*LC Posted November 12, 2020 Share Posted November 12, 2020 (edited) 33 minutes ago, Condessa said: There’s no way we would ever consider leaving our six-year-old alone at some place. That has never been on the table. I understand that, and I didn’t mean to upset you. Unfortunately, this year has brought changes to policies in many health-care settings that would have never been considered a year ago. You just need to verify the details of who/what/when/where is allowed before your son is transferred to a different facility. You need to make sure the facility’s policies agree with your expectations before your son is admitted and insurance has kicked in. Sounds like you have a well-thought out plan, praying that everything goes smoothly on Friday and for a full recovery for your son. Edited November 12, 2020 by *LC 1 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted November 12, 2020 Share Posted November 12, 2020 Great that he is able to get into the clinic. Sending more hugs and positive thoughts 1 Quote Link to comment Share on other sites More sharing options...
Ottakee Posted November 12, 2020 Share Posted November 12, 2020 Continued prayers for all of you. Covid and fosters just add extra layers to an already difficult situation. 1 Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 12, 2020 Share Posted November 12, 2020 I am glad you have a plan that takes you a step closer to home. I hope your little guy is feeling more comfortable and less scared. 1 Quote Link to comment Share on other sites More sharing options...
sassenach Posted November 12, 2020 Share Posted November 12, 2020 Praying for travel mercies. 2 Quote Link to comment Share on other sites More sharing options...
Mrs Tiggywinkle Posted November 12, 2020 Share Posted November 12, 2020 10 hours ago, Condessa said: He is definitely going to the two-week physical therapy rehab clinic, and they are talking about sending him on Friday. We’ll be driving him to the city about 4.5 hours south of here (or normally that long; we are going to have to stop for lots of breaks and he is going to have to lie down across the seats for most of the trip). Apparently he has to be checked out of the hospital and into the clinic within one business day, because if he spends a night out of a facility the insurance will balk at paying for the inpatient clinic under the argument that he clearly doesn’t need inpatient care. So the plan is to discharge him very early so we have time to take things slowly and still get him in before the end of the business day. We’re going to pick up our other bio kids from the cousins’ house near here and all drive down together so we can have a bit of family time together, then fly the three bigger kids to go stay with my parents from there. Our foster girls are continuing to stay with friends at home. Dh’s work has been great. His boss is picking through all their cases to take everything that has to be done in person and give dh everything that can be done remotely. So while we’re down there dh will work remotely during the day while I’m with Ri, and then we’ll switch for the late afternoon/evening, and take turns with him at night. You can ask if your insurance will cover ambulance transport. Mobility issues count for medical necessity, and it would be more comfortable for him to lie down and watch a movie during the long ride. 7 Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 13, 2020 Share Posted November 13, 2020 I hope you are traveling safely, still thinking of you. 1 Quote Link to comment Share on other sites More sharing options...
Alicia64 Posted November 13, 2020 Share Posted November 13, 2020 Thinking of you guys every day. W. Quote Link to comment Share on other sites More sharing options...
Kareni Posted November 13, 2020 Share Posted November 13, 2020 Sending good thoughts as your son heals and goes through rehab. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
Ditto Posted November 13, 2020 Share Posted November 13, 2020 Continuing to think of you guys. Quote Link to comment Share on other sites More sharing options...
Pen Posted November 14, 2020 Share Posted November 14, 2020 Hope you have arrived and that he is checked in to rehab and that it goes great!!! Quote Link to comment Share on other sites More sharing options...
stephanier.1765 Posted November 14, 2020 Share Posted November 14, 2020 I don't how I missed this thread but I am so sorry you all are going through this. I will be thinking about you guys and hoping rehab is a huge success. Quote Link to comment Share on other sites More sharing options...
melmichigan Posted November 14, 2020 Share Posted November 14, 2020 I also missed this thread. You guys will be in my thoughts. I hope it all goes smoothly and successfully! Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 15, 2020 Author Share Posted November 15, 2020 We aren’t down at the rehab clinic yet. We were told late in the day on Thursday that they wouldn’t have a bed available for him until Monday, so that’s when we’ll be driving down. He is making lots of progress on his stamina for sitting up and his pain is down a ton, so maybe making the drive a few days later will be better for him anyways. Our childcare arrangements for our other bio kids were up on Friday morning, though, so we are taking turns being back with them at home (just over an hour from the hospital). We’ve also had our foster girls back home some, but not as much—they can’t be with us when we go over to switch, as our state is locking down again and DHS doesn’t want foster kids crossing state lines. I think it’s good for the other six to get in some parent time this weekend. 14 Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 15, 2020 Share Posted November 15, 2020 I am glad to hear this. It sounds like the delay was what your family needed. Quote Link to comment Share on other sites More sharing options...
Ottakee Posted November 15, 2020 Share Posted November 15, 2020 Thanks for the updates. The Fostering rules plus covid really do make things harder. I remember the Fostering days. So glad you are seeing improvement. Sounds like he will get even more out of the rehab just by being stronger and having less pain when he gets there. Quote Link to comment Share on other sites More sharing options...
*LC Posted November 17, 2020 Share Posted November 17, 2020 I hope the move to the rehab hospital went well and that you could see progress in his recovery. Quote Link to comment Share on other sites More sharing options...
NorthwestMom Posted November 17, 2020 Share Posted November 17, 2020 Thinking of you and hope the move went smoothly. Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 17, 2020 Author Share Posted November 17, 2020 We got the pathology report back!!! The tumor is a pilocytic astrocytoma, which is pretty benign. We have high hopes that this means he won’t need chemo or radiation therapy, but we won’t know until his next MRI in three weeks. We made it down here okay, and Ri met his therapists and was evaluated by them. Tomorrow the work begins. 45 Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 17, 2020 Share Posted November 17, 2020 Oh thank goodness that is really really wonderful news! I am so so glad for you. Quote Link to comment Share on other sites More sharing options...
Terabith Posted November 17, 2020 Share Posted November 17, 2020 Wonderful!!!! Quote Link to comment Share on other sites More sharing options...
Ottakee Posted November 17, 2020 Share Posted November 17, 2020 Great news on the Path report. Glad you made it to the next step in recovery. Quote Link to comment Share on other sites More sharing options...
Corraleno Posted November 17, 2020 Share Posted November 17, 2020 Wonderful news! ❤️ Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted November 17, 2020 Share Posted November 17, 2020 that is fabulous news hugs Quote Link to comment Share on other sites More sharing options...
Kareni Posted November 17, 2020 Share Posted November 17, 2020 Yay for the great news vis-à-vis the pathology report! I hope that tomorrow will go well. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
catz Posted November 17, 2020 Share Posted November 17, 2020 Oh that is fantastic news! Great update! ❤️ Hope the healing continues smoothly. Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted November 17, 2020 Share Posted November 17, 2020 that is great news! Quote Link to comment Share on other sites More sharing options...
stephanier.1765 Posted November 18, 2020 Share Posted November 18, 2020 I am so happy for you guys! What wonderful news! Quote Link to comment Share on other sites More sharing options...
Ditto Posted November 18, 2020 Share Posted November 18, 2020 I am very happy and relieved for all of you! I hope his recovery is continuing to go well and you guys are home soon. Quote Link to comment Share on other sites More sharing options...
bzymom Posted November 18, 2020 Share Posted November 18, 2020 Hooray for good news! Praying for co rubies food news and healing. Quote Link to comment Share on other sites More sharing options...
Condessa Posted November 20, 2020 Author Share Posted November 20, 2020 Ri is working hard and making progress every day. He loves the physical therapy. Occupational therapy, not so much. In his little free time, he is enjoying exploring all the public areas of this large hospital, as he was stuck only on the pediatrics floor of the last one. He zooms all over the place in his little wheelchair, often wearing his Flash superhero costume, and is beginning to have people who recognize him stopping to chat with him all over the hospital. We are concerned about his surgery incision site, which was kind of red and puffy after the long drive down here, and is now displaying signs of infection. They started him on an antibiotic for it the night before last, so hopefully it will improve soon. 11 Quote Link to comment Share on other sites More sharing options...
Ottakee Posted November 20, 2020 Share Posted November 20, 2020 So happy to hear he is making progress. I am sure the staff there love him. Those infections are a bit worrisome. My daughter is in right now to see the surgeon for an infection after her appendectomy.....and that is very minor. Keep us posted on him. How are you and the rest of the family holding up? It is so tiring. Quote Link to comment Share on other sites More sharing options...
Drama Llama Posted November 20, 2020 Share Posted November 20, 2020 I am glad to hear he's doing well, and feeling more like himself. I hope you are able to address the infection quickly and easily. Thank you for updating! Quote Link to comment Share on other sites More sharing options...
Forget-Me-Not Posted November 20, 2020 Share Posted November 20, 2020 On 11/16/2020 at 8:30 PM, Condessa said: We got the pathology report back!!! The tumor is a pilocytic astrocytoma, which is pretty benign. We have high hopes that this means he won’t need chemo or radiation therapy, but we won’t know until his next MRI in three weeks. We made it down here okay, and Ri met his therapists and was evaluated by them. Tomorrow the work begins. What fantastic news! I've been lurking and not posting much, but you and your family have been on my mind. I hope the next two weeks go well! Quote Link to comment Share on other sites More sharing options...
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