Impish Posted May 20, 2011 Share Posted May 20, 2011 I haven't received the final outcome of the medical panel yet, but apparently should by next Friday. BUT...I was told that they had to edit part of the report due to the results *finally* coming in this wk from the 3 hr torture test I went through back the beginning of April. Got those today. Long story short, this is the results of the testing: "This is an abnormal study. There is evidence of abnormal responses on sudomotor (sweat), vasomotor (thermal) and sensory perception testing in the right upper limb. These findings support the diagnosis of Complex Regional Pain Syndrome (RSD)" THANK YOU GOD!!! I was so terrified, esp when I was told the report needed to be edited due to the test results. I *knew* that my response to the testing wasn't 'normal', but my big fear was that the results would be 'inconclusive' and they'd make me go through all of that Hell again. I feel dizzy and nauseated, I'm so relieved. Now, just praying that the MPO agrees with my Drs now that they have objective proof of the dx, and things will be so excellent. Thank you to all who've prayed about this, and given me so much support, and those who've continued to do so. :grouphug: Quote Link to comment Share on other sites More sharing options...
newlifemom Posted May 20, 2011 Share Posted May 20, 2011 I'm glad that you got the dx you wanted, but sad that you got the dx. :grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted May 20, 2011 Author Share Posted May 20, 2011 I've had this dx for almost 3 yrs. The problem with RSD is that the visible, objective signs come and go, so it can be very, very hard to 'prove' every time you see a new specialist. The pain is constant, but not the swelling, temp differences, colour changes. So, this test is pretty much the only one that exists that tests the nervous system, and is considered proof. So, while I wish I *didn't* have RSD, finally having inarguable proof does a lot to relieve my mind. If nothing else, it should put an end to any further testing, since the results are completely objective, can't be manipulated or faked. Quote Link to comment Share on other sites More sharing options...
TheReader Posted May 20, 2011 Share Posted May 20, 2011 So glad you finally got this proof and hoping it really does do all that it should for you and stop the testing, etc. This should make it a yes for the disability, right? (sorry, I'm new-ish and only patching together bits and pieces of your posts I've read in recent weeks....) In any case, happy you finally have a piece of paper backing you up. I know that is a valuable thing. Quote Link to comment Share on other sites More sharing options...
Audrey Posted May 20, 2011 Share Posted May 20, 2011 I've had this dx for almost 3 yrs. The problem with RSD is that the visible, objective signs come and go, so it can be very, very hard to 'prove' every time you see a new specialist. The pain is constant, but not the swelling, temp differences, colour changes. So, this test is pretty much the only one that exists that tests the nervous system, and is considered proof. So, while I wish I *didn't* have RSD, finally having inarguable proof does a lot to relieve my mind. If nothing else, it should put an end to any further testing, since the results are completely objective, can't be manipulated or faked. Finally, you won't have to keep proving yourself all the time! It must be horribly frustrating to have to keep saying, "No, I really DO have RSD." Now the next time someone gets up in your grill about it, you can just shove that report in their face and raspberry the heck out of them. :D Quote Link to comment Share on other sites More sharing options...
Impish Posted May 20, 2011 Author Share Posted May 20, 2011 So glad you finally got this proof and hoping it really does do all that it should for you and stop the testing, etc. This should make it a yes for the disability, right? (sorry, I'm new-ish and only patching together bits and pieces of your posts I've read in recent weeks....) In any case, happy you finally have a piece of paper backing you up. I know that is a valuable thing. Disability is a different kettle of fish. I'm dealing with the medical panel, which in turn will tell Worker's Comp what the medical perspective is on my case, in terms of if I can work (my Drs all say no, not at all) or not. Finally, you won't have to keep proving yourself all the time! It must be horribly frustrating to have to keep saying, "No, I really DO have RSD." Now the next time someone gets up in your grill about it, you can just shove that report in their face and raspberry the heck out of them. :D I truly hope that is how it works, that it will mean the end of testing. It *should*, but I am dealing with WCB. :lol: Quote Link to comment Share on other sites More sharing options...
TheReader Posted May 20, 2011 Share Posted May 20, 2011 Disability is a different kettle of fish. I'm dealing with the medical panel, which in turn will tell Worker's Comp what the medical perspective is on my case, in terms of if I can work (my Drs all say no, not at all) or not. I truly hope that is how it works, that it will mean the end of testing. It *should*, but I am dealing with WCB. :lol: Ah, gotcha. Thanks for clarifying. What a complicated mess! I do hope this takes care of it, though, and that WC listens and accepts the Medical Board's take on things. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted May 20, 2011 Share Posted May 20, 2011 Imp! I'm so glad that it didn't show up as inconclusive! Quote Link to comment Share on other sites More sharing options...
Liz CA Posted May 20, 2011 Share Posted May 20, 2011 Imp, I hope things will get better for you - perhaps one day you will even happen upon something that will alleviate the pain, at least to some degree. Quote Link to comment Share on other sites More sharing options...
Impish Posted May 20, 2011 Author Share Posted May 20, 2011 Imp! I'm so glad that it didn't show up as inconclusive! I know!!! What a relief! Worker's Comp is bound by the determination made by the medical panel, as am I. Neither party can appeal. So, whatever they say goes. Quote Link to comment Share on other sites More sharing options...
Perry Posted May 20, 2011 Share Posted May 20, 2011 The problem with RSD is that the visible, objective signs come and go, so it can be very, very hard to 'prove' every time you see a new specialist. I'm so relieved that you had a definitive test. Would it be helpful to take pictures when your arm looks abnormal, in case you have to change doctors at some point? :grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted May 20, 2011 Author Share Posted May 20, 2011 No, pics wouldn't help. Too easily altered, and it has to be based on what objective evidence the Dr witnesses first hand. Quote Link to comment Share on other sites More sharing options...
Jen in PA Posted May 20, 2011 Share Posted May 20, 2011 It's awful that you had to go through all of that to prove what you knew all along. :grouphug: Quote Link to comment Share on other sites More sharing options...
Perry Posted May 20, 2011 Share Posted May 20, 2011 No, pics wouldn't help. Too easily altered, and it has to be based on what objective evidence the Dr witnesses first hand. Sorry, I should have explained better. I was thinking it could be taken by your doctor and be part of your medical chart. Quote Link to comment Share on other sites More sharing options...
Impish Posted May 20, 2011 Author Share Posted May 20, 2011 Sorry, I should have explained better. I was thinking it could be taken by your doctor and be part of your medical chart. Its never come up, but an interesting idea. Thing is, most of the testing is all IME. One time, don't have my chart, exams. Over and over again, different Drs every time, b/c Worker's Comp is a bunch of butt heads. *My* drs examined me once, apologizing the entire time. They'll do a visual exam, but not torque my arm around, b/c they know its RSD. None of my Drs are sadists. WCB Drs...:confused: Quote Link to comment Share on other sites More sharing options...
Perry Posted May 20, 2011 Share Posted May 20, 2011 Its never come up, but an interesting idea. Thing is, most of the testing is all IME. One time, don't have my chart, exams. Over and over again, different Drs every time, b/c Worker's Comp is a bunch of butt heads. *My* drs examined me once, apologizing the entire time. They'll do a visual exam, but not torque my arm around, b/c they know its RSD. None of my Drs are sadists. WCB Drs...:confused: :cursing::banghead: Quote Link to comment Share on other sites More sharing options...
Diane in CO Posted May 20, 2011 Share Posted May 20, 2011 Finally, you won't have to keep proving yourself all the time! It must be horribly frustrating to have to keep saying, "No, I really DO have RSD." Now the next time someone gets up in your grill about it, you can just shove that report in their face and raspberry the heck out of them. :D :iagree: I always love reading your posts Audrey! This one made me :lol: Quote Link to comment Share on other sites More sharing options...
Impish Posted May 20, 2011 Author Share Posted May 20, 2011 Finally, you won't have to keep proving yourself all the time! It must be horribly frustrating to have to keep saying, "No, I really DO have RSD." Now the next time someone gets up in your grill about it, you can just shove that report in their face and raspberry the heck out of them. :D The *best* is when I tell them I have RSD, and get told that, "I haven't made that determination yet." Yeah, cause the OTHER 4 drs (or 5, or 6) have no clue about what they're doing...:banghead: Quote Link to comment Share on other sites More sharing options...
KnitWit Posted May 20, 2011 Share Posted May 20, 2011 I am glad you got definitive results. :grouphug: I will continue to pray for this whole situation. You need a looooonnnngggg vacation when this is all finally over. Quote Link to comment Share on other sites More sharing options...
Impish Posted May 20, 2011 Author Share Posted May 20, 2011 I am glad you got definitive results. :grouphug: I will continue to pray for this whole situation. You need a looooonnnngggg vacation when this is all finally over. From your lips/finger tips to God's ears! Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted May 22, 2011 Share Posted May 22, 2011 I just saw this, Imp. :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Tap Posted May 22, 2011 Share Posted May 22, 2011 I have thought about you so much this month, wondering, hoping, and praying that you will come out ahead. I am glad that at least this milestone has been cleared. I will pray for continued success on your case! Quote Link to comment Share on other sites More sharing options...
Teachin'Mine Posted May 22, 2011 Share Posted May 22, 2011 Wonderful news Impish!!! Praying for more good news soon! :) Quote Link to comment Share on other sites More sharing options...
Impish Posted May 22, 2011 Author Share Posted May 22, 2011 Thanks for responding. With a postal strike looming for Wed, I think I'm going to call the mpo on Tues (Mon is a holiday here) and ask them to fax me the report. Otherwise, it could be heaven knows when before I get the report. That this is almost at an end is making my stomach churn and me to break out in goosebumps. Quote Link to comment Share on other sites More sharing options...
Hedgehog Posted May 22, 2011 Share Posted May 22, 2011 Wahey!!! That is great news! :party: :grouphug::grouphug::grouphug: continuing to pray for a good outcome.. Quote Link to comment Share on other sites More sharing options...
Mommyfaithe Posted May 22, 2011 Share Posted May 22, 2011 I've had this dx for almost 3 yrs. The problem with RSD is that the visible, objective signs come and go, so it can be very, very hard to 'prove' every time you see a new specialist. The pain is constant, but not the swelling, temp differences, colour changes. So, this test is pretty much the only one that exists that tests the nervous system, and is considered proof. So, while I wish I *didn't* have RSD, finally having inarguable proof does a lot to relieve my mind. If nothing else, it should put an end to any further testing, since the results are completely objective, can't be manipulated or faked. :grouphug::grouphug: Now try to relax a little. Oh, Imp....I am glad this torture is finally over....but I am still praying for a healing. Faithe Quote Link to comment Share on other sites More sharing options...
Tammyla Posted May 22, 2011 Share Posted May 22, 2011 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Beach Mom Posted May 22, 2011 Share Posted May 22, 2011 :grouphug::grouphug: I love answered prayers! We will pray now that this WCB road ends soon and you can get on with your life without their intrusions. Quote Link to comment Share on other sites More sharing options...
Scarlett Posted May 22, 2011 Share Posted May 22, 2011 :grouphug: Good news. Quote Link to comment Share on other sites More sharing options...
FaithManor Posted May 22, 2011 Share Posted May 22, 2011 Imp, I am so glad for the report. I am still praying that the outcome is favorable for you. I am NOT happy about the torture you had to get through to arrive at this point. But, thankfully, the report says what it needs to say. Still cheerleading for you, Faith, who is wondering, if you normally have to pay the bills through the mail, is the strike carte blanche to not pay???? Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted May 22, 2011 Share Posted May 22, 2011 I was really hoping the truth would be on your side!!! Quote Link to comment Share on other sites More sharing options...
Impish Posted May 22, 2011 Author Share Posted May 22, 2011 Imp, I am so glad for the report. I am still praying that the outcome is favorable for you. I am NOT happy about the torture you had to get through to arrive at this point. But, thankfully, the report says what it needs to say. Still cheerleading for you, Faith, who is wondering, if you normally have to pay the bills through the mail, is the strike carte blanche to not pay???? I've had several emails reminding me I can access my bills online, so nope, I'd say everything still needs to be paid! The rest solely resides on the mpo report, and then what WCB does, and how quickly. We've pretty much decided we won't be moving this year as we'd hoped. There's just far too much that would have to come together perfectly to make it happen (needing a new vehicle for one), so we're now aiming for April. Sucks, I really wanted to be in *my* house for Christmas, but...I think I'd go nuts and lose it from the stress of trying to get everything done in just a few months. And we have a 'finish date', which goes a long way to helping temper concerns. All depends on WCB. Unless, of course, we win the lotto. Then all bets are off. :tongue_smilie: Quote Link to comment Share on other sites More sharing options...
Impish Posted May 22, 2011 Author Share Posted May 22, 2011 I was really hoping the truth would be on your side!!! Is it just me, or does it rather suck when you have to *pray* that the truth is heard and recognized? Wouldn't you think that the truth is the dang truth and would be valued as such, instead of having to be tested, poked, prodded, pulled, over and over again, despite having proven it half a dozen times before? I'm still a bit resentful of all the testing. Glad it provend what it needed to, but it HURT dang it! Quote Link to comment Share on other sites More sharing options...
AuntieM Posted May 22, 2011 Share Posted May 22, 2011 My dear, I would get a few hard copies of that signed, notarized, and stashed in a safe place pronto! I am so glad for you that they were able to observe your difficulty and make a statement supporting a diagnosis. Time for Wolf to brush up his resume... Quote Link to comment Share on other sites More sharing options...
Hedgehog Posted May 22, 2011 Share Posted May 22, 2011 Is it just me, or does it rather suck when you have to *pray* that the truth is heard and recognized? Wouldn't you think that the truth is the dang truth and would be valued as such, instead of having to be tested, poked, prodded, pulled, over and over again, despite having proven it half a dozen times before? I'm still a bit resentful of all the testing. Glad it provend what it needed to, but it HURT dang it! :grouphug::grouphug::grouphug: I have a dear friend who has hypoglycaemia. He was medically oriented enough to know that he had it, all the signs were there, but the GP insisted on tests - specifically the fasting glucose test, and it he said it was one of the most vile experiences of his life - shaking, sweating, feeling terribly dizzy, even drooling for lack of control - horrible. By choice he doesn't eat sugar, so to be given repeated doses of glucose on an empty stomach, first thing in the morning, for a test that he didn't want to have to take anyway, was the outside of enough. Fortunately, like in your case, the results were so conclusive that the GP was even taken aback.. but yes, it sucks. Big time. Quote Link to comment Share on other sites More sharing options...
Impish Posted May 22, 2011 Author Share Posted May 22, 2011 AuntieM, we've decided to basically stay put til next Apr, barring any miracles. There's just too much to get done for us to be resettled across country no later than Sept 1st. If a miracle happens, then great...but otherwise, I feel like we were just setting ourselves up to fail. Quote Link to comment Share on other sites More sharing options...
AuntieM Posted May 22, 2011 Share Posted May 22, 2011 AuntieM, we've decided to basically stay put til next Apr, barring any miracles. There's just too much to get done for us to be resettled across country no later than Sept 1st. If a miracle happens, then great...but otherwise, I feel like we were just setting ourselves up to fail. I noticed that when I went back and read all the replies (after adding my two cents :tongue_smilie:). I think that's great if that seems best to both you and Wolf. I agree that you may have been too rushed to go fast, a move takes a lot of energy. You'll want to take it slow and steady so you can actually enjoy the adventure in the relocation process. Hoping all the rest of the official decisions come in with no room for questions or doubting. Quote Link to comment Share on other sites More sharing options...
Impish Posted May 22, 2011 Author Share Posted May 22, 2011 AuntieM, you have a PM. Quote Link to comment Share on other sites More sharing options...
asta Posted May 23, 2011 Share Posted May 23, 2011 The *best* is when I tell them I have RSD, and get told that, "I haven't made that determination yet." Yeah, cause the OTHER 4 drs (or 5, or 6) have no clue about what they're doing...:banghead: It took me 23 years for someone to clue-in to what was wrong with me, and the last three of them (+ the last 2 most recent years) was spent attempting to convince every doctor (save one! bless him!) I got shuffled to that "yes, this is really what is going on." I finally said to the neurologist who "believed me" (and actually did all the correct tests, at the correct times): "What is it with you guys? Do you each have to p!ss on the tree for it to be valid?" He laughed and said "for some, yes - not for me". asta Quote Link to comment Share on other sites More sharing options...
Impish Posted May 23, 2011 Author Share Posted May 23, 2011 It took me 23 years for someone to clue-in to what was wrong with me, and the last three of them (+ the last 2 most recent years) was spent attempting to convince every doctor (save one! bless him!) I got shuffled to that "yes, this is really what is going on." I finally said to the neurologist who "believed me" (and actually did all the correct tests, at the correct times): "What is it with you guys? Do you each have to p!ss on the tree for it to be valid?" He laughed and said "for some, yes - not for me". asta Exactly! That seems to be it in a nutshell! Quote Link to comment Share on other sites More sharing options...
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