Impish Posted March 24, 2011 Share Posted March 24, 2011 I'm going for a bone scan today. As I understand it, if the scan shows I've lost bone density, its an objective, quantifiable RSD 'proof'. Unfortunately, it puts me on the road for osteoporosis in my arm, as well as osteo-arthritis. If the physio I've done at home all this time has kept me from having bone loss, the Drs aren't going to be happy, b/c pain is subjective, and whatever the patient says it is. Yesterday, I was given word that I'll be going for 'autonomic' testing. Basically they put electrodes on me and zap the hell out of my bad arm. To test the conduction of the nerves. Thinking about it makes me want to throw up. Violently. The 'upside' to all of this is, if there has been bone loss, and they find out whatever they're looking for through the zapping test (something other than me screaming, of course) it may be enough 'proof' for them, and I won't have to go through a physical exam where they torque me all around, and I'm always sobbing before they're even half done. If you don't mind me asking for support again, I'd really appreciate it. I'm praying that the testing shows the Drs what they need to know, and I won't have to go through a physical exam, that the tests clearly show RSD, and they'll be satisfied. Quote Link to comment Share on other sites More sharing options...
Unicorn. Posted March 24, 2011 Share Posted March 24, 2011 While I don't wish arthritis on anyone, I will pray that they have their answer quickly, and w/out causing you too much pain. :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
8circles Posted March 24, 2011 Share Posted March 24, 2011 Oh, that sounds awful Impish! I'll be praying for you... keep us updated. Quote Link to comment Share on other sites More sharing options...
Kim in Appalachia Posted March 24, 2011 Share Posted March 24, 2011 I'll be praying for you. :grouphug: Quote Link to comment Share on other sites More sharing options...
Parrothead Posted March 24, 2011 Share Posted March 24, 2011 Aw, sheesh Imp. I wish they'd just leave you alone. Seems they should have all the evidence they need by now. Want me to punch someone for you? If I could be there with you I would. Since I can't I'll pray for you. Quote Link to comment Share on other sites More sharing options...
Mommyfaithe Posted March 24, 2011 Share Posted March 24, 2011 :grouphug: praying for you. Dd just went through the zap test and was nervous as all heck, but is wasn't as bad as she expected. It was weird and uncomfortable, but not terribly painful....and her tolerance is very low. Faithe Quote Link to comment Share on other sites More sharing options...
Impish Posted March 24, 2011 Author Share Posted March 24, 2011 Thanks everyone. Faithe, I've been through the zap test on my good arm, and it was painful for me. The Dr even said that he wasn't going to touch my bad arm, because I'd be screaming. Intellectually, I *know* why they're doing this. They want clear, objective, quantifiable information. The problem with RSD is that it doesn't always have visible signs. Pain's still there, but outwardly there's no colour change, swelling, or coldness. In that case, they have to rely solely on case history for RSD diagnosis. And on me saying what level the pain is at. Chuckie, I'd unleash you on my case manager, just for all the jerking around she's done to me so far. That reminds me...I have to call her again. She only extended my med coverage til Apr 1st. I have no idea why she thinks that they won't have to pay for my meds after the Panel, but she does. Considering they're about $1000 a month, I can't afford for them not to be covered!! Quote Link to comment Share on other sites More sharing options...
dirty ethel rackham Posted March 24, 2011 Share Posted March 24, 2011 Praying for you, Imp! Quote Link to comment Share on other sites More sharing options...
Lovedtodeath Posted March 24, 2011 Share Posted March 24, 2011 Thinking of you. Keep us updated please! Carmen Quote Link to comment Share on other sites More sharing options...
Starr Posted March 24, 2011 Share Posted March 24, 2011 Praying for you. What an awful test! I really hope it's helpful. Will look for the update! Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted March 24, 2011 Share Posted March 24, 2011 :grouphug::grouphug::grouphug: Praying, Imp. Quote Link to comment Share on other sites More sharing options...
Perry Posted March 24, 2011 Share Posted March 24, 2011 :grouphug::grouphug::grouphug: I've been through the zap test on my good arm, and it was painful for me. I've had it too and found it quite painful. I'm sorry you have to go through this. Can they give you some ketamine? Maybe that would screw up the results though. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted March 24, 2011 Share Posted March 24, 2011 I am praying for you right now. :grouphug: HINT: When they are done zapping you, have Wolf tie them up with the electrical cord.;) Lots of prayers - go home and rest when it's over.:grouphug: Quote Link to comment Share on other sites More sharing options...
momofkhm Posted March 24, 2011 Share Posted March 24, 2011 Yesterday, I was given word that I'll be going for 'autonomic' testing. Basically they put electrodes on me and zap the hell out of my bad arm. To test the conduction of the nerves. ((Impish)) I soo feel for you! I had this done in December and it was uncomfortable for me. I can't imagine how you will be. For me it was very short pains but pain nonetheless. Thankfully it was done quickly! Yes, I do hope something shows quickly and they don't have to do everything possible to "prove" you have RSD. Quote Link to comment Share on other sites More sharing options...
thessa516 Posted March 25, 2011 Share Posted March 25, 2011 :grouphug: Quote Link to comment Share on other sites More sharing options...
specialmama Posted March 25, 2011 Share Posted March 25, 2011 :grouphug: praying you're doing okay. I just called you but nobody answered which has me even more worried... please call when you get a chance... when Wolf told me what the test entailed the other night I wanted to puke for you. It just sounded cruel. I'm so sorry they're doing this. Hopefully they'll find what they're looking for, I mean, enough that you won't have to do this stuff again. :grouphug: Quote Link to comment Share on other sites More sharing options...
Terabith Posted March 25, 2011 Share Posted March 25, 2011 Any word from Imp? Praying for and worrying about her. That sounds so brutal and horrific. Quote Link to comment Share on other sites More sharing options...
Ibbygirl Posted March 25, 2011 Share Posted March 25, 2011 Oh sweetie, you've been through so much. I pray that the tests speak loud and clear and are irrefutable. Praying for you. :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted March 25, 2011 Share Posted March 25, 2011 I've got an idea for a test. You punch someone, and if you scream louder than they do, you really do have RSD. Surely there's some law against torture... :grouphug: Rosie Quote Link to comment Share on other sites More sharing options...
tex-mex Posted March 25, 2011 Share Posted March 25, 2011 Oh sweetie, you've been through so much. I pray that the tests speak loud and clear and are irrefutable. Praying for you. :grouphug: :grouphug: :iagree::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Halftime Hope Posted March 25, 2011 Share Posted March 25, 2011 Imp, when you get back to us, please know that we (everyone on the boards) have been thinking about you and many of us are praying for you as you go through this. :grouphug: Sending loving thoughts your way! Quote Link to comment Share on other sites More sharing options...
3lilreds in NC Posted March 25, 2011 Share Posted March 25, 2011 Imp, I hope you're OK after all this nonsense. Praying here too. :grouphug: Quote Link to comment Share on other sites More sharing options...
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