grouphug: Quote Link to comment Share on other sites More sharing options...
Jennefer@SSA Posted November 4, 2010 Share Posted November 4, 2010 Praying for you. I am so sorry that you are dealing with all this and I agree that the unknown is often the hardest part. Praying for peace for your heart and great doctors who know just what to do to find the exact problem and be able to fix it. I hope you feel much better soon! Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted November 4, 2010 Share Posted November 4, 2010 Praying for peace and a good outcome.:grouphug: Quote Link to comment Share on other sites More sharing options...
Tree House Academy Posted November 5, 2010 Share Posted November 5, 2010 I am praying hard for you, Courtney. I am sorry the results left more questions than answers. God be with you! Rebecca Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted November 5, 2010 Share Posted November 5, 2010 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
MamaT Posted November 5, 2010 Share Posted November 5, 2010 Praying for peace and that you get some answers - positive ones of course! Quote Link to comment Share on other sites More sharing options...
Denise in IN Posted November 5, 2010 Share Posted November 5, 2010 Praying for you! :grouphug: Quote Link to comment Share on other sites More sharing options...
Imprimis Posted November 5, 2010 Share Posted November 5, 2010 Prayers and well-wishes for you. Quote Link to comment Share on other sites More sharing options...
Miss Sherry Posted November 5, 2010 Share Posted November 5, 2010 :grouphug: Praying for you :grouphug: Quote Link to comment Share on other sites More sharing options...
Sugarfoot Posted November 5, 2010 Share Posted November 5, 2010 Praying here.:grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted November 5, 2010 Share Posted November 5, 2010 :grouphug: Quote Link to comment Share on other sites More sharing options...
JudoMom Posted November 5, 2010 Author Share Posted November 5, 2010 Thanks, guys. I'll let you guys know when I know anything else :grouphug:. Quote Link to comment Share on other sites More sharing options...
unsinkable Posted November 5, 2010 Share Posted November 5, 2010 :grouphug: all my prayers! Quote Link to comment Share on other sites More sharing options...
Margo out of lurking Posted November 5, 2010 Share Posted November 5, 2010 (((Courtney))), Praying for answers and for the peace of God in you. :grouphug: Quote Link to comment Share on other sites More sharing options...
King Alfred Academy Posted November 5, 2010 Share Posted November 5, 2010 Oh...:grouphug::grouphug::grouphug: I will definitely be praying for you. Praying for peace and healing. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
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