Embassy Posted February 5, 2013 Share Posted February 5, 2013 Praying! Quote Link to comment Share on other sites More sharing options...
besroma Posted February 5, 2013 Share Posted February 5, 2013 Praying for you and your daughter. Quote Link to comment Share on other sites More sharing options...
Pod's mum Posted February 5, 2013 Share Posted February 5, 2013 Prayers here too Chris, for dd and family. Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted February 5, 2013 Share Posted February 5, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
Kareni Posted February 5, 2013 Share Posted February 5, 2013 Sending positive thoughts for your daughter, her fiance, you, and your family. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
sbgrace Posted February 5, 2013 Share Posted February 5, 2013 Praying for all of you and the doctors as they make choices. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted February 5, 2013 Share Posted February 5, 2013 Any updates yet, Chris? Still praying here. Quote Link to comment Share on other sites More sharing options...
J-rap Posted February 5, 2013 Share Posted February 5, 2013 Praying for your daughter! Please be as proactive as possible. The brain is nothing to mess with! Quote Link to comment Share on other sites More sharing options...
Terabith Posted February 5, 2013 Share Posted February 5, 2013 Praying, and hoping for an update! Quote Link to comment Share on other sites More sharing options...
TN Mama Posted February 5, 2013 Share Posted February 5, 2013 Praying, Chris! Quote Link to comment Share on other sites More sharing options...
Soror Posted February 5, 2013 Share Posted February 5, 2013 Prayers! Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted February 5, 2013 Share Posted February 5, 2013 Chris, I hope your dd is better today and that you have some answers. I'm sorry she is suffering. :grouphug: Quote Link to comment Share on other sites More sharing options...
dirty ethel rackham Posted February 5, 2013 Share Posted February 5, 2013 Continuing to pray for your daughter. Quote Link to comment Share on other sites More sharing options...
HollyDay Posted February 5, 2013 Share Posted February 5, 2013 any updates? Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted February 5, 2013 Author Share Posted February 5, 2013 Yes, she is home after nothing was done at the ER. DH talked with her late at night. SHe was very tired. Her head really hurt still too. There are just so many weird things that could be causing these. Not only does she have a history of an unusual migraine (7 months non stop until she was put on Lexapro), but so do I (Basilar artery migraine when I was around her age, and more recently abdominal migraine). Well some migraines can cause seizures and some of her vision problems sound like they could be migraine auras. Or it could be blood clotting problems or a problem I just found out about that is much more common in people with Factor V Leiden like she has (BIH), which causes brain problems though I don't know if it causes seizures. Or it could be a strange bacteria or virus. Her roommate had a strange sickness and had been out of the country right before dd got sick with a sinus infection and then all this started happening, last February. Or it could be from one of the many times she fell when her neurally mediated hypotension was not yet well controlled and yes, she did hit her head at times. Or it could be something to do with her adrenaline/cortisol system because she has gotten some strange results on those tests. Or from something else we aren't even thinking about. What I don't like is in this year she has had something, no one is trying any medication to help her. Meantimes, she hits her head over and over again. In the meantime, my dh is soon going to go on the warpath with the intransigence of some of the faculty in accommodating her. She just had to drop a course because the teacher refused to accommodations. WE told her to first do her schoolwork and any health measures she needs to do but to email him the information about what is happening and he will write letters to a number of university officials about the lack of help for her. Dh is a very good writer and I think when the higher ups get notice of what has been happening with her and the lack of help, things may change. If we don't get results, we know how to take matters further and we know the people to contact. It is really too bad that our friends are orthopedists, dentists,and psychologists, not neurologists. Quote Link to comment Share on other sites More sharing options...
magnificent_baby Posted February 6, 2013 Share Posted February 6, 2013 Poor girl! I'm sure it is so frustrating. Can she take online classes instead? That might be safer until you can pinpoint the problem. I'd almost be tempted to keep her in a wheelchair or at least have someone standing next to her at all times when she is mobile. Falls and hitting the head can be very dangerous (as you well know!). :grouphug: Quote Link to comment Share on other sites More sharing options...
kalanamak Posted February 6, 2013 Share Posted February 6, 2013 What I don't like is in this year she has had something, no one is trying any medication to help her. Meantimes, she hits her head over and over again. Not that I'm a young woman, but I'd wear a helmet. But then, I've never cared about the stares of the impolite. :grouphug: Quote Link to comment Share on other sites More sharing options...
Laurie4b Posted February 6, 2013 Share Posted February 6, 2013 So sorry! Said a prayer for her. Hope you get some answers soon! Quote Link to comment Share on other sites More sharing options...
Dandelion Posted February 6, 2013 Share Posted February 6, 2013 Praying for your daughter and your family. :grouphug: Quote Link to comment Share on other sites More sharing options...
Catwoman Posted February 6, 2013 Share Posted February 6, 2013 :grouphug: :grouphug: :grouphug: Thanks for posting the update, Chris. I wish you'd been able to get some answers. Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted February 6, 2013 Share Posted February 6, 2013 So sorry it's been such a frustrating time! :grouphug: Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted February 6, 2013 Share Posted February 6, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
NoPlaceLikeHome Posted February 6, 2013 Share Posted February 6, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
HollyDay Posted February 13, 2013 Share Posted February 13, 2013 any updates?? Quote Link to comment Share on other sites More sharing options...
gracesteacher Posted February 14, 2013 Share Posted February 14, 2013 bump Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted February 14, 2013 Author Share Posted February 14, 2013 She is on the waiting list for cancellations. SHe is mostly doing online classes but still seizing a lot. She couldn't go to her in person class because of that but it is an honors seminar and the teacher is very understanding. Her fiance is driving them both up this weekend along with a kitten and a puppy (this will be a trial- we have a young cat, an older cat but definitely the dominant personality above all dogs and cats, and a dog who is on his last legs- he has canine cognitive defunction [(similar to ALzheimer's in humans and in fact the same medication is used with both)), is almost completely blind due to a tumor in one eye and the lens of the other eye slipping down, a bad heart murmur, collapsing trachea, and degenerative arthritis in his hips and spine)/ They are bringing a five month old kitten, a four month old puppy, and themselves. I am so glad we bought a bigger house even though in two years it will just be the two of us. We need it for animals and visiting children. Quote Link to comment Share on other sites More sharing options...
Kareni Posted February 14, 2013 Share Posted February 14, 2013 Thanks for the update, Chris. Still sending positive thoughts to her and to you. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
unsinkable Posted February 14, 2013 Share Posted February 14, 2013 For me, actively seizing, no meds, and multiple trips to the ER for injuries during seizures would mean a camp out at the nearest neuro's office. JMO as a mom who has dealt with YEARS of seizures. Quote Link to comment Share on other sites More sharing options...
Guest inoubliable Posted February 14, 2013 Share Posted February 14, 2013 She is on the waiting list for cancellations. SHe is mostly doing online classes but still seizing a lot. She couldn't go to her in person class because of that but it is an honors seminar and the teacher is very understanding. Her fiance is driving them both up this weekend along with a kitten and a puppy (this will be a trial- we have a young cat, an older cat but definitely the dominant personality above all dogs and cats, and a dog who is on his last legs- he has canine cognitive defunction [(similar to ALzheimer's in humans and in fact the same medication is used with both)), is almost completely blind due to a tumor in one eye and the lens of the other eye slipping down, a bad heart murmur, collapsing trachea, and degenerative arthritis in his hips and spine)/ They are bringing a five month old kitten, a four month old puppy, and themselves. I am so glad we bought a bigger house even though in two years it will just be the two of us. We need it for animals and visiting children. Can your DD not take a leave of absence?? A guy at one of my schools had to do that when he developed some weird fever (?) thing when he came back from a missionary assignment. He managed to drop all of his classes that semester with no penalties and came back after he was better. Honestly, if she's still seizing a lot, how well can she be functioning in class? That must be a lot of pressure on her. Is there nowhere else she can get in with the doctor? Her latest ER episode seemed extremely critical and she's still seizing. If it were me, I'd be banging on the door to get her in somewhere... Hope you get some answers soon! Quote Link to comment Share on other sites More sharing options...
Whereneverever Posted February 14, 2013 Share Posted February 14, 2013 For me, actively seizing, no meds, and multiple trips to the ER for injuries during seizures would mean a camp out at the nearest neuro's office. JMO as a mom who has dealt with YEARS of seizures. Yes, this. Not just the nearest, tho, I'd be calling everyone I could reasonably drive to. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.