TravelingChris Posted March 17, 2012 Share Posted March 17, 2012 SO dd18 saw the neurologist on Thursday afternoon. He did various tests with her walking, squeezing his hands, etc. Some she really couldn't do at all- keeping her arms from being moved. Others she was better at-keeping her legs from being moved. He scheduled her for 17 different blood tests- including cortisol levels, all kinds of ones dealing with autoimmune diseases, and other ones I don't even recognize. Those were done on Friday. We are having to basically babysit her just about all the time- because she passes out and hurts herself in the process. She can sleep in bed okay so that is a relief. (By the way, she is 18.5 years old and a college freshman, not a babt at all)> But, for example, she started passing out while washing her hair in the bathtub and her sister got her awake again. She was drying her hands, started passing out, and ripped the towel bar from the wall and the knob hit her in the face, causing a bruise but thankfully it was the blunt end, not the end with the screw. It also just barely missed her eye. She will be having an EEG and MRIs of her brain on Monday. On Tuesday, she has an EMG. We are also calling the PT department back on Monday morning to schedule her PT. The doctor thought they may be able to help her steady herself a bit and maybe also fall better. Then next Friday she will go back to the neurologist because some of the blood work takes a week to get back. We will be asking the neurologist for a scrip for a rental wheelchair to move her around on MOnday. Quote Link to comment Share on other sites More sharing options...
QueenCat Posted March 17, 2012 Share Posted March 17, 2012 How scary, it really does sound like she's doing worse than in earlier posts. I would think you should be able to get that wheelchair pretty quickly. Hugs and prayers to her, and all of you. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted March 17, 2012 Share Posted March 17, 2012 :grouphug::grouphug::grouphug: Continuing to pray. Quote Link to comment Share on other sites More sharing options...
Twigs Posted March 17, 2012 Share Posted March 17, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted March 17, 2012 Share Posted March 17, 2012 I am praying.:grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Chris in VA Posted March 17, 2012 Share Posted March 17, 2012 Praying for her and for your mothering heart. I'm so sorry you have to endure this.:grouphug: Quote Link to comment Share on other sites More sharing options...
Teachin'Mine Posted March 18, 2012 Share Posted March 18, 2012 :grouphug::grouphug::grouphug: Praying. Are they monitoring her blood pressure? It sounds like it's very low. Quote Link to comment Share on other sites More sharing options...
indigomama Posted March 18, 2012 Share Posted March 18, 2012 How scary for everyone. Hopefully, you'll get answers soon. I know for me, battling the known is a little easier than battling the unknown. Quote Link to comment Share on other sites More sharing options...
itsheresomewhere Posted March 18, 2012 Share Posted March 18, 2012 For the wheelchair- check to see if goodwill has any for sale. You may want to see if it cheaper to buy one than to rent one on your insurance policy. Walgreens has a very cheap ( for a wheelchair) wheelchair that is portable. Good luck. I hope this doctor can put all the puzzle pieces together for you. Quote Link to comment Share on other sites More sharing options...
thescrappyhomeschooler Posted March 18, 2012 Share Posted March 18, 2012 I pray that they find out what's wrong and can treat her accordingly. :grouphug: Quote Link to comment Share on other sites More sharing options...
Night Elf Posted March 18, 2012 Share Posted March 18, 2012 Aww.. that's scary indeed. :grouphug: I hope you guys figure out what it is really soon!! Quote Link to comment Share on other sites More sharing options...
Mommyfaithe Posted March 18, 2012 Share Posted March 18, 2012 Oh my!! I am praying! Please keep us updated. Poor kid! :grouphug: Quote Link to comment Share on other sites More sharing options...
sparrow Posted March 18, 2012 Share Posted March 18, 2012 :grouphug::grouphug: I hope they are able to give you answers and treatment soon! Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted March 18, 2012 Author Share Posted March 18, 2012 Thank you all. We got good news this evening that she can easily go to our church tomorrow. Our church is very interested in being accessible to disabled people and has two wheelchairs and some walkers available for those who come. All of the levels are accessible by lifts or elevators too. This is not a very large church so I am extremely happy about this. She wanted to go to church tomorrow and now she can do it easily. Quote Link to comment Share on other sites More sharing options...
In the Rain Posted March 18, 2012 Share Posted March 18, 2012 :grouphug: I'm glad she can make it to church tomorrow. I hope you get some answers soon. Quote Link to comment Share on other sites More sharing options...
sheryl Posted March 18, 2012 Share Posted March 18, 2012 Chris, Will the eeg be ambulatory or sleep-deprived? Quote Link to comment Share on other sites More sharing options...
swellmomma Posted March 18, 2012 Share Posted March 18, 2012 When we needed a wheelchair short term for Hunter this summer after his accident we got it from the red cross, the dr wrote a Rx for it and we got it for free,rental terms are generally for 3 months but can be extended if need be. I hope they can figure out what is going on with her Quote Link to comment Share on other sites More sharing options...
Impish Posted March 18, 2012 Share Posted March 18, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
PollyOR Posted March 18, 2012 Share Posted March 18, 2012 My goodness! I hope you get answers very soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
Deb in NZ Posted March 18, 2012 Share Posted March 18, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
MrsBasil Posted March 18, 2012 Share Posted March 18, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
RoughCollie Posted March 18, 2012 Share Posted March 18, 2012 :grouphug: and prayers. Quote Link to comment Share on other sites More sharing options...
catz Posted March 18, 2012 Share Posted March 18, 2012 :grouphug: Hope you get answers swiftly. :grouphug: Quote Link to comment Share on other sites More sharing options...
Kareni Posted March 18, 2012 Share Posted March 18, 2012 Sending positive thoughts for an improvement in her health and for your peace of mind. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted March 18, 2012 Share Posted March 18, 2012 Thanks for the update. I'm so sorry this is happening to your dear daughter. Continuing in prayer. :grouphug: Quote Link to comment Share on other sites More sharing options...
Ottakee Posted March 18, 2012 Share Posted March 18, 2012 Praying you get some answers. Keep us posted. Quote Link to comment Share on other sites More sharing options...
Michelle in AL Posted March 18, 2012 Share Posted March 18, 2012 :grouphug: prayers & :grouphug: I can't imagine how hard this is. I hope you find answers soon! Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted March 18, 2012 Share Posted March 18, 2012 I am so sorry to hear this! How often is she passing out? Is it only while standing? Does she feel it start to come on? i remember sharing that dd12 has vasovagal syncope. She has not started to faint in many years, but she can feel these episodes coming on and will immediately sit or lay down. What helps prevent these is for dd to eat at regular intervals and to STAY HYDRATED. It was recomended she drink Gatorademto keep her electroytes in balance. She is also supposed to have adequate salt intake. I wonder if any of these things would help your dd? If you get no answers from a neurologist, maybe see a cardiologist to at least rule out vasovagal syncope..... Which has several different names like neurally mediated syncope... And other names. :grouphug:I know how scary this is! I do hope she can learn what happens right before her passing out. Dd12 hit her head pretty hard a few times. :grouphug: Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted March 18, 2012 Share Posted March 18, 2012 :grouphug::grouphug::grouphug: I hope and pray you get answers soon. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.