Slache Posted June 18, 2020 Share Posted June 18, 2020 (edited) He diagnosed me with Epilepsy and sleeping disorder unspecified. So my seizures haven't changed, but I'm seizing in my sleep and that changes my perception of events. I'm getting some imaging and going on medication for epilepsy. Yay. Eta: Someone asked if I have sleep apnea or similar and I just wanted to clarify that I just sleepwalk. I'm not in any danger or anything. Edited June 19, 2020 by Slache 4 12 Quote Link to comment Share on other sites More sharing options...
Annie G Posted June 18, 2020 Share Posted June 18, 2020 I’m sorry. Hope the medication helps. 1 Quote Link to comment Share on other sites More sharing options...
Slache Posted June 18, 2020 Author Share Posted June 18, 2020 I'm not really upset. I pretty much expected what I got. 5 Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted June 18, 2020 Share Posted June 18, 2020 Praying that medicine works for you! 2 Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted June 18, 2020 Share Posted June 18, 2020 Hugs I hope the medication helps 1 Quote Link to comment Share on other sites More sharing options...
Carol in Cal. Posted June 18, 2020 Share Posted June 18, 2020 I'm so sorry. It's amazing what meds for this can do these days. 1 Quote Link to comment Share on other sites More sharing options...
katilac Posted June 18, 2020 Share Posted June 18, 2020 That had to be tough to hear, but meds and treatment have really come such a long way. I hope you and your doctor come up with an effective treatment plan really quickly. 2 Quote Link to comment Share on other sites More sharing options...
Slache Posted June 18, 2020 Author Share Posted June 18, 2020 Y'all! It's gonna be okay! I'm really okay! No surprises today, I'm just updating you from my last post. Go have some ice cream. 8 1 3 Quote Link to comment Share on other sites More sharing options...
Slache Posted June 19, 2020 Author Share Posted June 19, 2020 21 minutes ago, Seasider too said: You are such a good sport! I may have missed this earlier - was epilepsy something you thought a possible diagnosis, or was it a surprise to you? I hope you are able to adjust to the medication quickly and easily. I have a history of seizures and the doctor pretty much said "you are a person who has seizures" so while I wasn't expecting a clear diagnosis like epilepsy, it's just applying a word to what's been my experience for... 23 years? Ish? 2 Quote Link to comment Share on other sites More sharing options...
Ottakee Posted June 19, 2020 Share Posted June 19, 2020 Hopefully the meds will be effective for you. 1 Quote Link to comment Share on other sites More sharing options...
J-rap Posted June 19, 2020 Share Posted June 19, 2020 Oh wow, so have you gone all these years without a diagnosis or meds? We have epilepsy in my family of origin. Did it only play out in your sleep? Curious because actually BOTH my dh and I have direct family members with epilepsy, and I know it's often genetic. A couple of my children have sleep disorders, so just wondering about this... Hope the meds help and you sleep well! Quote Link to comment Share on other sites More sharing options...
Slache Posted June 19, 2020 Author Share Posted June 19, 2020 3 minutes ago, J-rap said: Oh wow, so have you gone all these years without a diagnosis or meds? We have epilepsy in my family of origin. Did it only play out in your sleep? Curious because actually BOTH my dh and I have direct family members with epilepsy, and I know it's often genetic. A couple of my children have sleep disorders, so just wondering about this... Hope the meds help and you sleep well! My seizures are disassociative (my wording) and not dangerous. They started when I was 11 but didn't hinder me at all. No diagnosis that I know of and no meds. I do not have epilepsy in my FOO. It was never in my sleep that I noticed but I've had some complications this pregnancy that make current events not completely shocking. My sleep issue is that I'm a sleepwalker, so I'm sleepwalking while seizing. All 3 of my children sleepwalk, none have ever had a seizure. Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted June 19, 2020 Share Posted June 19, 2020 I'm glad you have a diagnosis but it wish it were something less serious. I hope that the meds help you tremendously. 1 Quote Link to comment Share on other sites More sharing options...
Ellie Posted June 19, 2020 Share Posted June 19, 2020 ((((slache))))) 1 Quote Link to comment Share on other sites More sharing options...
umsami Posted June 19, 2020 Share Posted June 19, 2020 (edited) Glad that you have a dx and a treatment plan. Wishing and praying for the best possible outcome for you. ❤️ One of the original uses of the keto diet was to treat seizures in children. You might want to ask your neuro if there's any indication/research that shows if that could be helpful in adults. Edited June 19, 2020 by umsami 1 Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted June 19, 2020 Share Posted June 19, 2020 I consider it a good neuro appointment if you actually got answers! We've been living this for 23 years also--with dd. So do they start meds before you have baby? 1 Quote Link to comment Share on other sites More sharing options...
Slache Posted June 19, 2020 Author Share Posted June 19, 2020 16 minutes ago, Ali in OR said: I consider it a good neuro appointment if you actually got answers! We've been living this for 23 years also--with dd. So do they start meds before you have baby? Yes, right away. To my understanding the meds are just to prevent a grand mal, which I've never had. A better safe than sorry kind of thing. 3 Quote Link to comment Share on other sites More sharing options...
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