Mrs Mungo Posted November 26, 2012 Share Posted November 26, 2012 I am sorry, Joanne. I hate that you are all going through that. Quote Link to comment Share on other sites More sharing options...
CAMom Posted November 26, 2012 Share Posted November 26, 2012 I have some sense as to what happens with the amonia level disorientation as my mom dealt with this with her brother with whom she lived. I'm so sorry, Joanne. :grouphug: Quote Link to comment Share on other sites More sharing options...
Twigs Posted November 26, 2012 Share Posted November 26, 2012 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Amy in TX Posted November 26, 2012 Share Posted November 26, 2012 Haven't figured out the emoticons, but ((((((Joanne)))))) Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted November 26, 2012 Share Posted November 26, 2012 I am so sorry Joanne. I will pray you get some help soon. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
celticmom Posted November 26, 2012 Share Posted November 26, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Debbi in Texas Posted November 26, 2012 Share Posted November 26, 2012 So sorry. I can't even imagine. Quote Link to comment Share on other sites More sharing options...
elfgivas Posted November 26, 2012 Share Posted November 26, 2012 :grouphug: oh joanne ..... breathe in.... breathe out.... and just do the next thing. it is just So Hard. i am so sad for you.... this is not the life you thought you were getting.... at all... :grouphug: ann Quote Link to comment Share on other sites More sharing options...
LibraryLover Posted November 26, 2012 Share Posted November 26, 2012 :grouphug: From my read, you are doing everything possible/imaginable. All the best to you, J. I just read you've been promoted! You have worked so hard. Quote Link to comment Share on other sites More sharing options...
*Inna* Posted November 26, 2012 Share Posted November 26, 2012 I'm sorry, Joanne. :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
KrissiK Posted November 26, 2012 Share Posted November 26, 2012 I am so sorry, Joanne! Quote Link to comment Share on other sites More sharing options...
Alessandra Posted November 26, 2012 Share Posted November 26, 2012 I admire you on a level I cannot express. I hurt for you even more. Lara Lara has expressed what I --and a lot of people, it seems -- feel. And so much more eloquently than I ever could. Quote Link to comment Share on other sites More sharing options...
justLisa Posted November 26, 2012 Share Posted November 26, 2012 This is so hard. I cannot imagine. :grouphug: Quote Link to comment Share on other sites More sharing options...
Carol in Cal. Posted November 26, 2012 Share Posted November 26, 2012 Joanne, I am so sorry about this. It's just not right, so unnecessary, such a disgusting blot on our whole society. I wish that I could help. It's awful Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted November 26, 2012 Share Posted November 26, 2012 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
StaceyinLA Posted November 26, 2012 Share Posted November 26, 2012 I wish I had some inspirational words to share, but all I can do is offer prayers, and :grouphug: . Quote Link to comment Share on other sites More sharing options...
Joanne Posted November 26, 2012 Author Share Posted November 26, 2012 Oh, honey. (((Joanne))) I am awed that you manage to even get out of bed in morning... let alone to transform so many aspects of your life - achieving such amazing things... and helping so many with your work. What is Adrian's cognitive prognosis? From what you've said before, I got the impression that the brain damage is permanent, but I was hoping I might be wrong. If, by some miracle, his liver issues were stabilized, could some of the cognitive impairment be reversed? I know that wouldn't mean you'd get the old Adrian back, but could he be more functional then, or a little more mentally present? Darling, you are living my worst nightmare... and with such grace and courage it takes my breath away. You are in my heart and prayers. Take care of yourself, my dear. Last night, my oldest and I took him to the hospital where the liver specialist is. I can't access the specialist unless I pay OOP. We haven't seen him since May. So, I took him to that ER, knowing they'd have to evaluate us. I realize it was financially irresponsible. I.don't.care. Well, it's not that I don't care. It's that my need for answers that might lead to a more manageable life trumped my caring about the bill. The ER "got it." I told him quite frankly I why I chose that facility. In leaving the ER room, he said to me "So, the only way to access the specialist is if he is admitted?" I answered "yes". The Dr. then ordered a BUNCH of blood tests, which signified to me that he was looking for a justifyable way to admit him. He was admitted. The long term brain effects are one of the questions I plan on asking the liver specialist. That Dr. once said he's seen people with a new liver "come all the way back from coma" but that is HARD to believe when he operates at the level he does. It's hard to describe; the compromised functioning of the good days. It's like a severe Aspie/Forest Gump. I will post an update after I've spoken with the Dr. Quote Link to comment Share on other sites More sharing options...
QuirkyKidAcademy Posted November 26, 2012 Share Posted November 26, 2012 hugs and prayers continued..... Quote Link to comment Share on other sites More sharing options...
Carol in Cal. Posted November 26, 2012 Share Posted November 26, 2012 Good for you, Joanne. We are praying and waiting to hear what is next. Quote Link to comment Share on other sites More sharing options...
Nakia Posted November 26, 2012 Share Posted November 26, 2012 :( Bless you. Quote Link to comment Share on other sites More sharing options...
Truscifi Posted November 26, 2012 Share Posted November 26, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted November 26, 2012 Share Posted November 26, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
SwallowTail Posted November 26, 2012 Share Posted November 26, 2012 Joanne, I have watched and prayed all these years as you have been so dedicated to the wellbeing of your family, working so tirelessly to provide for them. I am so heartbroken that Adrian has deteriorated to this point, that you must shoulder the burden of it all emotionally and financially, and find myself just mad at the world in general that things have not improved for you, despite your efforts and the prayers of many. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted November 27, 2012 Share Posted November 27, 2012 I'm glad the ER doctor was kind and dedicated enough to try to help you and Adrian. I hope you're able to get some answers soon. And don't worry about the "financially irresponsible" thing. You did what you needed to do to help your dh, and I am sure all of us would have done the exact same thing in your position. I'll be watching for an update. :grouphug: Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted November 27, 2012 Share Posted November 27, 2012 I'm glad the ER doctor was kind and dedicated enough to try to help you and Adrian. I hope you're able to get some answers soon. And don't worry about the "financially irresponsible" thing. You did what you needed to do to help your dh, and I am sure all of us would have done the exact same thing in your position. I'll be watching for an update. :grouphug: :iagree: Quote Link to comment Share on other sites More sharing options...
southcarolinamom Posted November 27, 2012 Share Posted November 27, 2012 :grouphug: I'm so sorry, Joanne. Keep up the good fight! I look forward to hearing about the liver specialist's recommendations. Quote Link to comment Share on other sites More sharing options...
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