Χά�ων Posted November 30, 2013 Share Posted November 30, 2013 The company that the manufacture of one of DS's vital medications has temporarily stopped making it. The pharmacy found another company but they only had 3 bottles. I am starting to freak. DS needs those medications to slow his disease. The consequences of not having access to his medication are life or death. Quote Link to comment Share on other sites More sharing options...
An Unexpected Party Posted November 30, 2013 Share Posted November 30, 2013 I'm sorry to hear this. Have you had a chance to speak with the treating physician yet? Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted November 30, 2013 Author Share Posted November 30, 2013 I'm sorry to hear this. Have you had a chance to speak with the treating physician yet? Not yet. She is out of the office until Monday. I have every intention of calling first thing Monday Morning though. Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted November 30, 2013 Author Share Posted November 30, 2013 Oh, I have built up about a 3 week supply of medication (I rotate it every month so it is not expired) just in case he had to miss a month. It is not the first time something like this has happened. The last couple of times did not directly affect him but the thought that a medication that he needs to live could become out of reach over night is terrifying. Quote Link to comment Share on other sites More sharing options...
dbmamaz Posted November 30, 2013 Share Posted November 30, 2013 I hope the doc has a good short term solution for you - how frustrating! Quote Link to comment Share on other sites More sharing options...
trulycrabby Posted December 1, 2013 Share Posted December 1, 2013 Is there another manufacturer of the medication? Can you get it from another country, such as Canada? Quote Link to comment Share on other sites More sharing options...
mysticmomma Posted December 1, 2013 Share Posted December 1, 2013 I'd suggest looking into Canada or NZ. Globaldrug.tv reroute to a different site but is a reliable pharmacy. Quote Link to comment Share on other sites More sharing options...
Cindy in FL. Posted December 1, 2013 Share Posted December 1, 2013 Hoping that you can get this taken care of on Monday. I'm sorry that you have to deal with something so frustrating and scary! Quote Link to comment Share on other sites More sharing options...
Lanny Posted December 1, 2013 Share Posted December 1, 2013 Possibly his M.D. can prescribe another medicine, one that is readily available, for the same task? If not, if you live near the border with Mexico, hopefully you can get the medicine he needs there. You will need to have a written prescription from his M.D., to bring the medicine back into the USA. Check with U.S. Customs, to determine what quantity will be allowed. If the manufacturer is discontinuing production of this drug, even temporarily, that would be a big Red flag and a reason for trying to find an alternate, ASAP. Much GL with this! Quote Link to comment Share on other sites More sharing options...
justasque Posted December 1, 2013 Share Posted December 1, 2013 It's probably an obvious suggestion, but I would probably contact the manufacturer to see if they have advice, when they plan to start up production again, what is causing the problem, and so forth. The more info you have directly from them, the more accurately you can plan ahead. Quote Link to comment Share on other sites More sharing options...
Spryte Posted December 1, 2013 Share Posted December 1, 2013 It's probably an obvious suggestion, but I would probably contact the manufacturer to see if they have advice, when they plan to start up production again, what is causing the problem, and so forth. The more info you have directly from them, the more accurately you can plan ahead. That's a good idea. And maybe they can offer advice about which pharmacies might have more on the shelves. Maybe they can match your copay (if you have one) or offer you a significant discount to purchase a small supply to get you through? (I don't know what company it is, but Glaxo Smith Kline will work with people sometimes - they have some good programs to help patients.) Sending you some good med vibeage! Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted December 1, 2013 Author Share Posted December 1, 2013 It's probably an obvious suggestion, but I would probably contact the manufacturer to see if they have advice, when they plan to start up production again, what is causing the problem, and so forth. The more info you have directly from them, the more accurately you can plan ahead. Obvious maybe but it is a great suggestion! I love my pharmacy, the pharmacist called them to find out what the scoop is and then called other manufactures to find the one who had 3 bottles. They ordered all 3, so there is that. I will call the manufacture and talk to them. Thanks. There is another medication regimen the doctor has talked about using for DS. The side affects are absolutely terrifying and while I am fully aware that DS will eventually have to undergo it, I am not in any hurry to go there, KWIM? Quote Link to comment Share on other sites More sharing options...
Forget-Me-Not Posted December 1, 2013 Share Posted December 1, 2013 Any chance a compound pharmacy could make it for you? That's so scary! Quote Link to comment Share on other sites More sharing options...
Catwoman Posted December 1, 2013 Share Posted December 1, 2013 Oh no! That's just awful and you must be so scared and worried!!! :grouphug: I hope you're able to find another source for the medication, like a pharmacy in one of the other countries that have been suggested. I'm so sorry. :( Quote Link to comment Share on other sites More sharing options...
AlmiraGulch Posted December 1, 2013 Share Posted December 1, 2013 This really is frightening. I hope you find a solution, be it another country, or a compounding pharmacy, or another drug regimen without the horrifying side effects. Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted December 1, 2013 Author Share Posted December 1, 2013 Any chance a compound pharmacy could make it for you? That's so scary! See! Another reason I love these forums! I actually looked into using a compounding pharmacy when allergy thought he was either allergic to one of his meds or something in one of the meds. I am not sure why this did not occur to me sooner. Thanks!!! Quote Link to comment Share on other sites More sharing options...
Desert Rat Posted December 1, 2013 Share Posted December 1, 2013 We had success going through Canada when this happened to my dad. It was far more expensive, but worth every penny. Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted December 1, 2013 Author Share Posted December 1, 2013 We had success going through Canada when this happened to my dad. It was far more expensive, but worth every penny. The expense scares me. There is just no way I could afford an increase. Even if I gave up things such as eating, my income just isn't that high. Quote Link to comment Share on other sites More sharing options...
Forget-Me-Not Posted December 1, 2013 Share Posted December 1, 2013 See! Another reason I love these forums! I actually looked into using a compounding pharmacy when allergy thought he was either allergic to one of his meds or something in one of the meds. I am not sure why this did not occur to me sooner. Thanks!!! You're welcome! I hope it works out! Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted December 1, 2013 Share Posted December 1, 2013 I hope it works out. Quote Link to comment Share on other sites More sharing options...
Pod's mum Posted December 1, 2013 Share Posted December 1, 2013 Do you have an association linked to your son's condition? This happened a couple of times with elder dd and the state support association for her condition was able to get options for us. For us she was due to go onto a stronger dose so the other brand was fine (and turned out to be better). Hope you can find a good and reliable substitute for your son, I realise how scary it is. Quote Link to comment Share on other sites More sharing options...
Aelwydd Posted December 1, 2013 Share Posted December 1, 2013 The expense scares me. There is just no way I could afford an increase. Even if I gave up things such as eating, my income just isn't that high. Oh my goodness! I would hope that you could at least submit the receipts later to your drug plan to recoop some of the money if you went the Canada route. Maybe something to call your insurance about??? Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted December 1, 2013 Share Posted December 1, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
creekland Posted December 1, 2013 Share Posted December 1, 2013 :grouphug: I hope things work out. It sure does seem scary otherwise. No advice - just :grouphug: Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted December 1, 2013 Share Posted December 1, 2013 I am so sorry, I hope they find some for you. This happened to my sister in law during her battle with cancer as well, with devastating consequences. It's so wrong, it's all about money. Quote Link to comment Share on other sites More sharing options...
Spryte Posted December 3, 2013 Share Posted December 3, 2013 Any news on this? I hope you made some progress today! Quote Link to comment Share on other sites More sharing options...
Catwoman Posted December 3, 2013 Share Posted December 3, 2013 I'm wondering, too -- I hope everything is OK! Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted December 3, 2013 Share Posted December 3, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted December 3, 2013 Share Posted December 3, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
T'smom Posted December 3, 2013 Share Posted December 3, 2013 Hope you got some answers (good ones!) today! Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted December 3, 2013 Author Share Posted December 3, 2013 Alrighty, I am waiting to hear back from DS's doctor. The doctor had been debating decreasing this medication (it is an immunosuppressant) with the flu season fast approaching and I wouldn't be surprised if this will just speed up that process. DS is good through the last week in January with what I have now. The drug is on back order and the manufacture will not resume making it until the end of January. I plan to talk to the pharmacy to get contact information for other manufactures and find out if anyone else will continue manufacturing it between now and then. Quote Link to comment Share on other sites More sharing options...
mysticmomma Posted January 12, 2014 Share Posted January 12, 2014 Any update op? Quote Link to comment Share on other sites More sharing options...
Χά�ων Posted January 12, 2014 Author Share Posted January 12, 2014 Yep! The pharmacy is now using a different manufacture. :) Quote Link to comment Share on other sites More sharing options...
trulycrabby Posted January 12, 2014 Share Posted January 12, 2014 Wonderful news! That was very nerve-wracking! My sister is disabled, so I know how life-changing and frightening it can be when an essential, necessary-for-life medication becomes unavailable. Quote Link to comment Share on other sites More sharing options...
SweetMissMagnolia Posted January 12, 2014 Share Posted January 12, 2014 oh man how scary...... :grouphug: hope you get better answers on Monday so you can plan or do whatever needs to be done to get the meds...... Quote Link to comment Share on other sites More sharing options...
Peaceful Isle Posted January 12, 2014 Share Posted January 12, 2014 Oh wow, what a scare! Glad everything is okay now. Quote Link to comment Share on other sites More sharing options...
Spryte Posted January 12, 2014 Share Posted January 12, 2014 Whew. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted January 13, 2014 Share Posted January 13, 2014 :hurray: Quote Link to comment Share on other sites More sharing options...
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